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Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 10/16/2007 6:19 AM (GMT -7)   
 
I was diagnosed yesterday October 15th with the dreaded PC. I had a gleason score of 6 and TC1 stage. I have been getting PSA test run for years but last month my first one came back with a 4.5 and after a month of CIPRO it fell to 3.9. I went for a biopsy which came back yesterday with the news.
 
It appears to me that most of you know more about you pathology report than I do. My Urologist only told me the above information. He did not say how many of the twelve samples came back cancerous or what regions they were located in. I guess I was just in too much shock of hearing the report to think to ask. Now that I am reading how each of you know more about your cancer than I, It appears that I should call him back and get more information.
 
I turned 55 last week, (nice birthday present) and I have already lost a father age 61 to lung cancer (smoker), a mother to Gall Bladder cancer age 67 (never smoked) a brother age 52 to oral cancer (smoker) a sister to breast cancer age 48 (smoker) and another sister age 61 to cancer (non smoker) no details because husband refused autopsy. I have another sister that has had one breast removed because of cancer but is a survivor and is now age 69. I guess you can say I really really do hate the C word.
 
I have never smoked and up to a few years ago considered myself in pretty good shape. (Black
Belt in Tae Kwon Do, high school football player and usually pretty athletic. I had a heart attack immediately following a martial arts tournament where a kick to the chest loosened some plaque and had to have a single by pass as a result of it. This open heart surgery slowed me down somewhat and I have gained a little to much weight. It seems I could vent forever so I will just shut up.
 
Because of my past family history I just want the cancer out of my body as fast as possible (as we all do I am sure) which is the most frustrating to me as doing it fast is not in the doctor's vocabulary.
 
I am thinking Robotic surgery from what I am reading here on this forum. Seeds or radiation and leaving it in my body with cancer is not an option with me. I Live close to Vanderbilt University and there is a Doctor Harrell I have been refered to at this time. I know he does laprascopic but I am not sure it is Robotic. I am calling today to be sure. If anyone has heard of this doctor or the success at this university I would appreciate hearing from you.
 
Sorry to by so long.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 10/16/2007 6:32 AM (GMT -7)   
Sorry to meet you here....lol but pleased to make you acquaitance........Your story is similar to mine, just the scores are different.  I'd suggest calling your Doc back and requesting a copy of the biopsy report, either to pick up at their front desk or be mailed to you.   You seem to have read some here and understand the process of learning and deciding that is before you.  Ask questions, study, read and make notes for questions here or for the doc.  oh, and welcome, friend....

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist
4/26/07   3 wks of antibiotics/anti-inflam.   DRE- nothing detected 
6/5/07    Recheck of PSA: 6.7, biopsy scheduled.
7/11/07   Biopsy- 16 core samples, ultrasound size of gland around 76 cc. Staging pT2c
7/17/07   Pathlogy report:  3 of 16 cancerous/ 5% involved, left lobe top, center, bottom, Gleason 3/3:6. Decision made for Retropubic RP
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07 Post-op Path Report: Gleason unchanged 3+3=6 Staging pT2c,
Prostate 110 gms, 2.2"x2.2"x1.75"
10/15/07  No leaks daytime, small leak if I don't wake up in time (@3 hrs.) at night.
10/15/07  ED- 25mg Viagra nightly-dead, dead, dead....lol 
11/15/07  1st PSA scheduled


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 10/16/2007 6:42 AM (GMT -7)   

Sorry, forgot about the hosiptal and doc.  Vanderbilt is a "hospital of excellance" for prostate cancer care.  Dr. Joseph and his team are there, making you a very fortunate man if yo want robotic surgery.  His team does lots each year, plus they have some excellent open surgeons there also, if for some reason you can't be given the robotic.  Here's some links to their facility, and a link to Dr. Smith video of him doing the robotic, if you aren't on the squeamish side...lol

http://www.mc.vanderbilt.edu/reporter/index.html?id=2691

http://www.or-live.com/vanderbilt/1227/

Dr. Smith was the surgeon my doc offered to refer me to if I wished to go the robotic route, but I chose open for several reasons.  I'm up the road in E. Tenn.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/16/2007 6:55 AM (GMT -7)   
educator,

