1 Month, 3 Days, and catheter is still in.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Jetman
Regular Member


Date Joined Oct 2007
Total Posts : 30
   Posted 10/7/2007 10:15 AM (GMT -7)   
I had Robotic Laparoscopic Prostatectomy Surgery on 09/04/2007 and I still have my catheter in.
I have had 3 Cystograms on the last 3 Mondays, with my 4th this Monday 10/08/2007. Each time I have had leakage. I am told that this will heal in time. Has anyone else had this problem? Is confused there anything that can be do to fix this? 

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/7/2007 2:38 PM (GMT -7)   

I would like to say something but I don't know what to say.  Can anyone offer up anything to Jetman?  Jetman, will you add some profile so we can know a little about you?  Please go to control panel and give us your journey thus far.

Gene


Age: 63
07/05 - Biopsy: Suspicious looking cells. 
12/27/06 - Biopsy
1/24/07 - Dignosed cancer: Gleasn Grade: 3+3=6
02-14-07 Radical Open Nerve-sparing surgery
Pathology Stage of cancer: T2c
4-18-07: First Post-Op psa = 0.011
05/31/07: Cystoscope reveals "Stricture"
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05
8/31/07:  First Bio Feedback session.
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. 
9/26/07 - Started injections   
 
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/7/2007 8:48 PM (GMT -7)   

Hi  ~ Jetman & Loved Ones,

 

              Welcome   to…   ~ HealingWell ~

 

and

 

                                                     A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

Click here for…

 

Prostate Cancer Resources, Helpful Hints, and Topic Thread Links

This link is also located at the top of the HealingWell’s Prostate Forum where topics (threads) are viewed.

 

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

 

Invitation to New Members… Welcome to HealingWell (Special Request)

 

Threads asking a specific question will get specific replys…  A personal thread is a way of letting us learn a little about “you” and you get to learn a little about us!!!  It allows us a little more information as to where you are on your journey.  A “name” (even one made up : ) makes it a little more personal… and we really do get personal in a HealingWell way…!! 

Please ~ keep posting, keep questioning, and stay close…

 

The information (links) listed above is to help you get started on your journey. 

     It is a journey best traveled with friends. 

          Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/7/2007 8:51 PM (GMT -7)   
Hey Jetman ~
You've found all of us.... So ~ stay with us. 
The more information you can share the better responses you'll receive from the wonderful folks here on HealingWell...
STAY CLOSE...  In Friendship ~ Lee & Buddy

mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/8/2007 7:55 PM (GMT -7)   
Hey Jetman. I had mine for 28 days. You have me beat now!!! I had to have a second cystoscope. I have heard that sometimes there is a need to go in and tie things up agian but I think it is rare. Hope you heal up on your own.
Question for you. Doyou have any leaking around the cathiter? Mine leaked the entire time. Just wondering.

Will be checking back on you.

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
   


Little Jem
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 10/9/2007 12:16 AM (GMT -7)   
Hello Jetman,
 
My hubby had his RRP in June 2006 and he had to have the catheter in for 12, YES 12 (it's not a typo), weeks!!!  The join in the urethra didn't heal and without the catheter urine was leaking out into his abdominal cavity and finding it's way out of his body through a haematoma which had earlier opened up the incision in his tummy - nasty!!! - so he probably had to suffer the catheter for longer than most men on here.  Anyway, several cystograms later all did eventually heal and he hardly had any incontinence once the catheter was finally removed, just the very occasional stress incontinence and has never worn pads of any description so I guess he's lucky in that respect.
 
He did have problems with strictures and had to have a couple of bladder neck incisions done one of which resulted in a later visit to the emergency room in the middle of the night due to going into total retention too.  Still the surgery went very well, negative margins, no apparent spread and the last PSA done in Sept. 2007, some 15 months after surgery was 'UNDETECTABLE' YIPPEEEE.  ED is still a problem though and he's just starting out down the injection route and the next step is for myself to learn how to inject him if I can (he feels if he does it himself and it doesn't work it will only compound his feeling of being a TOTAL FAILURE!)  So, not sure how I'll cope but willing to at least give it a try and if I can't then he will do it himself.  With all the problems mentioned above there wasn't any kind of 'rehab' done in what I understand is the most important time for promoting natural erections so I guess it'll take him a bit longer than most to regain any kind of unaided response if indeed he ever does. 
 
