REPORTING NOTE ON BOB'S SURGERY YESTERDAY 7/10/2007

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bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/11/2007 4:43 PM (GMT -7)   
redface   This little fella looks like BOB trying to burp and get rid of gas!!!!!  The surgery went well and tonight is his second night in hospital!   He has a lot of gas pain high in his stomach area and he has had bladder spasms pretty badly.  This is being handled with ditropan for the spasms and other meds for the stomach gas.   Other than that he says NO pain.  He HATES the catheter, but tolerating that well.  Walked a lot last night in the halls during the night and several times today.  They have given him a couple shots of toradol in the IV.  His bowels were beginning to GROWL a little after his afternoon walk so hopefully all will be better in the morning when they plan to release him.   I have nothing definitive to report until labs back but we are expecting the very best!!!  I give this da Vinci Robotic surgery a thumbs up.  
I will just sign this 'an exhausted mom and dad'!!!

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/11/2007 5:05 PM (GMT -7)   

tongue  Hey Mom & Dad,

 

Hugs to Bob!!  Wonderful news….. Thank you so much for the quick update.

Keeping you all close during this time.  Make sure you tell him to make friends with the catheter … aka: Mr. Hang  He’s allowing his body to heal so ~ be nice!!

 

Take time to rest mom & dad… he’s on the recover/healing stone now so take a nice deep breathe and continue to move forward.  We are so glad you joined us.

 

In Friendship ~ Lee & Buddy

 

 

1st thread started for bob’s mom….   Mom's page for Bob ~ We Welcome You!!!!


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 7/11/2007 6:02 PM (GMT -7)   
Hi Mom,

Glad to hear Bob is doing great. Get some rest, do something fun and keep us posted...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
Next PSA on 7/18/07.
 
 "I have cancer but cancer does not have me."


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 7/12/2007 7:07 AM (GMT -7)   
Thanks for the update...it's wonderful that you are there for him.

All the best,
Susan

Rufus
Regular Member


Date Joined May 2006
Total Posts : 31
   Posted 7/12/2007 10:59 AM (GMT -7)   
Hi There Bobsmom!

I am pleased to hear that Bob is doing well. I saw on the thread - "Mom's Page For Bob ' that you might like a list of things that might be helpful to have when Bob comes home. I have a lengthy list of just about everything you could think of but it might be too long for here. If you want - click on my name - send me an email and I will send you the list. It is a summary of useful tips/items - some even extravagant (and optional) - that has been built up over time and added to as new ideas get offered by PCa surgery patients. I didn't start it (started by Joe Price back in 2001 I believe) but I have contributed to it, having had open surgery in Dec 05. Anyway. if you want it, let me know.

Russ
Diagnosed: August 05 T1c 1 of 10 cores positive 5% vol no palpable on DRE Gleason 3+4 or 7
Surgury: RRP Dec 05
Pathology: Jan 06 PT3 20% PCa total volume bilateral 4 positive margins Gleason 3+4 seminal vesicles clear LN not checked extraprostatic extension positive right base and right central anterior no perineural invasion HG PIN present both nerve bundles saved
PSA: Mar 06 0.87 referred to radiation oncologist
PSA: May 06 1.1 June 06 Began 36 treatments EBRT 64 Gy ending July 06
HT: 2 weeks casodex 50 mg, then Lupron Depot 7.5 monthly for 18 to 24 months - monotherapy
PSA: Sept 06 <0.1 (lowest reading on assay) Testosterone (T) <0.4 (lowest on assay)
PSA: Mar 07 <0.1  T <0.4   {:>)


Rufus
Regular Member


Date Joined May 2006
Total Posts : 31
   Posted 7/12/2007 1:17 PM (GMT -7)   

Hi Bobsmom - me again! LOL

I thought that I'd try and post the list I mentioned - Hopefully it will all be here - seems that different groups allow for different lengths of messages. Anyway here it is. This one is the one that I put together for my Doctor to use for newly diagnosed patients choosing surgery.

Russ

The Useful Items List:

There are other useful things that you might consider having or knowing about in case you might want to do/have them. The following is courtesy of Joe Price, another Canadian PCa prostatectomy patient who lives in western Canada and is a fellow member in many of the internet support groups I belong to (used with permission)

 

He states the following: (My comments are inserted in blue)

 

I compiled this shopping list of paraphernalia that would be good to have
on hand when you get back from surgery. I started the list in September
2001 before my own operation based on responses I got to a request for
suggestions. Thanks to all those who helped put this list together way back then.

