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pm10000
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 8/30/2007 10:31 AM (GMT -7)   
I have tried to find topics on ED through the search engine, but it keeps coming up with "no matches."  I know better.
 
Could those of you with experience with ED either point me in the right direction or address the issue here?
 
I'm 9 months to the day beyond my Radical Prostatectomy (not robotic--don't know what to call it).  Both bundles were spared.  Continence was cleared up completely within 5-6 weeks, but ED is still a big (or rather small confused ) issue.  Viagra works some but not every time.  Gosh but it's expensive!
 
Under certain particularly erotic situations, I can achieve about 1/3 without drugs.  Here's the weird part: I sometimes get spontaneous 1/2 to 2/3 erections without sexual stimulation of any kind.  It often happens when I'm sitting on the toilet trying to evacuate the last bit of urine.  Obviously something in this process is physically stimulating the nerves because erotic thoughts or sexual stimulation does not get the same results. 
 
Do such spontaneous, non-sexual erections happen common to any of you, and if so, does this sound like a hopeful future of drug-free success?  My urologist knows about this, and he is pleased with my progress, but he didn't have much to say except to be patient. 
 
Not looking necessarily for reassurance; I'll just want to know how you have experienced the gradual return to full functionality--if such a state is even possible.
 
Thanks (I figured out how to do the signature. I hope it works this time)

Age Diagnosed: 44
PSA: 3.7 in Nov. 2005 (negative biopsy)
PSA: 6.3 eight months later in August 2006 (positive biopsy)
Radical Prostatectomy: Nov. 30, 2006
Pathology: Gleason 7 (3+4); no margins
PSA undetectable after three draws
ED still a problem with nerves bundles spared, alas


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 8/30/2007 11:26 AM (GMT -7)   
PM-10K,

Due to adhesions from many previous abdominal and pubic cavity surgeries, my radical pprostatectomy was also an "open" prostatectomy.  Many have "retropubic" open prostatectomies (in the crotch area).  Mine was a "bikini cut" incision just an inch or two below the navel.
 
Swim and Tamu have threads on E.D. that you can find scrolling down in Helpful Hints at the top of the page.  The discussions include Vacuum Devices, Injections, Seldinafil Citrate 100 mg imports for less than $1 (I endorse alldaychemistsdotcom - some don't), and a lot of encouragement to be patient.

The responses you are showing at 9 months are encouraging to us all!  Thanks.

CCedar
ICTHUS!


2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?

Post Edited (Cedar Chopper) : 8/30/2007 12:31:37 PM (GMT-6)


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 8/30/2007 11:36 AM (GMT -7)   
pm,

The rehab for Ed generally follows the following course. A couple of weeks after surgery begin taking Viagra, Cialis or Levitra. The dosage and frequency varies among urologist that follow a penile rehab program. In my case I started taking 25 mgs every night for six nights without any stimulation and then on the seventh night 100 mgs with stimulation. I did this for three to four weeks with little effect. I then began using a vacuum pump along with the Viagra. This provided an erection firm enough for penetration but it lacked a lot in quality. My urologist actually recommended injections over the vacuum pump but left it up to me and said that I would be back for the injection. He was right. After about two months I went to his office to have my first injection. The injection itself did not hurt but the medication in Caverjet caused me a lot of aching and it took me a few weeks to get up the nerve to try it again. I was prescribed Bimix, which is a compounded drug that does not have any of the medication that is in Caverjet. The Bimix worked well and I have been using it ever since. I can get about a 30% erection now without any assistance and about a 50% to 70% with just Viagra. A couple of months ago my urologist told me to combine the Viagra with the injection. Since then I have had improvement and have been able to reduce the dosage of the Bimix. The sensations you are having with just Viagra are more then I have had. If you were on injections you would probably see a quicker return of normal erections. My urologist is very proactive for returning erections. It is obvious from others on this forum that not all urologist are that way and some just say you have to wait without any intervention. I would suggest you discuss this with your urologist. Not all men can inject themselves in the penis so many urologist wait for the patient to indicate dissatisfaction before prescribing injections.

