Emotional change with Eligard?

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War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/28/2007 12:13 PM (GMT -6)   
I just got my second 6 month shot of Eligard on Monday. I have felt an emotional swing the past two days. Started crying like a 10 year old schoolgirl a little while ago. I also have experienced a feeling of fear and being all alone. Has anyone else had these mood swings? They are new to me and I've been on HT for quite some time. The feeling of fear or shall I say no confidence really bothers me. My passion in life is singing. I am scheduled to sing tonight and I am scared to death. Never felt this way before.
Any help?
 
Love and blessings to all from a 54 year old cry baby.
 
Walt
Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 9/28/2007 12:39 PM (GMT -6)   
Hey Walt,

Welcome to Cryers Anonymous... I was not on HT but had low testosterone caused by some other problems and was severely depressed for about 3 months. Finally, with the help and advice of some of our forum members, I got some relief. My doc put me on Prozac that just made me numb. I would cry at the drop of a hat and spent most of my time staring at the wall.

Please don't let it go that far. Get some help from your doc. There are meds that will help make it better...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/28/2007 12:44 PM (GMT -6)   

Walt ~ Stay close... and continue reaching out.  If you need guidance immediately ~ go back and read your postings to others... then apply them to you!  You have given so much and now we need you to pull from all of our strengths.  Wrap your arms around yourself and feel the power of others surrounding you.

 

Pull from the Courage you have shown here... 

We become brave by doing brave acts.

Look in the mirror and see the face of courage.  This is you!!!

 

Obviously ~ something is going on with the "medication" and you know this ~ so continue to focus that it is the medication. 

 

You are scheduled to sing tonight!!!  Sing for all of us... don't let any dark clouds cover your sky.  When you look up ~ you will see us and your.....

                     ~  WAR  EAGLE   ~

 

Put this little rainbow in your pocket and know we are there for you!!!!

Now ~ sing as you’ve never sung before….

 

*This is your very own Rainbow and it’s sprinkled with Sunshine*

*/////////////////////////////////////////*////////////////////////

///////////////////////////*////////////////////////////////*/////

///////////////////////////////////////////////////////////////

////////////////////*/////////////////////////////////*//////////

*********************** 

 

Feel our wings beneath you as you research why this is happening……

Warm Hugs and Gentle Thoughts are with you.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/28/2007 12:49 PM (GMT -6)   
Dear Biker,
My prayers were answered within 20 seconds.... as I was typing my post I said "Biker we need you here!!" and I hit the submit button and THERE YOU WERE.... already having posted while I was typing...
 

“God Bless You” and "God Bless Us All".....

 

     It's a little prayer  ~  "God BlessYou" ...but it means so much each day,

            It means may angels guard you and guide you on your way.


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 9/28/2007 1:03 PM (GMT -6)   
Dear Crybaby Walt,

Sometimes Don cries (Lupron) sometimes he's very irritatable, sometimes he is very listless & blue. Sometimes...not all the time...just sometimes.

I picture you singing tonight as if it were the most wonderful, amazing thing for you and everyone there. I wish I was there to see & hear you.

WAR EAGLE = HOPE,

Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/28/2007 1:46 PM (GMT -6)   

God truely has sent me the most wonderful friends.

I've been on HT for 18 months or so and this is the first time anything like this has ever happened. And worst of all the wife is gone for a few days to take care of her aunt. So no one was here to' as my daddy would, "yank a knot in my tail".

I think the combination of HT and some well meaning friends just through me in the old pit of despair. Sometimes people that are not going through this just "ain't got a clue". They continue to hound me about how using a juicer can save my life and it really ticks me off. But I can't jump down their collective throats because they mean well, but just don't understand.

Jim, I can't take any of the antidepression drugs out there because they drepress me. No joke. Tried them twice and both time..........full blown depression. Go figure.

Lee & Buddy, you truely are a God send. I am putting the Rainbow in my pocket. "I will find a way where there is no way"

Thanks Susan. You always light up my life.

War Eagle to all.

Walt


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007


Hagrid
Regular Member


Date Joined Sep 2007
Total Posts : 60
   Posted 9/28/2007 1:52 PM (GMT -6)   
I experienced mood swings while on Lupron. For example, I'd be driving down the road and suddenly start crying. Couldn't stop. The spells would last about 10 minutes. After a while, I learned to not let myself get too upset, take long slow breaths, and simply wait it out. I've been on Casodex for years now. 150mg (three pills daily) for about two years, now 100mg. The Casodex is far better in many ways.
Age: 57 (49 when diagnosed)
PSA 100+ 3/1999
Biopsy 03/1999
Bone Scan and CT negative 4/1999
Radical prostatectomy and bladder neck removed 04/19/1999
HT - 05/1999 (Lupron every 3 months for 9 months)
RT - 16/1995
PSA 0.0-0.2 until 2001
Casodex 150mg 2001 until 2006
Casodex 100mg 2006-present
PSA 0.4-0.6 2001-2007
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 9/28/2007 2:15 PM (GMT -6)   
I haven't yet, Walt,
But Ruth would tell ya if I did, she wouldn't notice...I am watching posts like this and recalling what my oncologist told me. He said that this is a natural side effect along with depression. He said that there are options with medications, but I was not liking the idea that I would constantly be on meds. So far so good. But I am aware of this possibility.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/28/2007 3:03 PM (GMT -6)   

