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veteran1
Regular Member


Date Joined May 2007
Total Posts : 133
   Posted 11/8/2007 8:58 AM (GMT -7)   
 
It has been awhile since I last posted on the HW PCa Forum. I notice so many old friends and newcomers. I wanted to check-in and let you know that I am doing well and hope you are too.
 
I can remember my first frantic postings. Question after question. And the the answers were usually here. I did not always understand what you were telling me, but it felt so nice to know that other men and their loved ones would take the time to help me when I needed it most. You told me to do my homework and suggested books that would help me better understand this disease. I still refer to the many books I now have.
 
Most importantly, I learned patience, patience, patience. Our cancers are not instantly treated or cured. I went through the deflating experience of hormone therapy, popped pain pills after surgery and had a healthy dose of radiation. And along my journey, I met some knowledgeable, and very caring people whose shared experiences helped me get through it all. There were even some laughs along the way. I can remember running to the computer to announce a long absent erection. Not exactly something I would put in the local newspaper.
 
To those of you who are new to this site, I can only say welcome and stay tuned. Your journey is important to everyone here. We are all in this together. Your concerns are are in the hands of people who have experienced what you are going through and are willing to share their experiences with you.
 
Me? I am doing fine. Despite a 5 + 4 post-op Gleason and seminal vesicle involvement,I am still rolling zero's. And I was first diagoised in December of 2005. I am 55 now and going strong. Looking forward to celebrating two cancer-free years.
 
I look forward to hearing from you. Let me know how you are doing. I miss you all. If you are new to this site, maybe I can try to research a question or two for you.
 
 
Good Thoughts Always,
 
Vet
 

Post Edited (veteran1) : 11/10/2007 7:45:54 AM (GMT-7)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/8/2007 9:51 AM (GMT -7)   
Very well written, Sir!

Thanks so much for stopping in and updating us :>) Been missing your voice. Glad all is going well.

Swim
 


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 11/8/2007 10:16 AM (GMT -7)   
Hey, Vet-1 - what a meaningful message to all the "noobs." And for us old-timers, too! Good to see you on here and, y'know, each time you come out of those tests with a Zero, that means the percentages of return go down, down, down! We're here to celebrate with you.
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/06, 4/07 - undetectable!
Update: 11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
PSA test "Un-zero-detectable" on 10/16/07.
If it stays that way for 7 years, recurrence rate drops to 9%.
Future: PSA tests twice-yearly for now.
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 11/8/2007 10:59 AM (GMT -7)   
Missed you Vet,
But it sure is nice to see you. We think about you a lot and all the others as well. Great news on the zeros too. With you here we are a stronger team, and those new guys are just like the old ones. There are some great contributors added, and unfortunately we continue to grow our brethren. I am holding up well too, vet! Hurray for that. I hope to see you stop in once in a while. You just made my day.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/8/2007 12:34 PM (GMT -7)   
Hey Vet,

Thanks for the update and the inspiring words. And congrats on rolling those zeros. We all love to hear that.

Lets get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 11/8/2007 1:17 PM (GMT -7)   
Greetings, Vet.
 
I'm fairly new around here and enjoyed reading your post. Glad to hear your still rolling zeros.
 
Jack
Age: 49
Diagnosed: March 25, 2007
PSA: 3.0
Biopsy: Gleason 6. Five of twelve core samples positive with <5% each. No perineural invasion seen.
DaVinci Surgery: May 21, 2007 at Florida Hospital, Orlando, Florida. Surgery took one hour and 45 minutes. According to my surgeon, everything went textbook and the prostate peeled away nicely.
Post-op Pathology Report: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes.
Continence: Out of the pads at five weeks. Still have some very minor stress incontinence at times but it's not an issue. Still Kegel every day and will continue to do so.
Erections: Yes! With the assistance of Cialis.
1st Post-op PSA: <0.1 2nd Post-op PSA: <0.1
Family history: My Father had his prostate removed at age 67 in 1997 and has had a <0.1 PSA for the past 10 years. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.
 
 
 


jwb187
Regular Member


Date Joined Apr 2007
Total Posts : 101
   Posted 11/8/2007 2:10 PM (GMT -7)   
Hi Vet,

I am a newer poster, only been here since April 07 but I like the way you talk. My pc sounds very similar to yours and it's always nice to see someone doing okay with some of the the same numbers that you have. I hope that I follow in your foot steps. Stop by again and keep us posted on what's going on with you. Good Luck. jwb.
age: 61
PSA 4.57 - Positive DRE
Biopsy 3-19-07 - Gleason 4+4=8
Negative bone scan 3-20-07
DaVinci 4-24-07
Catheter out 5-01-07
post op pathology:
positive margin left side of prostate
left seminal vesicle involved (both removed)
No lymph node involvement
New gleason score 9
T3B....radiation consult on 5-9-07.
June 5, 2007 1st psa post surgery 0.62
June 27, 2007 second psa post surgery 0.59
June 27, 2007 started Lupron injection (24 mos)
September 6, 2007 scheduled to be marked and prepped for radiation therapy.
Start IMRT therapy on September 13, 2007.
September 26,2007 psa test .08
Finished IMRT therapy October 31!!!


