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War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/15/2007 9:25 AM (GMT -7)   
Good morning Julia,
 
I dearly hope that my posting did not offend you or that you thought that I was trivializing such a terrible condition. Sometimes when we look at words on a screen, it is hard to know the feelings and passions that wrote them. I do take my condition very seriously, but, I also must find a way to deal with it. My way, at times is humor (not very good this time). Although I did just finish vacuuming. (my wife told me to and I said "yes ma'am".)
I guess my attempts at humor sometimes fall short, but, I will keep trying. It's my way of keeping my sanity. I have seen "C" take the lives of some very close people in my life. None of them was PCa. My father died from pancreatic. My grandmother, brain. My brother-in-law, lung. And my very best friend, liver. His name was Wayne. He handled his situation with faith and humor.
 
Anyway, my PCa has gone to the bone. My prognosis is not good. But through faith and love I will reach my final goal. I have two great passions in my life, beside God, my wife, and family. They are both singing. I sing with a '50's Do-Wap group. I sing Bass. But my real passion is singing on Friday nights at our Church for "Celebrate Recovery". We sing contemporary Christain Rock music. I don't sing bass because there is no bass part in this kind of music. I sing lead sometimes and background harmony the rest of the time. My mission is to spread God's word through music, acts, and deeds. I must let His light shine through me.
Now you know a little bit about me. I would like to know more about you and your husband. I will do all I can to help both of you in any way. You are both in my prayers.
 
Let me hear from you.
War Eagle to all. 
Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine, rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007


Missyj
Regular Member


Date Joined Sep 2007
Total Posts : 87
   Posted 9/15/2007 11:28 PM (GMT -7)   

Hi War-eagle

Don't think for a minute that your post offended me. I love the use of humour as a way of getting through tough times - and also just for making life more enjoyable. Please don't fear that your humour makes you or your postings trivial; your caring and compassionate nature shines through in buckets!

What I really meant was that quite a few people act like prostate cancer is 'the good one' and that we should 'get a grip' because there are people with much more serious illnesses. In fact my husband has, like some others on this board (maybe you too?) an aggressive cancer which has spread extensively. We are uncertain how he will respond to the hormone treatment and for how long it will be effective. It's the same for everyone, I know, but of course we worry due to the aggressiveness.

However, we are positive and upbeat about the whole thing (most of the time) and life is, peculiarly, just as it always was. My husband is a massive football fan (soccer to you) and enjoys watching all kinds of sport. He has a very physical, outdoors job which keeps him fit as a fiddle and he loves his girls (our daughters, 16 + 18) to bits.

I love drama, both teaching and performing, and can really understand your love of singing - it's a great release and must give you so much inner peace.

I'm so sorry you're having to go through all this but it sounds like you have a fantastic attitude and that is totally the X factor in beating this I'm sure

My best wishes to you and yours

Julia


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 9/16/2007 5:29 AM (GMT -7)   

HI wareagle and julia.

In all of life there are some funny things that happen along the way.  Some of the death and carnage I saw when I was a crime scene investigator, (yes a real CSI person) was depressing at times.  I had to find some humor or I would be so depressed that I could not do my job.  The same think goes with PC.  I have had my times to cry in the shower so my wife could not hear me and there have been some funny times too for example, when getting my pre-op Xrays the tech told me to put these BB's on my nipples and I told him I wasn't going to do a pole dance for him. Or, when the Dr. asked me about an epidural for surgery and I reminded her I wasn't pregnant.  We all have this PC problem we are dealing with and as we all know, some people are having a harder time with it than others.  So, keep the faith, work hard at doing something about it and enjoy the rest of your life.

With deepest regards:

Mika-mvesr


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 9/16/2007 6:42 AM (GMT -7)   
War-eagle,

First of all, I love your name and what it signifies...it does my heart good every time I read "War-eagle to all". I appreciate your postings so much and thank you for the support you show all of us here. It was good to learn more about you.

Julia, when someone makes the standard comment about the "good" cancer...well, we know that comes from well meaning ignorance. We must remember, most of them get their info from little news blurbs about the progress pc treatment has made. And I have yet to hear or see in print, one of "the famous" be up front with their side effects from treatment. The general public does not truly understand the impact and I guess that's typical of cancer or any other life threatening event...unless you're walking in those shoes, you don't know (and I don't want them to know). It sounds like you and your husband are a strong team and that's what it takes. And humor. So glad you found us here...we need each other.

At this point I'm going to speak for my husband Don & myself. We wish all well, hope for progress on every front for everyone and rejoice when those good reports come in...but we are in a different place with this cancer. The fact that there are others not only with pc but deeper into this disease is a comfort. For this particular group (and we are a part of it) the time for not having positive margins, a Gleason of 6, clean nodes and a stage Tc1 are long gone. The reality is, the options are not as many as we'd like but there are some and those of us in this group will be on these treatments one day. That being said, most importantly, we benefit from the encouragement, support and empathy from all on this board. We draw bravery, strength, wisdom and love from our pc mates. Though the topic here is pc, what comes through to us is how wonderous the human spirit is...

So in the words in a new friend: "War-eagle to all"

All the best,
Susan & Don
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/16/2007 3:16 PM (GMT -7)   

Myman (Susan & Don),

I love your name, too. It shows the love you have for your dear husband. It's a little tough to be a War Eagle these days ( we are 1-2 in football, not soccer, this year ) but the spirit remains strong.

It is good to call both of you friends.

Julia,

It was great to hear back from you. I could use some help here around the old homestead. Your husband sounds like the right person. I haven't chop down a tree in years.

I hope your Sundays will be better from now on. Our class of 5 yr. olds said a little prayer for both of you today in Sunday School. They are great because they are not restricted  or hampered by life. It was a real simple prayer that they made. It all seems so easy for them because it makes so much since. They all prayed that your husband would be healed. As simple as that. Ask and ye shall receive. You can't argue with 12 5 yr. olds. So here is to hoping for better Sundays and better lives.

All our love and prayers,

Walt (War Eagle)

PS: War Eagle to all.


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine, rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 9/18/2007 2:08 PM (GMT -7)   

The Big "C"

Here are my random thoughts as I get a grip on having cancer at 42 (now 44) years old. I would like to inspire hope in all of you and in myself as well as to provide a place for you to keep track of me through this ordeal.

By: David E ~  Overland Park, Kansas, United States



I highly recommend this young man's site (he's now 44) for anyone who's undergoing treatment for metastisized pc. David is encouraging, spirited and very open about the effect this has had on his life. He is married and the proud father of a young boy. It's worthwhile to go back and read his whole journey. I feel blessed ever time I go there.

Susan

Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
 

Post edited to activate link and title  : )

Post Edited By Moderator (bluebird) : 9/30/2007 5:03:42 PM (GMT-6)

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