One year after surgery - update

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M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 9/11/2007 4:24 AM (GMT -7)   
hello everyone! it's been a while since I've spent much time here but do think of all of you often. Jeff received his latest PSA results. <0.1 again! YEAH! It's been an interesting year, especially in the ED department. Jeff recovered from the surgery fine and his incontinence wasn't much of a problem either. once in a while he'll have a few dribbles, especially when we're fooling around. but maybe he has dribbles other times and just doesn't notice it? If I had posted on Aug 30, I would have said that he had not achieved an erection without the pump. at his one year appt (Aug 30) he informed the doctor he had switched to Viagra. he switched from Cialis because alldaychemist.com stopped carrying cialis and we just didn't want to pay out the big bucks so he got a sample of viagra from his local doctor and had no bad reactions, so off I went and got him a bunch from the internet. his doctor told him to take them on an empty stomach and to "activate" the pill within 4 hours. so on Sept 1 (a Saturday morning) he took a blue pill with his morning coffee and then we "activated" the pill a little while later. well, lo and behold, he achieved an erection worthy of penetration! we were so surprised and thrilled. he was jumping around saying "I'm a man again!" we all know that having an erection does not make you a man, but it had been bothering Jeff. we hadn't been intimate very often because of his frustration, so I told him that we should have been doing this all along and it probably would have happened earlier. :-) He just didn't like using the pump - he said it was too uncomfortable - and he refused to try injections. so we will continue along on our way - he's taking a 100 mg Viagra every other day or when we plan on "activating" it - the next appt is 6 months away - and pray for those 0 PSA results. take care all and God bless, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 9/11/2007 5:29 AM (GMT -7)   
M. Kat - it's so good to hear from you. And, you're batting ZERO, too! Those PSA countdowns are so tough. It's also wonderful to hear that you guys are back on track post-surgery, too. Stay positive and carry on!
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/06, 4/07 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 10/16/07
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 9/11/2007 6:38 AM (GMT -7)   

Kat... what great news on the PSA!  We're celebrating with you! yeah

Wonderful progress on the ED front as well!  You give us all hope. 

I wish you all the best and keed up the good work! :-)

Barry


Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

Blood test for first post-op PSA - Sept 11, 2007

My awareness web site: http://pca-info.blogspot.com

 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 9/11/2007 6:39 AM (GMT -7)   
M. Kat,

Great News!! I was wondering if a change in ED drug would make a difference. I have been on Viagra but have a prescription for Levitra. My urologist says that some men that were not getting any effect from Viagra switched to Levitra and were able to have erections. I am having some improvement in the ED department and can achieve about a 50% erection unassisted with a lot of stimulation.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 9/11/2007 9:44 AM (GMT -7)   
Yeeeehaw, M Kat!!!  Looks like there's a lot of good news on the board this week.
Keep dem zeeeeeros comin' fellas!

55 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 9/11/2007 10:22 AM (GMT -7)   
Hey Kat,

Thanks for the update and congrats on the zero PSA. Your posts were a big help to me when I first joined the forum and had my surgery. And it sounds like Jeff is on the road to recovery in the ED department. I take the shots and they work great but look forward to getting it on naturally too.

The one year mark is a real milestone in our recovery. Please keep us posted...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


anniea
Regular Member


Date Joined May 2007
Total Posts : 234
   Posted 9/11/2007 8:43 PM (GMT -7)   

Hi Kat

Wonderful new about the PSA ZERO!!! Congradulations to both of you on both fronts. You both need to go out and celebrate Good health. I have my next PSA on 9-21 and Diana is already stressing over it.

Again Happy wishes for you both

Rick


Rick & Diana
6-30-06  PSA 2.54
1-22-07  PSA 4.98
1-26-07  PSA 5.09
Diag: 2-14-07 Gleason 8 Stage T1c PSA 5.09
Bone Scan 3-1-07 Clear
Radical retropubic surgery 4-2-07  Post surgery Gleason 9 Stage T3a Positive margins
4-29-07 PSA 0.02
6-9-07   PSA 0.02
7-6-07   PSA 0.03
8-1-07   CT Scan & Chest X-Ray   Clean
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 9/11/2007 8:56 PM (GMT -7)   
Way to go Kat & Jeff! ZEROs are so much fun these days. Have fun "activating" <<grin>>
;o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Cherfd
New Member


