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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/6/2007 3:36 PM (GMT -6)   
Hi all,
I was doing some touring around and found some very helpful videos on youtube.  If you all know some videos on the web, post 'em here.  The videos below are approved for distribution and do not violate any copyrights.  Expect this thread to grow as we can certainly help each other by adding to it.  I'll manage the thread if you'll just add to it.
 
I like this one, good job Dr Chodak!
 
Starting out with Prostate Cancer:
 
General:
 
What is Cancer?
 
What is Gleason
 
PSA
 
These descriptions are very usable at all major cancer centers.
 
Radiation Options:
 
IMRT: Intensity Modulated Radiation Therapy
Tomo Therapy (Uses IMRT)
 
Cyberknife
 
 
Hifu
 
Hormone therapy
 
Cryotherapy
 
Bone Mets (The patient here is a colon cancer patient.  But the treatment is mostly the same for Prostate)
More General
 
 
Clinical Trials - Chemotherapy
  
Prostate Cancer Awareness
Testimonial from David Emerson (outstanding comments, www.flhw.org is David's site.  He is a very inspirational member of our brethren)
 
Tony
 
 
 
 

Post Edited (TC-LasVegas) : 12/6/2008 9:23:06 PM (GMT-7)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 3/5/2008 9:00 PM (GMT -6)   
smurf   Bump to keep activated.... 

v       bluebird ~  Moderator for Prostate Cancer Forum


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 9:58 PM (GMT -6)   
cool cool cool cool cool
cool  BUMP    cool
cool cool cool cool cool
 
IGRT Added...
 
Thank to All!  Send 'em if you see a good one.
 
Tony

Jim-N1BRP
Regular Member


Date Joined Jul 2006
Total Posts : 165
   Posted 4/20/2008 10:19 PM (GMT -6)   
Tony,
 
The BrainLab link won't work as you have posted.
 
Then click on IGRT: ExacTrac® Robotics
Nex click on the video link (Upper right corner), it won't work if you save the video link.
 
Jim


Jim, 54,~Jim-N1BRP. My Journey
Diagnosed: 12Nov. '07, Age 54

Treatment Started : 31 Jan 08

Completed 31 Mar 08

42 treatments 1.8 Gy M-F for a total of 75.6 Gy.

Prostate Biopsy: 18Sept '06, - 10 sample all negative, Prostate size 36.3 cc

Prostate Biopsy : 12Nov '07, Biopsy - 14 sample 2 positive, one Gleason 6 at 5 %,
other Gleason 6 at 15%- Stage T1C -Prostate size 40.2 cc

Bone Scan: 12Dec '07, - Hot Spot on Brain
Family history: Father and two uncles  die from PCa

Other: GERD, 30% Carotid artery blockage, Kidney Cyst, Asthma

Meds, Hytrin, BusPIRone, Trazodone, Tramadol HCl, Omeprazole, Nitrostat, Plavix, Albuterol, Multi Vitamin  Mens

PSA's                   fPSA

1.2    Oct  05

3.61  Jul    06    

2.6    Sept 06          19%  

2.6    Apr 07             3% Oh NO

 

Post Edited (Jim-N1BRP) : 4/20/2008 10:28:41 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/20/2008 10:27 PM (GMT -6)   
Thanks Jim,
It works on my PC you just have hit start.

Tony

Post Edited (TC-LasVegas) : 1/19/2009 9:55:06 PM (GMT-7)


Jim-N1BRP
Regular Member


Date Joined Jul 2006
Total Posts : 165
   Posted 4/20/2008 10:43 PM (GMT -6)   
It must be my computer, the BrainLab links bring up a BrainLab with page not found but if I copy and paste the last link I posted it will work.
I'm using win XP Pro with IE and Firefox.

Jim

VaFan
Regular Member


Date Joined Mar 2008
Total Posts : 203
   Posted 4/21/2008 5:31 AM (GMT -6)   
That was very interesting. I look at youtube all the time and never thought to check prostate cancer info. Wish I had seen it earlier in our journey. Would have helped me to understand more.
Thanks for getting it on here.
Cindy
Age 51 Kent
January 08 PSA 5.2 round of antibiotics went to 4.3
February 08 anpther round of antibiotics went to 4.2
March 17,08 had biopsy, 2 days later told cancer was on
one entire side of prostate.
Gleason 3+3
Doctor thinks its best to get the whole prostate with Perineal  Prostatectomy.
Surgery scheduled for this Thursday April 10th.
Cindy (the wife!!)
Surgery preformed and doing great. Only took 1 1/2 hours. Will know in two weeks about pathology report. Surgeon feels he he got all cancer and confined to prostate. Both nerves were spared.
Home 4-11
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 4/28/2008 4:36 PM (GMT -6)   
thanks Tony you are awesome. I never considered checking youtube for source info.

