First, thanks for this forum and the many thoughts and prayers lifted up. It has been such a help to me. Our journey has been different from any I've seen posted here (see closing), but responses have always been appreciated.
We are 13.5 weeks from surgery, but this week the incontinence has been worse. He had been doing better and then on Tuesday it's been like the gates have opened again. I do think he tried to do more Kegals on Monday than he was use to doing. Did not try to do any Kegals on Tuesday, Wednesday, or Thursday - just other exercises bio nurse had him doing. He is unable to stand to urinate because it seems to go everywhere. Bio nurse said sitting is o.k. - now don't advocate the stopping/starting method. Have too many that can't urinate. Woke up during last night and everything was soaked (only once before right after catheter was out). On two different occasions during the past two weeks have had some blood in urine but both times were after standing/walking more than usual. None since last Saturday. (Possible cause??? INR was high at 4.3 - should be between 2 and 3). I called urologist office with questions (husband didn't want to) and nurse called me back after discussing with doctor. May want to do cystogram at next appointment (October 23). Also possible that Coumadin could be slowing his healing process. Did I read somewhere that cystogram could cause scar tissue?? Does the above sound like a possible stricture?
He is getting ready to retire. This was in our plans before finding out about cancer and then surgery. Now my concern is that he will stop trying. Words yesterday were "I don't know how much longer I can handle this." I feel as though I am the one doing all the research. At this point, both of us are getting "down."
This past Tuesday we saw neurologist for pain in upper thigh area. Diagnosis is meralgia paresthetica. Definition: (me-ral'-gee-a par-es-thet'-i-ka) is numbness or pain in the outer thigh not caused by injury to the thigh, but by injury to a nerve that extends from the thigh to the spinal column. This chronic neurological disorder involves a single peripheral nerve, namely the Lateral cutaneous nerve of thigh (also called the Lateral femoral cutaneous nerve). The term meralgia paraesthetica comprises four Greek roots, which together denote "thigh pain involving anomalous perception."
Pain on the outer side of the thigh, occasionally extending to the outer side of the knee
- A burning sensation, tingling, or numbness in the same area
- Occasionally, aching in the groin area or pain spreading across the buttocks
- Usually only on one side of the body
- Usually more sensitive to light touch than to firm pressure
Condition likely due to position he was in during surgery since the pain began the day after surgery. Glad to finely get a diagnosis but one more thing to deal with. Could go away eventually or could have it for the rest of his life.
Guess right now I need as much info as possible on cystogram and if any complications could result from procedure. We have a good relationship with urologist and his office, but I'm beginning to wonder if things got botched up.
There was interest on last email of his condition prior to surgery. He is 6'2", weighs 208. Never spent a night in the hospital until this surgery. Was in good health until prostate cancer showed up. Has had three previous outpatient sinus surgeries. Probably didn't exercise as much as he should but walks 8 blocks each day from car to office. Weather permitting, would walk at lunch time. Definitely doesn't have a beer belly, maybe a little Mt. Dew belly (no caffeine since surgery) Never drank coffee, just a couple Mt. Dews a day and water.
Robotic surgery 7/9/07
In hospital until 7/18/07 because of ileus after surgery
Home for three days, back in hospital with DVT/pulmonary embolism. Home on 7/26.
Catheter in for 22 days due to all the complications
Age 58 (57 at surgery time)
3+3 (cancer in two cores of 12 core biopsy - 40% in one and 5% in other) T2c
Cancer contained, margins clear
Currently on Coumadin for 6 months.
Recently diagnosed with Meralgia Paresthetica
Bone scan on October 4 - clear
MRI on October 7 - a little arthritis but otherwise clear. Doctor said back discs looked like a 30 year old.