Update on my husband Rod - they must have found something during the bone scan

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mariateresa
Regular Member


Date Joined Jun 2007
Total Posts : 95
   Posted 8/13/2007 1:44 PM (GMT -7)   
Hello Everyone,

My husband went for the CT of the abd/pelvis and a total bone scan this morning to rule out any metastases. While they were doing the bone scan, they must have found something suspicious because they unexpectedly sent him to have several xrays of his back. My husband came home almost feeling despair as to what all this could mean. We're feeling sad and scared and expecting the worse.

My husband has an appointment with the urologist on August 20 to find out about today's test results and to set a treatment plan.

I am so grateful to all of you!

Maria Teresa

Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 8/13/2007 2:14 PM (GMT -7)   
Maria Teresa,

Holding you close.  Try to stay calm.
You are doing everything you can & are supposed to do.

Now, just be there for each other and know that we too are here for you.

It doesn't hurt to cry.  It doesn't help to worry.  It is not in your hands.
And yet, both of you are being held in His. Caritas.

Your Friend,

CCedar
ICTHUS
2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/13/2007 3:20 PM (GMT -7)   
Dear Maria Teresa,

As Cedar said, you have many out here thinking and praying about you and your husband's welfare and comfort.

We will anxiously await for the 20th with you as you work to determine the best next steps for your hustand's care with the doctor's help.

Sincerely,

Idaho
Age: 54
PSA: 4.3
Biopsy: T1c, 3+3=6, 2 pos. samples in one node, <5% volume
Da Vinci 31 Jul 2007: saved nerve bundle on side of non-cancerous node
Final pathology: Confined to prostate, T2a, 3+3=6, <1% volume
Working to get back into good shape
Waiting to take that first post-op PSA


ldoun
New Member


Date Joined Jun 2007
Total Posts : 19
   Posted 8/13/2007 5:27 PM (GMT -7)   
mariateresa,

I had the same thing with my bone scan. They took a total of 6 x rays of my pelvis along with two extra bone scans. It really had me in a panic. It was only after leaving the hospital that I remembered falling down on my butt about 8 weeks earlier. I had bruised my pelvis and it hurt for several weeks. I didn't think to mention it to the technician that did the scan.

It turned out to be nothing as I thought it would be, but it was a real panic time for a while. The Scan and x-ray results did not indicate anything conclusive for spread of the cancer. My local urologist and the surgeons at Duke agreed that I had just "fell on my butt".

Just relax and wait for the results of the tests. Lots of things can make a bone scan glow. We are all hoping for a good report.

Jim
Age 64
5'8" 145#
PSA pre-op 5.2 (12% free)
Gleason 3+4=7
Robotic RP 4/24/07 Dr. Albala, Duke
Post-op- Organ confined Gleason 7
6/18/07 PSA <0.1
10 wk: 0-1 mini pad per day
ED Cialis and VED prescribed


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 8/13/2007 6:12 PM (GMT -7)   
Your doctor could conceivably have the radiologist's report already, certainly by tomorrow. Why not call him/her up and explain your state of mind. A compassionate doctor should be forthcoming. If yours isn't, well, at least you know what kind of human being (s)he is.

-Gordy

mariateresa
Regular Member


Date Joined Jun 2007
Total Posts : 95
   Posted 8/13/2007 6:23 PM (GMT -7)   
I wish I could reach through the internet and give all of you a big hug! Your compassion fills me with warmth, love, and security!

Today I read, "Don't be afraid; just believe." Mark 5:36

I'm trying!

Maria Teresa

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 8/14/2007 9:53 AM (GMT -7)   
Stay believing. There are many stories about survival when the disease has spread. Your huband may or may not have spread his disease, until you are told that he has for sure, you go with he hasn't. Until you are told his situation is dire, it isn't. And you don't want to go through this with the thought that "maybe it is worse." It isn't. And besides, keep reading here and at other sites. There are 15 year survivors that had metastatic disease spread over their bodies, and they are still around to talk to. I believe in the power of positive thinking. Not just for its curative effects but the power it has on the quality of life.

Hang in there Maria Teresa,
We'll be here to help you research, provide moral support, and believe in the positive outcome for you, if your are not able.

Tony

aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 8/14/2007 3:17 PM (GMT -7)   
It is very unusual for a bone scan to reveal PC in bone unless the PSA is over 20

lifeline
Regular Member


Date Joined Aug 2007
Total Posts : 67
   Posted 8/14/2007 6:16 PM (GMT -7)   
i am new to this site and it's great to find others to talk to. it is scary when they send your husband for tests especially when you ask why and they won't say anything. my husband is going through this with ultra sounds for his abdomen and kidneys. one looked suspicious so he went for another one. we are waiting on results. he has advanced prostrate cancer which had metastised by the time they discovered he had it. he's been through a lot but one thing you have to do is research, research,and research again. don't sit back and just do as they say and nothing more. you have to take a lot of this into your own hands. through research and different sites i have learned alot. positive attitude does make a difference in survival and fighting this. reach out to others in your situation. stay positive for your husband, and reach out to family if possible for support.
this journey is hard, but it can be beat. the best to you and your husband.
 
to the member who mentioned some men who have this cancer with mets that have survived 15 years and still going, thank you from the bottom of my heart. you are the hope my husband and i need. we needed to hear this especially when all we hear is negative. god bless you.  

Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 8/14/2007 6:52 PM (GMT -7)   
Listen to what lifeline said. Let it be your mantra. No one cares as much about your husband's well-being as you and he.

-Gordy

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 8/14/2007 7:59 PM (GMT -7)   

Hi ~ Maria Teresa,

 

There is no empathy if they’ve never traveled this path…  reach out and make them understand the emotional toll a week of waiting…will take on both of you!

 

Re-read each and every posting above….. pull from each of them….

 

Calling will definitely ~ help because the “unknown” is what drains us of all hope… 

if we don’t know what we’re dealing with ~ we see only darkness.   This way you have a week to research “what you know” and can have some questions for your appointment on the 20th.

 

They have results for PSA’s the very next day…(The nurse drawing the blood told us.. the results are faxed to your doctor ... which we just found out this time... thinking they really don't get them for several days...)

 

With our 2nd PSA… We were told we would get a call on the Friday…  after blood test on Tuesday.  By 1:00 on Friday (no call)….  So I called and the nurse and doctor were gone for the day…  so the weekend lingers on and on and on….

 

With our 3rd PSA… We had blood test on Tuesday and we had an appointment on Friday.  The nurse sits down and starts going over the cholesterol results and I’m thinking.. we need to hear the PSA results 1st. 

 

It just doesn’t register… how important these phone calls are to us!!! Until they’ve walked the path personally… I don’t see a change in their routine… Unless we push this issue.

Start pushing……

Keeping you close ~ In Friendship ~ Lee & Buddy


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 8/15/2007 2:43 PM (GMT -7)   
Call the doc's office.

Don had the same thing...on his scan they found what they thought were hot spots...turned out to be injuries sustained in a motorcycle accident years ago.

This is hard, I know, been there. But try this one thing...make a decision to look for the best. Your mind and heart will be in a much better place if you can do that. When you get the results, you will deal with it. Because you have to. Because you are strong and will move forward. And we (as part of your Team) will be here for you.

All the best,
Susan

broker59
Regular Member


Date Joined Apr 2007
Total Posts : 88
   Posted 8/16/2007 11:21 AM (GMT -7)   

Maria

I had the same experience.  My GP saw something in the bone scan report, sent me for X-rays, and MRI, CT scan.  ALL came back negative. My surgeon, and the Doctors who read the bone scan had NO problem with the scan.  When you have more than one Doctor involved on top of having CANCER, it can get to you. I finally told my GP NOT to call, but address any concerns with my surgeon.

Hope all turns out well, which I think will happen!!!

What are your husbands numbers?


Broker 59


Date of Dx 3/20/07

PSA: 2.5
Gleeson: 3+4
Stage: T2
Bone Scan Clean

Date of Surgery: 6/21/07  Open RP
 
Post Opp: ALL NEGATIVE margins & L/N, S/V.
Cath out after 18 days = BIG RELIEF!!!
 
PSA: 7/23/07 0.01
 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 8/16/2007 1:21 PM (GMT -7)   
Just to add about the pushiness if you need to- when our scanning tests were done, although reports are marked confidential they belong to the patient, so we (despite all fear and anxiety) picked them up first, opened them, and read them first. Probably a different system here just to be able to do that, but I was lucky to be sort of savvy with the system, and just to have the info first-hand we had to push, and push hard sometimes. We did not take any notice of any advice to wait if we did not have to, and just kept calling, phoning, even showing up at offices and politely insisting sometimes, as my husband had 4-5 ? hot spots due to various concurrent, past injuries, surgery and other things he lives with. All turned out with a past, reasonable, and non-life-threatening explanation (spine, shoulder, ankle, liver and another one somewhere else I have forgotten about). But so frightening each time - chilling. I just prayed for the Spirit to surround us, and it helped, but it was very, very frightening.

Generally, we came across the info almost as soon as they (various health professionals) did, by the actions of a few kind professionals, who understood our powerlessness at the time. Keep up with your research to know your rights to this info as other suggest. There would be various ways and means in different situations and keep insisting on getting all the info as soon as it is available, if you can so you can move beyond into awareness, and beyond the dark.

There is a critically, desperate need for health professionals to understand the life/matter/test from the perspective of what would it be like for the patient, and many do not, despite the job they do each day.
God bless you and keep you and your husband safe, Maria Teresa.
Creed_three
Lana posting for husband CJ (49 years). First PSA 3.5 (Nov 06). Open Radical Prostatectomy on Tuesday 17th April 2007. Gleeson 3 + 4 = 7. Confined to prostate. PSA 0.01 (June 07).


wiggyann
Regular Member


Date Joined Apr 2007
Total Posts : 171
   Posted 8/18/2007 12:29 PM (GMT -7)   
Dear Maria Teresa
 
When my husband had the Cat scans and the bone scan, they
told him that the tests would be read and back at the doctor's office in two days time.  However, my husband's urologist had gone away for the holidays and we couldn't find out anything
for several weeks. If my husband's doctor had been in his office, I would definitely have phoned him and told him that my husband and I wanted to know how the tests turned out.  It was very hard having to wait so long to find out anything.
 
May Our Lord Comfort You Both,
 
Wiggyann

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 8/20/2007 5:10 PM (GMT -7)   
Maria Theresa,

Thinking about you & Ron's test results...that was today, right? Please bring us up to date when you can.

Susan
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