Posted 9/15/2007 9:02 AM (GMT -6)
Bob, Please take your time. Go back and find KW's Journey. You will see you are not alone in this. I am one of the few long time leakers here. I would highly recommend finding a Physical Therapist that uses bio-feedback to treat male incontenance. I know the pads can be expensive. But, I would not use the toilet tissue. I can imagine how big of a soggy mess that is. The pads are designed to wick the moisture away from the skin. I would also really try to eliminate caffeene. I know it is hard to do. but I have managed by drinking De-caff coffee, tea, and soft drinks when I want something with some flavor in it. But usually during the day I stick with water. I would also suggest getting a check book type of calendar to track your pad usage. The way I do it is that when I change I mark a dot if the pad is only damp or half used. I mark a slash if it is full. This way I can actually see if my pad usage starts to drop.
I hope you find this info helpfull. Just trying to help you out since I am dealing with this also. Personally, I will not consider a surgical fix until I reach 18 months post op. Or at the time my PT says the pelvic floor muscles are as strong as they are going to get and I still leak more than I want to manage. At 44 I still do not want a artificial device implanted in me.
Good Luck, KW
PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
RRP on Oct. 17, 2006 - Nerves on right side saved.
All Lab's clear. No Cancer outside prostate
Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
First Post op PSA on Dec. 11, 2006 Undetectable 0.00
Office visit on Jan. 19th due to continued excessive urine leakage.
Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
Dr. said everything looks fine. Continue to work Kegeal's. Leaking appears to have improved after Cystoscope?!?!?! Down to 3-4 pads per day!
March 1st Leaking has crept back up to 6 - 8 pads a day ???????
March 8th Started Detrol LA to see if it helps with the leaking?
March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking. Worked for a couple of days then back to leaking.
April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking. Leaking started back next day at work!
May 14th Second Opinion about my leaking and Options at OU Medical Center. After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking. But did agree to try Bio-Feedback and work hard on the Kegeal's first!
May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
June 1st Start Bio-Feedback to try to control my leaking.