Please help- newly diagnosed with prostate cancer

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nini427
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/15/2007 4:25 PM (GMT -6)   
Hi,
I am really glad I found this website. I really need help. My husband was diagnosed with prostate cancer last week. He is only 43 years old.  We are in disbelief.  My husband is still in shock and have not been sleeping well.  So I thought I would do some research for him.  I am so glad I found this site.  It is going to be a great support group for him.
 
My husband's urologist said that the best option for him was to have the robotic prostatecomy because he is so young. His urologist does not perform the robotic surgery and would have to refer us to some one else. 
 
We live in Southern California and I wanted to see if you guys can recommend any good doctors that performs the Davinci surgery in this area.  Thank you.
 
my husband's age=43
PSA-3.6
gleason score 3+3=6
1 needle out of 8 came back postive
tumor involves 5% of biopsy tissue

Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 10/15/2007 4:30 PM (GMT -6)   

We too are glad you found this site.  I did not have surgery, so can't help you with that, but do know that this forum will be a source of some great info and much support.  Stay here and keep us posted.  Good luck in your search for a treatment best suited for your husband.

Dutch


Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - Aug 2001 - No side effects.
6yr PSA - 0.19
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 


Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 10/15/2007 4:33 PM (GMT -6)   
Hi Nini- Glad you found us. I know what you and your husband are going through, I am 5 mos out from my Robotic surgery. I was diagnosed at 51 and went with the robotic just to make sure that a full pathology could be done. I went with City of Hope and can recommend them highly. I went with Dr. Clayton Lau but there are many good ones on the team, Dr. Wilson is probably the best known. Take a deep breth, you have time to make an informed decision on your treatment. Pete  

Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1
Age 51
Surgery (robotic) May 4 2007 City of Hope
Final pathology - fully contained to prostate, TC1, Gleason 3+ 3
Fully continent one month
First Post op PSA - Undetectable
Second Post Op PSA (8/22/07)- Undetectable
Still no luck with ED start injections 10/06/07
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 10/15/2007 4:46 PM (GMT -6)   
Hi Nini,

There are several guys here in the 40s. Its really good that you husband was diagnosed so early. Prostate cancer grows slowly and his biopsy results seem to indicate that he can get rid of the cancer completely. Thats the positive part of early dignosis, scary as the whole thing is.

I am in the northwest so can't help with finding a surgeon for you. I had an open prostatectomy with an excellent surgeon and I healed very quickly, had no incontinence and am recoverying from ED satisfactorily. At my age thats the best that can be hoped for. I am so lucky.

So please keep us posted on your progress and be certain that we are all here supporting you...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 10/15/2007 5:09 PM (GMT -6)   
The most important consideration is to find  the best surgeon available to you, not necessarily the method used.
 
A top surgeon will give you the best chance of a good outcome, regardless of whether open surgery or robotic is undertaken.
 
It's worth reading one of the good books on the subject of surgery by  Walsh or Scardino.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/15/2007 5:11 PM (GMT -6)   
Hi Nini,
I was 44 when diagnosed last year. I know what your husband is feeling and can tell you that after the initial schock there is learning and understanding. My biopsy and PSA were far higher than your husbands and that is a very good thing. While I was eventually told that my disease was advanced, I can tell you I live life normally and have a great outlook. Your husbands numbers are on the good side of the spectrum. My PSA was nearly 20 and the cores in the biopsy were 4 of 8 positive and up to 80% involved. And I still have a great shot of getting through this. For your husband, you will be given quite a few choices. Two will eventually be what you will decide to do. Surgery or Radiation. Most doctors will recommend surgery as the age your husband is at carries unknowns for the lasting effects of radiation over 40 years (because your husband is living to 83 at least, right?). But these will eventually be you and your husbands choices. I second the City of Hope, that is where I was operated on, by Wilson, and can tell you that he is the best. A fantastice facility that has extremely compassionate staffing. I grew up in Orange County and know of Loma Linda, CoH, and USC as great facilities. But because of my age and for me the likelyhood of advanced disease I chose surgery. No regrets. You can click my screen name and get my EM. I will be SoCal in the coming weeks as well and don't mind reaching out. For now you need to begin the learning process and this is a great place to ask questions and get fast answers or reference material. God bless and good luck. Our prayers are with you and your husband.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 10/15/2007 6:12 PM (GMT -6)   
Hi NiNI427.

