Nerve growing pains?

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James C.
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Date Joined Aug 2007
Total Posts : 4461
   Posted 11/10/2007 1:42 PM (GMT -7)   
I've had an uneventful recovery from surgery Sept. 27th, (back for my first psa next Thursday) but have noticed a change in the past few days and was wondering if anyone else has experienced something similar?  A couple days ago, I felt like there was some change in my belly, a different 'feel' to things there.  Not painful or anything, just 'different' feel to how things had been up to then.  The best way to describe it was a return of the feeling I got a week or so past surgery when I rolled over onto by right side in bed, but not as  large a sensation. That feeling was one of weight and shifting of organs moving around inside.   Then last evening the shooting pains started.  I'd best describe then as knitting pains, if I were talking about a broken bone.  They start at the public bone and like electricity, run up my penis and lingers on the head, feeling most like a good sized ant is pinching there.  This lasts for 10 seconds or so, and has become more frequent, with more intense aching  between sensations.  I had something similar but weaker a few weeks ago in the belly behind the incision scar, but deep down, which seemed to be tied to the penis then.
 
I am thinking it is the nerves making their reconnections and growing.  I have been fully ED since surgery, but taking 25mg Viagra nightly and attempting stimulation once a week, with no results on growth or orgasm.  So, what is you guys experience with regrowth and return of function for erections?
 
James C.
James C. 
 
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Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly-no joy 
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  1st PSA scheduled


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/10/2007 9:32 PM (GMT -7)   
Never had any pains here. Erections returning with use of viagra. I take 50 mg everyother night for healing. 100mg for use!! Seems to be working. I have even had some nightime erections without medication.
Just keep working at it.
If pain continues...talk to dr.

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!...Better with 100mg Viagra
   


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 11/12/2007 7:12 AM (GMT -7)   

Seriously, am I the only guy on here who has had 'knitting' or healing twinges related to nerve regrowth, etc?  eyes

James C.


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 11/12/2007 8:48 AM (GMT -7)   
James C.

My multiple experiences with abdominal surgery suggests:
One or two occasional 10 second shooting pains you described might just be normal healing.
For example, it might be the beginning of a natural erection and the pain sensation similar to those pains experienced by patients that try some Bi-Mix injections or Muse suppositories?

However, if it is debilitating, unmanageable pain and occuring with increasing frequency (not just an occasional  annnoying or unusual sensation),
   - I'd make an appointment and discuss it with my physician.

I can't say I have ever had more than just an occasional passing sensation even similar to the one you described - something somewhat similar and fleeting while creating an erection with a pump and/or Seldenafil.

It doesn't sound like the suture or strained suture pain that is common in abdominal surgery. 

While your idea that it is nerve regeneration could be accurate, the locus, increasing frequency, amplitude, and duration described suggests to me your pain should likely be evaluated by your physician.

However, if it is accompanied by a natural erection and the pain subsides, you are instead to be congratulated.....  eyes

CCedar
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 11/12/2007 3:52 PM (GMT -7)   
CedarChopper, the sensation isn't "pain" or even normal discomfort, it really seems to be related to nerve regrowth.  I should be almost completely healed inside (7 weeks today), and haven't had any healing discomfort for a couple of weeks.  I am sure it isn't anything related with either surgical or incision healing, as it is a completely different feeling and familiar to anyone who has had a broken bone with nerve damage involved.  I am fairly confident that it is nerve healing.  As to whether it is gonna restore the erections soon, or not, I can say that I can now feel much more sensation when being stimulated.  First tries after surgery resulted in almost no feeling of stimulation or excitement, so I have yet to feel what one of those dry climax sessions feel like.  I know that just yesterday and today, that the feelings of arousal when stimulated have increased, maybe back to 75% of what I had before, so I hope that shortly I will be able to find out what the 'after' climax is like.  Time will tell, as with most everything else with the after effects of this disease.....
As an aside, I asked my brother-in-law, who had the same surgery by the same doctor team the same day as I did (no- no 2fer offered,,,lol)  if he was feeling anything but not describing what I was feeling and he said he had been getting some of the same feelings of "electric shocks' in the pubic area, extending into his penis.  So, it seems like we may both be recovering at the same level, and our surgeon team managed to duplicate the procedure so that we both are recovering the same way...lol   Now that is scary.......My surgeon assisted his, and vice-versa....
 
James C.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 11/14/2007 3:00 PM (GMT -7)   
That's a thought and a possibility, after considering it a little.  However, would adhesions of the nerve bundles to the incision area good or bad, long term?
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