Got Injection, Now got Questions

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Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/27/2007 2:48 PM (GMT -7)   
My first injection didn't go like I had heard it explained on this forum.  The doctor nor anyone in his office gave it.  Instead, he gave me instructions how to administer the Trimix, ordered it from the drugstore, where I picked it up, and he was through.  I thought he would give it, check to see if it dose worked properly, and send me home.  That's what I have read numerous times in these postings.
 
Anyway, I did it.  I was very nervous for obvious reasons. I bent the first needle but not in me. Finally I got the medication in (It didn't hurt... well, only a little) and immediately felt the erection coming on, but it felt wierd, not like my old ones.  The dosage, which I think was a little too little, was the lightest dosage I think.  I guess I had rather start off like that than have to go to ER later, like I've read here from some of you.
 
My biggest surprise was that although my wife enjoyed it, I felt almost nothing and certainly no orgasm.  Now for questions:  Your opinions, please... please.
 
1. Why do I have such little feeling?  Some of you have talked of getting the injection and making wild love for hours. What's wrong with me?  
 
2. Related to # 1: Would having little feeling indicate that my nerves were not spared after all?
 
3. When the erection began, my penis angled to the left, which is something different from the past.  Since I injected the right spongy area of the penis, is the fuller side pushing it to the left?  When I inject the left side, will it angle to the right?  Or is this the beginning of the dreaded Peyronie's (sp?).
 
Thanks, Gene
    
Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3=6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
Bleeding problem at 6 weeks post surgery...No resolution despite several trips to surgeon, antibiotic treatment.
05/31/07: Cystoscope reveals "stone", due to "Stricture" (narrowing of uretha at prostate removal site).
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure, but is most likely a temporary fix, and incontinence continues.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.  He thinks stricture is back, but send home with Cipro.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05 (non-deteactable).  PTL! But still leaking
8/31/07:  First Bio Feedback session.  The little lady is very positive that I can gain control.  That's what I want more than her.  New urologist is not very sold on effectiveness of Kegals???
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. Recommended possible callegen implant. She noticed from 8/20 cysto that my sphincter was ... too short?... huh?   
 
 
 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/27/2007 3:09 PM (GMT -7)   
Gene,
 
Personally, I'd go back to the Doc and make sure he does "his" job. Someone needs to show, not advise, a new user on how to safely administer an injectable medication. Unless you or the Missus is already well schooled on giving injections, it seems unwise that any paysician wouild set himself up for a potential problem....grrrrrrr. Injecting in the wrong place too often can and will result in unecessary scarring. A short visit and a hands on lesson seem not only prudent but, safe practice! Glad for the most part everything worked well. Now for the rest. Hope the sensation is a quick fix.
 
Swim
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 9/27/2007 3:46 PM (GMT -7)   
Hey Gene,

As Swim said, your doc should have showed you how and where to inject the Trimix. Hit the wrong spot and you can have problems or it won't work at all. I get a little bending on the side opposite the shot but it isn't permanent. My sensations got better and better as I got more experience with giving myself the shot and getting the right dose. Also, with the nervousness associated with doing that awful thing to my tender part, I found it was difficult at first to get very romantic afterward. Sort of clinical - not at all like the back seat of a 36 Ford. But again, experience cured that problem too.

I cut the dose way down and experimented with the amount and also with taking Viagra a few hours before the injection. Got it down pat now and can make love on demand if not completely spontaneously.

Good luck...
Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/27/2007 4:48 PM (GMT -7)   

Hi ~Gene,

I’m sitting here shaking my head… and a strange noise something like Swim’s grrrrrr… mad is coming from every pore in my being.  I can’t give advise here ~ but I can send a warm fuzzy to let you know we care.  I respect you for moving forward in this treatment.  Continue to pull from all of our strengths that we continue to send your way… Keeping you tucked extra close ~ during this “uncalled-for” trying time!  Thank you for reaching out so quickly… isn’t the response here amazing!!!  In Friendship ~ Lee & Buddy


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 9/27/2007 5:09 PM (GMT -7)   
I cannot imagine your doc doing that...we had to make an appointment to go over everything, have a shot administered and wait for the result (another story).
Geezum...it's tough enough having to get to that point but with no "hands on" guidance...all I can say is you're a brave man! :-)

I'm sure you'll be talking to your doc soon...good luck with everything,

Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/27/2007 6:23 PM (GMT -7)   
tongue   tongue tongue Not one comment on "paysician"??? Just a subtle way of suggesting we pay these men and women to advise and help administer our health care. I thought it added a little smile to a subject we all take with great seriousness. :-)
 
Swim
 


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/27/2007 6:33 PM (GMT -7)   

I haven't tried the injections, but when we got "our" pump, we couldn't leave the office until the NP (female) showed "us" how to use it. I love group therapy. I wonder if they could have asked anyone else to come in the room. Anyway, during the demo our NP applied shall we say a little bit tooooooooo much vacuum and almost pulled the poor boy out by the roots. I actually had to have a bandaid applied. Couldn't try it again for days and then I was scared to death that I might launch him into space.

