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War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 10/8/2007 3:47 PM (GMT -7)   
Julia,
Have not heard from you in some time. We've been thinking about you and your husband and just wanted an update.
You know how us hormone guys get if we don't hear a little gossip every once in a while. nono We get all teary eyed and feel like nobody likes us. We really miss your input. tongue
Hope to hear from you soon. Always in our prayers.
 
WAR EAGLE
 
Walt
Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007
 
"I will persist without exception - I will find a way where there is no way"


Missyj
Regular Member


Date Joined Sep 2007
Total Posts : 87
   Posted 10/9/2007 1:48 PM (GMT -7)   

Walt, how funny - I just thought about you today and checked out the website and there was a message from you :)

I haven't logged on for a while due to feeling a bit despairing and not wanting to 'spread the gloom' if you know what I mean.

I so appreciate your kind wishes and prayers and so does Rick (he is not the kind of guy to contribute to forums but does like to linger!!)

Life for us is weirdly normal - can't help thinking sometimes that the doctors have got it wrong. How can a person feel so well and yet be so (apparently!) consumed with a disease, without any outward signs??

Walt, I worry that I am taking a lot from the people on this lovely site and not in the position yet to give very much. Rick and I are still coming to terms with this and don't feel knowledgeable enough to help others yet, much as we would love to.

I really hope things are good with you. You always sound so positive and focussed and so full of life - a brilliant role model for all of us

Thank you so much for taking the time to chase us up, I'll make sure to stay in touch from now on :-)

Very best wishes to you and your family and to everyone on healingwell. You are all always in my prayers

Julia


Age - 59
Dianosed - July 07
Gleason 8 (4+4)
PSA - 17
Bone Scan - August 07 revealed mets to spine, neck, rib, shoulder and pelvis
MRI - August 07 revealed seminal vesicle involvement
Treatment - Zolodex started on August 10th
 


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 10/9/2007 3:58 PM (GMT -7)   

Dear Julia,

Please take as much from this place as you want, or need.  Take as much as you can get and don't worry about paying it back.  It's free and there is no obligation at all.  I think that most of the fine people here will agree with me.

Best,

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
Four month post treatment PSA is 1.9.  (This is a very good result.)
No side, or after effects.  None.
I have aged a year and am now 63.  How did that happen?


Hagrid
Regular Member


Date Joined Sep 2007
Total Posts : 60
   Posted 10/9/2007 4:22 PM (GMT -7)   
Julia,

There are many of us LIVING with our disease, with the emphasis on LIVING.

Our prayers are with you. Prayers are free, and the benefits are many.


Age: 57 (49 when diagnosed)
PSA 100+ 3/1999
Biopsy -positive, both nodes 03/1999
Bone Scan and CAT scan negative 4/1999
Radical prostatectomy and bladder neck removed 04/19/1999
HT - 05/1999 (Lupron every 3 months for 9 months)
RT - 6/1999
PSA 0.0-0.2 until 2001
Casodex 150mg 2001 until 2006
Casodex 100mg 2006-present
PSA 0.4-0.6 2001-2007
 

Post Edited (Hagrid) : 10/13/2007 1:42:53 PM (GMT-6)


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 10/9/2007 6:09 PM (GMT -7)   
Julia-

Listen to Bill (jetguy) - he knows whereof he speaks.

The purpose of this site is for giving. It makes us feel better to be able to help others.

I've got my fingers crossed for you and Rick.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01 AND REMAINS THERE TO THIS DAY
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
7/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA STILL UNDETECTABLE


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 10/9/2007 7:58 PM (GMT -7)   

Julia,

Don't great mind think alike! Don't worry for one second that you have nothing to offer. Your love and caring spirit for Rick inspires us all. We are all here to help each other. Some with facts and figures and some with love and support. We need it all. Believe it or not, the times I feel the most useful is when someone else is crying out for help. It focuses my mind on their situation and not on mine. We are all care givers here. Les, Bill, and Hagrid are some great examples of this.

Some dear friends of mine "made" me start a web page so they could understand better what is going on in my life. Maybe you could do the same for your friends. It really lets you explain things to them and opens up your journey to others that are not on this forum. Mine is www.caringbridge.com/visit/walterwhited

It has done a lot of good for me and my friends that lead "normal" lives.

You and Rick are in our prayers and thoughts daily along with all that are fellow warriors in our battle.

God bless you and..........................War Eagle.

Walt


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.9 8/2007
PSA 4.9 9/2007
 
"I will persist without exception - I will find a way where there is no way"


Missyj
Regular Member


Date Joined Sep 2007
Total Posts : 87
   Posted 10/13/2007 11:21 AM (GMT -7)   

This is just the best ever site. I can't believe so many people, all going through their own varied and difficult situations, can be so selfless - thank you so much everyone

Walt, I just loved your web page. What a brilliant idea (so typically kind of you to ask visitors to pray for everyone on Healingwell :-) )

I wish I wasn't such a technophobe or I'd do the same thing for Rick. Lovely though it is to know how concerned all his friends and acquaintences are, I know he does find it a bit draining to go over the whole update thing time and time again every day. It would be great to be able to direct them to a sort of bulletin page for information

Take care, sending out positive vibes to you all

Julia


Age - 59
Dianosed - July 07
Gleason 8 (4+4)
PSA - 17
Bone Scan - August 07 revealed mets to spine, neck, rib, shoulder and pelvis
MRI - August 07 revealed seminal vesicle involvement
Treatment - Zolodex started on August 10th
 

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