Since then I have re-posted it periodically to make it available to the
newly diagnosed. Occasionally, additional items are suggested and I try to
remember to add them next time I post this message.

One thing I would like to make clear up front - the list is exhaustive
because I have included almost everything everyone has ever suggested. This
does NOT mean you should run out and buy everything on this list. Some of
these items are in the "luxury - nice to have" category and others are
specific remedies some individuals found they needed for complaints that may
have been specific to them.

Read through the list and at least think about what is here and what its
purpose is. Get creative in thinking how you might adapt something you
already have around the house to function in the place of some of these
items.

Certain activities, not strictly hardware items, were recommended
frequently. I've included those activities as well.

I am not a doctor and this is NOT medical advice!

Hardware:
- A pair of oversized basketball type warm-up pants with snaps or zipper up
the leg (to allow discreet access to the catheter and bag). Get a pair that
is large enough to accommodate the large (night) bags and smaller (walking)
bags - that will be provided by the hospital. A dark colour will be less
likely to show wetness from any accidental leakage compared with a light
colour. Fast drying material ("parachute material" or the new ‘wicking-type’) is recommended if possible. This is not essential.

 

 

-  I have found convertible hiking pants (pants whose lower leg can be
zippered off to create a pair of shorts) to work wonderfully well while
wearing a catheter. This type of pant also has a side zipper on the lower
leg, that makes leg bag access a breeze. You can open the upper zipper (the
one that runs around the leg) part way to switch bags and let out the hose
to drain the large bag.
- A five-gallon plastic bucket is very useful at night as a receptacle for
the large night bag. (If in bed you can also stick a hanger between the mattress and box spring with a section partially sticking out. The bag can be hung on this.) The bucket may become your constant companion around the house. Get a square one if you don't already have something else.
- "Invalid" cushion (looks like an inner tube)
- Antibiotic ointment/lubricant (Polysporin, for example) for where catheter
exits (some had this supplied by their hospital). Some recommend a
water-based lubricant such as KY Jelly but that tends to dry out quickly.
Get gauze 4X4 pads to apply ointment. There has been some debate about the best fluid to use. You want something slick, long lasting and certain not to damage the tube. It would be nice if it were also antibacterial. I used Polysporin and Erythromycin with no
problem. Polyfax ointment is a name to look for if you live outside North
America. (I had a very hard time with the catheter both in the hospital and at home. The pain at times was unbearable. Try the Polysporin.)
- Alcohol swabs to clean the catheter at the tip of the penis (single use
wipes designed for cleaning the skin before an injection).
- A pair of slippers or sandals or loafers.
- Over-the-counter stool softener (As stated earlier you will be given some at KGH to take home with you.)
- Get a haircut and trim your toenails before surgery
- Several people recommended buying, borrowing or otherwise acquiring the
use of a reclining chair. ( I found my reclining chair better than the bed. It was more comfortable for me and much easier to get up. I also was up a lot during the night. I used a plastic-lined sheet under a beach towel to protect the chair against any ‘accidents’.)
- Place a chair by the bed with the back facing the bed. Use the chair as a
bedrail to help you get up. Use the seat as a bedside table to hold some of
the things you want to keep handy. I would STRONGLY suggest you test this
out BEFORE you go to hospital to be certain it can take your weight as a
handrail before you rely on it post-surgery!
- A pillow to hug early on to ease pain in laughing etc.
- A pillow to put between your knees while sleeping on your side.
- Grab bars in the area of the commode (don't use towel racks for grab
bars!)
- Nice baggy, soft sweat pants or warm-ups - oversize with drawstring if the
weather is warm inside the house or out of doors
- A soft bathrobe belt to make a shoulder strap to suspended the big bag if
you prefer it to the "walking" bag.
-. Silk/nylon/rayon boxer shorts for the period you have the catheter
- Some readers have recommended "boxer briefs" for the combination of
support and their ability to hold the catheter and prevent tugging
- A plastic sheet to go under the bed sheets and protect the mattress once
the catheter comes out. A large plastic garbage bag might work in a pinch.
- Have enough easy to prepare food on hand for 2-3 weeks