I think I'll go back and talk about shots.

Be good and be careful where you point that thing.............the needle I mean.

 

Walt (War Eagle)


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 9/27/2007 7:20 PM (GMT -7)   
When something like what you experience happens you know that urology office only cares about the numbers and not about the quality of care and service. I would hope at least you went to one of the sites which show you how to administer the injection. The Caverjet site has a fairly good animation. As to the bending, this will occur if you do not massage the penis for about five minutes to help distribute the medication. As you can imagine the medication is going to work on the first tissue it reaches so by massaging it helps keep the side you inject from expanding before the opposite side. As to the feeling I have to admit it is different especially at the head. That should not prevent you from having an orgasm. It takes a lot of stimulation so you may have been too soon. Make sure that you are as close to the 3:00 or 9:00 o'clock positions as possible and perpendicular to the penis.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/27/2007 7:46 PM (GMT -7)   
tongue  Hey ~ Swim.. I smiled when I saw "paysician"... and knew it wasn't a typo!! but continued to smile when I saw the other ones... I imagined your fingers flying across the keyboard!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  smurf growling as you did grrrrrrrrrrrrrrrrrrrrrrrrrrrr
 
 
Gene ~ you have a huge support system here!!!  yeah

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/27/2007 8:40 PM (GMT -7)   

In my desire to be brief, I gave you all the wrong impression about my doctor's visit.  Here's how it all went down:

The doc came in and when I told him I wanted to try the injections, he left, came back in with the pamplet which explains the process and with a syringe and bottle of saline.  He asked if I had ever given injections and I answered "no".  I indicated I was ready for him to give it (I was sitting on his table and had already unfastened and unzipped my pants and I was sitting there with my tucked shirt showing, thinking he would say, "Pull up your shirt and pull down your drawers."  From the post here on Healing Well, I thought he would give the injection and leave the room.  I had planned on watching the erection I hadn't seen in eight months.  I expected him to come in in about 15 minutes, perhaps feel the firmness, and send me out through the waiting room, the elavator, and the parking garage trying to hide the obvious buldge in my pants.  I was really really dreading that whole process, so I was relieved that it didn't happen, except I was disappointed that I left without an erection.   

Instead, he said, "We used to do that but we are no longer allowed to keep the medication on hand.  I will write a prescription and you can pick it up.  I will show you how to give yourself the injections."  "But I thought you would do the first one."  I expected him to have the medication on hand. Then he proceeded to show show the botttle of saline and gave instruction how to draw the medication to the proper dosage.  Then he said, "Ok, lower your pants and I'll show you how."  He proceeded to show me how to stretch out the penis, avoid the veins, inject the needle and the medication.  He was precise and gave the warnings.  He did everything except inject the saline solution.  His instructions and demonstration was sifficient for me to have the knowledge.  I didn't tell him I already had read all about it on Healingwell.com. Everything he told me I had already read here.  I just had never given an injection before, especially on myself... especially in my...

So I am sorry my brevity allowed you to draw wrong conclusions.  I think he indicated he would guide me if I wanted to inject the saline, but I didn't want to do that.

So, re-read my questions.  What do you think?  Of course my main concern is will I ever be able to enjoy love-making with my wife again?  Will I ever have those very pleasant sensations which lead to orgasm?  I know you probably can't answer that question, but I am thinking that some of you may have had the same lack of sensation but now enjoying things again, even if you have to inject Trimix, etc. to get it.

Sorry for the long post and sorry I misled you.  Now when I read this thing, I'll turn red knowing I have posted so all the world can read.  Then I'll remember that I am writing to friends who care.  I''m getting desparate with my worst-case scenario going full steam:  Still incontinent and impotent after eight months post open surgery.

