A Dad's Journey by a Doting Daughter

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Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/28/2007 6:22 PM (GMT -6)   
My father is due to arrive in Seattle tonight for his pre-op appointment tomorrow at Virginia Mason.  Today is his 63 birthday.  He was diagnosed on July 15th with Prostate Cancer.  His PSA numbers were being "watched" for the previous 9 months and fluctuated, but are around 4.8-5.5.  His Gleason score is a 4+3=7.  Both opinions that he received regarding his diagnosis believe that the cancer is confined to the capsule.  It appears as though the nerves may be spared on the left side, but an MRI tomorrow will determine whether or not they will be able to perform a unilateral or bilateral prostatectomy on Friday.  He has elected to have the Da Vinci surgery. 
This site has been a blessing! Puget & Idaho Survivor have been so helpful with their encouragment and recommendations! I have my dad's care package all set with a robe and numerous other items for his post surgery journey.  I know your suggestions will make his recovery easier and for that, I can't thank you enough. 
I've been sick to my stomach all day and just pray that tomorrow's pre-op appointment goes well.  Please keep my father in your thoughts and prayers over these next few days.  He truly is an incredible father, friend and soon to be grandfather to a baby boy due Oct. 10th (who will being having his PSA checked regularly as soon as he is walking :-) .  Thank you all for your support and I will keep you posted! 
A Doting Daughter

puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 8/28/2007 8:09 PM (GMT -6)   
Things are moving right along and in the right direction! One more thought about tomorrow. Your dad needs to take this appointment to ask all the qeustios he can think of! As you know, I had my surgery at VM, too, and they are great! But surgeons being surgeons, their focus is on the procedure and only then on the whole range of other issues -- incontinence, ED, fatigue, recurrence rates, etc, etc. You've had the benefit of this forum, so maybe you and Dad don't have the uncertainties I did at this point. But if he still has things he wants to talk about, now's the time!!

Hang in there. Your dad's going to do great!

puget
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 8/28/2007 8:24 PM (GMT -6)   

Hi ~ Doting Daughter, Dad,  & Loved Ones,

  

A   “Special”  Warm Welcome  to  You!

 

We know ~ we can “all” make “Your Journey” smoother just by being here for you! 

This is truly a great forum!!! ~ You have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share...  It helps “all of us” ~ to help you ~ if we know where your loved one is …on their path. So ~ Please stay with us and take our hand when you need it! 

Keep posting.... OKAY!!   Your personal thread and title are perfect!!!!!!!!

 

Surgery Day……  

“Our hands will be on your shoulders”

special words borrowed from hamala

 

 ~~*~~*~~*~~~)*&^%  Group Hug %^&*(~~~*~~*~~*~~

 

From the 3 of us...

Lee, Buddy, & Murphy

 

 

Our thoughts and prayers will be with all of you!

In Friendship,  Lee & Buddy

 

“God Bless You”

It's a little prayer  ~  "God Bless You" ...but it means so much each day,

It means may angels guard you and guide you on your  way.

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Prostate Cancer Resources, Helpful Hints, and Topic Thread Links

This link is also located at the top of each prostate forum page... ;) 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 8/28/2007 8:47 PM (GMT -6)   
Hello Doting Daughter,

My two daughters must be just like you because they did so much for me during my time of great need. If it were not for them and my ever vigilant wife I'm sure things would not have turned out as well. Tell your dad we are all praying for him, and please wish him a happy birthday from all of us.

God bless you,

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 8/28/2007 8:47 PM (GMT -6)   
Doting Daughter,

So glad you started your dad's journey. My husband was diagnosed at the same age in late 2005. He's now the very proud Grandpa of a beautiful grandaughter, 3 months old. Your Dad will be spending lots of time with your baby and love every moment. Take care of yourself, dear.

All the best,
Susan

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/28/2007 11:05 PM (GMT -6)   

Dear Doting Daughter,

As echoed already by the good members of this forum, God bless you for being such an angel to your father!  He will really appreciate the closeness and the feeling of nurturing from his own daughter.  The experience will last a life time.

You have a right to be scared and nervous, and, as you take a deep breath and move forward, your father will lean on and appreciate your strength and care.

Our thoughts and prayers will be with you throughout your and your father's journey. 

Please let him know that we care.  :-)

All the best!