- Book(s) you've been intending to read
- Fresh batteries for your TV remote
- A cordless phone and up-to-date phone list
- Some big baggy mesh shorts (in summer)
- Suspenders may be helpful, in place of a belt
- Two dozen inexpensive white washcloths (in a big bundle)
- Some of the little plastic, stick-on hooks to put in the shower etc., for
a place to hang the bag or simply the pail, placed outside the tub.
- To help stave off possible urinary tract infection, either Ural (seems to
be an Australia/New Zealand over-the-counter drug) or a supply of cranberry
juice. They work in different ways to achieve the same thing.
- A watch or interval timer to remind you not to stay sitting too long. The
small kitchen timers would work for this and to prompt you to get up
periodically at night if you need to do so.
- An electronic thermometer (about $10) for keeping track of your
temperature for a couple weeks postoperatively.
- A walking stick may prove to be helpful.
- A safety bench (maybe a plastic lawn chair?) for the shower (sometimes
you're a little light-headed when you first come home and it's nice to have
something to sit on) (I used the chair when I first got home and did not have anyone to help me in the shower. The plastic chair works great. Also put a rubber bath mat in the tub – it helps to keep you from slipping. I would also recommend purchasing a soap-on-a-rope if you can find one. I started off without one and kept dropping the soap – couldn’t bend to get it without losing my balance. After I got one – no problem! An alternative might be a pump soap IF it has a rack to go on so you don’t have to bend all the time. I also tried to shower as much as possible with my wife or son at home so that someone could do my back. For some reason I had a terrible time with a back-brush. Balance was off.)
- A raised seat to put over the toilet (as an alternative, or in addition
to, grab bars)
- A grabber for picking things up if you drop them so you wouldn't have to
bend down.
- If you have the hardware, fill up a MP3 player with your favourite tunes &
use headphones to help "drown-out" the hospital noise.
- A "toilet seat lifter". I would be inclined to bend a coat hanger into a
hook that I could work under the lip and lift, but there are probably
commercial step-on type mechanical devices akin to garbage can lid lifters
out there. Just use a stick or bend at the knees, keeping the back straight.
Heck, just leave the lid up for a few days.
- One person indicated his hospital made him wear a pair of anti-embolism
stockings the whole time he was there. He bought another pair when he went
home and suggests considering doing the same. ( to prevent clots – this is what the stockings are for.)
- Drinking straws - you will want some for the first week.
- Plastic cups - they're lighter than glass (I used plastic travel coffee mugs with the snap-on lids for all liquid beverages– worked great. I never lost much liquid even when I dropped it or knocked it over.)
- Extra pillows - for sitting up in bed and as arm rests at night and for
the couch.
- Velcro Foley straps - the walking bag can slip down your leg and pull on
the tube. (Velcro works great!)
- A current phone list - one of contact people who must know, one of friends
to come visit you, walk, and meals, shop for you. Spread the burden.
- A few woman's (not a few women's- get them from one woman) menstrual
pads - don't be shy, the big ones, they're smaller, cheaper than
incontinence pads and can be added to the diaper and
changed more often. (Good idea – I used menstrual pads only when I moved on from the diaper type.)
-Travel bag - like a baby changing bag for when you go out or the keep
women's pads in your pocket.
- Viva paper towels - to help when wet - they're soft.
- Toilet wipes - the first few times they're nice, along with baby wipes for
everything. (The wipes are very useful, especially when your urine tends to get all over your scrotum when using the Depends (Guards) and later the same when you are only losing a few drops. For traveling, I took my pad change into the washroom in a plastic bag. I used the bag to dispose of the soiled pull-up.)
- To deal with the rash and itch consider getting tubes of Desitin and/or
Butt Paste, both containing zinc oxide. (I used baby powder or corn starch (better) to keep my genitals as dry as possible (but not on the catheter). I didn’t have much problem with rash. When I did I used a cream often used for baby diaper rash.)
- Diet plan - coffee is bad for bladder (yes but I love the stuff so I put up with it), eat more fruit, less meat, no cheese & bananas while on stool softeners. Diet and supplements are part of permanent recovery plan. (Diet is important – you don’t want to get constipated!)
- Look into a cancer society group such as "Man to Man" that meets monthly
and go to a meeting before surgery.