Sorry to have you here. I had my robotic done by Dr. Joseph Smith at Vandy about a year ago. James C. has already provided links to sites at Vandy. I believe that Dr. Harrell and Dr. Smith are the only two urologist at Vandy doing the Da Vinci. I never met Dr. Harrell. Just to warn you I know that Dr. Smith's surgery schedule is backlogged three to four months. I waited three months. That is actually a good thing as it gives you time to get in as good a shape as you can for the surgery. If you meet with them they will tell you their complication rates. I found all of the clinic staff to be very cordial and sensitive to my feelings unlike my local urologist. At least your local urologist is open to a treatment that he does not do. Vandy will automatically obtain your biopsy slides and have them read by their pathologist. There is the slight possibility their pathologist will read them differently. Accoridng to Dr. Smith it happens in four or five cases a year. I was one of those four or five. In those cases the slides are sent to Dr. Jon Epstein at John Hopkins as he is the expert in the country. He read mine as being cancer and the post op path confirmed it. If you want any additional information on vandy let me know.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 10/16/2007 7:15 AM (GMT -7)   
Tamu,

Thanks for the information. I wasn't sure at first if Dr. Herrell did the Robotics at first but I see now that he does. I hope his wait time is not as long. When you say you began injections in April what were the injections for? ED maybe? Since I only found out yesterday I have not had time to read as much information as I need.

Thanks again for the information.

Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 10/16/2007 9:01 AM (GMT -7)   
Check our Dr. Dasari at Centennial in Nashville.  He trained under one of the best at Ford Clinic and has done hundreds of the procedures, which is very important.  I have had zero issues with ed or incontinence and with the exception of an eratic psa that hovers around .04, .05; I don't think my results could have been any better.  I just celebrated my 2nd year post surgery.
 
His bedside manner is not the best but he is obviously a very skilled doctor.  Good luck.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/16/2007 10:26 AM (GMT -7)   
educator,

If you go with Vandy they have a post op penile rehab protocol. They will go over this with you. It uses Viagra for three to four weeks on a daily basis. This did not help me. I then went to using Viagra and a vacuum device. This allowed an erection firm enough for penetration but the quality was lacking. I then moved to penile injections. My first experience with injections was not good as the medication caused a discomforting ache. Dr. Smith's PA then placed me on Bimix which I began in April and have been using ever since. I do not remember specifically but I believe that Dr. Smith's ED complication rate is that after 18 months post op 70% of his patients regain normal erections if they did not have any ED issues prior to surgery which I did not. I am hoping that I am in that 70%. As you can see from my signature I regained continence within a few months which is about average for Dr. Smith's patients.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 10/16/2007 10:34 AM (GMT -7)   
Thanks, I had time to do a little more research and now understand the injections. Thanks for your time and response. Right now having an erection is the least on my mind but I am sure it will become more important later.

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/16/2007 10:52 AM (GMT -7)   
tongue   Hi  ~ Educator & Loved Ones,

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

Click here for…

Prostate Cancer Resources, Helpful Hints, and Topic Thread Links

This link is also located at the top of the HealingWell’s Prostate Forum where topics (threads) are viewed.

 

 v     For Helpful Hints :) to navigate the forum... click on the Link) 

and look for # (5) Signature Line (located in Profile)

 

Invitation to New Members… Welcome to HealingWell (Special Request)

 

(Direct Links ~ just click on the titles above and a new window will open!

Reminder … click on the REFRESH icon once you get there)

 

Threads asking a specific question will get specific replies…  A personal thread is a way of allowing us to learn a little more about “you” and you get to learn a little more about us!!!  It allows us information as to where you are on your journey.  A “name” (even one made up : ) makes it a little more personal… and we really do get personal in a HealingWell way…!! 

Please ~ keep posting, keep questioning, and stay close

 

The information (links) listed above is to help you get started on your journey. 

     It is a journey best traveled with friends. 

          Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg

 

 

Post edited to add Signature Link (thanks Tamu!!)

