It has been a while since I have posted, but I have kept up with others daily. As you can see from closing, we have not had a typical journey from the beginning.
My husband is now 12 weeks post surgery and still having issues with incontinency. Yesterday was his last day at biofeedback (all insurance will cover). He just cannot seem to find the muscles for the kegels. He had been doing them wrong before bio. It's not that he is not trying - he just can't get it. First thing the nurse asked him yesterday was "are you dry." He got the impression from her that she doesn't think he is doing exercises (kegels) but I know he is trying. We have read everything we can find on how to do them and he just can't seem NOT to use either the stomach muscles or the buttocks. Believe me, we have tried everything we have seen on this forum and elsewhere. He is doing all the other exercises and has to walk four blocks to work and back from parking space plus walks during lunch, etc. Yesterday was the first day in quite a while that I have seen him so frustrated and down. He had been positive and upbeat until last session at bio. Said he didn't sleep much last night because he was dreaming all night of trying to do kegels. Any suggestions?? Are there any other exercises that would help build the muscles?? He goes most every night without leaking and can make it to bathroom first thing in the morning. The rest of the morning he leaks a little (squirts) when he starts to walk after getting up. By afternoon things are starting to go downhill. Wears a Depends with male pad in it. Probably uses 2 - 3 pads a day. This past Sunday he had a lot of blood in urine. I think he had stood too long at church. He stood before and while teaching SS class and after class for a long time before finally sitting. He came home and went to bed and slept for a while and we haven't seen any more blood. Could also have been that Couminen level was high (INR had been high the week before). Should find out INR level today from blood draw on Monday morning. He really has come a long way since days following surgery, but he is ready to be well.
Also, he is still experiencing pain in the upper thigh (outside) of leg that had clot. Has had some swelling in leg also but that is better. Had doppler done again in both legs 3 weeks ago. No clots. Too much walking causes additional pain. Going for bone scan this Thursday (had one a couple months before surgery that was clear), going for MRI on Sunday (that's right on Sunday afternoon - seems they schedule on weekends too) and to a neurologist on Wednesday (next week). Both our urologist and PCP don't have any answers. X-rays of hip area did not show anything. Extensive blood work showed nothing abnormal. Both doctors are working with us and together to try and find reason for pain/swelling. Our doctors have been great. Both suggested next step might be neurologist.
First PSA done but no results to doctor as of yesterday.
Thanks for your continued support, suggestions and prayers.
Robotic surgery 7/9/07
In hospital until 7/18/07 because of ileus after surgery
Home for three days, back in hospital with blood clot. Home on 7/26.
Age 58 (57 at surgery time)
3+3 (cancer in two cores of 12 core biopsy - 40% in one and 5% in other)
Cancer contained, margins clear