Staying Healthy!!! - A journey from Las Vegas.

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 7/18/2007 7:52 PM (GMT -7)   
I've had several threads and its getting confusing as to which I should update.  Well I will summary my chronicals in this one.  I was 44 when dx said PCa last year.  It was scary.  Gleason 3+4=7, PSA 19.8, clinically T2b or c.  My local urologist was clearly qualified to do the removal of the prostate.  But I had to decide on which treatment I would be most comfortable with.  Scary indeed.  The thoughts that traversed my mind included not being here to type this today.  I had a history of drug use and that was my fear.  That I did something to myself, and I was getting my just deserts.  Looking back on it, there are people here with this disease that never touched a drop of alcahol, not a taste of drugs, yet they are here just like me.  I certainly am not excusing my younger days, only pointing out that I now understand this disease in not discriminatory.  I still enjoy my wine.  I had a DUI in 1985 and I haven't put myself in that situation since.  Enter Ruth 14 years ago and goodbye drugs.  My wonderful wife.  End of the desire for drugs, enter my new spiritual grasp that is a mainstay today.  I'm a hard worker and a friend to all who will let me in.  So how did this happen?  How did I get this dreadful disease?  It's not in the family history.  I'm not at the testing age.  Firetrucking Why???
 
Well, I guess I have to leave that question out.  Why does not matter and it won't cure my disease.  That's how I proceeded on How.  Not Why.  My urologist was an Ivy leaguer and had great bedside manner.  He is young and will be a great surgeon, but after careful research I decided he was not my man.  I decided on surgery because radiation, while succesful in many cases, was not convincing me that I had complete control of this disease and its treatment.  I did not like the fact I still had even part of my prostate alive and in my body.  Hind site says that I could easily have had a cure with it if my stage was T2x.  But it wasn't.  I chose a surgeon who had 1,500 LRP's behind his belt.  And it paid off.  I don't have incontenance and did not within a couple weeks after the procedure.  In fact I still have the pads from my first purchase in my bathroom.  The bad news was to come though.  Had I had radiation, the fact that my disease was pT3b (4+3=7) would never have come to light until recurrance.  I had Stage III cancer....The Big C.  My next fear was a few weeks from finding out if it was stage IV.  It wasn't.  My PSA dropped out.  But I wasn't convinced I was in remission.  First 0.1, the <0.1.  Four tests later....<0.1.  I still saw the histograms though and I did not like the recurrance rate.  I elected to go with Lupron and Casodex combined with IMRT focused on Whole Pelvic treatment (WPRT).  Dam the torpedoes! fire them...
 
Today I have another PSA result.....<0.1.   
 
My excellent oncologist said I am a model patient.  I walk after every IMRT session.  4 miles.  I changed my diet.  I told him I kept the wine.  He told me to enjoy it.  Every weekend I excersize either in travels or in sport.  I was fearful of Stage IV, but I am no longer.  We went over a plan today on the what if.  What if this recurs?  We have a strong plan, but as he said, "you are doing well".  I don't need a two year LHRH treatment.  We are planning to remove the HT in December.  I used this one before...Me 1, Cancer 0.  I hope that others out there with the fear of this disease can see this experience, and fight with you heart.  As Jimmy Valvano said....Never Give Up!  A champion never relents.  I have stage III cancer, but it does not have me...Today my oncologist declared me in remission.
 
Tony

Post Edited (TC-LasVegas) : 7/23/2007 6:16:30 PM (GMT-6)


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 7/18/2007 9:52 PM (GMT -7)   

Tony:

Super, super congrats on your latest PSA - you are an inspiration to all.  Just wish we could bottle your positive attitude and caring heart - it would be a best seller.

Continued best wishes.

Dutch

PS:  How's your friend that went to Loma Linda doing??


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001
Have had no side effects.
6yr PSA - 0.19
 
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 7/18/2007 9:55 PM (GMT -7)   
Hey Tony,

Your courage and dedication to recovery are truly amazing! And congrats on the undetectable PSA. What a milestone for you and Ruth. You are going to win this battle. And Jimmy V. is one of my heros too....

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04. 
PSA on 4/4/07 - 0.00  T level - 48  Restarted T therapy.
PSA on 7/18/07 - 0.00 T level - 613
Nest PSA on 10/17/07
 
 "I have cancer but cancer does not have me."