Sorry you have to be here but glad you found us. This forum has a great group of wonderful caring people on it. There are cancer surviviors, wives, sons and daughters and friends here to help answer your questions. Our moderators are top notch people who are genuine and keep this forum in great form. Let us know if you can help you in any way. As for myself, I had open surgery at Duke Hospital in May with little or no pain. It is now becoming a distant memory. Take care and keep us informed on your journey.

Mika

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/15/2007 8:07 PM (GMT -6)   

  tongue Hi  Nini & Loved Ones,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

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This link is also located at the top of the HealingWell’s Prostate Forum where topics (threads) are viewed.

 

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Threads asking a specific question will get specific replies…  A personal thread is a way of allowing us to learn a little more about “you” and you get to learn a little more about us!!!  It allows us information as to where you are on your journey. 

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CaPCa
Regular Member


Date Joined Aug 2007
Total Posts : 118
   Posted 10/15/2007 8:09 PM (GMT -6)   
Sorry to hear of the diagnosis, but be grateful that it was apparently caught at an early stage. I have a very similar situation apparently. I am 44 and was diagnosed two months ago. I have robotic radical prostatectomy scheduled with Dr. Vipul Patel this Friday. I will be close to his 2000th procedure. I have been fighting a slowly rising PSA level for 4-5 years now, so the diagnosis wasn't a complete shock. My father had prostate cancer diagnosed at age 52. The odds are very much in your favor that this is a curable disease. Based on my research and age, I chose prostate removal due to the very high chance of retained erectile function (after a recovery time) and continency, as well as the "gold standard" for cure. I further refined my decision to robotic prostatectomy due to the quicker recovery and possibly better surgical margins, assuming a very experienced doctor with the robot. If you choose the prostatectomy route, either "open" or "robotic", experience of the surgeon is key. This is not an easy procedure, and the outcomes are strongly dependent on the skill of the surgeon. You should strive for getting the surgery from a "center of excellence" in prostate cancer and one that does a relatively high volume of procedures.
 
You will probably be doing a lot of research, and some of the resources already mentioned are very good. I have recently been using online "nomograms" at the following website to predict outcomes:
 
 
You will find many diverse opinions among doctors and patients. Also keep in mind that prostate cancer therapies are big business, too. I have probably read too many articles and medical journals for my own good. Although there are a lot of well-intentioned folks, statistics taken out of context can be misleading. Please remember that your husband's young age puts him in a very small group (1-2%?) of men diagnosed, and there is very little data specifically on men under 50.
 
As others have mentioned, you do have time to determine the right course of action. It may not seem like it now (and often it doesn't to me, either) but this will most likely be something that you and your husband will eventually look back on as a proverbial "bump in the road" of life.
Age:44
Diagnosed 08/21/07 with T1c cancer
1 of 12 biopsy cores positive; 10% tissue
Gleason score: 3+3=6
PSA level prior to biopsy: 4.3 (velocity < 0.4ng/ml)
Prior biopsy 3 years ago was negative
Prostate is ~24g
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/15/2007 8:39 PM (GMT -6)   
tongue  Hi ~ Nini & Loved One,

 

Knowledge is Power and Power takes away the fear…

 

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

You have reached out and now we are all reaching back to you and your loved one…  This is a great place to be…  Take a deep breath.... and know we've been where you are right now…  and we can all help you through this.

 

Buddy & I invite you to visit our personal thread “Our Journey”… 

Hoping our experience can help you over at least one stepping-stone on your journey. 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/Stepping-StonestoHealingWell.jpg

  

Excerpt from “Our Journey”

One thing each of us must remember…. NO 2 SITUATIONS ARE THE SAME

All different kinds of lifestyles…  different PSA scores, different treatments, different incomes, different jobs, different health issues, all different ages, and most of all… MENTAL ATTITUDES ARE DIFFERENT. So take a deep breath and let this forum help you!!!

 

Stay close and continue to reach out!!!  Okay!!

Keeping you close in thoughts and prayers as you begin to move forward. 