Walt,

It's just been a little ove a week that I began crying like a.. a.. 5 yr. old.  I felt so hopeless and I knew in my mind I had Hope in the Lord.  I felt I had lost the battle with incontinence (bio-feedback didn't work immediately) which meant a loss of any future hope of intimacy with my wife. 

Then I opened your post and read and was renewed to hope again.  That night I decided that even if I never became continent again, I was not dead.  One of the outcomes was a determination to become intimate with my wife again via the injections.  I did that and even though I encountered a bump that brought more fear, I am going forward.  You helped me.  Now I hope we can all encourage you.  Like Mama Bluebird said, apply your post to Walt now.  And know some fellow believers are praying for you tonight.

Gene


Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3=6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
Bleeding problem at 6 weeks post surgery...No resolution despite several trips to surgeon, antibiotic treatment.
05/31/07: Cystoscope reveals "stone", due to "Stricture" (narrowing of uretha at prostate removal site).
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure, but is most likely a temporary fix, and incontinence continues.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.  He thinks stricture is back, but send home with Cipro.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05 (non-deteactable).  PTL! But still leaking
8/31/07:  First Bio Feedback session.  The little lady is very positive that I can gain control.  That's what I want more than her.  New urologist is not very sold on effectiveness of Kegals???
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. Recommended possible callegen implant. She noticed from 8/20 cysto that my sphincter was ... too short?... huh?   
 
 
 


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/28/2007 3:40 PM (GMT -6)   

Gene,

God love you, man.  I fought that battle with incontinence. I will call that battle a draw. I have not tried the injections, didn't like my experience with the pump, so now we have move forward replacing that kind of intimacy with a lot more huggin' and kissin'. Maybe we will talk about the injections down the road.

My great nephew just left from his visit after school. Oh to sixteen again. He is like a son to me. My spirit is coming back. I guess I need to read my own posts about persistance.

God love you and all of yours. I know your prayers will be answered. Mine already are being realized.

War Eagle to all.

Walt 


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 9/28/2007 4:39 PM (GMT -6)   

Dear Bluebird,

Isn't it amazing what virtual hugs can do?  Just goes to show that when we act as one to defeat this disease, we are truly connected at the heart...

Love ya,    yeah

Jim

 


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/28/2007 5:19 PM (GMT -6)   

Mama Bluebird,

Jim is right:)

I'm going to sing now. Listen carefully and maybe you can hear, it's all about the Lord.

Thanks to Jim, Gene, Tony, Hagrid (name?), Susan, and Mama Bluebird. You raise me up.
 
War Eagle Ya'll
 
Walt 
Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 9/28/2007 6:14 PM (GMT -6)   

War Eagle/Interior Decorator/Singer/Cryer

I obviously have not been on HT, but being 9 months pregnant, I know the feeling of being a basket case of hormones...the trip down PCa lane that I have been on with my father has not helped the issue and my husband probably thinks I am bipolar, though he loves and supports me anyways.  So much for Big Girls not crying..I'm a pregnant girl that cries all the time...(I'm sure you could sing that song)  I am really nervous about the emotional side effects of HT for my father.  I have heard that crying is pretty "normal".  As if you guys don't have enough to deal with!! That being said...I have found in my situation that KNOWING the emotions are normal due to the circumstances and being able to keep my sense of humor even if I am crying like a baby, help to deal with the cirumstances.   

The mind is a powerful thing...but I have found it works both ways...it can bring me up or down...I have to decide where I am going to let it take me and have to FORCE myself to do things that will help me be positive.  Some days I am just going to cry, BUT I refuse to be depressed!  Life is too short!  Your nephew sounds like he is a great source of joy and I am glad you can draw from that.  Just remember that you have more strength than you know and you are never alone in this fight.   Good luck tonight!! I know you will be great!!!!   

Doting


Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
In process of determining follow up therapy
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/28/2007 8:52 PM (GMT -6)   

  Though you cannot always see the bird singing, if you listen with your heart,

you can always hear her song. 

 

   Our hearts hear... ~ ... your songs  

 

 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebird.jpg

 

 


Hagrid
Regular Member


Date Joined Sep 2007
Total Posts : 60
   Posted 9/29/2007 10:39 AM (GMT -6)   
Doting daughter,

After my experience with Lupron, and the emotional swings and the crying, I have a greater respect for what the ladies go through!

