Rod and I have seen five specialists in the past two days

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mariateresa
Regular Member


Date Joined Jun 2007
Total Posts : 95
   Posted 9/13/2007 7:16 PM (GMT -7)   
Well I do feel better than I did on Tuesday when Rod's surgery was cancelled due to the anesthesia complication. Rod told me today he now knows what it feels like to suffocate or drown. He woke up with the endo tube and he was trying to pull it out....anyways enough of that....

I can now see that your prayers really have been working. What happened on Tuesday could have been much worse. On Wednesday we went back to the hospital to the pulmonary care department (by the way the pulmonary care department had a congratulatory banner posted because they were ranked as one of the best by US News & World Report. Heck, if you go to the Henry Ford Health System website there is a large listing of recognitions and awards.).
So we saw four doctors from the pulmonary care department and today we saw an allergist (who by the way was named one of the Top Docs by Detroit's Hour Magazine and there were several awards posted in the office). We spent almost 2 1/2 hours with the allergist. Rod is allergic to dust mites, the pollen from the Birch tree, and cockroaches and NO we don't have cockroaches in our house even though Rod wanted to tell the doctor, "Oh, yeah we forgot to mention our other pets." Ha, Ha. The cockroaches are a job hazard. Rod repairs electronics and sometimes the TVs, etc. are loaded with dead cockroaches. Rod has been telling me stories for years about those cockroaches. Yuk!

I just can't believe how fortunate we were to get an appointment with the allergist today and with someone who is a good doctor. I think he was also a professor.

And Rod is finally letting me come with him to the appointments, even though he got mad at me yesterday and today because he thinks I either contradicted his version of history or I said something he didn't want me to say. I have to keep reminding him that we are trying to help him. And I have to keep remembering the boat he is in, too. I do have to say, though, he called one of the doctors today himself because the medication warnings they give you with your prescription had a warning about prostate cancer and hypothyroid. He handled it perfectly! My inclination is to tell him to let me do all the talking and to let me handle it. I don't trust him to take care of himself, but I'm trying. And I think I can be a bit intense at times because I'm so worried that something bad will happen to Rod if I don't stay on top of all this. I carry a little notebook around with me, Rod tells people I'm his secretary.

So basically Rod is now on several meds to help stabilize his respiratory system. We now have a mini pharmacy going in our kitchen. Oh, by the way this was the first time we were given an electronic prescription. The doctor sent the prescription electronically to our drugstore. Can you believe that?! I am so amazed by the seamless care that the electronic medical record provides the Henry Ford Health System. No matter where we went, or what doctor we saw, Rod's record was right there. Amazing!

I don't like all the medication side effects that they warn you about, but what can I do, he needs to take them. I have a hard time trusting that people know what they are doing.

We also stopped at the Vattikuti Urology Institute yesterday to reschedule Rod's surgery for Tuesday, September 25. For the next surgery, they will have a Specialist from the anesthesia department present. And another good thing, they took Rod's disability paperwork and said they would fill it out and overnight it back to us. So another concern was addressed.

Oh yeah, on Wednesday we were very fortunate to run into one of the pulmonary doctors we saw on Tuesday. He went right back over to the pulmonary department to get Rod's test results and go over them with us. He then had us see another doctor. That worked out perfectly. Then I was fussing yesterday because if we had made it home just two minutes earlier I could have called to make the allergist appointment, but I had to wait until this morning which I think actually worked out better. And the woman I spoke to was so kind to me when I told her about Rod and why I needed an urgent appointment. So now I really do see all your prayers being answered.

We go back to the pulmonary care department next Wednesday and back to the allergist on Friday.

So I thank all of you with all of my heart!!! Just keep praying!

Love you's....Maria Teresa

PS - Any body know much about how to handle dust mites??? Or can any suggest any good links to websites on dust mites?
Husband Age 55 Maria Teresa age 44
Total PSA 8 on 05/21/07
DRE: prostate bumpy
Biopsy on 07/16/07: 5 out of 8 cores positive, Gleason Score 8 (3+4+5)**
CT of the abd/pelvis; Bone Scan; Xrays done on 08/13/07: Normal
Robotic Surgery Scheduled for September 11, 2007 - Cancelled due to anesthesia complications
Robotic Surgery Rescheduled for September 25, 2007

**"Report to the Nation on Prostate Cancer" published by the Prostate Cancer Foundation, page 11: "In some cases, the pathologist might identify a third pattern, which is less common but that has a higher grade than either of the first two patterns that comprised the Gleason score. The presence of this third pattern might indicate that the tumor is more aggressive than the Gleason score would otherwise imply. For example, if a Gleason 4+3 tumor also has some grade 5 cells, the cancer would be considered as being of higher grade disease overall."