Still, surgery went well, still with an effective ZERO PSA and he's 99.999999% continent so I guess "2 OUT OF 3 AIN'T BAD" as the song goes!!!  And Number 3 is still WORK IN PROGRESS!!!  So really we count ourselves amongst the lucky ones as I know there are soooo  many on here who don't have such good outcomes.
 
So, don't lose heart at just a little over a month and I know how bad it is to keep dragging that thing around with you but in all probability things will heal on their own and in time you'll look back and wonder what the fuss was about, might not feel like that now but I'm sure you will.
 
Take care of yourselves.
 
Little Jem

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/9/2007 7:48 AM (GMT -7)   

KW,

I noted that you had leakage all the time the catheter was in.  I think I had read that in one of your earlier posts but had forgotten.  Now that I guess I am in your league at 8 months post surgery and still incontinent, I thought I would mention that was my experience too.  I leaked around my catheter the whole two weeks it was in.  The uro I had had absolutely no concern about it and passed it off by saying, "You're gonna leak when it comes out too so why the fuss?"  Glad I don't have him any longer. I don't know whether that added to my present condition, extended it, or what, but just wanted to mention it.  It's probably inconsequential now.

Gene


Age: 63
07/05 - Biopsy: Suspicious looking cells. 
12/27/06 - Biopsy
1/24/07 - Dignosed cancer: Gleasn Grade: 3+3=6
02-14-07 Radical Open Nerve-sparing surgery
Pathology Stage of cancer: T2c
4-18-07: First Post-Op psa = 0.011
05/31/07: Cystoscope reveals "Stricture"
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news! Still leaking.
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05
8/31/07:  First Bio Feedback session.
9/19/07: Finished 4 Bio Feedback sessions.  No imporovement with leaking. 
9/26/07 - Started injections   
 
 
 


Berb
Regular Member


Date Joined Mar 2007
Total Posts : 93
   Posted 10/9/2007 1:27 PM (GMT -7)   
KW and Gene,

Make that another one. Now 9 months post surgery and no improvement to speak of with my incontinence, I also leaked significantly around the catheter for the 2 weeks it was in. Sounds like a pattern here.

Berb
59 years old
Da Vinci surgery Jan 10, 2007, nerves spared, no cancer detected outside prostate
Pre surgery PSA 8, Gleeson 3+4=7, T1C, 3 out of 12 biopsies had cancer
Complication 1: urine favoured drain tube over catheter, extra time in hospital, catheter in for 2 weeks
Complication 2 - urinary tract infection - Citrobacter (hospital bug), 6 weeks antibiotics cleared up
Complication 3 - fungal growth on genitals (candida albicans) probably from antibiotics
Post surgery PSA tests: all undetectable
Incontinence (as at Aug'07): no pad changes at night, 8 pads per day, diagnosed bladder neck stenosis


Jetman
Regular Member


Date Joined Oct 2007
Total Posts : 30
   Posted 10/11/2007 11:36 AM (GMT -7)   
Jetman - Matt,
 
Hi every one, thank you for your replies, they have been helpful. I went for my 4th Cystogram this Monday, Oct. 8th, with the hope that my catheter would be taken out, but know luck there. It still has a small leak and I have to wait until Friday Oct. 19th to try again. I am told its because six days after my surgery I got an infection in that area, and had to be hospitalized, that I am taking so long to heal.
 
Matt
 
_____________________________________________________
 
56 years old
Had 3 Prostate needle Biopsies done in the last 8 years all negative.  
Last Biopsy done on July 6th, 07 Positive in in one sample.
March 2007 PSA 10
May 2007 PSA 12.1
Pre-surgery Gleason grade 3+3=6
Sept 4, 2007- Robotic Laparscopic prostatectomy Surgery Nerve-sparing
                    took Seminal vesicle and vas deferens, bilateral, and 
                    Lymph nodes, pelvic. NO Malignancy found out side of
                    the Prostate.
Post Surgery, Pathologic Stage: pT2(m) NO Mx
                   Gleason score: 4+4=8
                   Tumor volume: approximately 35%   
 
 
                            
   
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 14, 2017 10:14 AM (GMT -7)
There are a total of 2,905,352 posts in 318,857 threads.
View Active Threads


Who's Online
This forum has 158211 registered members. Please welcome our newest member, E5M.
389 Guest(s), 12 Registered Member(s) are currently online.  Details
BnotAfraid, Lapis_29, PeppermintTea, Artist Mark, Gemlin, tickbite666, Radi, Bull101, E5M, Maverick6981, AZ Guy, k07