Repeated Advice:
- Learn to roll sideways out of bed (rather than sit on the edge trying to
stand upright). Practice before going to the hospital. (Works but you DO need to practice the method.)
- Walking is the best way to get your body ready and to recover.
- Wait to see how bad your incontinence is BEFORE purchasing a lot of pads
etc. but do buy a package of men's guards to bring to the appointment when
the catheter is removed. Have a look around at what is available and
compare costs before hand. (I took two to the catheter appointment. Even though the nurse put down an absorbent pad on the bed before removing the catheter, I still needed a second pull-up before I actually got home. I also put a plastic garbage bag on the car seat in case of accident.)

-         Kegel, pre-operation and post-catheter removal (not with catheter in)

-         Remember, what you are going through is TEMPORARY, in a few weeks you
won't even remember the discomfort of some of this stuff!

 

I hope that this gives you some ideas, bobsmom!!

 

Russ

 

 


Diagnosed: August 05 T1c 1 of 10 cores positive 5% vol no palpable on DRE Gleason 3+4 or 7
Surgury: RRP Dec 05
Pathology: Jan 06 PT3 20% PCa total volume bilateral 4 positive margins Gleason 3+4 seminal vesicles clear LN not checked extraprostatic extension positive right base and right central anterior no perineural invasion HG PIN present both nerve bundles saved
PSA: Mar 06 0.87 referred to radiation oncologist
PSA: May 06 1.1 June 06 Began 36 treatments EBRT 64 Gy ending July 06
HT: 2 weeks casodex 50 mg, then Lupron Depot 7.5 monthly for 18 to 24 months - monotherapy
PSA: Sept 06 <0.1 (lowest reading on assay) Testosterone (T) <0.4 (lowest on assay)
PSA: Mar 07 <0.1  T <0.4   {:>)


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 7/12/2007 4:15 PM (GMT -7)   
Hi Bobsmom. Glad to hear he is doing good and soon to get out of the hospital. Walking is very good to get everything working again. I used most of all of Russ's ideas and gadgets during my recovery especially the time I had the cath in. This is the most trying time for him but an important time of healing everything. I had constiaption issues before surgery and I had trouble going all the way down on the toilet. A higher seat would have worked well for me but I just hovered over it and made my wife misreable for it. (Sorry Dale, I love you). Pads are important especially when he gets the cath out so be prepared with a large absorbant pad for the trip home. Have a few with you and hope you don't need them for long. One other thing I can add is you will feel so good you will not realize you are overdoing it. Your body will tell you but it may realize it after it is too late. I did. Good luck to you and let us know how he is going.

Mika-mvesr

El Tigre
Regular Member


Date Joined May 2007
Total Posts : 58
   Posted 7/12/2007 8:14 PM (GMT -7)   
Pay attention to the lifting limitations. I moved a chair to soon and screwed myself up for an extra month!!!
I sure do wish I had found this site pre-surgery!! RRP 10/25/05 I don't remember all the scores. Have had clean checks ever since. Never had to use the pads!!


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 7/13/2007 2:47 AM (GMT -7)   
Hello Bobsmom,

I do remember having those gas pains, and I too stayed in the hospital 2 nights. I guess they decided I was OK when I ordered everything on the breakfast menu the next morning. I hope Bob's spasms subside quickly. I did find that dealing with the Foley bag at home was easier if I wore only a 3X large t-shirt (like the old nightgowns), and a light bathrobe. That way it made it simpler to deal with cateter & bag, and the less bumping of the catheter tube the better.

Please tell Bob we hope he feels better soon, and that he heals quickly, and you should pace yourself too. Goog luck to all of you.

Glen


Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/14/2007 3:10 PM (GMT -7)   
THANK YOU SO MUCH FOR THIS LIST!!!!!!!!!!  GOD BLESS YOU....I did not have time to get back to it, before we went to hospital.  He is home (another horror story...late last night) because 2 DRS getting orders crossed...anyway....bad night and not too hot a day, hopefully this list will help.  I copied off and taking to him and NOW MY PRINTER SAYS OUT OF BL INK!!!!!!!!!!  LOL  Never fails huh?   Looking for other suggestions too, but called the nurse and she told him what to do to help and along same lines!   Hopefully with your suggestions he will get SOME relief.  HE HATES THAT CATHETER!!!!!!!!!!!!!!!!   Has SEVERAL SUGGESTIONS TO GIVE THE DR!!!!!  You can guess what some are. LOL   I will get this to him and TRY and get back for more good advice here.  You guys (gals) are a real BLESSING..  Thank you ALL!

Rufus
Regular Member


Date Joined May 2006
Total Posts : 31
   Posted 7/14/2007 5:16 PM (GMT -7)   

 

 

You are welcome. I didn't get along with my catheter either. Hopefully others here will also adds some good ideas forv you.