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 9/13/2007 8:04 PM (GMT -7)   
Sounds like your prayers have been answered. Good to see things are working out for you guys. Good luck with the surgery on the 25th.


Mika-mvesr

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/13/2007 8:43 PM (GMT -7)   
MT,

Wow, you two have had a big week indeed. Sounds like there are a lot of people on Rod's team working to get him healthy (most escpecially you!). HFH is a great place isn't it? How fortunate we are to live in the Detroit area. It has to be one of the most progressive locations as far as the medical communty is concerned. Keeping you in thoughts and prayers.

Swim
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 9/13/2007 9:36 PM (GMT -7)   
Maria Teresa,  I'm so grateful you are getting answers and finding a way to get back on the path for Rod's surgery.  I wish you well and my prayers go out to you and Rod.
 
Idaho

PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 9/13/2007 9:55 PM (GMT -7)   
Hi Maria Teresa:  Glad to hear that things are heading in the right direction for you guys.
There's a reason for everything.
It just wasn't your husband's "time" to have surgery when it was first scheduled.
Next time will be the right time.
Best to ya,
Tom 

55 years old

PSA = First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06 (6 out of 8 cores positive), both lobes, Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 9/14/2007 4:23 AM (GMT -7)   

Maria Theresa,

Dust Mites...nasty little critters. I'd check on line to see what to do about them.

Glad to see you guys make some progress - it's been rough but your getting through this.  Keep looking forward and things will fall into place. (I realized after I read this it sounded like a fortune cookie.)  You know what I mean!!!  :-)

Susan 

 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 9/14/2007 6:49 AM (GMT -7)   
We've been following your journey (we were traveling and not posting much) and we are both wishing you both well and praying for an uneventful surgery on the 25th and a speedy recovery as well.
:o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


wamba2000
Regular Member


Date Joined Jul 2007
Total Posts : 25
   Posted 9/14/2007 7:25 AM (GMT -7)   

Maria, don't know if it is a help or not.....

We puchased a new mattress/box spring about a year ago, and the store had a matress pad that had a vinyl-like layer that is supposed to stop dust mites, etc from being able to get to the mattress.   It doesn't make you feel warm, as there are upper layers of cloth like a towel.  I don't know the brand or other details, but you might want to search a bit.  So far it has been serviceable and washed up with no problem.

My prayers are with you both


Age: 56
PSA: 4.1 (first test) 4.2 (second test)
Gleason: 6, cancer found in both sections of prostate
Surgery: Open RP on 5/1/07
Pathology: All contined with the gland, no spread
Catheter out: 5/15/07
Incontinence: at 10 weeks to one pad per day
ED: slowly getting better
First Post-Surgery PSA:  8/6/07 Results <.01 !!
 
 
Spread the word to men you know or meet: See your doctor. Have a PSA test early.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 9/14/2007 7:43 AM (GMT -7)   

marieteresa says:

PS - Any body know much about how to handle dust mites??? Or can any suggest any good links to websites on dust mites?

Here's a few links with sources and further info on how to deal with them:

http://www.niehs.nih.gov/health/topics/conditions/asthma/dustmites.cfm

http://www.mayoclinic.com/health/dust-mites/DS00842/DSECTION=9

http://www.natlallergy.com/category.asp?c=100&sid=GOOGLE&eid=GOOGLE&tid=g_anti_dust_mite_bedding&gclid=CN-pmuaVw44CFQGRPAodOkgZxw&bhcd2=1189780480

Scroll down some for info on dust mite here:

http://www.allergyguarddirect.com/category_s/49.htm

This gives a starting place...

