Mom's page for Bob ~ We Welcome You!!!!

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bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/29/2007 6:07 AM (GMT -7)   

Hi ~ Mom, Dad, & Bob,

 

                Welcome to…

                                      HealingWell

                                                                                            and

 

                  A   Special   Warm Welcome  to  You!

 

 

KNOWLEDGE    IS    POWER  ...  and  POWER conquers  fear

 

Keeping you close in thoughts and prayers as you move forward… in your search for answers…

 

 

MOM ~ you are doing just fine!!!  yeah We are all here to lend comfort to you and yours!!  Our support family here will help to take the fear away…  So stay with us and continue posting… OKAY… 

 

I am sending a link  click here>>>… Helpful Hints ~ & ~ Direct Links to Important Topic Threads ~ Hope this helps you!! :)

 

A new window will open up…

Click on your refresh button at the top of your computer…. To clear any “weird symbols you may see”….

 

You just ask and we will all be here to help you navigate….  You found us!!! You logged on!!!  You are here!!!!  Thank you for Reaching out to All of Us.

 

I am attaching all of your postings….. so we can see exactly where you are….   After you read the Helpful Hints page in the link above….. come back here to this Thread (Mom’s page for Bob ~ We Welcome You!)  Let us know if you have any questions.  And don’t hesitate to keep posting to other members threads…. That’s what reply postings are for.   tongue  

 

This thread I’ve started for you will help us to keep tabs on you too!!!!

We are so thankful you found us!!!  Now hold our hands as we begin to walk with you!!! 

Stay close  ~ You’ve done everything right…. Keep posting  yeah  

 

 

Quotes from MOM brought over…. To her own personal thread…

 

6-28 Post Reply by MOM…to  Blood in urine after surgery started by Grover

Hello: I am so glad to have found this site. I do hope you continue to do well!!! Our son will be having the robotic surgery July 10 and he is so anxious to hear from those that have had it!!!
I do not remember his PSA but lower than yours I THINK or there about...Biopsy 17 samples. Gleason score is 6 and T1 and T2. I do not know what that means exactly...but Dr feels like it is all contained in the prostate.
From the discussion we had with the surgeon your symptoms do not seem OUT OF CONTROL.
How long were you in the hospital? Was it a very painful surgery?
Will be watching for your continued success. God Bless

 

Grover thank you so much for responding....your giving me HOPE. Our Son has not been here to read any of this but should be tomorrow. I know with the upcoming surgery anyone would be anxious! I have read several other posts and I am so thankful that all of them are so open about explaining the situation during and after surgery. I wish the Dr had given us the information to such a site. Perhaps he isn't aware of it, but I think it would help with his patients concerns. Maybe this is something we need to inform him about in the future. We go for pre-op July 5. Again thanks, MOM

 

Post Reply by MOM to… More brachytherapy questions and observations started by rek3283

 

Gosh I hope you get over this problem quickly! I am a newby here and checking this site for my son who is scheduled robotic surgery July 10. Needless to say he is getting pretty nervous. This forum is new to me and I am skipping around like a frog! Sorry, I do not intend to be where I should not be.
I wish the best for all of you and I think PATIENCE is the key word here!!!!

 

Post Reply by MOM to…8 days post-op Robotic started by Christy *Concerned Spouse

Gosh I hope you get over this problem quickly! I am a newby here and checking this site for my son who is scheduled robotic surgery July 10. Needless to say he is getting pretty nervous. This forum is new to me and I am skipping around like a frog! Sorry, I do not intend to be where I should not be.
I wish the best for all of you and I think PATIENCE is the key word here!!!!

 

Thanks biker, I shall be back and more importantly, my son will appreciate your inviting me back! I imagine it is unusual for a MOM to be here.....but am so thankful to find this site!!!!
Good night and God Bless you ALL


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

 

 « bluebird ~ Moderator for Prostate Cancer Forum


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 6/29/2007 6:17 AM (GMT -7)   

Mom ~

We are here for you and your family...  This is a family disease and we are all part of your new HealingWell .....family.  Continue to reach out to "All of Us"....  tongue

The Helpful Hints page will direct you to a few threads…of many on this forum.  It will also help you to navigate through the forum…  A link is now provided in the locked thread located at the top of the page where topic/threads are located. 