Here's hoping for a speedy recovery!! :-)

Russ


Diagnosed: August 05 T1c 1 of 10 cores positive 5% vol no palpable on DRE Gleason 3+4 or 7
Surgury: RRP Dec 05
Pathology: Jan 06 PT3 20% PCa total volume bilateral 4 positive margins Gleason 3+4 seminal vesicles clear LN not checked extraprostatic extension positive right base and right central anterior no perineural invasion HG PIN present both nerve bundles saved
PSA: Mar 06 0.87 referred to radiation oncologist
PSA: May 06 1.1 June 06 Began 36 treatments EBRT 64 Gy ending July 06
HT: 2 weeks casodex 50 mg, then Lupron Depot 7.5 monthly for 18 to 24 months - monotherapy
PSA: Sept 06 <0.1 (lowest reading on assay) Testosterone (T) <0.4 (lowest on assay)
PSA: Mar 07 <0.1  T <0.4   {:>)


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 7/14/2007 7:04 PM (GMT -7)   
Hello again bobsmom,

IMHO I believe that healing after surgery is aided by the addition of extra protien to the diet. The thought here is even the DaVinci procedure will be a major shock to the body, and it will require more protien to heal itself. I lost almost a pint of blood, and when I came home it seems that all I wanted to eat was beef. Hopefully Bob will start to feel better tomorrow, and (no one wants to deal with the Foley catheter) so just tell him each day will be just a little better than the day before. Soon the doctor will remove the tube; then Bob will feel progress is being made.

Good luck to Bob, and the Family especially to Mom. (pace yourself),

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/15/2007 3:02 AM (GMT -7)   
Rufus this helped tremendously!!!!!!!!!!!!!!!!! THANK YOU SO MUCH!!!!! Haven't heard from him this AM so better get myself over there!!! Lights are on so know he is UP!

bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/15/2007 4:48 AM (GMT -7)   
MUCH BETTER NIGHT!!!!  spinbiscuit  ..... he will be eating lots of protein.   we raise polled herefords.  tongue     So far he is sticking to tapioca pudding, jello, buttered egg, chicken noodle soup.  mashed potatoes and creamed chicken.  LOTS of WATER...

Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 7/15/2007 11:04 AM (GMT -7)   

Bobsmon:

Bob is a very lucky person to have you and Dad to watch over him.  Take care of yourselves too and try not to overdo.

Best wishes,

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001
Have had no side effects.
6yr PSA - 0.19
 
 
 


bobsmom
Regular Member


Date Joined Jun 2007
Total Posts : 36
   Posted 7/21/2007 11:22 AM (GMT -7)   
Waiting on lab reports, and see Dr July 30. These results are best I can remember and will change if need be when we get them again at Dr office.
Age 53
Diagnosed May 2007
2 Biopsies PSA 3.98
12 Core samples
3 positives
T1A T2B
Gleason (3+3) 6
Both lobes
Da Vinci Surgery 7/10/2007
Nerves/nodes OK
Confined to Prostate, no penetration of
outer walls.

Rufus
Regular Member


Date Joined May 2006
Total Posts : 31
   Posted 7/21/2007 6:56 PM (GMT -7)   
I hope that the lab reports are really positive for you. I received my third four month report since radiation last year -

PSA <0.1 Testosterone <0.4 or 11 US - am taking lupron now 13 months of 18 month program
:o)
Diagnosed: August 05 T1c 1 of 10 cores positive 5% vol no palpable on DRE Gleason 3+4 or 7
Surgury: RRP Dec 05
Pathology: Jan 06 PT3 20% PCa total volume bilateral 4 positive margins Gleason 3+4 seminal vesicles clear LN not checked extraprostatic extension positive right base and right central anterior no perineural invasion HG PIN present both nerve bundles saved
PSA: Mar 06 0.87 referred to radiation oncologist
PSA: May 06 1.1 June 06 Began 36 treatments EBRT 64 Gy ending July 06
HT: 2 weeks casodex 50 mg, then Lupron Depot 7.5 monthly for 18 to 24 months - monotherapy
PSA: Sept 06 <0.1 (lowest reading on assay) Testosterone (T) <0.4 (lowest on assay)
PSA: Mar 07 <0.1  T <0.4  PSA: July 07 <0.1 T <0.4  :) :)

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