Good luck.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


56pontiac
Regular Member


Date Joined Sep 2006
Total Posts : 232
   Posted 8/30/2007 1:06 PM (GMT -7)   
Hey new dude!  Welcome to the forum you never wanted to join. It was exactly 10 months after my surgery I got an erection yeah suitable for intercourse. yeah   My surgery was 10/12/06 and the magic moment happend 08/12/07 without a pump and has been working since then. Your descriptions of what's been going on with you are very similar to mine. Your nerves have been spared but have also been damaged and it will take some time for healing. They are confused and don't know whether to pee or get an erection. However, they are healing right now and it sounds like they are on track for you to recover fully. Just be patient keep "working it out" and it will get better. Some make this type of surgery sound like a tonsillectomy but it is a major major major invasion of your body and it takes time to recover. http://www.alldaychemist.com/men_health.html Far as viagra etc. check out this link the pills are identical and the service is great and it is less tha $1.00 a pill. I speak from personal experience. This site has been referred to on this forum many times. Good luck to you and God Bless you are going to be just fine.

puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 8/30/2007 3:01 PM (GMT -7)   
Hi, 0K. I'm not quite 3 months out from da vinci. Started on 50 mg viagra after two weeks. At 6 weeks, increased to 100 mg. I'm getting maybe 40-50% with Viagra and no better than 20% without. Disappointing, but Dr and others on this forum tell me I'm about on schedule. Dr said not to expect any real improvement for the first 6 months, so it sounds to me like you're right on schedule or even ahead. Because of cost of Viagra, I ordered Caverta through alldaychemist.com. Much, much cheaper, and I've found it works as well as, maybe even a little bit better, than Viagra. My dr was dubious, but so far so good. As for your specific question, I too find that the little guy gets confused between pee*ng and the other sensation. I have to be careful that I don't do both at once, but a little concentration seems usually takes care of that. I'm relying on the nerves to finally figure things out.

puget
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07


pm10000
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 8/30/2007 3:33 PM (GMT -7)   

Thanks for your comments, guys.  I'm embarassed to ask, but I don't know anything about the vacuum pump.  I know there is an implant that can be surgically inserted and then pumped up, but I'm guessing that this is not what you are referring to above.  Could you enlighten me?  My urologist hasn't mentioned it.

 


Age Diagnosed: 44
PSA: 3.7 in Nov. 2005 (negative biopsy)
PSA: 6.3 eight months later in August 2006 (positive biopsy)
Radical Prostatectomy: Nov. 30, 2006
Pathology: Gleason 7 (3+4); no margins
PSA undetectable after three draws
ED still a problem with nerves bundles spared, alas


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/30/2007 4:39 PM (GMT -7)   
Hi PM,
 
The following link is to a company web site with a vacuum device. 
 
This is an external device and only one of several on the market.  The web site has a video you can run that shows the operation of the device. 
 
Your doctor may have another brand in the office to discuss with you.
 
Being just 30 days out of surgery, I'm not so worried about the ED but I am on a Viagra, Cialis, "rehabilitation program" like the others.  I've learned a lot from this forum, so I'm just being patient and going with my doctor's advice.
 
It sounds like you're doing fine.  :-)  
 
All the best,
 
Barry (Idaho)

Age: 54
PSA: 4.3
Biopsy: T1c, 3+3=6, 2 pos. samples in one side of prostate
Da Vinci 31 Jul 2007: saved nerve bundle on side of non-cancerous side
Final pathology: Confined to prostate, T2a, 3+3=6
Working to get back into good shape
Waiting to take that first post-op PSA

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 8/30/2007 9:17 PM (GMT -7)   
Hey PM,
I posted a link in your welcome letter.  It will guide you to several postings.
Hope this helps you!!
Lee

Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted 8/31/2007 9:58 AM (GMT -7)   
56pontiac and others.... you refer to alldaychemist.com in your post yesterday. I went to the site and it looks interesting. My doctor has prescribed 20mg cialis which has the active ingredient tadalafil. I am in the United States, and they say that "tadalafil is not for consumption in the United States". Does that mean I can't buy from them? I tried to call and got their voice mail. Does anyone have any ideas how I can cut the cost?

Thanks

Jerry
51 years old
T1c 3+3=6
DaVinci July 16, 2007
largest cancer .2mm
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 8/31/2007 1:41 PM (GMT -7)   
Jerry Rip&Burn,

Cialis is defending their patent on tadalafil with the U.S. Postal Service and so alldaychemists won't mail it to you.

