Ellen & Dave,
The physician's descript
ion of "like an infant from the waist down" does describe the beginning
of the healing process after a robotic radical prostatectomy. Other treatments often have similar but delayed effects.
Your husband - in the hands of a skilled surgeon - will almost certainly regain continence. Most patients here have abandoned their last "just a security pad for drips" by six months. Some take longer but then some are almost immedaitely continent.
Dave will likely deal with some aspect of dripping for 4 months or so.
Erectile dysfuntion is another matter. Most take one or two years to regain 90% of their previous erectile quality. Again, a VERY few have almost immediate erectile response. If you choose surgery, start rehabilitation procedures at least by week 4. (Read Andrew's discussion of the German treatment plan - Still, very few have his fast
This site will give you access to some of the kindest and most intelligent women in the world that have been down this road and can help you with every imaginable relational issue. Yes, you should feel free to ask or express anything.
Lee (Bluebird), Vicki, Susan (Myman), Creed, Swim, Courtney (IzzyBlizzy), Dutchess ... I hate listing names as I am certain I am dozens out ... These women will be here for you during your time of trial.
Men like Mike, Tony, Dutch, Bill, Jim, Tamu, Dave, Selmer, Puget, Paul, Dr. Martin - and so VERY many more
have knowledge and compassion to spare & share with you and your husband.
We don't tend to second-guess your choices here. Insurance almost ALWAYS pays for surgery or radiation (maybe not proton - most likely not HIFU) concerning treating prostrate cancer as it saves them money in the near-term. (Everything except many won't cover Viagra, Cialis, etc. - nor the vacuum pumps - nor injections if you so choose. These are actually very important for recovering erectile function with the fewest complications and if your insurance won't pay - ask here for some ways to save money on these items.)
Ask your Boston General second-opinion physician to discuss every possible alternative. Choosing between Boston General and New Hampshire will have to be weighed with your personal situation as you care for your son and consider the time required for follow-up procedures. I last read that Boston General was rated #1 by U.S. news in Urology. I wouldn't pass up that skill level without careful consideration. Still, I personally chose a local physician team over M.D. Anderson (2nd opinion) - as I deemed the time and expense involved in travel for follow-up care unnecessary where my local surgeon team was very experienced in both da Vinci robotic and
A point that you might consider if you choose surgery and don't use Boston General: If my post surgery biopsy had indicated the cancer had "escaped the capsule," I would have returned to M.D. Anderson for any radiation or hormone therapy treatments - as I deem their abilities in these matters as unsurpassed.
You have some time - but (with the one "7 gleeson" score and Dave's relatively young age) I personally wouldn't take more than 6 months to make a decision and act on it. Dave will heal faster if he seeks treatment at a younger age than an older one. It is likely the cancer is contained at this point. If so, let's keep it that way!
Holding the three of you close - in warm regards,CCedar
2 Years of PSA between 4 and 5.5 + Biopsy 23DEC06
Only 5 percent cancer in one of 8 samples. + Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland. + Confined. :)
Texas Hill Country FRESH Produce Department Manager
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