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 11/8/2007 4:52 PM (GMT -7)   
Hi Vet: Great to hear from you. I remember you making me smile, when I really didn't feel like smiling. I'm scoring goose eggs too. Let's keep the ball rolling and keep those rolls zeros.
Tom

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 11/8/2007 4:54 PM (GMT -7)   
Dear Vet
 
What a great inspiritional message from you! It exemplifies what a wonderful message board this is and how it has greatly helped so many with PCa.  I am glad that you are recovering nicely--keep those zeros coming!  Best of luck.
 
Dave
68, 29-core biopsy 9/27/06, PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area],  Gleason 6 [less than 5% in two other areas], negative DRE, bone scan and Endorectal MRI. Completed 39 Proton radiation treatments 2/22/07-4/18/07.  First PSA test 7/19/07 (3 months after treatment) was 2.1 or a 70% reduction in my PSA before treatment (this was better than the average expectation of a 50% reduction in PSA at this juncture, according to my radiation oncologist).  The following is a link to My Journey With Prostate Cancer -- Proton Radiation Therapy.  http://www.healingwell.com/community/default.aspx?f=35&m=726381
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/9/2007 9:25 AM (GMT -7)   
tongue   Dear Vet,

 

We are keeping you tucked close….

 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/BluebirdStayClose.jpg

 

  Though you cannot always see the bird singing, if you listen with your heart,

you can always hear her song. 

 

 

Even when you are away for a while ~ I know you hear our song!!! 

Your posting is heartwarming…. Keeping you close each and every-day!

 

Hugs and special thoughts surround you!

In Friendship ~ Lee & Buddy

 
 

mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/9/2007 9:33 AM (GMT -7)   

Partial quote from above:

And I was first diagnosed in December of 2005. I am 55 now and going strong. Looking forward to celebrating two cancer-free years.

Surgery: 02/14/06

 

 

  tongue   tongue Yea ~ Vet,

 

PSA’s…   !!!~~~>>>  Woo~Hoo <<<~~~!!! undetectable

 

Cause for celebration!!!!!  Definitely!!!

What a wonderful day it is ~ each and every-day….   

Enjoy it to the fullest. 

 

In Friendship ~ Lee & Buddy

*     *     *     *     *     *

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.

 

J  Caring is Sharing ~  Thank You for Sharing  J

 

  

Threads started by Veteran1:

Veteran1's Prostate Cancer Journey

Do you know your prognosis?

Prostate Cancer By The Numbers

Need Your PCa Book Recommendations...

The Benefits and Side Effects of Hormone

Doctor orders ProstaScint...

Incontinence and Computers...

Veteran1 Computer problems...trying to solve

Late diagnosis--- From Anger to Acceptance

How long are hormone shots effective?

Advice Needed on High Risk Cancer...

 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 11/9/2007 11:23 AM (GMT -7)   
Thank you from another newbie! You can't imagine the inspiration you give from your words and experience!  Our family is at a similar point with treatment options and it is great hear your positive experience! Many thanks!

Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
 
 


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 11/9/2007 3:09 PM (GMT -7)   

Vet - how good to read your post...it truly warmed my heart to have you back here.  You sound well and your numbers reflect that. 

This is one tough disease and it shows me just how much we need each other here.  Your steady voice and patience (as you said) is much needed. 

Stay strong Vet. We care.

All the best,

Susan 


Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 11/9/2007 3:29 PM (GMT -7)   
Vet,

Have a meaningful Veterans Day!

Your Friend,  Semper!

CCedar
ICTHUS
USCG-Vet

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 11/9/2007 10:53 PM (GMT -7)   
Vet,

Great to see you posting again... And rolling ZEEERRROOOO's!!!!

Amazing (and sadly heartfelt) at the continuing new members we keep on getting... But we are here and a FAMILY!!! To help, comfort, support, and trade knowledge so that this darn, evil, PCa does not ruin our lives!

Love and God Bless!

Ray
Age 59 y/o - Last 3-4 years of annual general health checkups - PSA 5-6
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 Diagnosed as T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx,   approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks post-op incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
7/30/2007 ED improved to about 60% erection and "functional". Only using 50mg Viagra generic every 2-3 days.
9/10/2007 Ran out of pads one day and had no dribbles all day...  Now pad free. :-)


veteran1
Regular Member


Date Joined May 2007
Total Posts : 133
   Posted 11/10/2007 12:41 PM (GMT -7)   

 

Thank you for your kind and caring replies. It is great to hear from so many old friends...and new ones too! I will try not to let so much time pass before posting again.

Good Thoughts Always,

Vet

Age: 55 Diag: 12/03/05, Biopsy-Gleason 10; HT:12/15/05; open Surgery, RRP, 2/14/06

EBRT: May thru July '06; Current PSA: .03, 09/21/07; Post-Op Path: T3b, Seminal Vesicle

Involvement; Gleason 5  + 4 = 9

 


Post Edited (veteran1) : 11/10/2007 3:01:13 PM (GMT-7)

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