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 7/19/2007 6:08 AM (GMT -7)   
Tony,

That is music to my ears! "YOU ARE IN REMISSION". Wow!!!

You do set a standard for us here, you know. It's good to be challanged, to rise to our best, to be strong and brave, even.

Thanks for the challange.

Wishing you many happy hours traveling with your Ruth,

Susan & Don
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
2/09/06: LRP Restage: T3A NX MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 CT shows distant lymph node involvement
Restage IV Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07 - PSA 0.3
06/06/07 - 0.1


broker59
Regular Member


Date Joined Apr 2007
Total Posts : 88
   Posted 7/19/2007 7:25 AM (GMT -7)   

Hey TC nono

You have accomplished much in this journey, and have been an inspiration to many members, including myself.  This monster does not discriminate, we are all fair game.  Like you we must all use our strength to defeat this disease, not spend time wonder; "Why Me".

My Gleeson was the same as yours, but I had a low PSA. The open RP worked well for me NO pain at all, just a few days of adominial discomfort getting out of bed/chair. Use 1 to 2 pads a day, some feeling down south, get my first PSA test next Monday 4 1/2 weeks after surgery, should be OK!  Can't believe that exactly 4 weeks ago I was on the table.

Thanks for all your insight, and support!


Broker 59


Date of Dx 3/20/07

PSA: 2.5

Gleeson: 3+4

Stage: T2

Bone Scan Clean

Date of Surgery: 6/21/07  Open RP
 
Post Opp: ALL NEGATIVE margins & L/N, S/V.
Cath out after 18 days = BIG RELIEF!!!


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/19/2007 7:47 AM (GMT -7)   

Yea !  ~   Tony & Ruth,

 

PSA…   !!!~~~>>>  Woo~Hoo    <<<~~~!!! Undetectable

 

Cause  for   celebration!!!!!  Definitely!!!     

What a wonderful day it is ~ each and every-day….   

Enjoy it to the fullest. 

Yippeeeee!!!!!! From  Lee & Buddy

*     *     *     *     *     *

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.  

J  Caring is Sharing ~  Thank You for Sharing  J

 
tongue   Helping to keep a POWERFUL JOURNEY together!!!!!  yeah   

anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 7/19/2007 11:54 AM (GMT -7)   

Hi Tony :-)

Amen!!!! I am so pleased to hear you are in remission. Your story gives me hope as our numbers are so close. I don't think you should tie your past to this disease it strikes anyone no matter what they have done or not done. My wife blames spinal meningitius on mine as I had it in 2003. I went to the hosipital to have a spinal stimulator placed in my back and when I got home, 2 days later I had yhe worst headache of my life. Diana has read up on prostate cancer and spinal menigitius and has found a study that shows the same strain of infection I had and some studies for prostate cancer match. I don't totally understand it but she is convinced. Oh well I have prostate cancer and I just do what Diana & the docs advise and go on from there.

Anyway thank you for your story, and enjoy your remission its wonderful.

Rick 


Rick & Diana
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
 


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 7/19/2007 5:08 PM (GMT -7)   
Fantastic Tony!  Like the others here, I believe you have kicked the living $hit out of this PCa thing.  Best to you and Ruth.
Tom

54 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 7/19/2007 5:40 PM (GMT -7)   
Hey all,
I cherish every message here as coming from friends. People who care about people. What a concept that we all could benefit from, huh?

Dutch,
Ron is back to work. He completed his proton treatment a month ago and is working a full day. He and I are always in touch and will be lunching sometime next week. He said he had little side effects. He won't be tested for another 4 months on his PSA, something that would drive me crazy, but he looks great. Jim, Susan, Don, Rick, Tom, Broker, Dutch, and of course Lee and Buddy, Thank you so much for letting me tell my story. And thank you for being here. You are all wonderful people.

And to all who come to the threads I write, I truly read everyones message and appreciate them. Thank you.

Tony

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/19/2007 7:22 PM (GMT -7)   

  tongue   Dear Tony & Ruth,

 

After reading your new thread (many times over) which is truly heartfelt….  You could not have picked a more appropriate title!!!   You ~ being who you are ~ says it all.  We are so proud to call you friend.  And “YOU” have truly made this forum “EXTRA” POWERFUL.  You’ve allowed us to walk every step of the way with you ~ and that my dear friend is a wonderful gift you have given to all of us… and we thank you!