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/15/2007 9:05 PM (GMT -6)   
I was also 43 at surgery date. I had the open RRP. I had some complications after the surgery and am still dealing with severe incontenance. My erections are returning both on their own and with the use of Viagra. But as I keep telling myself the cancer is gone and all of my PSA's have been 0.00's I guess I should not complain.
I woudl suggest finding a Physical Therapist that uses Bio-Feedback to measure the pelvic floor muscles and start doing your Kegeals now. The therapist will make sure you are doing them right.
Just remember....you have to make the decision that is right for you and your family. All we can do is offer support and prayers.
Good Luck
KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
    Gleason 7
    Biopsy - 3 of 12 positive (up to 75%) all on left side of prostate
    RRP on Oct. 17, 2006 - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 3 weeks due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
   


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 10/15/2007 10:29 PM (GMT -6)   

 _O_/                      \_O_/
/ ))    
Welcome Nini!       [] 
  \\ 
'So Glad You're Here!  // 
  //                         \\


Hello new friend!  You've already received a grand welcome from our wonderful moderator, bluebird, and your fellow forum members.   We are sorry you had a need to find us... at the same time, we are glad you found us!  You'll find this is a safe and valued place for those of us with this disease.
 
Having the "C" word (cancer) applied to you can really knock you for a loop.  At 54, it certainly did that for me!  I want to say, that places like HealingWell have both made the experience tolerable and have provided me with information and support that I sorely needed.
 
Please feel comfortable in asking any question or expressing your feelings at any time.  The forum members and bluebird and I will sincerely try our best to make this a "safe" and comfortable place to be.
 
You are in the driver seat for whatever treatment you choose.  Our job is not to sway you one way or another in your choice with your husband, but to be a friend, provide support, and answer questions.
 
I happened to choose the da Vinci robotic surgery and have had a wonderful experience thus far.  My surgeon and anesthesiologist recommend that option for me and I had three second opinions as well.   Treatment and post-treatment experience varies with each individual for each treatment option.   For younger folks like your husband with a low % of tumor and a lower PSA, doctors do often consider surgery the "gold standard."  Like bluebird and others advice, take a breath and learn about your options and potential health care professionals who can help.  You have time.  My doctors told me last April, to have treatment sometime in 2007.
 
Again, welcome to the forum!  We look forward to hearing more from you.
 
Kind regards,

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007

My web site: http://pca-info.blogspot.com


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 10/15/2007 10:36 PM (GMT -6)   
Hi Nini: Like many others here, I recommend City of Hope in Duarte, CA. They treated me -- and my wife -- very well through the surgery and beyond. Do your research and if DaVinci is your decision, be sure to check out the COH team.
Best to ya. You'll get through this.
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 10/15/2007 10:36 PM (GMT -6)   

Hi,

I have had a busy week and haven't been checking the site.  As you can see from my name and signature, I'm close in age to your husband and am 4 weeks today post surgery.  I sympathize with what you two must be going through and know how great talking to folks from this site has been for me.  I wrote a very lengthy post about my decision process.  You can find it by searching.

Email me if you want by clicking on my name. 

There's lots of great information and people here who will share what they have learned along the way. 

Doug


 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 10/16/2007 6:02 AM (GMT -6)   
Nini,

The recommendations for City of Hope, Dr. Michel, and Loma Linda are all excellent choices.
As you do your research (Do try to get a copy of Dr. Walsh's book!), you are blessed to have all of these excellent facilities to look into to find a physcian you can relate to and trust.

KW's suggestion about learning Kegal exercises will speed post-surgery recovery from any incontinence issues.

You two are so young, you should also read the threads by Swimom and others on recovering from erectile dysfunction after surgery.  These threads will help ease your anxiety about this aspect of recovery. 
These and other threads are indexed in the 2nd-thread-from-the-top-of-the-page under Helpful Hints.  Just scroll down to the second or third post and check out the topics and many personal journeys. 
(Doug's decison process is very well done!)

As you read you will find that most surgery patients do recover from incontinence at most by week 16 (some much much sooner and some much later) and most surgery patients (that work at it) do recover enough erectile function within one or two years (some much sooner, some later  - some with no medical intervention, some with injection therapy, etc.) - they recover enough erectile function (most studies suggest 90% of pre-surgery) for the years of relationship and life aggressive treatment can afford.

As a spouse, feel free to reach out to the many other spouses here that can help you with relational issues as your husband recovers from your treatment choice.

