Mama always said...

New Topic Post Reply Printable Version
66 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 9/27/2007 7:59 PM (GMT -7)   
Next Thursday bright and early and my wife can't believe they said to be at the hospital at 5am.  No problem for me, I'll be taking a long nap that day.  I'll be thinking of little things probably every day for the next week, so please bear with me.  First, what should I plan on eating when I first get home?  I know what will be happening, but I don't want to overdo the prune juice either because that could be just as bad.  Second, and this sounds silly, but someone told my wife today that her husband was upside down during the surgery.  What was that all about?  I just assumed that with little holes being cut in my stomach I was going to be on my back.  I'll be in the doc's office Monday and that one will be on my list.  With my sinuses I can't picture being upside down for very long unless they want to put a drain in my nose.  I feel like the guy in the second week of computer class asking how do you turn this thing on?  Like I said, it will probably get worse, but you guys are my best source of information.  Thanks.

Post Edited (gtmriviera) : 10/31/2007 2:15:59 PM (GMT-6)


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 9/27/2007 8:16 PM (GMT -7)   
Sounds like he had the RRP, where (I think) they go in through the "crotch" area. If you're having da vinci, I'm pretty sure you'll be on your back. As to food, I was on clear liquids for the first day or so, and then told to eat lightly -- small portions and no rich , greasy or gassy foods. I also took a stool softener and should probably have added prune juice. Unfortunately, I had a real tough time with BMs the first 4-5 days. All in all, the recovery was pretty quick and painless ('cept for those BMs). Walk as much as possible, starting in the hospital if you can. And keep working those Kegels! Good luck -- We'll see you "on the other side!"

puget
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/27/2007 8:19 PM (GMT -7)   

Hey ~ gtmriviera,

It’s time to do your signature so we (and new readers/members) can have a little idea where you’ve come from in your journey. We will be right here ~ and you will continue to feel and pull from all of us…the strength and wisdom so many are willing to share.  Stay close and know we remain close too!!!

Keeping you in our thoughts and prayers as you move toward the next stepping-stone after surgery.  Healing & Recovery… Buddy & I invite you to visit our personal thread ~  and hopefully you can pull “1” thing from “Our Journey” to help make your journey smoother…  In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 9/28/2007 12:49 AM (GMT -7)   
GT,

The position is called a trendelenberg position (head below the level of the heart). It's a very common position for a combination of reasons. In the case of a robotic assisted prostatectomy, the machine is actually between the legs which are in a gently bent position on table that seperates the legs a little.

Ask the Doc about how he will help prevent a sinus issue. My guess is...there is a plan for everything! During surgery you aren't breathing from your nose but, if you are concerned about after, ask...I'm sure he'll have an aswer. Good Luck. Thoughts and prayers...

Swim
 


uncledan
Regular Member


Date Joined Aug 2007
Total Posts : 120
   Posted 9/28/2007 2:08 PM (GMT -7)   
One reason to keep you inverted is to help keep blood from the area of the operation. Lots of open surgeries need a transfusion. My surgery was almost 5 hours in time. The most pain I had in order, 1. First six hours back in room was abdomen, next day right shoulder, that night left shoulder. I thought the shoulder pain was caused by rotator cuff injuries years before. Wrong, the surgeon said it was caused by the anesthetic settling in the areas due to being inverted for several hours. I had never heard of this before. I was in the hospital 2 days and rode over 100 miles home. The pain was not bad by the end of the second day. I never had my pain prescription filled. I gave it back to him on my first visit. I'm sure you will be fine as the doctors doing this surgery are the best in the world working with the best equipment. Think positive and God Bless, Uncle Dan
Age 67
No symptoms, DRE negative
10 - 06 PSA 5.44 01 - 07 PSA, 6.47 5 - 07 CT and Bone scans negative
05 - 07 Biopsies, 2 of 6 positive, Gleason Score (3+4) 7 Stage T1c
08 - 14 Dr. Dasari - Baptist Hospital, da Vinci RAP, five hours surgery
Some of right nerve and all of left nerve removed,
Hospital 2 1/2 days, 8 -14 to 8 -16
Pathology report Negative margins, Cancer encapsulated, 50% left side
Lymph nodes 2 R & 1 L - Negative, R & L seminal vesicles - Negative
Gleason changed (4+3) 7 closer to 8 than 6
9 - 26 Great PSA 0.000
9 - 27 Starting on meds for ED
Dry 99.4% of the time and only a drop the rest of the time.