Post Edited (bluebird) : 10/16/2007 2:08:40 PM (GMT-6)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/16/2007 11:02 AM (GMT -7)   

  tongue     Hi  ~ Educator & Loved Ones,

 

A   Special   Warm Welcome  to  You!   

 

I know we can “all” make “Your Journey” smoother ~ just by being here for you!  

Thank you for reaching out!!! 

 

You’ve just made your own journey a lot smoother.  There are a lot of Helping Hands here… and just by reaching out like you did ~ you will have a much easier time.  We’ve been where you are ~ and knowing you aren’t alone… makes a big difference in psyche and spirit.

 

HealingWell will always be here for you… This is truly a great forum ~ you have joined!  You are now part our forum family ~ a group of wonderful individuals who are so willing to share their experiences with you.

 

It helps “all of us” ~ to help you ~ if we know where you are on your path.

So ~ Please stay with us and take our hand when you need it!  Keep posting.... OKAY!!   

  

KNOWLEDGE IS POWER... and POWER conquers fear

  

YOU MAKE THE DECISIONS… YOU HAVE OPTIONS…

~ and ~

Your decision will be the right decision for you!!!

 

 

Buddy & I invite you to visit our personal thread “Our Journey”… listed in our signature below.

Hoping our experience can help you over at least one stepping-stone on your journey. 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/Stepping-StonestoHealingWell.jpg

 

Our thoughts and prayers will be with you as you continue to move forward in your search for answers… Stay Close!

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/16/2007 11:38 AM (GMT -7)   
educator,

It will help those on the forum if you would set up your personal information in your signature. To do so go to "Control Panel" at the upper left of this page on the task bar next to "Log Off". You can then go to "Edit Profile" and complete your personal information and fill in what you want in the signature box. The forum protocol is to keep the signature box to 10 lines or less. BlueBird is the forum moderator so any question about how to use the forum you can pose to her.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/16/2007 1:14 PM (GMT -7)   
Hey Tamu!!
partial quote: The forum protocol is to keep the signature box to 10 lines or less.
 
Forum Rule #18 will not be an issue for the Prostate Cancer Forum Members…. 

It is extremely important for Newbies and Members with continuing treatments to have a Signature with updated information!!!!! 

 

We need signatures….

     It let’s us know where you’ve been

It let’s us know where you are now

                   It let’s us know where we are headed!!!!!

 

Keep posting ~ and keep updating your Signatures!!!  This is important...

 

v      bluebird ~  Moderator for Prostate Cancer Forum

 

Confirmation with Mr. Peter Waite / Admin...  tongue


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 10/16/2007 1:44 PM (GMT -7)   

Educator,

Anyo Haseo!  A Black Belt in Tae Kwan Do? 
Kegal Exercises should be a natural for you!
You should begin these immediately.
It will speed your recovery from any post-treatment
    incontinence issues.

Try to get Dr. Walsh's book.
Read Lee & Buddy's Journey. 
  You can find an easy link to this Journey in Bluebird's signature!
  Then check out the Help Hints in the #2 thread on this page.
  Scroll down a couple of posts there and you will find
    Ms. Bluebird has indexed many topics and journeys.

Tamu is VERY informed and highly respected here.
I personally would give Tamu's endorsement for a treatment facility
and physician serious consideration as you look into your treatment options.

The shock of just moments ago being told you have cancer
 -and the need to learn so much so quickly is overwhelming.
Your new friends here are a valuable resource.
We were once just so overwhelmed and can keep you from
  "reinventing the wheel."
Ask anything. 
There is an experienced, informed & caring community here!

PAX

CCedar
ICTHUS


2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 10/16/2007 3:32 PM (GMT -7)   

Educator,

Greeting from a fellow southerner. The shock of hearing the "C" word leaves us all a little stunned. But, you sound as though you are dealing with it well. My feelings were the same, get this monster out of me. Father, Grand Mother, Uncle all died from some form or another. You are on the right track by doing your research. I am so glad you found this forum because it is not only a wealth of information, it is a place of love and peace. You will find your answers and all of us will support each other. You are in our prayers as you start your journey.