Idaho


Age: 54
PSA: 4.3
Biopsy: T1c, 3+3=6, 2 pos. samples in one side of prostate
Da Vinci 31 Jul 2007: saved nerve bundle on side of non-cancerous side
Final pathology: Confined to prostate, T2a, 3+3=6
Working to get back into good shape
Waiting to take that first post-op PSA

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/29/2007 1:16 AM (GMT -6)   

Your responses are truly amazing.  Thank you all! I just shared this site with my husband and he can't believe the responses from all of you.  They are extremely touching. 

My parents made it in safely and everyone is tucked in for the evening.  Tomorrow is a big day with all the pre-op stuff!  I'm off to bed, but thank you all so much for your kind words and prayers!

Doting Daughter


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/29/2007 8:19 PM (GMT -6)   
So..it could have been a better day and it could have been worse. According to the MRI, it looks as though the lympnodes are ok, however, the cancer is pushing on the capsule on the right side and we won't know about the margins until 5 days post surgery once the path report comes back. This disease is so scary.
Gleason score of 4+3
Please continue to keep my dad in your prayers for his surgery Friday and pray that he has negative margins.

Doting Daughter

hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 8/29/2007 10:52 PM (GMT -6)   
You'll find that VM is a great facility, and their Prostate Cancer Treatment Center first rate.  They have been with me from the start and continue as I get adjuvant radiation treatment right now.

PSA 4.7 (up from 3.2 one year ago)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology
     Stage T3a, Gleason 3+4, positive margins and
     capsular penetration RIGHT Side
Post Surgery PSA:  March 5:  0.01
5 month PSA, June 13, 2007:  0.08
Adjuvant therapy began June 26 with Zoladex injection
     Radiation to commence in late August
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/29/2007 11:26 PM (GMT -6)   

Dear Doting Daughter, We will certainly be praying for the best outcome for your father both during and after surgery.  Please keep us updated as to his progress.  God bless you and your family with comfort on Friday.

Idaho

 


Age: 54
PSA: 4.3
Biopsy: T1c, 3+3=6, 2 pos. samples in one side of prostate
Da Vinci 31 Jul 2007: saved nerve bundle on side of non-cancerous side
Final pathology: Confined to prostate, T2a, 3+3=6
Working to get back into good shape
Waiting to take that first post-op PSA

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/30/2007 9:21 AM (GMT -6)   
hawkfan75 said...
You'll find that VM is a great facility, and their Prostate Cancer Treatment Center first rate.  They have been with me from the start and continue as I get adjuvant radiation treatment right now.

Thanks Hawkfan! It is so great to hear that your experience with VM has been great.  Who was your surgeon if you don't mind me asking?  My dad's is Dr. Porter and he was great when we met with him yesterday.  The whole process ran like a well oiled machine, but what an emotional day!!!!  Your cancer sounds very similar to my father's diagnosis.  We are just hoping and praying that the margins are clear.  Dr. Porter did mention adjuvant therapy if the margins are positive.  It's just so horrible having to watch someone you love go through this.  Thanks for your response! They really do help! 

We will keep you in our prayers for a successful radiation treatment!! Go Hawks! :)


common man
New Member


Date Joined Aug 2007
Total Posts : 13
   Posted 8/30/2007 10:07 AM (GMT -6)   
I will be thinking of you all day as we all have to stick togeather Common
 

age 66 Diag 2005 with psa of 9+ had radiation and smr chemo. Nwe pas as od may 07 of 7.7 email click here…>common man

 

Edit: e-mail address edited/masked for your security (click on link)

Post Edited By Moderator (bluebird) : 8/30/2007 10:27:28 PM (GMT-6)


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 8/30/2007 11:57 AM (GMT -6)   

Dr. Porter was my surgeon.  My wife and I were very impressed with our initial meeting with him, and kept his drawing on the table paper showing some details on where things lie.  My initial biopsy showed a small amount, and he was surprised when the pathology report showed more.  Since I had the positive margins, I am now undergoing the adjuvant radiation and HT therapy right now.  (6 down, 24 to go!)  As far as the surgery and post surgery, I was up walking the same evening and released the next day.  I immediately started stretching out my walking, especially after the cathedar removal.  I did my Kegals prior to surgery and after the cathedar was removed and continue today.  (He should be doing them now!)   It didn't take me long at all to be continent - he sewed everything up just fine!  There are times I have to be careful and get a drip, but no big deal.

Get the date set and relax.  You're doing what you can to conquer this disease so your dad can live a wonderful and long life.


