ED 6 months post da vinci

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kziz
Regular Member


Date Joined Feb 2007
Total Posts : 242
   Posted 10/3/2007 4:52 PM (GMT -7)   
Went to see Dr. Fagin about ED issues.  Funny thing was, we didn't have to even tell him why we were there.  He answered all of our questions before we even asked them.  He gave us MUSE samples and injection samples.  Haven't tried the injections yet, but Kurt said the MUSE was VERY painful.  On the positive side, we switched from Viagra to Levitra.  Kurt loves it.  It has less side effects for him, and gave him more feeling, not to mention, better outcome.  He has completely quit wearing pads, so that is a huge positive. 
With school back in session and 2 active teenagers, getting my hands on a computer is hard in this house.  Not to mention finding time to get my hands on a computer.  I hope all is well with you all.  I think about you all daily.  I am going to make time to get back into spending time on this site.  I miss you all. 
This has been one crazy year. I owe you all my thanks for helping us through this.            Courtney
Kurt & Courtney
47 year old
Great Health prior to dx
Dx on 1/29/07
PSA 4.1
Gleason 3+3=6, both lobes
Stage T2c, I believe
Tumor involves 20% of cores, both lobes
Live in OK
Da Vinci scheduled 3-14-07 in Austin
Post-Op  Gleason 6, Stage t2c nx mx  YAAAAA HOOOOOO! 
1st PSA Post OP  Undetectable!!!!!!  OFF THE CHART
2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/3/2007 5:17 PM (GMT -7)   
tongue  Hey ~ Courtney.... and Kurt,
It is so good to hear your positive results in your posting!! 
We miss you ~ but we knew you were keeping all of us close....  Just remember  ~ we will always be here for you... and anytime you find time to say hi! ~ do it!  and updates are really important!!!!  A few words every now and again ~ keeps our minds at ease.
Thinking of you with a warm smile and happy thoughts of you both. 
Hugs from Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 10/3/2007 6:14 PM (GMT -7)   
Hey Courtney,

Great to hear from you and to hear that Kurt is doing so well. Yeah, its great to be dry and on the road to ED recovery. Makes a guy feel like he is really winning this battle.

Please keep us updated...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/3/2007 8:16 PM (GMT -7)   
Hey Courtney and Kurt.... glad to hear things are going good for you. I know how busy it can be with the kids. Look forward to seeing you around.

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
   


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 10/3/2007 9:52 PM (GMT -7)   
Hi Courtney,
 
'Glad to hear about the good news on the ED battle.  I didn't like the MUSE either.  In fact, I don't know anyone who does.  I wish you and Kurt continued progress.
 
Kind regards,

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 10/4/2007 2:38 AM (GMT -7)   
Hi Courtney & Kurt,

Nice to hear from you. My husband saw a men's health specialist a few weeks ago for same issues. I really think it takes some time (however new for us too). Glad to hear all is more or less well. Take care of you, him and those teenagers! (must be noisy!!). cheers, Lana
Creed_three
Lana posting for husband CJ (49 years). First PSA 3.5 (Nov 06). Open Radical Prostatectomy on Tuesday 17th April 2007. Gleeson 3 + 4 = 7. Confined to prostate. PSA 0.01 (June 07).


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 10/4/2007 2:51 AM (GMT -7)   
Courtney & Kurt,

You two must live somewhere near KW,
  - so borrow his computer while he is out on a welding job!
:-)  
Seriously, the challenges your family has overcome in stride -
   and your thoughtful sharing as you continue this struggle - give so many hope.

Tell those kids to read a book occasionally (It's the funny-looking thing with no batteries....)
    - and keep us posted!

Your friend,

CCedar
ICTHUS!

CVK
Regular Member


Date Joined Apr 2007
Total Posts : 66
   Posted 10/4/2007 3:35 AM (GMT -7)   
Good to see an update on you guys. You're just a little bit ahead of us. ED is getting very frustrating around here. We'll probably have to make an appointment to see what else we can try.
Age 52
Diagnosed 2/19/07
10 of 24 cores positive
Gleason 3+3=6 Changed to Gleason 3+4=7 after surgical pathology
PSA:3.3
DaVinci Prostatectomy May 11, 2007 at Univ. of Mich. Hospital
Stage: T2b
Pathology: May 16 - Cancer confined to prostate, Margins, Lymph & Seminal Vesicles all CLEAR!
Father and Uncle had prostate cancer
First PSA after surgery- July 5, 2007 = <0.01 !!!!!!!


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/4/2007 8:21 AM (GMT -7)   
Courtney,

Great to hear from you. I am impressed with Fagin as he seems to relate to PCa victims better then most urologist. I never wanted to try the Muse due to the experiences I have read of many other men and the fact that it is only effective in about 30% of the men. What medication did he give you for injections? I assume that it is Caverjet. Before trying it be sure to read the threads here on injections. Becoming continent again is like being free.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 10/4/2007 9:52 AM (GMT -7)   
Hey, Kziz - sooooo good to hear from you. We're due to see Dr. F. in a week-and-a-half. He, too, gave us Muse (mostly based on what we've read here), but it's sittin' in the fridge. That's one of the reasons he keeps having us back is to make sure we're gaining ground on all the post-surgery issues. We're having enough good luck with Cialis, so don't need the extra "stress." Plus, price-wise Muse is about $17-$21 a pop. Yikes.

I know the docs keep urging "use it or lose it," but I think for many of us in the early days post-surgery, it becomes a mental challenge for guys to do that while leaking like a sieve (even though they know we don't care).

Know you're busy - but please don't be such a stranger. It's always good to "see" you on here!
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/06, 4/07 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
Future: PSA tests twice-yearly for now - Next one: 10/16/07
 


Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 10/4/2007 10:01 AM (GMT -7)   
Missed you guys, Kurt and I have had very similar roads to recovery. I tried the MUSE too, hated it very painful. Doc told me that most of his patients had the same experience. I am going in TOMORROW for my first injection lesson. It will be a tri-mix. I will try and report back when I return. Peace- Pete
Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1
Age 51
Surgery (robotic) May 4 2007 City of Hope
Final pathology - fully contained to prostate, TC1, Gleason 3+ 3
Fully continent one month
First Post op PSA - Undetectable
Second Post Op PSA (8/22/07)- Undetectable
Still no luck with ED start injections 10/06/07
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 10/4/2007 10:26 AM (GMT -7)   
Hello Kurt and Courtney,
I was about to put one of my "calling all Kurt and Courtny's" posts up as I was thinking of you. Good news all around it sounds like. Very nice to hear from you.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!

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