My heart goes out to you and your dear one. While my PCa is stage 2 and seems to be under control and I am certainly no expert on advanced disease, I had to watch my father succomb to this disease. He had a lot of pain. He was stage 4 when diagnosed and being 81 years old decided to not treat it. But this was 20 years ago and if he had the new treatements that are available today, I am sure he could have lived longer and endured much less pain. Sorry to start with a sad story but the object is to assure you that there are many options available today and more on the way. We live in an era of great advancement and great hope in the treatment of cancer.
openess and willingness to discuss your plight are indications of the inner strength that we need in this fight. You have found us. Now let us comfort and help you with the many varied experiences that we can share. Never stop searching. Never stop asking question. Never, never give up.
Now a couple of practical suggestions.
Keep a journal of the things that happen, things that change and questions you have reagarding your DH progress. It is impossible to remember everything in the short time we have for an office visit. And we found that we had to write down the answers we got in those visits or we would forget them too. Office visits are tense times. We go there looking for the "magic bullet" that will make eveything okay. We have to use them to gather information and writing things down keeps us on track.
Take time for yourself. Your are essential to you DH recovery and you need to recoup your strength and sort out you own thoughts. This is not selfish on your part. You are really collecting and replenishing the most valuable weapon that you have in this fight. That weapon is your strength.
This insidious disease takes many unexpected turns and affects each of us in different ways. Read about
Michael Milken and others that have had dramatic turn arounds. We have guys with stage 3 and 4 disease here on this forum that have much to offer. Read their posts (as I am sure you have done). Ask them questions. Pull from their strength.
Most of all dear one, please stay with us. We need you as much as you need us...
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from 1/3/07 - 7/18/07 0.00.
T level on 4/2/07 - 48 On 7/16/07 - 613
Started .10 ml Tri-Mix on 8/7/07. It works!!!
Next PSA and T tests on 10/17/07
"Patience is essential, attitude is everything."