ED 6 months post da vinci

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kziz Regular Member Date Joined Feb 2007 Total Posts : 242	Posted 10/3/2007 6:52 PM (GMT -6)
	Went to see Dr. Fagin about ED issues. Funny thing was, we didn't have to even tell him why we were there. He answered all of our questions before we even asked them. He gave us MUSE samples and injection samples. Haven't tried the injections yet, but Kurt said the MUSE was VERY painful. On the positive side, we switched from Viagra to Levitra. Kurt loves it. It has less side effects for him, and gave him more feeling, not to mention, better outcome. He has completely quit wearing pads, so that is a huge positive. With school back in session and 2 active teenagers, getting my hands on a computer is hard in this house. Not to mention finding time to get my hands on a computer. I hope all is well with you all. I think about you all daily. I am going to make time to get back into spending time on this site. I miss you all. This has been one crazy year. I owe you all my thanks for helping us through this. Courtney Kurt & Courtney 47 year old Great Health prior to dx Dx on 1/29/07 PSA 4.1 Gleason 3+3=6, both lobes Stage T2c, I believe Tumor involves 20% of cores, both lobes Live in OK Da Vinci scheduled 3-14-07 in Austin Post-Op Gleason 6, Stage t2c nx mx YAAAAA HOOOOOO! 1st PSA Post OP Undetectable!!!!!! OFF THE CHART 2nd CT scan, to recheck enlarged lymph nodes not related to PCa NO CHANGE relook in 6 months Back to Top

bluebird Veteran Member Date Joined May 2006 Total Posts : 2542	Posted 10/3/2007 7:17 PM (GMT -6)
	Hey ~ Courtney.... and Kurt, It is so good to hear your positive results in your posting!! We miss you ~ but we knew you were keeping all of us close.... Just remember ~ we will always be here for you... and anytime you find time to say hi! ~ do it! and updates are really important!!!! A few words every now and again ~ keeps our minds at ease. Thinking of you with a warm smile and happy thoughts of you both. Hugs from Lee & Buddy mama bluebird - Lee & Buddy… from North Carolina v We invite you to visit our personal thread: Click Here: “Our Journey” ~ Sharing is Caring April 3, 2006 53 on surgery day RRP / Radical Retropubic Prostatectomy PSA 4.6 Gleason 3+3=6 T2a Confined to Prostate 3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :) Back to Top

biker90 Veteran Member Date Joined Nov 2006 Total Posts : 1464	Posted 10/3/2007 8:14 PM (GMT -6)
	Hey Courtney, Great to hear from you and to hear that Kurt is doing so well. Yeah, its great to be dry and on the road to ED recovery. Makes a guy feel like he is really winning this battle. Please keep us updated... Jim Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3. RRP 12/7/06. Nerves and nodes okay. Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate. PSAs from 1/3/07 - 7/18/07 0.00. T level on 4/2/07 - 48 On 7/16/07 - 613 Started Tri-Mix on 8/7/07. .02 ml and 50 mg Viagra. It works!!! Next PSA and T tests on 10/17/07 "Patience is essential, attitude is everything." Back to Top

kw Veteran Member Date Joined Nov 2006 Total Posts : 883	Posted 10/3/2007 10:16 PM (GMT -6)
	Hey Courtney and Kurt.... glad to hear things are going good for you. I know how busy it can be with the kids. Look forward to seeing you around. KW 43 PSA 5.7 - Discovered during Annual Physical with Family Practice Dr. Gleason 7 Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. No Cancer outside prostate Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006 First Post op PSA on Dec. 11, 2006 Undetectable 0.00 Office visit on Jan. 19th due to continued excessive urine leakage. Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:) Dr. said everything looks fine. Continue to work Kegeal's. Leaking appears to have improved after Cystoscope?!?!?! Down to 3-4 pads per day! March 1st Leaking has crept back up to 6 - 8 pads a day ??????? March 8th Started Detrol LA to see if it helps with the leaking? March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking. Worked for a couple of days then back to leaking. April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking. Leaking started back next day at work! May 14th Second Opinion about my leaking and Options at OU Medical Center. After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking. But did agree to try Bio-Feedback and work hard on the Kegeal's first! May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!! June 1st Start Bio-Feedback to try to control my leaking. Back to Top

IdahoSurvivor Veteran Member Date Joined Aug 2007 Total Posts : 1015	Posted 10/3/2007 11:52 PM (GMT -6)
	Hi Courtney, 'Glad to hear about the good news on the ED battle. I didn't like the MUSE either. In fact, I don't know anyone who does. I wish you and Kurt continued progress. Kind regards, "Idaho" ~ Barry Da Vinci Surgery July 31, 2007… 54 on surgery day PSA 4.3 Gleason 3+3=6 T2a Confined to Prostate 1st PSA 0.04 (undetectable) 9/11/2007 Back to Top

creed_three Veteran Member Date Joined Jan 2007 Total Posts : 762	Posted 10/4/2007 4:38 AM (GMT -6)
	Hi Courtney & Kurt, Nice to hear from you. My husband saw a men's health specialist a few weeks ago for same issues. I really think it takes some time (however new for us too). Glad to hear all is more or less well. Take care of you, him and those teenagers! (must be noisy!!). cheers, Lana Creed_three Lana posting for husband CJ (49 years). First PSA 3.5 (Nov 06). Open Radical Prostatectomy on Tuesday 17th April 2007. Gleeson 3 + 4 = 7. Confined to prostate. PSA 0.01 (June 07). Back to Top