PSA 4.7 (up from 3.2 one year ago)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology
     Stage T3a, Gleason 3+4, positive margins and
     capsular penetration RIGHT Side
Post Surgery PSA:  March 5:  0.01
5 month PSA, June 13, 2007:  0.08
Adjuvant therapy began June 26 with Zoladex injection
     Radiation to commence in late August
 


mariateresa
Regular Member


Date Joined Jun 2007
Total Posts : 95
   Posted 8/30/2007 12:38 PM (GMT -6)   
Dear Doting Daughter,

I am remembering your father and you and your family in my thoughts and prayers.

Maria Teresa
Husband Age 55 Maria Teresa age 44

Total PSA 8 on 05/21/07

DRE: prostate bumpy

Biopsy on 07/16/07: 5 out of 8 cores positive, Gleason Score 8 (3+4+5)**

CT of the abd/pelvis; Bone Scan; Xrays done on 08/13/07: Normal


**"Report to the Nation on Prostate Cancer" published by the Prostate Cancer Foundation, page 11: "In some cases, the pathologist might identify a third pattern, which is less common but that has a higher grade than either of the first two patterns that comprised the Gleason score. The presence of this third pattern might indicate that the tumor is more aggressive than the Gleason score would otherwise imply. For example, if a Gleason 4+3 tumor also has some grade 5 cells, the cancer would be considered as being of higher grade disease overall."


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 8/30/2007 7:19 PM (GMT -6)   
We are praying for your dad; that his surgery is successful and his recovery is speedy. Please wish the whole family well from us.

God bless you all,

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. boundaries
DaVinci surgery on 02/23/06
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 8/31/2007 6:19 PM (GMT -6)   
Hi Doting Daughter.

Pre-op day will be a long one for you Dad with all the tests and such. My daughter lives in NYC and could not be with me until my surgery. I miss seeing her and I know your dad is so proud of you for being with him during this time. We are all praying for you and your Dad and we all be hoping for the best and a clean pathology report.

Mika-mvesr

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 9/1/2007 7:42 AM (GMT -6)   

After a long day yesterday, my dad is through with surgery!! Hooray!! Dr. Porter feels everything went great and hopefully he will be released today, if not, tomorrow.  The surgery started late, so we didn't get to seem him until almost 8pm last night.  His spirits were up and I was surprised at how well he seems to be doing.  He is obviously medicated, but doesn't seem to be in a lot of pain and just experiencing the discomfort of the catheter.

I am just so thankful the surgery is over and hope that the path report comes back with negative margins.  It's a good feeling to know that the healing process is now beginning.  I know the road is going to be challenging, but he is a fighter and after an emotionally draining few days, I feel a renewed sense of fight.

I'm so proud of him and everyone else that has gone through this experience.  It truly has been one of the scariest experiences in our lives and it's amazing how much love and support flood in from all directions.   I feel grateful.  Thanks be to God and all of you for your prayers and encouragment.  I'll keep you posted! 

Doting Daughter


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 9/1/2007 9:47 AM (GMT -6)   
Hey Doting,

Glad your dad got through his surgery okay. My daughter was with me last December for my surgery and she was a big help. She got me up numerous times and walked me down the hall. You can't believe how much it means to a dad to have his girls with him...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 9/1/2007 10:04 AM (GMT -6)   

Hi Doting,

'So glad to hear the surgery went well and that your dad is in good spirits.  When you feel you can make the surgery choice, you find it satisfying to have "that little guy" out of your body!  Your dad probably has some relief just knowing that as well.  You should be proud of such a "trooper."

Please keep us posted on his progress, and please ask any of the surgery veterans here on the forum any post-op questions you might have.

Our thoughts and prayers continue to be with you!

Kind regards,  :-)

Barry (a.k.a. Idaho)


Age: 54
PSA: 4.3
Biopsy: T1c, 3+3=6, 2 pos. samples in one side of prostate
Da Vinci 31 Jul 2007: saved nerve bundle on side of non-cancerous side
Final pathology: Confined to prostate, T2a, 3+3=6
Working to get back into good shape
Waiting to take that first post-op PSA
My awareness web site: http://pca-info.blogspot.com


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 9/1/2007 2:18 PM (GMT -6)   
Dear Doting -- Wonderful news about your dad. I'm sure he'll be up and out of the hospital quickly. The beauty of the robotic technique is that you feel pretty darn good after only a few days. My only advice at this point is that he shouldn't be fooled by how good he feels. I found that even though I felt great, I was still really tired. Usually took a long nap every day for the first 2 weeks. Then, when I went back to work (too early I think), I'd fall into bed about 9 pm. Still lots of healing going on for at least 6 weeks.