 

We become brave by doing brave acts.  Look in the mirror and see the face of courage.

You have shared with all of us the experience of “Courage” and for this we will forever be thankful…

 

The definition of courage…

1.      the quality of mind or spirit that enables a person to face difficulty, danger, pain, etc., without fear; bravery.

2.      the heart as the source of emotion.

3.      have the courage of one's convictions, to act in accordance with one's beliefs

 

In every language…  You have touched us all!

Odvaha, mod, moed, julgus, rohkeus, courage, der Mut, θάρρος, bátorság, hugrekki, keberanian, coraggio, drąsa, mot, odwaga, coragem, coragem, curaj, храбрость, odvaha, pogum, coraje, kurage, cesaret…

 

Czech, Danish, Dutch, Estonian, Finnish, French, German, Greek, Hungarian, Icelandic, Indonesian, Italian, Latvian, Lithuanian, Norwegian, Polish, Portuguese, Romanian, Russian, Slovak, Slovnian, Spanish, Swedish, Turkish…

 

Having given thoughts throughout the day… I had planned to put together a “new” Woo~Hoo… to place above your threads in my posting above….I talked about it during our daily walk along the creek…   Buddy stated ~ when the time comes for us… He wants the regular ~ tried and true .  Woo~Hoo.  One “WE” are both looking forward to receiving..  So ~ Tony… You’re getting the “regular” Woo~Hoo  because it continues to be filled with hugs, kisses, and warm thoughts. 

 

Our thoughts and prayers surround you each and every~day!!!

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 7/19/2007 8:31 PM (GMT -7)   
Dutch,
I missed your very strong statement in your signature. You are 100% right. We came down with a disease and put our fate in the hands of others. The great surgeons and nurses and even other staffers, they try to save our lives after we are diagnosed. We OWE it to them to educate others about this disease and encourage using our experiences PREVENTIVE steps. It IS our responsibility. We have people caring about us, caring for others is the only thing better!

Tony

pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 7/19/2007 8:33 PM (GMT -7)   
Dear Tony

You have been a beacon of hope for PCa patients on this wonderful forum. Reading your journey and battle with PCa gives us all hope about the future and the need to have courage and a very positive attitude to get through the tough times. God bless you and may you be forever in remission!

Dave
68, 29-core biopsy 9/27/06, PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area],  Gleason 6 [less than 5% in two other areas], negative DRE, bone scan and Endorectal MRI. Completed 39 Proton radiation treatments 2/22/07-4/18/07.
First PSA test to be taken 7/07.


2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 7/19/2007 8:52 PM (GMT -7)   
Congratulations Tony!

bec
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 7/20/2007 3:06 AM (GMT -7)   
Tony,
Thanks for sharing your story!
I see many more success stories for you and Ruth!
Cedar
~~*~~*~~*~~*~~*~~*~~*~~*~~*~~*
2 Years of PSA between 4 and 5.5
Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.
Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.
Confined:)
***************
Texas Hill Country
FRESH Produce Department Manager
Have you had your 5 colors today?


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 7/20/2007 1:27 PM (GMT -7)   
Dave, bec, Cedar,
As always thank you. Feeling great and love your support.

Tony

GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 7/21/2007 6:16 AM (GMT -7)   

Tony, you've created a powerful message with this thread - plus the fact that yours and Ruth's strong spirit shows through. Congrats on your results after this long haul!


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 7/22/2007 3:48 PM (GMT -7)   
Tony, you are an example of courage and grace and I think highly of you. Congrats on the <0.1.

Regards,

Bill
Gleason 3+3=6, T1c, one core in twelve, another pre-cancerous.
62 years old and good health.  Married 37 years.  To same woman!
Began IGRT January 23, 2007. 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 7/23/2007 2:07 PM (GMT -7)   
Hi TC - LasVegas (Tony & Ruth),

What great news for you both this week! Thank you for sharing your experiences so fully. It will certainly help a lot of people. Sharing your great news of remission with much joy. Have a good one!
Creed_three
Lana posting for husband CJ (49 years). First PSA 3.5 (Nov 06). Open Radical Prostatectomy on Tuesday 17th April 2007. Gleeson 3 + 4 = 7. Confined to prostate. PSA 0.01 (June 07)


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 7/24/2007 12:55 AM (GMT -7)   
Hello Tony & Ruth,

Very glad to hear your PSA score; what a relief. Keep up the good work, and in ten more years we'll all be toasting this anniversary with (something healthy)...how about sparkling apple juice?