Your husband's (1 core / 5%) biopsy was almost exactly the same as mine.  While your numbers suggest you have time to do research and shop for a physician/treatment facility,  don't take too long as my cancer was found in the post surgery biopsy to be touching the inside of the capsule.  A good surgeon might easily have a two month wating list!

You have found concerned and informed friends here where you can ask anything and express anything.

CCedar
ICTHUS!
2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


wingsofeagles
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 10/16/2007 6:49 AM (GMT -6)   
Hi,
My husband was 50 when diagnosed, and we used Dr. Ahlering at UCIrvine (Orange County) for the DaVinci surgery. Dr. Ahlering has done a large number of DaVinci's, and he and his staff were extremely nice and knowledgeable. My hubby's catheter was out within 7 days of surgery and he has been continent ever since. He had no complications from the surgery at all.

Diane

JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 10/16/2007 7:35 AM (GMT -6)   

Hi Nini,

I can't add much to what's already been said, but you have found what I consider to be  the best site in cyberspace for obtaining information. You can read a brief "Cliff's Notes" summary of my journey below.

Sounds like you guys have caught the PC in it's early stages, and prognosis is good. Take your time, gather the information, process it and make a decision and don't look back. Sorry I can't offer any information on a surgeon since I live in Florida, but in your search ask the surgeon as many questions as possible, e.g., number of surgeries, success of his patients with continence and erections, etc. etc. As others have mentioned, obtain a copy of Dr. Walsh's book. The most recent, updated version came out this year. It was extremely helpful in making a decision, and dealing with post surgery issues.

Good luck and keep checking back in with any questions. We're all here to help.

Jack


Age: 49
Diagnosed: March 25, 2007
PSA: 3.0
Biopsy: Gleason 6. Five of twelve core samples positive with <5% each. No perineural invasion seen.
DaVinci Surgery: May 21, 2007 at Florida Hospital, Orlando, Florida. Surgery took one hour and 45 minutes. According to my surgeon, everything went textbook and the prostate peeled away nicely.
Post-op Pathology Report: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes.
Continence: Out of the pads at five weeks. Still have some very minor stress incontinence at times but it's not an issue. Still Kegel every day and will continue to do so.
Erections: Yes! With the assistance of Cialis.
1st Post-op PSA: <0.1
2nd Post-op PSA: <0.1
Family history: My Father had his prostate removed at age 67 in 1997 and has had a <0.1 PSA for the past 10 years. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.
 
 
 


common man
New Member


Date Joined Aug 2007
Total Posts : 13
   Posted 10/16/2007 11:58 AM (GMT -6)   
I would recommend City Of Hope
age 66 , pc discovered 2005, psa 9+, did radiation and psa went down to .4, psa apr07 3.4 aug 07 went to 7+ gleason is 8


nini427
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/16/2007 12:15 PM (GMT -6)   
Thank you all for posting responses to my inquiry.  Your replies have given us more valuable information than anything else we've read so far.  As you can imagine we have a lot of anxiety with selecting the right surgeon.  We really welcome your input on the surgeons in the LA/OC area (Specifically, doctors affiliated with City of Hope, and Cedar Sinai).  We would also be very interested in reason why you did not select a particular doctor or hospital.  Thanks.
 
 
Nini & Husband

Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 10/16/2007 12:23 PM (GMT -6)   
NInI- I would stongly urge the City of Hope.  As I mentioned I am a DiVinci "alumnus" but would also opoint out that their patient care (and spouse/significant other care!) is second to none.
Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1
Age 51
Surgery (robotic) May 4 2007 City of Hope
Final pathology - fully contained to prostate, TC1, Gleason 3+ 3
Fully continent one month
First Post op PSA - Undetectable
Second Post Op PSA (8/22/07)- Undetectable
Still no luck with ED start injections 10/06/07
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/16/2007 1:45 PM (GMT -6)   
Simply put,
Just call the CoH prostate center and ask to speak with Wilson or Kawachi. They will call you back, probably late in the evening after their daily OR visits. Between the two of them are over 3200 daVinci's. Wilson runs the show, but Kawachi is world reknowned as well. The UCI recommendation is noteworthy as well. No need to travel far when this type of care is "down the street". Others here will argue for Loma Linda, also down the street, and talk to them all. But for your age group, most will argue against radiation as a primary treatment. As for me, if I had to do it all over again, Dr. Wilson.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/16/2007 1:45 PM (GMT -6)   

Hi ~ Nini,

 

I’m adding a few links below so you can activate your e-mail address for members to respond to you in reference to this specific request.