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 9/28/2007 5:02 PM (GMT -7)   
I'm beginning to get the picture.  It won't be the most fun that I've ever had laying down, but I think that I can handle it.  I appreciate the information and as soon as my head clears smurf I'll check in and let you know how it goes.

Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 9/28/2007 5:27 PM (GMT -7)   
Hey GTM-

It's going to be a piece of cake (I know, I know...).

Keep a stiff upper lip (whatever that means) and we'll see you on the other side.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01 AND REMAINS THERE TO THIS DAY
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
7/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA STILL UNDETECTABLE


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 9/28/2007 5:50 PM (GMT -7)   
Yeah, everybody keeps saying it will all be behind me.  I thought that it wouldn't be anymore!

spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 9/28/2007 5:52 PM (GMT -7)   
Hi GTM,

As scary as this whole thing seems to be now; I believe you will find (as I did) the actual procedure is anti- climatic. All that I remember is a few moments in the OR; anestesiologist: "You're going to feel a little sleepy"... Then nurse saying:"How are you feeling?"... me: "When will the operation begin?... nurse: "You're done, and in the recover room"...me: "No kidding?"

You will be just fine. Try not to get yourself too worked up because the stress of worrying is worse than the procedure itself. I'm a worrier I should know.

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. margins
DaVinci surgery on 02/23/06
Last PSA 08/26/07 @ 18 months "0"


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 10/2/2007 2:40 AM (GMT -7)   
Two more days!  I appreciate all of the kind words.  I've been absent for a couple of reasons.  Internet service has been constantly coming and going for a week now.  I understand that this has been a problem for people in many areas.  I read a while back that one of the communication satelites was going bad and I wonder if this could be the problem?  Also, I was eating breakfast Saturday morning and getting ready to tackle some of the things that needed to be done before surgery when I received a call that my Mother, who lives 100 miles from me, had fallen and broken both arms.  She will be 82 on 10/15.  On Saturday night, while my Mother was in surgery her sister had a major heart attack.  I had to be back home by Sunday night (got back after midnight) so that I could do pre-op Monday morning.  Fortunately my brother was able to help yesterday as Mother was going into rehab and my Father, who cannot take care of himself, now has to go to an ALF.  I begin not eating, on doctor's orders, this morning for surgery on Thursday.  I've noted that some of you have had cookouts and so forth the day before surgery.  I suppose that some doctor's do it differently, but I will probably be very tired of jello and ready to eat my shoe by Thursday.  The DAY is fast approaching and, as my wife says, we really need another week to get ready, but, ready or not, it looks like it will happen finally on Thursday.  I'll be checking in unless the net stops altogether.  

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 10/2/2007 8:39 AM (GMT -7)   
Hey gtm,

When it rains it pours! Here's hoping your life settles down now. I was on the "see through" diet for only one day and that was plenty.

Good luck,
Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/2/2007 10:57 AM (GMT -7)   
gtm,

Whoa, enough already!! I pray that these issues with your family will quickly resolve themselves. It must be tough going into surgery to have all of that going on. As to your appetite after surgery it may surprise you. I thought that I would be ready to chow down on a large steak but it took me almost a week to get back to my normal eating habits. The day after surgery I was told to eat something like chicken noodle soup. My wife and I were staying that night at a motel near the hospital and the first thing that I had to eat was chicken and vegetable soup in a bread bowl. When I got home friends made a very good chicken stew with noodles. I had that steak about a week after surgery.

Swimom explained the positioning. I was told one of the key reasons for the angling was so the surgical field would be clear as your intestines and other organs will be sagging toward you head. You are tubed and hooked up to a breathing machine. I was concerned that I would wake up with a sore throat and raspy airway but I could not even tell that I had been tubed.

Tamu

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 10/2/2007 1:08 PM (GMT -7)   
HI gtm,

Good-Grief! It sounds like you're having a year like I had last year...I certainly hope not. Any way we are all thinking of you and your family, and praying that everyone recovers quickly.