From your history we all see that you are a fighter. Win the war!

As for the ED issue....... remember "The south shall rise again".

Love ya brother,

Walt


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 4.9 9/2007
PSA 5.4 10/07
 
"I will persist without exception - I will find a way where there is no way"


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 10/16/2007 7:07 PM (GMT -7)   
Hi Educator. Sorry you have to be here but glad you found us. I had open surgery and have had very few problems. Pretty dry, using a pad for insurance, ED is progressing with the help of modern chemistry. You have recieved a lot of good advise here and don't feel you can't ask any question of the members of this fine forum. I too am a southerner and live just across the line from East Tenn in Western NC near Asheville. Keep us posted on your journey and take care.

Mika

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/16/2007 7:31 PM (GMT -7)   
Hey Educator, I too used to be involved in TKD I did reach my 2nd Degree before I got out of it. I never competed too much but I did referee alot.
I have not been the best "student" here. But I guess I'm proof that when even things don't all go well you can still get through it.
Take your time and and gather your facts. Then do what is best for you and your family.
I would also recomend finding a Physical Therapist that uses Bio-Feed back to teach you how to properly do your Kegeals and start working on them now.
Wish you the best on your Journey

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 8th Started Detrol LA to see if it helps with the leaking?
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / severe incontenance.  Erections usable!
   


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 10/17/2007 5:49 AM (GMT -7)   
Thanks to everyone that has responded. I am two days removed now from finding out and I am beginning to get a more positive attitude thanks to all of you. I can see that I quite possibly have found it early and I might be in better condition than some others I am reading about on this site. My mental training in Tae-Kwon-Do I hope will help, but I will tell you one thing, finding out I had this PC kicked my "you know what" for a couple of days.
 
I am still waiting for my biopsy report to mailed to me so that I can also learn how many samples were with cancer. As I have stated before I do not seem to know as much about my PC as some of you do. I do not know if the pc was near nerves or not. Hopefully the report might shed some light on this.
 
Anxiously waiting to meet the Doctor that is going to operate. My consultation is not until Oct 29th and I am sure I will have to wait a certain number of weeks past the biopsy date.
 
Thanks to all of you and God Bless you on your journey as well
 
 
Diagnosed 10/15/2007
Age 55
PSA 3.9 after initial 4.5 and one month of antibiotic.
TC-1
 
Waiting on other information to be mailed to me. I was to dumbstruck to ask. Will update when I get more information.


truly blessed
New Member


Date Joined Oct 2007
Total Posts : 6
   Posted 10/17/2007 3:33 PM (GMT -7)   
Welcome :-)   I too am new to the form and my husband (age 49) was diagnosed in June 07 and on Nov 7 2007 will be undergoing robotic surgery in Hackensack NJ. Sorry about your familt history but thank the lord you were diagnosed early (same as my husband). The initial shock gets better everyday with support forum/groups like this one. Hang in there. Prayer makes things better

truly blessed in New Jersey


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 10/17/2007 5:40 PM (GMT -7)   

Hi ~ truly blessed... We would like to Welcome you on your own personal thread...

Look for the special request thread titled...

Invitation to *truly blessed ~ Welcome to HealingWell (Special Request)

Hope to see you soon...  Keep posting ~ OKAY!!  tongue

v      bluebird ~  Moderator for Prostate Cancer Forum 

 

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/17/2007 7:00 PM (GMT -7)   
educator,

Now is the time to get your questions down on paper that you will have for the appointment on the 29th. It is important that you write them down so you will not forget them. As I was responding to another post I thought about passing this along to you for your list. After prostatectomy many men on the forum have reported urine leakage upon climax while having intercourse. At my six month appointment at Vandy I asked Dr. Smith about this occurence. He told me that it occurs in about 40% of the prostatectomy. I was not told that this was a potential side effect prior to my surgery. It probably would not have changed my decision but it is information that you should know. You may not be thinking about life after surgery right now but you will at some point. Since PCa impacts a couple's life then your partner should also be aware of the potential side effects.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07

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