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 8/3/2007 4:44 PM (GMT -7)   

Hey all,

Today I completed my IMRT adjuvant therapy.  38 treatments and not an issue worth speaking of.  I brought a box of nice pears and granola snacks for the staff and will only come back to see them for a follow-up evaluation in September.  Two down...surgery completed, radiation completed.  I am still on HT and will have another shot on 9/16.  While taking the HT I am also taking Casodex in 50mg increments.   I do have an option to continue to adjuvant chemotherapy on Taxotere, but I don't see any good studies saying that there is great success with it adjuvantly.  Still if it can reduce even slightly my recurrance rate I have to consider it, reluctantly.  Considering the side effects I think I might wait until a study shows me something difinitively different, or I may save this treatment as salvage therapy only.  Now it's up to me to be good with the diet and excersize and to try adjusting to a less stressful way of life. 

And stay positive...............Where have I heard that before?

Anyway.  I praise the centers that have done their work with me.  I feel good and good enough that we added a new family member!!  Ruth and I are proud parents of a puppy we rescued from the shelter.  He is a five month old Australian Shepard/Black Labradore mix. I named him Blackie after Eric Claptons guitar (and the fact he is prodominantly black).  Good thing I can work out of the house and get him settled in. Unlike me, so I'm told, he listens well and very smart. 

There's a couple nice events for this week for us.  Looking forward to the weekend dedicated to training Blackie and wish you all a nice weekend...

Tony

Post Edited (TC-LasVegas) : 8/3/2007 10:51:36 PM (GMT-6)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 8/3/2007 4:57 PM (GMT -7)   

Another stepping-stone down the road to being cancer free...

 

tongue    Tony, Ruth,Kitties…&  Blackie

                          Thinking of you ~ and wanted you to know!!!

 

Thank you for touching our lives…

You truly are a special young man, woman, and special critters!!!!!

 

Strength from you that sends shock waves many miles away….

Thank you for you…

And your special “team members”!!!!   yeah  

      Hugs from Lee & Buddy

 

 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 8/3/2007 5:46 PM (GMT -7)   
That's great news Tony!

I suppose this weekend will keep you extremely busy and that's what you feed on. Blackie will take you for a run sounds like!
Keep soldiering on...you're our hero.

Take care of yourself & enjoy,
Susan...aka Nurse Ratchett

Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 8/3/2007 6:28 PM (GMT -7)   
Tony:
Glad to hear you've made it over one more hurdle with flying colors and your VERY positive attitude.  Continue on in good health.
 
Dutch
Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001
Have had no side effects.
6yr PSA - 0.19
 
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 8/4/2007 3:07 AM (GMT -7)   
Tony,

Sharing your journey as you have done so well is such an encouragement to all of us!

It also allows us to share in wishing you well as you meet each challenge and celebrate each victory.

Now concerning Blackie: 
  The Black Lab you might train.  The Australian Shepherd will be training you...  ;->

Thanks for being such a good friend to all of us here.

CCedar  ("owned" by two German Shepherds and an elementary Sunday School Class)
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


broker59
Regular Member


Date Joined Apr 2007
Total Posts : 88
   Posted 8/4/2007 11:17 AM (GMT -7)   
nono  TONY!!
 
ALL THE BEST for you going forward.  You handel this like a champ, and you will be victorious.  Keep Blackie happy as I'm sure he will do for you.  Might want to pick up one of Cesar Milano's books, the Dog Wispher!!
 
Broker yeah
Broker 59


Date of Dx 3/20/07

PSA: 2.5
Gleeson: 3+4
Stage: T2
Bone Scan Clean

Date of Surgery: 6/21/07  Open RP
 
Post Opp: ALL NEGATIVE margins & L/N, S/V.
Cath out after 18 days = BIG RELIEF!!!
 
PSA: 7/23/07 0.01
 

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