Prostate Cancer Resources, Helpful Hints, and Topic Thread Links

 

(Updating soon into categories) 

 

Keep Posting ~ Okay!!! yeah   In Friendship ~ Lee & Buddy

 


Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 6/29/2007 12:01 PM (GMT -7)   
Welcome Bobs mom, glad you found us and Im sure Bob will be too. Please know that this is a great group of supportive people who are going through just what you and your family are right now. You will find advice, comfort , wisdom, love and sometimes the well intentioned kick-in-the-pants. No question is too silly, no topic off limits. This is a great resource that you and your family should use.Pete

Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1
Age 51
Surgery (robotic) May 4 2007 City of Hope
Final pathology - fully contained to prostate, TC1, Gleason 3+ 3
Fully continent one month
 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 6/30/2007 3:28 PM (GMT -7)   
Hi Bob's MOM,

Welcome to this forum and I hope you stay too, and get lots of useful info. My husband and I were so lucky to have both my mum, and my husband's mum, stand by our side recently through his prostate cancer surgery. Although my parent's in law live 7 hours away and could not be actually here, we were in contact every day for weeks. Our mums both gave us much appreciated close support, love and tenderness, and they continue to be our main sources of stength (along with our dads who we are also lucky to have too). In fact, my mum is about the only one I can really talk to with no reservations, about all this from a wife's perspective. She understands, as I am sure you do. Welcome again. Bob is lucky to have such a loving mother!

Check out the helpful hints for surgery in the links above - we found the hints invaluable in preparing for surgery. There are several practical things we found assisted comfort also while in hospital. ie. taking a small (kid's) woolen underlay to put over the plastic hospital bed, under the fitted sheet (from about half way up bed to shoulders/head). This stopped (or at least reduced) perspiration for the first post op hours in bed and first night, and was helpful.

Anyway, I hope this is helpful as I do not usually offer any advice being quite new to this experience myself MOM. Good luck and keep in touch. It is lovely to have another mother here.

kind regards, Lana
Creed_three
Lana posting for husband CJ (49 years). First PSA 3.5 (Nov 06). Open Radical Prostatectomy on Tuesday 17th April 2007. Gleeson 3 + 4 = 7. Confined to prostate. PSA 0.01 (June 07)


bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/2/2007 8:45 AM (GMT -7)   
JUST posting here to let you know BOB has been here and read some over the weekend. Naturally, he is overwhelmed!!! He goes Thurs AM for his pre-op and dreading that too and knows nothing to it!!!! Been a busy weekend and a busy week so I haven't been here but he will be back on. Thanks so much for this...I am not sure how much or what he has read so can't comment on that. I wish he could type. He isn't good at it, but CAN type in the google spot to get to TRANS AMS FOR SALE!!!!! LOL He loves those cars and hopefully will have one again in the future!
Again, thank you so much and I HOPE he will SIGN IN when he comes. I reminded him to refresh and he has that down so learning....

bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/2/2007 9:32 AM (GMT -7)   
I HAVE BEEN TRYING to search out what supplies to have on hand when he comes home. AFTER reading post by ARGYLEGOLF (BLESS HIM FOR HIS HUMOR) I find I better have depends on hand. I asked the Dr during our visit and he said NOTHING! WELL, wait till I see him again!!!! Anything else you can tell me I will appreciate. Now I am going to search out the THERALOGIX.com site. THANKS

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 7/2/2007 10:32 AM (GMT -7)   
Hi Mom
The depends are a really good idea, but we found that having the incontinence pads for men along with the depends worked even better. That way the "underpants" part of the depends are for overflows of the pad, but is really less feeling like a diaper as the liquid is confined to the actual pad.

My Bob wore the two together for quite awhile and then graduated to just the pad. The other thing was we never once referred to the "pull ups" as a diaper.

Tell Bob to submit his thoughts even if he can't type . . he can do it one finger style and if he can't spell . . . .well who cares .. .we'll know what he means .. . .and he CAN read what we post back.

Good luck Bob . . . you'll do just fine.

;o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/2/2007 10:57 AM (GMT -7)   
THANKS SO MUCH....I AM KEEPING A RUNNING LIST OF THINGS TO HAVE ON HAND.

bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/5/2007 12:25 PM (GMT -7)   
Today was pre-op and got that out of the way! BOB is getting pretty shaky over this whole ordeal and certainly not looking forward to it. He went upstairs at the hospital hoping some of the nurses we know would be working but NOT. On other floors etc., but they will check in with us. Hopefully, we can find someone to hire the first night to stay with him. We have been told to HAVE SOME FAMILY MEMBER THERE DURING THE FIRST NIGHT. Because of our ages....we just don't feel we can do it and living 70 miles away. Last year we went thru 5 surgeries with my husband (broken arm and a bladder stone the size of his bladder) so we have HAD the 'experience' except they have done ME IN!! Oh, I am 75 and husband is 80 in case I didn't say.
Wishing you ALL the very best and certainly COVET YOUR PRAYERS THRU OUR NEXT JOURNEY.....

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 7/12/2007 4:31 AM (GMT -7)   
hi Bobs mom and Bob,

I saw your other post where Bob came through surgery just fine. I'm sure he's feeling better every day; soon the catheter will be a thing from the past. tell him that my husband just sold his 1975 Firebird for $500 to a 16 yr old and his dad who have 3 of them that they are using to build one. it took Jeff about 5 years to sell this rusting hulk of steel that's been sitting in my yard for years. :) take care, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump

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