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. margins
DaVinci surgery on 02/23/06
Last PSA 08/26/07 @ 18 months "0"


Hagrid
Regular Member


Date Joined Sep 2007
Total Posts : 60
   Posted 10/2/2007 2:22 PM (GMT -7)   
gtmriviera,

It's good to be distracted prior to surgery, but wow!

Our prayers are with you. But you will find the surgery is a piece of cake. If you need any suggestions to speed your recovery, let us know. We've been there, done that.
Age: 57 (49 when diagnosed)
PSA 100+ 3/1999
Biopsy -positive, both nodes 03/1999
Bone Scan and CAT scan negative 4/1999
Radical prostatectomy and bladder neck removed 04/19/1999
HT - 05/1999 (Lupron every 3 months for 9 months)
RT - 6/1999
PSA 0.0-0.2 until 2001
Casodex 150mg 2001 until 2006
Casodex 100mg 2006-present
PSA 0.4-0.6 2001-2007
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 10/2/2007 3:45 PM (GMT -7)   
GTM - My Goodness...Yikes...and Wow!

Okay - everyone that you're worried about...needs you to do well. Another week to get ready? Well, that's a dream cause it seems like you're never REALLY ready, you know?

Take care of yourself as best you can (that means you cannot eat any shoes before surgery - save that for after) tongue

We'll be thinking of you and waiting for an update.

God Speed,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/3/2007 6:49 AM (GMT -7)   

   tongue   Hi ~ gtmriviera & Loved Ones,

 

Thinking of you and sending special thoughts your way as you move toward surgery day…  As you feel up to it ~ touch base!!

 

We hope  “Our Journey” helped to guide you over at least one stepping-stone on your path.  Keeping you close… in thoughts and prayers. 

 

“Our hands will be on your shoulders”

special words borrowed from hamala

 

In Friendship,

 

~~*~~*~~*~~~)*&^%  Group Hug %^&*(~~~*~~*~~*~~

 

From the 3 of us...

Lee, Buddy, & Murphy

 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 10/3/2007 10:08 AM (GMT -7)   
Thanks for all of the kind thoughts.  This time tomorrow I will probably be just about done with surgery.  I don't know how long it takes to wake up, but I plan to get up about 3 am tomorrow so I won't leave a wakeup call.  I can have all of the jello that I can eat right now, but I'm also drinking the yummy stuff from the green bottles so the jello is sliding right on through.  I've lost approximately 5 lbs in the last 24 hours and about 16 lbs in the last two months.  Since I also won't be exactly overeating the next couple of days I expect to lose a few more.  I've already cut off all of my hair to make personal care easier and I plan on not shaving for the next month.  My wife wasn't thrilled with the personal grooming decisions, but if I'm going to be a bum for a few weeks I may as well look like one.  My folks are doing fine considering the circumstances.  I had never mentioned the PC to my Father because he had enough problems, but I thought that he needed to know why I had to return home and would not be coming back for awhile.  We explained everything to him and he understands, at least for a little while, what is said to him.  He was upset, but like the rest of us did what had to be done and went into the ALF.  Mother can wiggle her fingers a little and will be getting casts on both arms when the swelling goes down.  Her sister is doing ok in the cardiac unit and may go home in a few days.  I still have a hundred things that I would like to do at home before surgery, but I'm out of time and the world will get along fine if I keep on putting things off for awhile.  The internet seems to have settled down so I may be able to check in this evening, but I will take this opportunity to thank everyone for your help.  The Riviera is tucked into the garage for a long rest, but I hope to see you cruising soon.  GTM

Hagrid
Regular Member


Date Joined Sep 2007
Total Posts : 60
   Posted 10/3/2007 11:08 AM (GMT -7)   
Our prayers are with you. You have it right: The world will get along fine. This is your time now, and everything and everyone else will wait. You will be amazed how quickly and easy things go from here. The waiting is the hard part.
Age: 57 (49 when diagnosed)
PSA 100+ 3/1999
Biopsy -positive, both nodes 03/1999
Bone Scan and CAT scan negative 4/1999
Radical prostatectomy and bladder neck removed 04/19/1999
HT - 05/1999 (Lupron every 3 months for 9 months)
RT - 6/1999
PSA 0.0-0.2 until 2001
Casodex 150mg 2001 until 2006
Casodex 100mg 2006-present
PSA 0.4-0.6 2001-2007
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/3/2007 11:57 AM (GMT -7)   

Hello GTM

I know you have had a rough time with your folks and I am sorry.  Right now you need to be thinking positive thoughts and taking  care of you.  I will be praying for your speedy recovery and then we can talk about your Riv some more.