But the difficult part is over. Again, congrats to you and your dad!
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 9/1/2007 3:35 PM (GMT -6)   
Doting Daughter

Glad your dad came through his surgery well. Get him up and walking but after he gets home but don't overdo it. His body will tell him if he does. The cath is tough. It is necessary for healing and it will be there only a short time. You guys take care and we are all glad it went well and hoping for a good pathology report.

Mika-mvesr

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/1/2007 7:08 PM (GMT -6)   
Keeping you all close as you move onto the Healing/Recovery stepping-stone in your Dad's Journey.
Hugs from Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 9/2/2007 4:24 PM (GMT -6)   

What a difference a day makes! My dad was released yesterday at 5pm and we were able to return home.  He was SOOO eager to leave and last night was a little frustrating for him trying to shower and do too much.  I think we are all a little guilty of trying to be too independent at times.  However, he made it through and was able to get some sleep.

He is now on Extra Strength Tylenol and trying to adjust to the "bag".  Which as unpleasant as it is for him, it means he is one step further in the journey towards recovery. 

A few things I figured out today....my over the door robe hook makes an excellent cath bag hanger and Prune Juice does work when everything else seems to fail :) 

We are optimistic for good news on the path report later on in the week and looking forward to the catheter coming out on the 11th.  Until then, I'm grateful to have the extra time to spend with my family....I just wish they were visiting for different reasons. 


Post Edited (Doting Daughter) : 9/3/2007 7:44:06 AM (GMT-6)


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 9/2/2007 5:09 PM (GMT -6)   

Dear Doting Daugther,

What excellent news!  I'm sure your dad appreciates his "freedom" from the hospital, even though he has to deal with the silly catheter.. that will come out soon!  Enjoy the time nurturing your dad.  I know you'll help ensure that he makes measured progress and doesn't overdo anything.  No lifting!  We're looking forward to the path report and him getting that catheter out soon.  Please keep in touch regarding his progress and add anything you'd like to ask or comment on.

Kind regards,

Barry (a.k.a. Idaho)


Age: 54
PSA: 4.3
Biopsy: T1c, 3+3=6, 2 pos. samples in one side of prostate
Da Vinci 31 Jul 2007: saved nerve bundle on side of non-cancerous side
Final pathology: Confined to prostate, T2a, 3+3=6
Working to get back into good shape
Waiting to take that first post-op PSA
My awareness web site: http://pca-info.blogspot.com


uncledan
Regular Member


Date Joined Aug 2007
Total Posts : 120
   Posted 9/2/2007 9:18 PM (GMT -6)   
Dear DD, If your father is going to be flying back home or even a short car trip I reccommend a seat cushion ( donut ) for the trip. My trip was about 120 miles and the cushion was a great help. The first one I bought was inflatable and very uncomfortable. I returned it an bought one made of sponge rubber w/removable cloth cover ( less than $10 ). It was great. I bought the 18 inch size, I think that is the largest size they make. I'm 6 ft 190 so maybe another size will be better for your dad. The pharmacy let me set on the different ones to help me make a decision. I was operated on 8-14 and released 8-16. Only pain medicine I've taken is extra strength Tylenol for pain and Celebrex for inflammation. First two weeks I took a Ducalax stool softener AM and PM. These are available in generic also, just ask. Glad your Dad's surgery went well and there are two things to remember. 1. There are a lot of compassionate, caring, individuals on the forum. 2. Things are hardly ever as dark as they first seem when you finally get the info you need. God Bless, Uncle Dan
Age 67
10-06 PSA 5.44 01-07 PSA 6.47
CT and Bone scan negative
Biopsies 05-07, 2 of 6 positive
Gleason Score 7 (3+4) Stage T1c
Dr. Dasari - Baptist Hospital da Vinci surgery 08-14 RAP,
Surgery five hours, hospital 8-14 to 8-16
Lymph nodes 2 R & 1 L, R & L seminal vesicles. Negative
Pathology report cancer encapsulated Stage T1c
Gleason changed 7 (4+3)
8-31 Use pad when out, Sleeping without pad.

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