Tested positive for PC need help

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bronco
New Member


Date Joined Sep 2007
Total Posts : 5
   Posted 10/1/2007 7:31 PM (GMT -7)   
50 Years Old
PSA 1.2
Gleason 3 + 3 = 6
T2a located in A1 Right
 
Early stage leaning towards Proton Radiation any Ideas?  confused

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/1/2007 7:55 PM (GMT -7)   
Feel free to ask anything you want to here. A lot of good people with good advise. But you have to make the decision that is best for you.
I would read up on the options and get a second opinion. If you are able to go to a major cancer center you might try that.

Good Luck, KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
   


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 10/1/2007 8:24 PM (GMT -7)   
If you haven't already, click on Bluebird's resources at the top of the PCa forum sceen. You'll find many informative threads by guys (and their wives) who have carefully explored all the options. I know there's a long one on proton therapy. There are even more threads to read if you take the time to browse back in the forum over the last several weeks, even months. There are a lot of other resources, too. Do you have Dr. Walsh's book? If not, get it. It solves a lot of the mystery and (for me) ignorance. It can also be a splash of cold water, too, but information is power! Hang in there.

puget
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07 = <.01 (Hooray!!)


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 10/2/2007 4:22 AM (GMT -7)   
Proton is certainly a worthwhile option

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/2/2007 7:02 AM (GMT -7)   
Bronco,

If you are leaning toward proton beam then it indicates that you are already in the research process. As you study the treatment options be sure to get information from more then one source, especially if that one source is the provider of the treatment. There are trade offs with all treatments. Be sure to understand the longer term impacts out 10 years or more. Proton Beam has received some good reveiws here on this forum and from others that I have talked to about it. It was my second choice of treatment after surgery. If I thought that I could have handled the ongoing mystery afterwards concerning whether or not it was successful then I would have gone that way.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 10/2/2007 6:38 PM (GMT -7)   

Bronco:

Sorry to have to welcome you to this site, but glad you found us.  I think you will find a wealth of info and help here.  You will find though that this site is primarily surgery related - there are a few threads about proton found on the Helpful Hints thread at top.

I had proton at Loma Linda 6 yr ago and have been fortunate to have had no side effects.  The treatments were noninvasive and I was not prohibited in anyway from my regular activities during treatments.  You can get further info and testimonials on www.protonbob.com.

Each of us has our own set of parameters, so good luck on finding the treatment that is best for YOU and be sure to stay with this forum.

Dutch

 

 

 



Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001 - No side effects.
6yr PSA - 0.19
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 

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