Date Joined Sep 2007
Total Posts : 14
   Posted 9/11/2007 9:27 PM (GMT -7)   
Wonderful news to hear about the PSA and the fun that has been "activated" in your lifes again. Guess you'll have alot of catch-up fun too! :)
Take Care and keep posting your news for us all.
Cheryl
7/19/07 PSA 8.3
8/16/07 Biopsy
1 of 14 Cores positive 3-5%


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 9/13/2007 3:54 PM (GMT -7)   
Hi Kat, Not sure how I missed this post,  but belated good wishes to you and Jeff on the latest result and other great news. So good to hear and glad all is so well with you both. At 5 months now we seem to be progressing down a similar path, and all is good. Thanks for all your help Kat. cheers, Lana
Creed_three
Lana posting for husband CJ (49 years). First PSA 3.5 (Nov 06). Open Radical Prostatectomy on Tuesday 17th April 2007. Gleeson 3 + 4 = 7. Confined to prostate. PSA 0.01 (June 07).


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 9/14/2007 5:13 AM (GMT -7)   

Hey Kat,

Thats great news about Jeff's stiffy! But evan better that he has a BIG FAT ZERO at a year! I'm so happy for you both!

Your friend,

Pete


54 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. Testosterone Theropy since 12/06. I am's what I am and that's all that I am!!! 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/14/2007 2:30 PM (GMT -7)   
Kat,

I'm not ignoring your wonderful news....just wanted to think up something witty and wise but, I just can't think of anything! Thank goodness for time. If there's one thing we do in time it's get older, wiser and more grateful for the day. You and Jeff enjoy yours!

swim
 


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 9/14/2007 2:59 PM (GMT -7)   
Hello Kat & Jeff,

How did I not post you both a big 

Hip-Hip-Hooray?

It's great to hear your good news. I hope you and Jeff are enjoying yourselves these closing days of summer; because soon the frost will be on the pumkins.

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. margins
DaVinci surgery on 02/23/06
Last PSA 08/26/07 @ 18 months "0"

Post Edited (spinbiscuit) : 9/14/2007 4:05:31 PM (GMT-6)


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 9/14/2007 4:22 PM (GMT -7)   

Kat,

Well you've given us all a new word to add to our ED vocabulary..."activate"!  I like it!

Sounds like you two are doing so well and that's something that gives everyone hope. We celebrate with you.

Keep on activating!  devil

All the best,

Susan

 


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 9/14/2007 9:54 PM (GMT -7)   
Congrats on another ZERO! And thanks for the reassuring comments on the ED front. I'm still in the "watchful waiting" period, but stories like yours give me hope. Thanks!
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/24/2007 6:44 PM (GMT -7)   

  tongue Yea !!  Kat & Jeff,

 

1st    Year !!!~~~>>>  Woo~Hoo  <<<~~~!!! Undetectable

 

August 30th….. a year ~ cancer free!!!

An anniversary really worth celebrating!!!

 

Cause  for   celebration!!!!!  Definitely!!!

What a wonderful day it is ~ each and every-day….   

Enjoy it to the fullest. 

Yippeeeee!!!!!! From  Lee & Buddy

 

*     *     *     *     *     *

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.  

J  Caring is Sharing ~  Thank You for Sharing  J

 

 

Kat ~ Thank you for allowing us to continue to walk with you and Jeff along this path called HealingWell… 

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

 

Other Threads Started by: M.Kat   “A True Journey ~ Shared”

09-11-07  One year after surgery - update 2007

04-09-07  An update on life

03-12-07  using suppositories (MUSE ) for ED

11-19-06  sensations are back - we know it's coming

10-14-06  another milestone passed

10-09-06  Post-surgery PSA test

09-13-06  Pathology report - good news

09-08-06  Remarkable "recovery"

08-29-06  RP surgery scheduled for Aug 30 '2006 


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 9/26/2007 3:52 PM (GMT -7)   

Dear Kat and Jeff,

I am very happy for your fine results.  Like Swim, I want to say something smart and witty, but can think of nothing.  So, congratulations and many, many more.

Regards,

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.  (This is a very good result.)
No side, or after effects.  None.
I have aged a year and am now 63.  How did that happen?

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