Incontinence issues...what a drag

Hi Everyone,

Haven't posted for my husband in a while but have been reading this site frequently.  David had Da Vinci on June 4th at UCLA.  Tough surgery.  He was in for a week and he had some blood loss but he got through it.  We are now 2 months post-op...did any of you still have some pain in urination?  And were any of you still somewhat incontinent?   David is still using pads.  It's a total bummer.  We still have not gone in for our post-op PCA yet. That will be done in August but the results showed no positive margins and that the cancer was contained.  That is good news.  The last e-mails from the doctor said some pain in urination was normal as was incontinence...but it's a bummer.  How many of you dealt with that?  (or are still dealing with it?).

Thanks so much-

Cynthia

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WHOFAN
Husband: 53 yrs. old
Diagnosed 3/12/07

PSA: 8.12

T Stage: T1C - GLEASON: 7 (3+4)

Da Vinci performed 6/4/07 at UCLA with Dr.Robert Reiter.
Staging after surgery: T2B
Cancer contained in capsule. Negative surgical margins. All looks good
for now. First post-surgery PSA scheduled September 19th.
Catheter out 6/13/07
Live in Los Angeles with wife and 5yr old daughter

Cynthia,

I think you know my situation, but just in case, see my signature to see how my incontinence has progressed. Still dealing with one pad a day here, but it took me awhile to get there.

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Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on Cialis, L-arginine and pentoxyfylline, ordered to be celibate for 6 weeks.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .200 (2 for 6)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."

I'm one of the worst leakers here. Almost 10 months post op and still no control when standing / walking. All I can say is to find a Bio-Feedback therapist so you know you are getting the pelvic floor muscles. I feel like I wasted 6 months by doing mine by feel alone! Check out KW's Journey to see my whole story.

Good Luck,
KW

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    43

    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.

    Gleason 7

    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate

    RRP on Oct. 17, 2006 - Nerves on right side saved.

    All Lab's clear.  No Cancer outside prostate

    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006

    First Post op PSA on Dec. 11, 2006  Undetectable 0.00

    Office visit on Jan. 19th due to continued excessive urine leakage.

    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)

    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!

    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 

    March 8th Started Detrol LA to see if it helps with the leaking?

    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.

    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!

    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!

    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!

    June 1st Start Bio-Feedback to try to control my leaking.

   

Hi ~ Cynthia & David,   I see the little blue guys throughout your postings and the little guy with the downward “smile”…so thought I’d send a few special hugs “WARM WISHES” your way…..     Warm wishes are just like the rainbows that help make our clouds disappear, They help us feel precious and cared for, and fill us with comfort and cheer (optimism).   Take One~Day~At~A~Time and know that we continue to be here for you!!!      Cynthia ~ If you ever need to talk… just click here… How many wives get depressed?   Thread started by Wicket   Don’t hesitate to let some of the pressure out….   Lean on us ~ as we all continue to move forward in our journeys with the ultimate goal ….being prostate cancer free.   Remember ~ we are here for you too!!!!    In Friendship ~ Lee & Buddy   Please take this    R a I n b o w     and keep it close...     This is “YOUR” rainbow ////////////////////// //////////////////////////// /////////////// ///////////////////////////////////// /////////////////////////// ///// //////////////////////// ///////////////////// ///////////// ///////// ///////////////////// ///////////// ////////////////////   Rainbows brings smiles, smiles bring positive energy into our being!!!     mama bluebird - Lee & Buddy… from North Carolina J   We invite you to visit our personal thread:   Click Here:   “Our Journey” ~ Sharing is Caring   April 3, 2006  53 on surgery day RRP / Radical Retropubic Prostatectomy PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate 2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)  

Mokele,

TAKE IT EASY!  You will heal. 
You can speed it up a little by practicing those kegels:  Three sets a day while sitting.  And when you have the energy (Kegeling is exhausting!), try walking around the garage - nude from the waist down and try to hold it - with a styrofoam cup under your penis.
This will help you identify both the muscles you need to develop and how these muscles must learn to coordinate.  They don't just stay flexed.  That is both exhausting and impossible while walking. 

After awhile - and when no one is home - try the "nude with cup" trick on the stairs. 
As I learned some control, when I woke up in the morning with a full bladder, I would hurry over the toilette and try to hold it as I coughed.  It is a humbling effort!

When you are not kegeling - just walk around the neighborhood with pads.  The entire pubic cavity is a little irritated right now and you have a lot to "walk off!"

Start a thread.  Tell us about you and your experience.  It will help both you and others.
TAKE IT EASY!

Your friend,

C^Cedar
ICTHUS!

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2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 

Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6

Radical Prostatectomy 16FEB07 at age 54.

1+" tumor - touching inside edge of gland.  + Confined.  :)

Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?

Post Edited (Cedar Chopper) : 8/7/2007 4:10:43 AM (GMT-6)