What a difference a day makes! My husband has an appt with Dr. Menon next week.

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mariateresa
Regular Member


Date Joined Jun 2007
Total Posts : 95
   Posted 8/23/2007 1:57 PM (GMT -7)   
First of all let me say that truly all of you are the "wind beneath my wings"! I couldn't have gotten this far, or do all the things I did today, without your support, knowledge and encouragement. Every time I started to get upset I remembered your sweet words and took a deep breath. And actually it worked out much better that I handled all this today instead of yesterday (remember I was beating myself up for not acting sooner). I started at 9AM this morning and it worked out much better.

My husband has an appointment with Dr. Menon, Henry Ford Health System, Vattikuti Urology Institute, next week.

I'm thinking our out of pocket costs may be near $13,000. I feel bad for those who have no insurance. Do you folks have any information or comments regarding a financial situation like this?

Bless you folks! I truly am grateful for all of you!

Love,

Maria Teresa
Husband Age 55 Maria Teresa age 44

Total PSA 8 on 05/21/07

DRE: prostate bumpy

Biopsy on 07/16/07: 5 out of 8 cores positive, Gleason Score 8 (3+4+5)**
A. Infiltrating, poorly differentiated adenocarcinoma, Glesason Score 8 (3+4+5). The tumor involves approx 70% of the submitted tissue.
No perineural or capsular invasion is identified.

B. Infiltrating, poorly differentiated adenocarcinoam, Gleason Score 8 (3+4+5). The tumor involves approx 50-55% of the submitted tissue.
Perineural invasion identified. Capsular invasion is not seen.

C. Infiltrating, poorly differentiated adenocarcinoam, Gleason Score 8 (3+4+5). The tumor involves approx 70% of the submitted tissue.
No perineural or capsular invasion is identified.

D. Infiltrating, poorly differentiated adenocarcinoam, Gleason Score 8 (3+4+5). The tumor involves approx 60% of the submitted tissue.
No perineural or capsular invasion is identified.

E. Infiltrating, poorly differentiated adenocarcinoam, Gleason Score 8 (3+4+5). The tumor involves approx 20% of the submitted tissue.
No perineural or capsular invasion is identified.

CT of the abd/pelvis; Bone Scan; Xrays done on 08/13/07: Normal


**"Report to the Nation on Prostate Cancer" published by the Prostate Cancer Foundation, page 11: "In some cases, the pathologist might identify a third pattern, which is less common but that has a higher grade than either of the first two patterns that comprised the Gleason score. The presence of this third pattern might indicate that the tumor is more aggressive than the Gleason score would otherwise imply. For example, if a Gleason 4+3 tumor also has some grade 5 cells, the cancer would be considered as being of higher grade disease overall."

Post Edited (mariateresa) : 8/28/2007 7:23:05 AM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 8/23/2007 2:12 PM (GMT -7)   
Well, Maria Teresa,
The doctors facilities in my experience have been nothing short of fantastic. Not so good with the insurance companies. And that is stated even though I am blessed with excellent benefits. I am covered 100% in network, and 75% out of network to a maximum of 3,000.00. Other than that just co-pays. My meds aren't that easy though all I am complaining about is the ED meds. My company is a little screwy with those drugs. That stated, my advice to you is don't take your first answers from the insurance companies as rule. You will likely have to get on the phone with them several times as I have had to. I was told by my new insurance provider that my oncologist was off network even though I could clearly see him on their web site. After about six calls by my oncologists office and one by me, they finally said that my visits to him will be on network. But the first answers tend to protect them not me. So put up your dukes! Stay on them and you will likely fare well.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 8/23/2007 3:16 PM (GMT -7)   
Mariateresa, I'm so happy to hear things are moving in the right direction.  I am confident you and your husband will get the attention and the treatment you need.  Hang in there and stay in touch!  Bless you both. 

Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07


sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted 8/23/2007 5:51 PM (GMT -7)   
You're in great hands with Dr. Menon..... he has associates at Ford that DO particpate in insurance programs. Ask the "PR" people in his office who they are. THen you can decide if Menon is worth the out of pocket expense vs on of the other docs there. I'll bet they're all pretty good there.

GOOD LUCK!
Sterd82
Age 47
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sessions of IMRT Ended Feb 1, 2007
PSA as of May 25, 2007 undetectable
Next PSA November, 2007


sterd82
Regular Member


Date Joined Sep 2006
Total Posts : 187
   Posted 8/23/2007 6:11 PM (GMT -7)   
One more thought....

I read you other thread where your first doc reconmmended non-neve-sparing RP.....which can be scary.

For what it's worth, I elected to have non-nerve sparing surgury, due to my cancer volume, PSA level. etc. I'm in the minority, but I'm glad I went that route. In my case, the cancer was very extensive and right up to the edges on my pathology report. Nerve-sparing RP would have certainly left a lot more cancer behind. As it was, I still had a positive margin and have had RT and HT since.

The reason I share this with you is the this DOES NOT end your ability to be initmate. It changes things, and you need some extra help...but it does not end things. Keep that in mind as you weigh your options --- remeber, the whole point here is to be cured......
Sterd82
Age 47
Open Radical Prostatectomy 6/9/2006
Pathological Stage T3a, Positive Surgical Margin
Gleason 3+4
PSA rose to .24 in November of 2006
6 month hormone therapy initiated December 1. 2006
36 sessions of IMRT Ended Feb 1, 2007
PSA as of May 25, 2007 undetectable
Next PSA November, 2007


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 8/23/2007 7:53 PM (GMT -7)   
Maria Theresa,

Well, look at the progress you're making in such a short time! That's good to hear...yes, the support here is wonderful.
We'll be looking forward to hearing your report on your consult with Menon. Keep going bravely forward.

All the best,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
9/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1

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