Someone here (I think it was Swim) said Viagra would soon lose it's patent and go generic?
That would be a blessing as so many insurance companies just say no -
  - as if this was just about recreational sex......
More than likely it is about the exagerated prices from Viagra and Cialis - and our need for daily doses to develop a "soft-on" while we patiently heal. 

I could use an unexpected, inexplicable blessing concerning E.D!   ;-)

CCedar
ICTHUS!


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 8/31/2007 8:35 PM (GMT -7)   
I guess I have been a little lucky in the ED area. I'm about 10 months post PPR and can get a usable erections without the use of Viagra. The Viagra does make it better though! I have also woke up a few time in the last month in the last month with a erection! I would highly recomend the generic viagra from alldaychemist.com. I think every man that works for a insurance company that denies our coverage for these drugs should have to deal with this disease. Then... they might be more willing to cover them in our cases. I say to H*& ^ with them and buy the generic where ever we can get it. Let them keep the high dollar drugs!
Anyway...just hang in there and let things heal. You should be back in action soon!
Just wish I could stop the leaking.

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
   


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 8/31/2007 8:56 PM (GMT -7)   
Hey PM,

I'm about a month behind you. Had RRP on 12/7/06. I'm using 50 mg Viagra substitute about two hours before I inject .02 ml Trimix. Works great for a 73 year old...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


56pontiac
Regular Member


Date Joined Sep 2006
Total Posts : 232
   Posted 9/1/2007 10:14 AM (GMT -7)   
Hey ripandburn go in the site and order them go to checkout see if it lets you do it. You have  nothing to loose by trying. I have ordered from them three times and they are great.

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/1/2007 11:38 AM (GMT -7)   
Hi Rip,

Cedar is right. Tadalafil is not availabe from allday (or pretty much anyone) into the U.S. A suit filed by the makers of Cialis won a suit preventing the sale of any verison of tadalafil for the time being. The vardenafil and sildenafil are both available. Pfizer wasn't so lucky!

swim
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 9/1/2007 5:43 PM (GMT -7)   
I don't know - seems like Viagra is pulling out all the stops before they lose their patent with their latest commercial "Viva Viagra"...just how much money did Elvis' estate get for that?! Don & I got a good laugh when we saw that one!
Of course, then we cried tongue

Susan

Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted 9/3/2007 7:10 AM (GMT -7)   
56pontiac,

I went to the site and ordered today. There was an indication on the site as I was going through the process that I may have to fax a copy of the prescription. I guess if they request it, I will have the doctor write me a new one. My only real concern is not that they may not be able to ship to me....even though they act as if they will, but that the transaction did not look like a secure one. I really don't want my credit card number floating around the internet. Have you had any problems with that in the past? Do you live in the US? Were you required to fax a prescription?

Thanks

Jerry
51 years old
T1c 3+3=6
DaVinci July 16, 2007
largest cancer .2mm
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins


56pontiac
Regular Member


Date Joined Sep 2006
Total Posts : 232
   Posted 9/3/2007 10:54 AM (GMT -7)   
I live in Oregon. I have had absolutely no problems with them. Less than a 1.00 a pill I used one last night (worked great) since today is a holiday, I might even use another one today since it's only $1.00.    yeah  I have ordered at least three times. I didn't have to fax a prescription. One of the advantages of this fast computer age we live in is if someone uses your credit card by fraud you are not responsible and your card company will give you a new one and reverse all the charges. When we were in Hawaii last year someone used one of my business credit card numbers and purchased $11,000 worth of roofing material from a legitimate company in Spokane. They didn't verify anything they shipped the product to Indonesia can you beleive it? Indonesia! and they were out their product. The card number the thieves used had never been used to buy anything anywhere. Advanta bank told me that the thieves use a computer program to generate card numbers, and sometimes they luck out and score. The roofing materials supply company was really stupid by taking the order over the phone and not verifying an address. I think they were excited about getting big sale. Anyway that has been my experience with Alldaychemist.com  and it has been good.  Let me know how it goes for you. http://www.myspace.com/56pontiac
I'm the 58 year old guy in the pictures that's missing his prostate.

