Seeking face-to-face support group experiences

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festus
New Member


Date Joined Jul 2007
Total Posts : 5
   Posted 8/24/2007 1:45 PM (GMT -7)   
During the course of my recent diagnosis, research and surgery I developed an informal personal support network consisting of friends who are themselves survivors. As a result, I am researching the formation of a more formalized face-to-face support network to help educate and support those who will surely follow from this area. The only such networks I have found on the web have been affiliated with the international organization Us TOO (www.ustoo.org) or the Man to Man/Side by Side chapters sponsored by ACS.  I would be interested in comments - pro and/or con - that participants here may have with either of these face-to-face support organizations.

TJ Dillon - TX
Diagnosed: May 2007, PSA-3.9, 1 of 12 cores Gleason 7 (3+4)
Treatment: Robotic laparoscopic prostatectomy 8/13/07
Post-op pathology: Confirmed Gleason 7 in left lobe, also Gleason 6 in right lobe, T2c, negative margins, both nerve bundles spared
Recovery: Catheter out 8/21/07


bluebird
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Date Joined May 2006
Total Posts : 2542
   Posted 8/30/2007 2:10 AM (GMT -7)   

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Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 8/31/2007 1:08 PM (GMT -7)   
You might try asking your doctor. I know we get a newsletter that lists a local meeting about once a month through where Ken got treatment. One or another doctor is a featured speaker.

I am not familiar with the organizations you list, and haven't attended the one's listed in the newsletter, either, but might be a place to look.
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 

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