Gene

 


Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3=6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
Bleeding problem at 6 weeks post surgery...No resolution despite several trips to surgeon, antibiotic treatment.
05/31/07: Cystoscope reveals "stone", due to "Stricture" (narrowing of uretha at prostate removal site).
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure, but is most likely a temporary fix, and incontinence continues.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.  He thinks stricture is back, but send home with Cipro.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05 (non-deteactable).  PTL! But still leaking
8/31/07:  First Bio Feedback session.  The little lady is very positive that I can gain control.  That's what I want more than her.  New urologist is not very sold on effectiveness of Kegals???
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. Recommended possible callegen implant. She noticed from 8/20 cysto that my sphincter was ... too short?... huh?   
 
 
 


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 9/27/2007 10:45 PM (GMT -7)   
Hi Gene
 
I understand why your doctor didn't keep the refrigerated trimix in the office.  I am still concerned that you didn't get more medical direction. As some suggested go to  www.caverjectimpulse.com
 
You will get some good information on how to give yourself injections in the penis.
 
My doctor only prescribes Caverject, probably because he can keep it in the office without refrigeration.  (his PA just gave me a dozen free kits that were going out of date).(that's 24 injections at about $25 each..yea)  He also feels that the Caverject kit is more "idiot proof",That is easy to use.  The Caverject does cause a pain that concerns me, so I will be checking out bimix on my own.
 
Your questions about "feeling" and nerves is right on for me.  I do not have the sensitivity(feeling) that I had before surgery.  Of course as the years passed from 19 to 65 that had decreased somewhat naturally. I do not have an orgasm like before surgery.  My orgasm has decreased feeling as well.It is sharper and shorter in duration. with all of the complaints,  I am happy that I am able to continue to share a physical relationship with my wonderful wife.
 
It ain't like it use to be, but it is getting better all of the time.
 
Keep on trying ...things are looking up.
 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
no continence problems
Back on the golf course...
90 day PSA  less than 0.01 (undetectable)
Six Month PSA still undetectable
ED problems- 20mcg Caverject and 50mg Viagra-success
 
 
 


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/28/2007 7:14 AM (GMT -7)   

Thanks Lifeguyd,

I noticed from your profile that you take 20mcg of Caverjet along with 50 mg Viagra.  Since my 10mcg of Trimix did not produce a firm erection, I am wondering about increasing my Trimix to 10.5mcg.  I have four .50mg of Viagra (never worked by itself).  I am wondering if I should increase Trimix or do same dosage (10mcg) with Viagra.  I do not want to overdo this thing.  And I was so nervous with the doc, I honestly cannot remember if he said I could increase the dosage or not.  I know you are not a doctor, but you have experience with these things, so what do you think?  Or if someone else has experience, what do you think? 

Gene


Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3=6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
Bleeding problem at 6 weeks post surgery...No resolution despite several trips to surgeon, antibiotic treatment.
05/31/07: Cystoscope reveals "stone", due to "Stricture" (narrowing of uretha at prostate removal site).
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure, but is most likely a temporary fix, and incontinence continues.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.  He thinks stricture is back, but send home with Cipro.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05 (non-deteactable).  PTL! But still leaking
8/31/07:  First Bio Feedback session.  The little lady is very positive that I can gain control.  That's what I want more than her.  New urologist is not very sold on effectiveness of Kegals???
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. Recommended possible callegen implant. She noticed from 8/20 cysto that my sphincter was ... too short?... huh?   
 
 
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 9/28/2007 9:05 AM (GMT -7)   
Gene - our doctor started us on a lower doseage and told Bob to gradually increase the amount until he reached the desired firmness.

My advice would be to not combine the Viagra until you have finished experimenting with larger doseages, so as to avoid the dreaded "longer than 4 hours" that would have you explaining your problem in ER. . . . . .can't even imagine that one!!!!! mad mad   . . . . Would definitely end up in our "things that make you laugh thread"

;o) Bob & Linda


Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 9/28/2007 9:19 AM (GMT -7)   

Hi Gene

I'm no expert that's for sure.  The tri-mix is a combination of alprostadil, papaverine and phenotolomine.  Caverject is 100% alprostadil.  The tri-mix or bi-mix combination is usually substituted when a patient can't deal with the discomfort of alprostadil alone. I may go that route in the future.

I am using 20mcg caverject.  That is considerable more than you are getting in most tri-mix formulations.  So, Yes you might have better results with an increase of the total mix or the addition to your formula. Jim (Biker90) is getting a response with tri-mix.  Maybe he can share the amount of his tri-mix formula.

I got to the 20mcg figure by increasing 5mcg at a time during four visits to my doctors office.  When he was comfortable that I understood how to do it and was getting a good result, he released me do try it on my own.  Even with that the first time was bit shakey.

