39 and going to urologist for abnormal prostate

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Big Ed 68
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 6/24/2007 7:05 PM (GMT -7)   
Hello all,
I'm 39, just went in for my annual physical with the company doctor. I had my first prostrate exam and he said he felt a soft mass on top of my left gland. He told me to get it checked out with my family Doctor and he confirmed it. My family doctor refered me to a Urologist and said he would most likely give me a PSA teat and maybe a biopsy. My appointment is on 7/12/07 and I'm pretty scared. My family doctor told me I'm pretty young for prostate cancer but what I've been reading it seems more and more people are getting it detected early.
I'm married and have 3 kids (I've alreay had an vasectomy (spelling??)) so that's not an issue.
I don't have any of the other warning signs. I was hoping to hear from others in my age group and their stories about getting tested.
 
Keeping my fingers crossed,
Ed

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/24/2007 7:29 PM (GMT -7)   

Hi ~ Ed & Loved One,

 

                Welcome to…

                                      HealingWell

                                                                                            and

 

                  A   Special   Warm Welcome  to  You!   yeah   

 

We are looking forward to walking with you as you step onto the next stepping-stone in your path.  You truly have come to the right place.  Thank you so much for reaching out to all of us. 

 

This forum is so special… which you will soon find out!  The sharing shows we care and you realize You Are Not Alone.  We accept your fears ~ because we’ve been there…  We feel your tears ~ because we’ve shed them.  So ~ continue to post and let us travel this path with you! 

 

We have no problem sending you on your way if the biopsy comes back negative!!! 

But ~ something to remember….

 

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

Keeping you close in thoughts and prayers as you move forward…

 

In Friendship ~ Lee & Buddy

 

 

We hope this link helps you!! Scroll down to the 3rd posting when you get there for some quick links..

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)

mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

 

 « bluebird ~ Moderator for Prostate Cancer Forum


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 6/24/2007 7:39 PM (GMT -7)   
Hey Big Ed, I was 43 at Diagnosis and open RRP. I too went for annual physical from my GP. He just ran a PSA and it was elivated. Not sure what that reading was? He sent me to my urologist. He did DRE and Free PSA. Dr. felt some firming on left side. Free PSA came back at 5.7. 12 core biopsy was next. 3 of 12 were positive.

My whole story is on KW's Journey. Probably a few pages back now?

Good Luck...
KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
   


Big Ed 68
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 6/24/2007 8:02 PM (GMT -7)   

Thanks KW,

I read your journey. WOW! You have been through a lot and I wish you the best.

I'll let you know my findings when I go get tested.

 

Ed


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 6/24/2007 8:10 PM (GMT -7)   

BigEd:

You will note in KW's post he mentioned the "free" PSA - good tool in case there is a question as to whether you should go for a biopsy or not if your PSA is elevated.

Hoping all is OK and you can just use this PSA as a starting point to track future testing.

Dutch

 


Diagnosed Feb 2001  (Age 65)  Currently 71
PSA 4.8
Gleason 3 + 3 = 6
T2b
Completed Proton therapy @ Loma Linda - Aug 2001
5yr PSA   0.17
Have had no side effects.


AEG
Regular Member


Date Joined Nov 2005
Total Posts : 154
   Posted 6/24/2007 8:13 PM (GMT -7)   
Hi Big Ed,

Welcome! Please try not to worry unless you find out something for certain. I personally know of someone that have a positive DRE and had a negative biopsy - so it's very possible that it's nothing. Make sure you ask your doc to run a free-psa as well as a regular psa and have it done at a very reliable lab. My opinion is that you shouldn't rush into a biopsy unless your psa / free-psa are out of range or there's a family history. Go for another opinion if necessary.