 

 

 

 


James C. 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07  PSA 7.6 , referred to Urologist
4/26/07  Urologist prescribes 3 weeks of antibiotics/anti-inflam. due to past history of Prostatis.  DRE-             nothing detected but 'gross enlargement"
6/5/07    Recheck of PSA: 6.7, biopsy scheduled.
7/11/07   Biopsy- 16 core samples, ultrasound size of gland around 76 cc.
7/17/07   Pathlogy report:  3 of 16 cancerous/ 5% involved, left lobe top to center, Gleason 3/3:6. 
8/3/07     Decision made for conventional RP surgery, scheduled for Sept. 24.
Present:   Surgery Scheduled for Sept. 24....waiting...waiting
 
 


mariateresa
Regular Member


Date Joined Jun 2007
Total Posts : 95
   Posted 9/14/2007 8:45 PM (GMT -7)   
Thank you everyone for your kindness and for the tips and website links!!!!!

Maria Teresa
Husband Age 55 Maria Teresa age 44
Total PSA 8 on 05/21/07
DRE: prostate bumpy
Biopsy on 07/16/07: 5 out of 8 cores positive, Gleason Score 8 (3+4+5)**
CT of the abd/pelvis; Bone Scan; Xrays done on 08/13/07: Normal
Robotic Surgery Scheduled for September 11, 2007 - Cancelled due to anesthesia complications
Robotic Surgery Rescheduled for September 25, 2007

**"Report to the Nation on Prostate Cancer" published by the Prostate Cancer Foundation, page 11: "In some cases, the pathologist might identify a third pattern, which is less common but that has a higher grade than either of the first two patterns that comprised the Gleason score. The presence of this third pattern might indicate that the tumor is more aggressive than the Gleason score would otherwise imply. For example, if a Gleason 4+3 tumor also has some grade 5 cells, the cancer would be considered as being of higher grade disease overall."


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 9/14/2007 9:34 PM (GMT -7)   
Maria Teresa, it is so good to hear that things are on the upswing for you and Rod. The surgery experience must have been terribly frightening for both of you, especially Rod. But your post clearly reflects that you (both) are in control! That's a great development -- especially since Rod appears to be more and more involved. Terrific. I just know things are going to work out on the 25th. It sounds like you have a tremendous team at Henry Ford. I'll be thinking of you!

puget
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 9/15/2007 4:27 PM (GMT -7)   
Maria Teresa,

Last night I read Song of Songs
    (to prepare for an adult class I'm co-teaching on Tuesday nights).
You might read it (8 pages - The Amplified Version rocks!) to Rod
    - or better yet, let him read it to you!
Some believe it is patterned after 3,000 year old Arabic love poetry.
Others have much higher-minded explanations......
Most agree the five senses are overwhelmed by suggestion from the imagery.

Take a moment to appreciate why we join together to meet these challenges.
Holding you close in warm Love.

CCedar
ICTHUS!
2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


mariateresa
Regular Member


Date Joined Jun 2007
Total Posts : 95
   Posted 9/17/2007 3:45 PM (GMT -7)   
Hi Cedar,

I love reading the Song of Solomon! Thank you for your prayers and warm love! The support on this forum is fantastic! :-)

Maria Teresa
Husband Age 55 Maria Teresa age 44
Total PSA 8 on 05/21/07
DRE: prostate bumpy
Biopsy on 07/16/07: 5 out of 8 cores positive, Gleason Score 8 (3+4+5)**
CT of the abd/pelvis; Bone Scan; Xrays done on 08/13/07: Normal
Robotic Surgery Scheduled for September 11, 2007 - Cancelled due to anesthesia complications
Robotic Surgery Rescheduled for September 25, 2007

**"Report to the Nation on Prostate Cancer" published by the Prostate Cancer Foundation, page 11: "In some cases, the pathologist might identify a third pattern, which is less common but that has a higher grade than either of the first two patterns that comprised the Gleason score. The presence of this third pattern might indicate that the tumor is more aggressive than the Gleason score would otherwise imply. For example, if a Gleason 4+3 tumor also has some grade 5 cells, the cancer would be considered as being of higher grade disease overall."


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 9/17/2007 4:01 PM (GMT -7)   
Hey MT,

You are making progress - things are happening for you and Rod. Waiting is the hardest part of this journey, it truly tries our patience. But patience pays off. A little more than a week from now and you will have the hardest part over with. We will all be praying and hoping for the best. Ane we will all celebrate when we hear the good news.

Best to you always....


Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 

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