Good news Follow-up to "Incontinence bad 3 weeks after surgery"

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Bill23
New Member


Date Joined Apr 2007
Total Posts : 18
   Posted 8/6/2007 4:51 PM (GMT -7)   
Hi again everyone.....

I'm Bill23, the guy who started the thread "Incontinence bad 3 weeks after surgery", back in April.  As you may recall, I was one of those who suffered from TOTAL, non-stop leaking all day long, using upwards of 15 soaked pads per day. I stopped posting in June because I realized that my utter disgust and depression with the situation was being reflected in my posts to a degree that I felt it wasn't doing anyone any good to hear about it any more. Frankly, I was also fed up with reading posts from those lucky guys who were continent after only a few days or weeks. I just decided to continue the kegels as I had been, and let the chips fall where they may.

The reason I have resurfaced here in this new thread is to report on my progress, and to offer those of you who are currently suffering with major incontinence a ray of hope.

I can't explain why, but on July 3rd., (3 months after catheter removal), I got out of bed fully expecting a massive burst of urine to rear it's ugly head as usual. For some reason, it didn't happen, and I actually made it to the bathroom in a normal fashion. As the morning progressed, I was actually able to accumulate 2 to 4 ounces of urine in my bladder with very minimal leakage. I only used 2 pads that morning, where just the day before I used 5 to 6. The rest of the day proceeded with similar results.

The following day was even better, and I have progressed to using only 2 minimally wet pads per day as of today, August 6th.

So the bottom line is that I went from 3 months of total incontinence, to a very much improved situation in only a few days. I can even celebrate with a few drinks now, and although alcohol still causes a slight leakage, I can certainly live with that.

I hope some of the guys I had been corresponding with are doing well. I apologize for leaving the thread so abruptly.

Good luck to all, and although I know it is difficult, try to deal with it and hopefully you will have an experience like mine.

PS...... For what its worth, I did take a few biofeedback lessons in June, and the nurse instructed me to do 3 sets per day of the following..... hold the kegel for 5 seconds, rest for 10 seconds, repeat 30 times. What was unusual about this is that I had never seen anyone recommend a rest period that was TWICE the holding period. (10 seconds rest vs. 5 seconds hold). Maybe that had something to do with it.

Bill
Age 54,  PSA always 1.5,  jumped to 3.5 in 10/06.
Biopsy 11/06, Stage T1c, Gleason 6 (3+3), 25% in 1 of 12 cores.
Negative Cat Scan, Bone Scan, and DRE.
DaVinci RP 4/2/07, Catheter out 4/9/07.
Final Pathology Negative Margins,  Negative Sem. Invasion.
5/15/07, 1st post op PSA negligible <0.1
 
 
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 8/6/2007 5:50 PM (GMT -7)   
tongue   Hi ~ Bill,

 

Thank you so much for surfacing to share this wonderful news with all of us.

It’s important for all members to realize…how important "every" thread / posting is....  Every aspect of this journey is important and we understand the "thoughts that crowd in".

 

There will be times we need to stop and take a step back…. Refocus and then start moving forward again.  I truly am sorry you didn’t stay with us ~ but we all have to make that “decision”….  Depression can be harder than the journey ~ and that’s where talking things out and continuing to talk with others who are on the same path (different recovery stones but still the same path)…..  We are thrilled you came back to share!!!

 

Members need to realize that ~ we want you to post your concerns... that's what we are here for... to help you over those "slippery"... stones.  Never ~ Never are any of us going to judge anyone on their sharing.  Something we “share” (good,bad, and/or ugly) will help others down the road.  Even on the darkest of days....  Staying together is critical.

 

I am going to link your previous thread:

 Incontinence very bad at 3 weeks post catheter removal

This will definitely help others!!!  Thank you so much for coming back to us with your follow-up.

 

And the tip on kegels is so important!!!   The more information we have out there…. the more options for all of us.

 

Please take time to post the regiment that worked for you…on this thread….>>>  Kegel Help?

 

Continue to take care as you move forward...

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

J  We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)

 

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