YES, you probably should be increasing the amount of your injection.  Call your doctor and ask him how much.

good luck


 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
no continence problems
Back on the golf course...
90 day PSA  less than 0.01 (undetectable)
Six Month PSA still undetectable
ED problems- 20mcg Caverject and 50mg Viagra-success
 
 
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 9/28/2007 9:38 AM (GMT -7)   
Hey Gene,

My Trimix is phentolamine, papave and prostaglandin. I think various docs prescribe various mixtures and the compounding pharmacist puts them together. I take 50 mg Viagra about 2 hours before dinner then use .02 - .05 ml of Trimix. The Viagra seems to require less Trimix to get a good response and I found that taking Viagra on an empty stomach worked better. My doc started me on .10 ml of Trimix and this was way too much. I had one that lasted 5.5 hours and would have gone to ER but I fell asleep waiting for it to go down. I took a Sudafed and it started down. I use a diabetic syringe that holds .50 ml and has a tiny needle so it doesn' hurt.

As we all know, everbody is different and our responses vary greatly. My combination of Viagra and Trimix is the result of lots of experimentation over a couple of months. So try things and increase doseage by small amounts. Getting a good response without damaging tender tissue is well worth the effort. And remember that your doc probably has no first hand experience with this stuff unless he has had a prostatectomy so you are pretty much on your own except for us guys and gals here on the forum.

What would we do without each other. Lets get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/28/2007 2:36 PM (GMT -7)   

Friends... All of you. 

Thank you.  You have helped calm my fears.  I can do this thing even with limited instruction from the doctor.  I never would have had the courage to get passed shyness and too much modesty (don't like people, especially people of the oposit sex, seeing what's in my underwear, even if they are trained professionals) if I had not read every post regarding the injections.  If I had not read your various posts telling how you received first injections, I never would have gone to get the Trimix.  Had I the slightest suspiction that the doctor or someone else in doctor's office would not give my first injection, I would not have gone.  When I first read of the injections, I immediately said, "Not me!"  But because I had received your experiences, I ventured to give myself that first injection, even if it was with trembling emotions... and a little trimbling in the hands too.  But I did it and for the most part I did it right, thanks to all of you.  I'll do it again soon now that you have answered questions and given encouragement.  I'll get it right with the Lord's help... and your's.

My first experience with intimacy after the injection took me in another direction of fear:  "Why am I not enjoying this like I did before pc?  I'll bet the doctor severed my nerves."  You came to my rescue again with personal experience of your own.  Again, thanks.

Another thing:  I am doing this injection thing with incontinence, which I thought would prevent me from ever being intimate with my wife again.  But there's an old fashioned remedy for that too:  It's called a condom.  So I'm moving forward, thanks to you.

Gene


Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3=6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
Bleeding problem at 6 weeks post surgery...No resolution despite several trips to surgeon, antibiotic treatment.
05/31/07: Cystoscope reveals "stone", due to "Stricture" (narrowing of uretha at prostate removal site).
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure, but is most likely a temporary fix, and incontinence continues.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.  He thinks stricture is back, but send home with Cipro.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05 (non-deteactable).  PTL! But still leaking
8/31/07:  First Bio Feedback session.  The little lady is very positive that I can gain control.  That's what I want more than her.  New urologist is not very sold on effectiveness of Kegals???
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. Recommended possible callegen implant. She noticed from 8/20 cysto that my sphincter was ... too short?... huh?   
 
 
 


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/30/2007 2:20 PM (GMT -7)   

Update on injections...

I injected myself with trimix the second time.  This outcome was not good.  There was no subsequent erection.  None.  Then I got to looking down there.  Evidently, I got so into this injection that I got careless and injected a tad too high.  I know that is what happened because of the little injection hole.  It was too high!  I hope I didn't injure myself.  I don't think I did.  So many have said to do it at three o'clock or 9 o'clock.  I did it at eleven!  I must have rotated my penis after selecting the spot.  Gene... everyone else... Be careful!

I can now see the importance of having first one or two done in doctor's office!  Well, shucks, I knew that was important but my Uro thought I could handle it.  And I, like a big boy, said yes sir, I can handle it.  I didn't handle it very well.

