Just caught up on your posts. Call when you are feeling up to it and we can catch up. Or email me if you don't have the number still.
I had the same issues with leakage. I called my doc about
them. They are typical and due to bladder spasms. If they are only occurring during BMs and changing the cath bag like me, I didn't take anything for them and they just subsided.
Probably it's happening when you change your cath bag because it may be pulling some on your bladder when you bend over if the tube is taped to your leg and gets tight when you bend. This happened to me and they told me (the nurse) that I could retape it to give the tube some more slack so it wouldn't tug.
Honestly, the air
opening shouldn't effect you, but the movement can.
Glad otherwise you sound like you are doing well. Keep letting us know how your progress is going.
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
and the winner is...post op Gleason score of 3+4.
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g. Amazing how something so small can cause such problems!
9/27/07 - Catheter removal...let the games begin...