I recently asked a similar question and here is the link:

http://www.healingwell.com/community/default.aspx?f=35&m=833712

Hi ~ AEG,

I hope this helps! ~ Lee


Excerpt from: “Dr. Peter Scardino's Prostate Book” 2006
Peter T. Scardino, M.D.
Chairman of the Department of Urology ant Memorial Sloan-Kettering Cancer Center and
Judith Kelman
Chapter 9 Page 150

The results of a digital rectal exam (DRE) are highly subjective. The same thing one doctor finds suspicious might be entirely overlooked or deemed insignificant by a different examiner. Tiny lumps or bulges may represent meaningless calcifications or benign enlargement of the glad. Only one in five abnormal DRE’s turns out to be cancer.3

3 Catalona WJ, Richie JP, Ahmann FR, Hudson MA, et al: Comparison of digital rectal examination and serum prostate specific antigen in the early detection of prostate cancer: results of a multicenter clinical trial of 6,630 men. J Urol 1994; 1283-1290.

I found this link …but the percentage shows 1 in 4

http://www.prostatecancer.realage.com/content.aspx/topic/34

Excerpt from “Dr. Patrick Walsh’s Guide to Surviving Prostate Cancer”…(Give Yourself a Second Opinion) 2001

Patrick C. Walsh, M.D.
Professor of Urology, The Johns Hopkins Medical Institutions and
Janet Farrar Worthington
Chapter 5 Page 111

PSA is prostate-specific, not cancer-specific. This is why a blood test alone isn’t enough, why a digital rectal exam is also a must. You can have prostate cancer and still have a low PSA level. And, just because you have a high PSA does not necessarily mean you have prostate cancer—many men with high PSA levels don’t. about a quarter of men who turn out to have prostate cancer have a low PSA level, less than 4 nanograms per milliliter. about 25 percent of men with a PSA between 4 and 10 turn out to have cancer.


Best of luck to you and keep us posted.

AEG

Rick Roma
Regular Member


Date Joined Jun 2007
Total Posts : 37
   Posted 6/27/2007 10:13 AM (GMT -7)   
ED..... you are so very young to be going through this. I am older and in the same situation. It certainly is scary. Still waiting for my results.... my PSA was normal, but felt something abnormal on my prostate.... but nothing comparable to what others on this site have been going through..... I wish you all the very best.

Richard
There is a special church here nestled deep
in the forest.... a beautiful bell hangs at the very top.... it only stops ringing.  When you come through the forests for your voice takes its place....   Richard


Big Ed 68
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 7/2/2007 2:58 PM (GMT -7)   

Rick,

Thanks for your concern! The waiting is starting to get to me. Everyone tells me I'm too young but the more I read, the more I discover young men getting this too. I go in for my appointment on the 12th of July. Not too long from now but long enough. I'm not sure what the Urologist will want to do but I suspect a PSA test first and go from there.

Good luck with your results, I hope it is all normal.

 

Thanks friend,

Ed


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 7/2/2007 4:14 PM (GMT -7)   
Hi Ed,
I am 45 and was diagnosed last year. While I find it unusual that your family Dr. did not run a PSA test right then and right there, he is giving you good advice on seeing the urologist. Stay the course and don't let the waiting get you too down. PCa can be a very slow disease and this time is probably only anguish rather than danger. AND you don't even know that this is for sure what you have. Stay healthy and stay positive.

Good Luck, and if you do find yourself dealing with this stupid disease, we'll be here...

Tony

Big Ed 68
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 7/2/2007 5:58 PM (GMT -7)   

Tony,

Thanks for the advice. I too wish he would have given me the test and if I knew then what I know now I would have asked for it.

Did you find out from a Prostate exam or just through the blood test first. How did they treat it, did you have surgery?

Thanks again and my best wishes to you,

Ed


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 7/2/2007 6:16 PM (GMT -7)   
In summary I was diagnosed with a blood test during a physical in October last year. I was a negative DRE at that time. However, I had surgery in February and it was concluded after that surgery that I had advanced disease (late stage III). I am currently undergoing additional adjuvant therapies including radiation and hormone therapy. I feel great and walk 3 miles every morning. My disease is showing signs of remission and with God's helping hand I can get through this just fine.