Gene

 


Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3=6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
Bleeding problem at 6 weeks post surgery...No resolution despite several trips to surgeon, antibiotic treatment.
05/31/07: Cystoscope reveals "stone", due to "Stricture" (narrowing of uretha at prostate removal site).
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure, but is most likely a temporary fix, and incontinence continues.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.  He thinks stricture is back, but send home with Cipro.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05 (non-deteactable).  PTL! But still leaking
8/31/07:  First Bio Feedback session.  The little lady is very positive that I can gain control.  That's what I want more than her.  New urologist is not very sold on effectiveness of Kegals???
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. Recommended possible callegen implant. She noticed from 8/20 cysto that my sphincter was ... too short?... huh?   
 
 
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 9/30/2007 3:13 PM (GMT -7)   
Gene . . thanks for sharing your experiences! Keep with this . . .like in all things, "practice makes perfect".

You'll soon be successful every time and thinking nothing of it! The only drawback for us has been the lack of spontaneity.

Good luck!

:o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/1/2007 8:33 AM (GMT -7)   
Gene,

I have had a couple of misses using Bimix and after reviewing I was too low once and too close to the base the second time. I do watch out for turning the penis before injecting. As to the use of Viagra with the injection here is what I am doing. As prescribed by my urologist I am taking 100 mg of Viagra about two hours prior to injecting with Bimix. I was able to lower my dosage level of Bimix from .35 cc's to .25 cc's. I have also read articles written by urologist on penile injections where they also recommend the use of the vacuum pump with injection. I have not tried that yet. The vaccum pump will pull more blood into the penis and the injection will hold it. I guess this is too help with firmness.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/2/2007 3:20 PM (GMT -7)   

Tamu,

The pump?  I tried it after I read your post.  It didn't work.  It might when I get right dose.  It sounds logical.

Tamu, I don't know how or even if you want, but I would like to communicate with you one-on-one.  Initially it looks as if the injections will work, but I've got some hurdles to cross yet.  I suppose Mama Bluebird could arrange something if you are agreeable. 

Today I've had problems communicating with the doctor's nurse.  I think when he showed me the dosage that he may have been using a different sized syringe than the one the druggist gave me.  I am in process of clearing that up, but you might be able to walk me through some things.

Gene


Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3=6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
Bleeding problem at 6 weeks post surgery...No resolution despite several trips to surgeon, antibiotic treatment.
05/31/07: Cystoscope reveals "stone", due to "Stricture" (narrowing of uretha at prostate removal site).
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure, but is most likely a temporary fix, and incontinence continues.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.  He thinks stricture is back, but send home with Cipro.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05 (non-deteactable).  PTL! But still leaking
8/31/07:  First Bio Feedback session.  The little lady is very positive that I can gain control.  That's what I want more than her.  New urologist is not very sold on effectiveness of Kegals???
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. Recommended possible callegen implant. She noticed from 8/20 cysto that my sphincter was ... too short?... huh?   
 
 
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/2/2007 5:45 PM (GMT -7)   
Gene,

I would be glad to connect with you one-on-one. If Bluebird is out there perhaps she can offer up a way to connect. I have not tried the pump with the injection yet but will here shortly.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


EB02
Regular Member


Date Joined Dec 2005
Total Posts : 48
   Posted 10/3/2007 12:51 AM (GMT -7)   
For what it's worth, I was advised by my doctor not to mix the pump with the injection and never to mix Viagra with the injection. His sense was that it was too high of a risk for priapism. He suggested a regimen of using the pump and/or Viagra on the day before injection. I suppose everyone is different and one can experiment with anything if he feels it is worth the risk. I've learned a lot of humility throughout this prostate cancer experience, but I'm still not ready to show up in an emergency room with an erection that won't go down.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/3/2007 7:45 AM (GMT -7)   
One outcome of this forum is that we all are evidence that there is no standard protocol in the urology world for the treatment of PCa and the after effects. As EB02 states his urologist does not recommend the combination of injections and other erection aids. My univeristy based urologist and well known within academia urology circles recommended to me the combination of Viagra and penile injections. The article I read about combining the vacuum pump with injections was written by two established urologist. My personal perspective is that once you are experienced with injections then you know what you can handle without priapism. The Viagra and injection mix for me has not extended the time of my erection it just has allowed me to reduce the dosage of the Bimix. But as EB says, we are individually responsible for the risk.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/4/2007 8:38 PM (GMT -7)   

tongue   Hi ~ Guys,  Didn't catch this before the new thread was started.  I will place this info here for future readers...  I hope by now you've touched base.  

To connect together  Click and Refresh…once page is opened.>>>

  ****E-Mail Addresses for Members Only

Questions?? 

Send bluebird or IdahoSurvivor an e-mail by clicking on our name (must be signed in) and we will help you connect up!!!  yeah

 

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