Cedar Chopper Regular Member Date Joined Mar 2007 Total Posts : 432	Posted 10/4/2007 4:51 AM (GMT -6)
	Courtney & Kurt, You two must live somewhere near KW, - so borrow his computer while he is out on a welding job! Seriously, the challenges your family has overcome in stride - and your thoughtful sharing as you continue this struggle - give so many hope. Tell those kids to read a book occasionally (It's the funny-looking thing with no batteries....) - and keep us posted! Your friend, C^Cedar ICTHUS! Back to Top

CVK Regular Member Date Joined Apr 2007 Total Posts : 66	Posted 10/4/2007 5:35 AM (GMT -6)
	Good to see an update on you guys. You're just a little bit ahead of us. ED is getting very frustrating around here. We'll probably have to make an appointment to see what else we can try. Age 52 Diagnosed 2/19/07 10 of 24 cores positive Gleason 3+3=6 Changed to Gleason 3+4=7 after surgical pathology PSA:3.3 DaVinci Prostatectomy May 11, 2007 at Univ. of Mich. Hospital Stage: T2b Pathology: May 16 - Cancer confined to prostate, Margins, Lymph & Seminal Vesicles all CLEAR! Father and Uncle had prostate cancer First PSA after surgery- July 5, 2007 = <0.01 !!!!!!! Back to Top

Tamu Veteran Member Date Joined Oct 2006 Total Posts : 626	Posted 10/4/2007 10:21 AM (GMT -6)
	Courtney, Great to hear from you. I am impressed with Fagin as he seems to relate to PCa victims better then most urologist. I never wanted to try the Muse due to the experiences I have read of many other men and the fact that it is only effective in about 30% of the men. What medication did he give you for injections? I assume that it is Caverjet. Before trying it be sure to read the threads here on injections. Becoming continent again is like being free. Tamu Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3 Da Vinci on 11/01/06, Catheter out on 11/13/06 56 Years Old Post Op Path, Gleason 3+3, Approx. 5% of prostate involved Prostate Confined, margins clear Undetectable PSA on 12/18/06 No more pads as of 1/13/07 Began injections in April '07 Undetectable PSA on 6/25/07 Back to Top

GreenAcres Regular Member Date Joined Jul 2006 Total Posts : 474	Posted 10/4/2007 11:52 AM (GMT -6)
	Hey, Kziz - sooooo good to hear from you. We're due to see Dr. F. in a week-and-a-half. He, too, gave us Muse (mostly based on what we've read here), but it's sittin' in the fridge. That's one of the reasons he keeps having us back is to make sure we're gaining ground on all the post-surgery issues. We're having enough good luck with Cialis, so don't need the extra "stress." Plus, price-wise Muse is about $17-$21 a pop. Yikes. I know the docs keep urging "use it or lose it," but I think for many of us in the early days post-surgery, it becomes a mental challenge for guys to do that while leaking like a sieve (even though they know we don't care). Know you're busy - but please don't be such a stranger. It's always good to "see" you on here! Husband age 66 PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly) DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N. T2a (at biopsy) At pathology - cancer cell leakage into fatty tissue Post-Surgical PSA on 10/06, 4/07 - undetectable! Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence Future: PSA tests twice-yearly for now - Next one: 10/16/07 Back to Top

Pete42 Regular Member Date Joined Mar 2007 Total Posts : 114	Posted 10/4/2007 12:01 PM (GMT -6)
	Missed you guys, Kurt and I have had very similar roads to recovery. I tried the MUSE too, hated it very painful. Doc told me that most of his patients had the same experience. I am going in TOMORROW for my first injection lesson. It will be a tri-mix. I will try and report back when I return. Peace- Pete Diagnosed 1/26/07 Stage Tc1 Gleason 6 PSA 3.8 12 samples, positive in one 15% Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1 Age 51 Surgery (robotic) May 4 2007 City of Hope Final pathology - fully contained to prostate, TC1, Gleason 3+ 3 Fully continent one month First Post op PSA - Undetectable Second Post Op PSA (8/22/07)- Undetectable Still no luck with ED start injections 10/06/07 Back to Top

Tony Crispino Veteran Member Date Joined Dec 2006 Total Posts : 8128	Posted 10/4/2007 12:26 PM (GMT -6)
	Hello Kurt and Courtney, I was about to put one of my "calling all Kurt and Courtny's" posts up as I was thinking of you. Good news all around it sounds like. Very nice to hear from you. Tony Age 45 (44 when Dx) Pre-op PSA was 19.8 Surgery on Feb 16, 2007 Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III) HT began in May, '07 with Lupron and Casodex 50mg IMRT radiation for 38 Treatments ending August 3, '07 My PSA did drop out after surgery to undetectable. It has not returned and I will continue HT until January '08. My Life is supported very well by family and friends like you all. STAY POSITIVE! Back to Top

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