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/3/2007 12:24 PM (GMT -7)   
We've also ordered on 3 speprate occasions without a problem. In fact, one of those times allday called me and said they had messed up on something but sent my order anyway. The gentleman informed me that once an order has been received and sent for processing, all card information is erased so it remains safe. I wouldn't give my number over the phone so they gave me directions on how to get it to them and said expect a call from my bank to verify. The bank did indeed call me. As far as I can tell, this is a secure site. I appreciated their personal touch. I received my order before they actually got their nearly 300 dollars.

Vickie
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 9/3/2007 5:08 PM (GMT -7)   

They do have a secure site.  Once you enter the area for credit card info, you enter a VeriSign protected section.  That's the gold standard of protection.

As an experiment, I ordered 10 and 10 free, I didn't change any of their doctors info.  Some doctors name and phone number was already entered in that slot, so I just answered the health question and proceeded.  They took the order, so far.  No request for script, no further info.  I noticed they said somewhere on there that 'some' prescriptions might need to be faxed.  I guess by that they were implying that most didn't.  Probably narcotics and such does require it.  We will see if they do ship it to me.  Oh, the shipping was a surprise- $24.95.  Where do they ship from, India itself, or the other side of the moon?

James C.


56pontiac
Regular Member


Date Joined Sep 2006
Total Posts : 232
   Posted 9/4/2007 7:20 AM (GMT -7)   
They ship form India. Shipping is the same for 100 pills or 20.

Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted 9/5/2007 3:47 PM (GMT -7)   
We all,

Here's my reply from alldaychemist:

Dear Jerry


Thank you for placing an order with us.



Please note that due to a recent judgment by US International Trade Commission, we are unable to issue shipment of Tadalafil to USA.

This is in the interest of our valued customer such as you. Please note that as per this judgment, technically a person can import Tadalafil for consumption is the US, if he submits a bond of 100% value with USITC (along with other import documents and an express permission from Lilly ICOS which for obvious reasons will be rejected), but then it will involve unnecessary complications. Please view:

http://www.usitc.gov/secretary/fed_reg_notices/337/337-TA-539.Notice.1150214885.pdf

Other internet sites offering Tadalafil for sale in USA are putting you at risk.

Is it fine with you if we can ship 40 pills + 40 pills free and 10 pills extra Vardenafil Hcl 20 mg instead of Tadalafil.

This is for your kind information please and we look forward to your confirmation about the above.


With warm regards

ANUJ
Tel (US): (213) 291 8410







We value relationships...
www.alldaychemist.com
51 years old
T1c 3+3=6
DaVinci July 16, 2007
largest cancer .2mm
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins


56pontiac
Regular Member


Date Joined Sep 2006
Total Posts : 232
   Posted 9/5/2007 4:54 PM (GMT -7)   
ripandburn  email me rcboals@yahoo.com

StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted 9/6/2007 2:05 PM (GMT -7)   
Another vote in support of alldaychemist.com here. Their products (I have tried sildenafil and vardenafil) work OK for me, meaning they work as well as the expensive stuff you get here in the good old U.S.A.
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on Cialis, L-arginine and pentoxyfylline, ordered to be celibate for 6 weeks.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .500 (4 for 8)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."


pm10000
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 9/8/2007 8:40 AM (GMT -7)   
I woke up yesterday morning with quite a shock: a stiffy of about 80 percent.  I couldn't believe it.  It wasn't sexual but rather because of pressure from my bladder.  This used to happen all the time, but this was the first since my surgery (I'm just beyond nine months out).  After peeing I tried to do something with it, but, alas, it was gone with the flush. 
 
It seems odd to me that I would not have experienced more of an in-between stage with bladder pressure in the morning, but there you have it.
 
Have any of the rest of you found that this condition was a prelude to getting it back with erotic activity?  I continue to be cautiously optimistic.
 
BTW, nothing this morning, but perhaps I wasn't in quite so great a need of the little boy's room.
 
Thanks for your responses.

Age Diagnosed: 44
PSA: 3.7 in Nov. 2005 (negative biopsy)
PSA: 6.3 eight months later in August 2006 (positive biopsy)
Radical Prostatectomy: Nov. 30, 2006
Pathology: Gleason 7 (3+4); no margins
PSA undetectable after three draws
ED still a problem with nerves bundles spared, alas


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 9/8/2007 2:19 PM (GMT -7)   
Congrats PM10K!! Sounds like you're on your way back to "full strength." Your post was very encouraging to me -- just 3 mo post-surgery. I'm still waiting for wood!
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07

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