Thank you for your well wishes and keep the faith that you will be fine. Veteran1 just wrote a great piece on positive attitude and hop over to that link and have a look. In it you see a strong will to live from him. I hope you don't have this disease, but if a DRE is positive and a blood test is still in a safe zone, maybe a biopsy or another PSA is in order. The rule of thumb is >4ng is strongly hinting of PCa but also a 1 that went to a 2.5 is also a point of concern. I don't want to worry you, but this is your life and I'd hate to see you miss an opportunity. You are in control of the next step if it is needed, not your doctors.

Tony

sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted 7/2/2007 6:29 PM (GMT -7)   

Big Ed,

I was 45 when first diagnosed.....39 would be one of the youngest I've heard of, but you're on the right track.  Read up on this stuff a bit, BUT DON'T LET YOUR IMAGINATION RUN WILD --- been there, done that and it doesn't help!

Since you're getting this all checked out, just assume you don't have PC...(easier said than done!)....but even if you have a problem, this is a very manageable afflection for the vast majority of sufferers...HANG IN THERE!

 


Sterd82
Age 47
Initial PSA march of 2006: 28
PSA May of 2006: 39
8 of 12 cores malignant
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
Post surgury PSA fluctuated between .04 and .09
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sessions of IMRT Ended Feb 1, 2007
PSA as of May 25, 2007 undetectable
Next PSA November, 2007


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 7/2/2007 7:33 PM (GMT -7)   
Hi Big Ed,

You've found friends here who understand exactly what you're going through so stay with us.

Let's hope for the best and why not!

Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows distant lymph node involvement
Restage IV Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3
06/06/07 - 0.1


kdnole
Regular Member


Date Joined Jun 2007
Total Posts : 152
   Posted 7/3/2007 10:12 AM (GMT -7)   
I am 43 and intially found a high PSA through an annual physical. Then the touchy-feely test and of course that was confirmed through my biopsy in May. I'm going in for pre-op July 10th and in for the DiVinci surgery July 31. Looking forward to getting it out but concerned about recovery, but I'm sure I'll be fine.
Good Luck
Age 44
PSA 4.8
Gleason 3+3=6
T2
Da Vinci scheduled 7/31/07 @ Duke
 


CaliforniaCA
New Member


Date Joined Jun 2007
Total Posts : 5
   Posted 7/3/2007 11:15 AM (GMT -7)   
BigEd:

I am also 39, and was also sent to the urologist after an elevated PSA reading. They chose to give me a biopsy based on family history (father and gandfather PCa).

I was negative, and am very thankful. Yes it sucks to get this scare at pre-40, but don't dispair. It's seeming to me that they are being much more pro-active about detection and biopsies .. the earlier the better ... and there's a great chance you'll be OK.

If they are going to do the biopsy ... don't worry too much about the procedure. I wouldn't sign up for another one for FUN .. but I've certainly dealt with worse things physically than the biopsy. Let me know if you want to know more about the biopsy, I had mine within the last month so I've got recent expereince with that.

Big Ed 68
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 7/3/2007 8:51 PM (GMT -7)   
Thanks for everyones concern. This is such a great website for support. Although it is in the back of my mind I am trying not to worry about it until I see the Urologist. Like many of you have said, it may be nothing. I am at least getting some better sleep now, I guess that is a good sign my nerves are better( or my body got so tired it took over!).
Thanks agian and I will post my results as soon as I know them.
Thanks,
Ed

wamba2000
Regular Member


Date Joined Jul 2007
Total Posts : 25
   Posted 7/4/2007 8:16 AM (GMT -7)   

Big Ed, since I had surgery, I've heard of more younger guys that have elevated PSA's or had a mass that was biopsied to be sure.  I know the waiting is excrutiating, but hang in there.  Finding this out early, if the test comes back positive, is truly a blessing.  It gives you the chance to watch or remove the cancer while you are best able to recover.  Visualize if it had not been found, and could have much more serious consequences.

My prayers are with you, keep us posted on the results after your tests.


Age: 56
Surgery: RP on 5/1/07
PSA: 4.1 (first test) 4.2 (second test)
Gleason: 6
 
Spread the word to men you know or meet: See your doctor. Have a PSA test early.