Peace to you
Dale

PS
hopefully next time I come to Vegas we can meet.
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
 


Bob & Wife
Regular Member


Date Joined Apr 2008
Total Posts : 100
   Posted 5/20/2008 8:41 PM (GMT -6)   

Great very helpful.  Thanks for sharing this very important information, we will pass it on to others.

Bob


Age 59
12-10-05 Diagnosed PSA 1.7 T2b Nodule felt.
1-30-06 Surgery, nodes & margins clear
Post op Gleason 8  T2c 4+3 PSA .04
12-07 PSA jump .14 changed doctors
Nodule found biposy negative
PSA .16
PSA .17
4-3-08 PSA .32 ouch
4-15-08 Returned to orgininal doctor about psa jump. Nodule size increased.
5-8-08 PSA still .32
5-15-08 Bone scan scheduled and bladder scope.


Banker
Regular Member


Date Joined Sep 2008
Total Posts : 30
   Posted 10/11/2008 4:56 PM (GMT -6)   
Have just spent an hour going through many of the utube sites. Incredibly informative. Thanks for posting.
born 1952
diagnosed with HIV 2001
PSA--ranged from 2-7
2 previous biopsies-all negative
diagnosed with prostate cancer:Sept 30, 2008
Gleason Score 3+4=7
bone scan 10-9-08--appears to be negative
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/13/2008 5:40 PM (GMT -6)   
Tony, I have great admiration for you! Thanks you...Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 28 2008


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/6/2008 10:21 PM (GMT -6)   

Bump.

Dr. Gerry Chodak recently started a new web site with him talking about prostate cancer and the treatment options.  This is a great thread I think. 
Here it is:
http://www.prostatevideos.com/prostate-cancer/

Tony


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 12/29/2008 8:01 PM (GMT -6)   
Tony,
Thanks for all the research and for all you do.
Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/19/2009 10:53 PM (GMT -6)   
Lots of newbies this last month...Have a look!!!!

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/2/2009 11:29 PM (GMT -6)   
Bump
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/18/2009 11:08 PM (GMT -6)   
Bump
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/8/2009 10:46 PM (GMT -6)   
Bump
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 3/25/2009 10:44 PM (GMT -6)   
Bump
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/10/2009 12:04 AM (GMT -6)   
Bump...
Any Videos you think belong here...please send them to me...
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 4/26/2009 1:52 PM (GMT -6)   
Bump
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 6/24/2009 10:27 PM (GMT -6)   
Bump
 Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 7/21/2009 9:00 AM (GMT -6)   
Moderators -- thanks for keeping these bumped. A great thing about videos is that you can watch them over and pick up things you missed the first time (you can't do this with an office visit.)

Early in the treatment decision process I watched some of these and then watched them again with my wife. It was a great way to open discussions about what we were going through.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/21/2009 9:50 AM (GMT -6)   
Thanks Geezer...

If anyone sees a video that is out of date, or has a better one to view, please, by all means, let me know I will add it...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


CapnLarry
Regular Member


Date Joined Apr 2009
Total Posts : 75
   Posted 7/21/2009 11:29 AM (GMT -6)   
A whole ton of stuff at video.healthhaven.com/Prostate_Cancer.htm. Videos on psychological impact of diagnosis, cryoablation, robotic surgery, finasteride, hifu, etc. This is an indexing site, not a hosting site, so there will be some overlap with what you've already posted.

(Also a lot of duplication within the site--some videos have been posted 20 times or more to different hosting sites. Sigh.)
Larry Shick
Personal homepage incl. PCa story: www.sv-moira.com.
01/09: Diagnosed (age 60) biopsy PSA 4.4, free PSA 9%, T2c stage, Gleason 7 (3+4), 7 of 14 cores; 6'2", 200 lbs.
03/09: Robotic surgery (Dr. Kawachi, City of Hope) 47 gms, 10% involved, staging/Gleason unchanged (pT2cNXMX), margins clear, no ECE/sem ves involvement, fully continent from day 1, some success w/Viagra 50mg/day.
Followup: 05/09 <0.01

Post Edited (CapnLarry) : 7/21/2009 11:36:44 AM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/21/2009 12:01 PM (GMT -6)   
Thanks Larry...I will go through it tonight and see what I can add...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!

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