During the course of my recent diagnosis, research and surgery I developed an informal personal support network consisting of friends who are themselves survivors. As a result, I am researching the formation of a more formalized face-to-face support network to help educate and support those who will surely follow from this area. The only such networks I have found on the web have been affiliated with the international organization Us TOO (www.ustoo.org) or the Man to Man/Side by Side chapters sponsored by ACS. I would be interested in comments - pro and/or con - that participants here may have with either of these face-to-face support organizations.
TJ Dillon - TX
Diagnosed: May 2007, PSA-3.9, 1 of 12 cores Gleason 7 (3+4)
Treatment: Robotic laparoscopic prostatectomy 8/13/07
Post-op pathology: Confirmed Gleason 7 in left lobe, also Gleason 6 in right lobe, T2c, negative margins, both nerve bundles spared
Recovery: Catheter out 8/21/07