I will see you when you wake up  after surgery :) Take care my friend and gentle hugs to you.


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 10/3/2007 8:52 PM (GMT -7)   
Thoughts and prayers for you tomorrow and beyond.

God Bless, Swim
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 10/3/2007 9:48 PM (GMT -7)   
GTM,
 
We'll all be here, waiting for the good news following surgery.  I bet the Riviera won't have to stay in the garage for long!
 
All the best thoughts and prayers going out to you!

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 10/4/2007 4:38 AM (GMT -7)   
GTM,
 
Todays the day. A start to a new life. All this will be behind you and you will move on to get a world famous Idaho Goose Egg.
Praying for you today.
 
We will wait to hear from you from the other side.
 
Love ya brother........................WAR EAGLE
 
Walt
Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007
 
"I will persist without exception - I will find a way where there is no way"


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 10/4/2007 6:44 AM (GMT -7)   

Well, its the day, and I know you are relieved to get to it. I know I was.  Even though it may a little while before you read this, here's 2  learnings from my experience last week that may help. 

1.  You won't be a sick patient long, bouncing back is fast.

2.  Take the medicine until it is gone, don't stop because you feel better.

3.  The catheter bag will become more 'normal' in a couple of days.  In my case, it took some 'tweaking' to get it to fit right.  The nurse at the hospital who gave the care and use instructions had it wrong, so it took me a couple days to figure it out.

Yeah, I know I said 2 learnings.   eyes   

 

gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 10/8/2007 2:56 PM (GMT -7)   
I came home saturday afternoon, but the internet service hasn't been working.  It apparently is a problem with the way that the house was wired and the serviceman had to come out today.  We're finally back in action.  As for the surgery let me say that everyone at Baptist Hospital was fantastic.  I've never seen service like that at any hospital.  As for the procedure they took me in the operating room and one guy says "I'll be giving you something that will relax you a little."  That was about 7:30.  The next thing that I know is waking up in recovery at 10:30.  I'm thinking that that was much quicker than I expected.  It turns out that my internal organs are not where they are supposed to be.  The doctor was trying his best to poke around and do the surgery with the robot, poked a hole in my bladder and, after sewing that up, he decided to just open me up.  I now am stapled up from above the belly button down to there.  He says that there should be zero nerve damage.  I talked to him today and he said that the pathology report will take another day or two.  While in the hospital I was slow to recover an appetite and didn't eat much.  I still am not eating as normal, but it is coming back slowly.  I had two brief episodes of nausea in the hospital and threw up once.  Both times that I became nauseous it happened suddenly with no warning so if you have surgery coming up be sure to have something nearby just in case.  Fortunately there was a nurse in the room at the time.  I have not had a lot of pain, just the bladder spasms that everyone talks about and they can give you medication for that.  I've been walking around the house and taking a lot of naps.  I'm still carrying the large bag as the small one would be filling up much too quickly.  I have hot and cold flashes when I will be sweating a lot and freezing later on.  I talked to the doctor today and he said that he isn't sure what is causing that.  At this point it's just kinda boring and we are going to rent some movies.  Oh yes, I understand that the recovery period may be a little longer since they opened me up, but no one has given an estimate.  Anyone have any experience with this? 

War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 10/8/2007 3:13 PM (GMT -7)   

GTM,

My man! It's good to hear from you from the other side. Sorry about the robot and bladder, but it's good that they got in there and took care of business. I don't know about the hot flashes. Mine came after HT. Did have some nausea after surgery but only due to "sleep" meds. Go rent the movies and get some rest. I am praying for good path reports and a bright future.

In our prayers and.............WAR EAGLE,baby.

Walt


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007
 
"I will persist without exception - I will find a way where there is no way"

New Topic Post Reply Printable Version
66 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Sunday, December 10, 2017 5:33 PM (GMT -7)
There are a total of 2,903,790 posts in 318,684 threads.
View Active Threads


Who's Online
This forum has 158094 registered members. Please welcome our newest member, 14 nurse.
337 Guest(s), 5 Registered Member(s) are currently online.  Details
notsosicklygirl, john4803, ArtAngel, emotions, straydog