ED 6 months post da vinci

 Hey ~ Courtney.... and Kurt, It is so good to hear your positive results in your posting!!  We miss you ~ but we knew you were keeping all of us close....  Just remember  ~ we will always be here for you... and anytime you find time to say hi! ~ do it!  and updates are really important!!!!  A few words every now and again ~ keeps our minds at ease. Thinking of you with a warm smile and happy thoughts of you both.  Hugs from Lee & Buddy mama bluebird - Lee & Buddy… from North Carolina   v           We invite you to visit our personal thread :   Click Here:   “Our Journey” ~ Sharing is Caring   April 3, 2006  53 on surgery day RRP / Radical Retropubic Prostatectomy PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate 3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)

Hey Courtney and Kurt.... glad to hear things are going good for you. I know how busy it can be with the kids. Look forward to seeing you around.

KW

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    43

    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.

    Gleason 7

    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate

    RRP on Oct. 17, 2006 - Nerves on right side saved.

    All Lab's clear.  No Cancer outside prostate

    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006

    First Post op PSA on Dec. 11, 2006  Undetectable 0.00

    Office visit on Jan. 19th due to continued excessive urine leakage.

    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)

    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!

    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 

    March 8th Started Detrol LA to see if it helps with the leaking?

    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.

    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!

    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!

    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!

    June 1st Start Bio-Feedback to try to control my leaking.

   

Hi Courtney & Kurt,

Nice to hear from you. My husband saw a men's health specialist a few weeks ago for same issues. I really think it takes some time (however new for us too). Glad to hear all is more or less well. Take care of you, him and those teenagers! (must be noisy!!). cheers, Lana

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Creed_three

Lana posting for husband CJ (49 years). First PSA 3.5 (Nov 06). Open Radical Prostatectomy on Tuesday 17th April 2007. Gleeson 3 + 4 = 7. Confined to prostate. PSA 0.01 (June 07).

Good to see an update on you guys. You're just a little bit ahead of us. ED is getting very frustrating around here. We'll probably have to make an appointment to see what else we can try.

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Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6 Changed to Gleason 3+4=7 after surgical pathology
PSA:3.3
DaVinci Prostatectomy May 11, 2007 at Univ. of Mich. Hospital
Stage: T2b
Pathology: May 16 - Cancer confined to prostate, Margins, Lymph & Seminal Vesicles all CLEAR!
Father and Uncle had prostate cancer
First PSA after surgery- July 5, 2007 = <0.01 !!!!!!!

Hey, Kziz - sooooo good to hear from you. We're due to see Dr. F. in a week-and-a-half. He, too, gave us Muse (mostly based on what we've read here), but it's sittin' in the fridge. That's one of the reasons he keeps having us back is to make sure we're gaining ground on all the post-surgery issues. We're having enough good luck with Cialis, so don't need the extra "stress." Plus, price-wise Muse is about $17-$21 a pop. Yikes.

I know the docs keep urging "use it or lose it," but I think for many of us in the early days post-surgery, it becomes a mental challenge for guys to do that while leaking like a sieve (even though they know we don't care).

Know you're busy - but please don't be such a stranger. It's always good to "see" you on here!

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Husband age 66

PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)

DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.

T2a (at biopsy)

At pathology - cancer cell leakage into fatty tissue

Post-Surgical PSA on 10/06, 4/07 - undetectable!

Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence

Future: PSA tests twice-yearly for now - Next one: 10/16/07

 

Hello Kurt and Courtney,
I was about to put one of my "calling all Kurt and Courtny's" posts up as I was thinking of you. Good news all around it sounds like. Very nice to hear from you.

Tony

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Age 45 (44 when Dx)

Pre-op PSA was 19.8

Surgery on Feb 16, 2007

Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)

HT began in May, '07 with Lupron and Casodex 50mg

IMRT radiation for 38 Treatments ending August 3, '07

My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.

My Life is supported very well by family and friends like you all.

STAY POSITIVE!