The most important thing for me was to convince myself that the emotions were temporary, that they would pass, and do my best to "ignore" them. That method did greatly reduce the overall time, and minimized carry-over effects.

War Eagle and Gene (from another Gene),

Have you guys considered an arificial sphincter and impants? Be glad to discuss them with you.
Age: 57 (49 when diagnosed)
PSA 100+ 3/1999
Biopsy 03/1999
Bone Scan and CT negative 4/1999
Radical prostatectomy and bladder neck removed 04/19/1999
HT - 05/1999 (Lupron every 3 months for 9 months)
RT - 16/1995
PSA 0.0-0.2 until 2001
Casodex 150mg 2001 until 2006
Casodex 100mg 2006-present
PSA 0.4-0.6 2001-2007
 


Irishdaughter
New Member


Date Joined Mar 2009
Total Posts : 3
   Posted 3/18/2009 11:06 AM (GMT -6)   
sad

My father has a gleason score of 10 - he is 83 and has the most aggressive form of prostate cancer. He's now on HT with Eligard every 6 mo. . His PSA is now .01 which is good news but his emotions are off the charts - he cries at the drop of a hat and "feels so helpless". My problem is he has sons who are going through major issues in their lives and are living with him and purging a TON OF NEGATIVITY on him. They are selfish and will NOT MOVE OUT of his home. Every phone call is a 30 minute dose of negativity about 'my divorce' or 'need money' you name it.

I promised my mother I would manage my fathers care before she died and also that I would not allow anyone to take advantage of him. It's been a battle, they all want money and can't support themselves.

I'm thinking a short term solution is an anti-depressant or to consult our doc about 'intermittent ht' so he can gain his mind back.

Are there mild anti-depressants that work and won't have bad interactions with Eligard? Short of evicting two of my brothers who are leaching off my father (who really does NEED someone living with him and driving for him) I have no idea what to do. I've even thought of a live in nurse....

Keep the faith! Fortunately, my father has his but sometimes I think it wanes. These years should be happy...... sad

texdoc48
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 3/23/2009 12:59 AM (GMT -6)   
Irish Daughter:

Regarding your dad; it sounds like his case is very similar to mine. During the first round with Eligard last year, I hit rock bottom on the depression. I couldn't work for two weeks until the Zoloft kicked in. I have never really liked Zoloft and when my PSA began to go up again 8 weeks ago, I had the doctor put me on Wellbutrin since it has a bit of a kick in it. I suspected it might help my fatigue as well as the depression. So far, it seems to be working very well. Of course, I am only into the 3 week of the 1st injection but last time, I was already depressed by now.

Texdoc

midi
Regular Member


Date Joined Apr 2010
Total Posts : 122
   Posted 6/14/2010 8:05 PM (GMT -6)   
I just got my first Eligard shot today - but just saw the nurse not the Doctor - should I keep taking the 50mg of Casodex daily?

No side effects yet but maybe feeling a little bit tired and sore around the butt area whree the injection was...


White Male 55 otherwise healthy until this year :-(
 
January PSA: 17.4
March PSA: 36.8
 
Cipro: three weeks
Macrobid: one week
Levaquin: 10 days
 
Cystoscopy: April 19th 2010
 
Self-cath still 4-6 times a day
 
PCa Biopsy performed May 17th 2010 100% positive
 
Size: 54 grams
 
Gleason Score 4+5
 
Hospitalized May 30th - June 4th for severe pain/fever & infection.
 
Bone scan on May 31st showed its spread to pelvic area, ribs & sternum.
 
Stage: T4M+
 
Taking 50mg Casodex daily, 5mg Percoset as needed, 1st Eligard shot June 14th!
 
Will I still be a man afterwards? :-(


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/14/2010 11:19 PM (GMT -6)   
Hi midi,
Your Casodex bottle should have the dose that was prescribed. For the record when I was on hormone therapy I took Casodex daily for 28 months. Mine were 50mg once a day. I was on Lupron with my Casodex but it's essentially the same regimen. Eligard is an equivalent to Lupron.

The gentleman who started this thread is an old friend of mine. He hasn't posted on HW in several months. We wish him well, he's a great guy, but he hasn't been doing very well with his cancer. Walt and I kidded a lot about that stupid dulled harpoon the nurses stuck us with. But the rewards were great. Both of us could out shop our wives. And we also thought about becoming interior designers...

Love and prayers to you Walter! And all the best to that beautiful wife of yours!

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 246
   Posted 6/15/2010 11:56 AM (GMT -6)   
Hay guys had 4 months 50mg Casodex a day 2 shots of Lupron during this time and 40 rads treaments at the same time I cryed I wanted to dance on a pole HA HA had quite a few mod swing my wife said she was going to gag me if i didn't behave it was quite a experince 6 months later I doing fine i've settled down except for being tired but i'm working on that all 3 were done at one time over 4 month period Oct 09 to 12-12-09
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  

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