JustJulie
Regular Member


Date Joined Mar 2006
Total Posts : 355
   Posted 7/4/2007 11:46 AM (GMT -7)   

Big Ed:

My husband was 44 when diagnosed and he chose Brachytherapy (internal seed implant) as his treatment.  I thought he was "too young" to but, unfortunately, cancer knows no age boundaries.  Follow through and have it confirmed either way then do your research and choose the best treatment for you.  My advice is to include your family in your discussions and decisions.  My boys were only 10 and 15 at the time of diagnosis but they're smart boys and they knew from the overall atmosphere in the house "something" was up - include them so they have an opportunity to express their concerns too - it is a family disease.

Good luck to you - be not afraid, early diagnosis is key.

JustJulie


IlySara
New Member


Date Joined Oct 2006
Total Posts : 18
   Posted 7/5/2007 8:22 AM (GMT -7)   
I just said a prayer for you, Big Ed. I was 40 when my regular doctor found my elevated PSA with a blood test from a routine physical. No symptoms other than being slightly enlarged. She had decided to start giving the PSA test to all men 40 and older whether they have a family history or not (i don't) instead of the American Cancer Society's recommended 50 and older. She made a good catch and God was looking out for me. I had DaVinci surgery last November and all is back to normal now. The worrying and waiting is extremely hard, but thank God that it was caught while you're young, if you do have it. I wish you the best.
41 years old
6.7 PSA
3+3=6 Gleason
Pre-op Stage T1c
7/12 Positive Samples in Biopsy
RLP on 11/16/2006
Cancer confined to prostate


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 7/5/2007 9:40 AM (GMT -7)   

Hang in there, Ed. I'm almost seven weeks out from robotic surgery and am doing fine. As someone posted before, the DRE is highly subjective. The first urologist I went to thought it was a tumor. The second urologist who I ultimately decided to do the surgery said is was nothing more than superficial, probably a calcification. Regardless, my PSA rose to 3.0 (I'm 49) so I had a biopsy. Biopsy came back with 5 core samples with <5% cancer, Gleason 6. Surgery was perfomred on May 21, 2007 and final pathology stated that margins were negative and the cancer was confined, although the Gleason was upgraded to a 7 (3+4). First post op PSA was undectable.

Hang in there. We're all brothers here and are here for your support anytime.


Post Edited (JCL) : 7/5/2007 10:43:19 AM (GMT-6)


Big Ed 68
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 7/5/2007 5:31 PM (GMT -7)   
Once again, thank you all for your support & prayers. I really appreciate it.
One week to go until my appointment. I'm guessing he'll do a PSA Test and go from there.
I'll post how it all goes after my appointment.
Thanks again everyone,
Ed

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/11/2007 4:50 PM (GMT -7)   

tongue  Hi ~ Ed,

 

           Thinking of you

                           and wanted you to know!!!!   yeah  

 

Stay close….  In Friendship ~ Lee & Buddy

 


Big Ed 68
New Member


Date Joined Jun 2007
Total Posts : 8
   Posted 7/12/2007 3:48 PM (GMT -7)   

Thank You Lee & Buddy,

I had my appointment today and it went well!

The Urologist didn't "feel" and abnormalalities with my prostrate but he gave me a PSA Test just incase. Should know the results early next week but the Dr. didn't seem to believe it was anything.

I'll let you know the PSA results when I get them,

Thank you so much for your prayers and kind words,

Ed


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/12/2007 4:02 PM (GMT -7)   

J We will be here…. And hopefully we can kick you out of here.

If not ~  guess what?  We will still be here…. To walk with you!!!

I hope you post here ~ so your information stays together for others to see…. 

Thank you for sharing! See you soon…..  Special Hugs comin’ atchu!!!!!!  From Lee & Buddy


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 7/12/2007 4:20 PM (GMT -7)   
Big Ed. Hope it works out for you. We will be here for you.

Mika mvesr
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