Partial quote:  We would also be very interested in reason why you did not select a particular doctor or hospital. 

 

 

Anonymous complaining about your doctor is one thing… but we can’t do the following… 

Personal names of doctors or companies by name (hospitals, etc….) that shed any negative / defamatory / derogatory comments are not permitted on HealingWell.com  ~   This places us in legal jeopardy. 

 

 

Click here...  **** E-Mail Addresses for Members Only (Masking for Security)

 

and if you don’t wish to use your personal e-mail address

 

Click here… Communicating with members via.... HW web-based e-mail **

 

 

Nini ~

Keep posting and stay close!!!!  We are all here for you… yeah

 

v     bluebird ~  Moderator for Prostate Cancer Forum

 


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 10/16/2007 3:16 PM (GMT -6)   
Ms. Nini,

Of course this may not be an important issue on your personal decision tree.
Still, I thought with so much going on with you
  and so much to learn and investigate that I might mention it:
As you research your options, you might look into your insurance
coverage and if it has any compatability issues with the facilities you are considering.

Now that you are actively and deliberately moving forward with your treatment options, don't forget to take some quality time for yourselves!  Light a candle and drink some wine (or hot cocoa).

Don't be afraid to cry and feel sad.
I still take a little time out each day to tear-up and consider
that engulfing "unknown" this experience has brought to my attention.
Just don't linger in despair.
Try not to panic or stampede each other with worry.
Worry won't help even a little.  
A little laughter, a little joy - most certainly will will.

"May God's Love be with you always, in the Son."
                               Quoting Night Swimming lyrics from Michael Stipes of REM

CCedar
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


nini427
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/16/2007 3:33 PM (GMT -6)   

Bluebird,Thanks.

We are very impressed by the members on this board.  Any due diligence information on da Vinci surgeons in the LA/OC is much appreciated.  We have turned ON our email address, please feel free to email us.

 

Our area of interest include:

  • How long it took schedule an appointment with a particular doctor?
  • How long it took to schedule the surgury?  including duration time for pre-op testing, etc..
  • What major factors did you consider in selecting your surgeons or hospital? 
  • Which doctors you may have interviewed and why they were selected or not selected?
  • Any advice on getting access to a particular doctor?

 

 

 


Nini


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/16/2007 6:37 PM (GMT -6)   

Hey ~ Nini & Loved One,

 

You are very welcome!! tongue    Our goal here is to make things as easy on you as possible.  Remember ~ You are not alone!!!  Reaching out is the best gift you gave to you and to your loved one! You’ll reach overload, you’ll stop and take a nice deep breath, then…. you’ll start moving forward again.  Right now take in the information and know that down the road… you’ll stop and realize that you have your answer!!!  It will take time.  We came to the forum after we had our surgery.  Buddy did all the research before hand… and we continue to learn so much even 18 months after surgery… so take it all in and know there is a light at the end of this tunnel.

 

Get a nice little notebook and start keeping notes… You’ll see a posting on a specific thread and you’ll think ~ oh.. I’ll go back to that one and before you know it ~ you’ve looked at 25 or more and you can’t find the one you wanted.  Write down any question you know you will want to take to your doctor. 

 

Most importantly is to stay close and continue to be open and continue to share.  Good, Bad, and/or Scary…  We are here!

Get a mild sleep aide ….. and start kegels (exercise for the sphincter muscle) to help with urinary continence.  Hmmm ~ Kegels? Sphincter muscle? ….. I learned everything from reading Dr. Walsh’s book.  It truly helped us ~ learn about the prostate and all the things that would take place as we moved forward with our decision.  This book is not just for those who choose to have the “open” surgery.  In “Our Journey” I let you know that we did not read Chapter 12….  (I did after several months… mainly to gain knowledge)

 

I’m sending a special rainbow to help clear away any dark clouds that “will” try to darken your days.  It works at night too!!  Just keep it close and know that we are all sending extra strength to you both.  In Friendship ~ Lee & Buddy

 

 This is “YOUR” rainbow

Keep it close

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///////////////////////////////////////////////*////////////////

/////////////*//////////////////////////////////////////////////

 

Rainbows brings smiles, smiles bring positive energy into our being!!!


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)

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