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Far worse than cancer

Chronic Illness Forums
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Prostate Cancer
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Far worse than cancer  
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norskie
Regular Member
Joined : Jan 2007
Posts : 376
Posted 11/13/2007 12:57 PM (GMT -7)
Laswell

Just know that you and your family are in my prayers.

norskie
norskie

Age 49, PSA 6.22 on 9-26-06

Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous

Gleason score 3+3=6 After Pathology report 3+4=7 some agressive 5 cells found

Da Vinci surgery 01-09-07 UW Madison

Pathology Report- cancer 100 % capsual contained 1-18-07

Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07

Catheter removed 2nd time 1-24-07

1st Post PSA Blood Test 3-22-07 <.1 Undetectable

2nd Post PSA Blood Test 7/5/07 <.1 Undetectable

3nd Post PSA Blood Test 11-12-07 .2 monitoring

Next Poat PSA Blood Test Scheduled for 1-17-08

Incontenence-Pad free since end of May 07 4 1/2 months post surgery 

ED back to 95% prior to surgery - no medication required.

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2busymom
Regular Member
Joined : Nov 2006
Posts : 118
Posted 11/14/2007 7:01 AM (GMT -7)
Laswell,
We are so sorry you are having to go through this. You and your family will be in our prayers.

Jeff and BAcky
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%
2nd PSA 4/07 <0.01%
3rd PSA 7/07 <0.01%
4th PSA 10/07 <0.01%
using vacumm device & injections for ed therapy, seeing some improvement

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geon
Regular Member
Joined : Oct 2007
Posts : 103
Posted 11/14/2007 10:45 AM (GMT -7)

I too am speechless.

Take heart.  All will be well!

Our thoughts, prayers and support are with you and your family.

Marc


64 years old 100307; healthy; active,

married 41 years, good strong erections before surgery.

DaVinci Prostate Removal February 5, 2007

2/12 samples malignant.

Catheter removal 2/13.

Viagra 25mg every other day from 2/14 to 5/12.

Tried Viagra 100mg on occasion-no erections.

Incontinence almost gone after three months.

No pads, occasional  dribble.

Lavitra every other day 5/12 to 7/22.

Muse 1000mcg - no help (50% at best).

Cialis twice a week 7/25 to 11/6/07.

Vacuum pump daily/twice a day 8/2 and going - no help.

Begin Trimix injections, two low dose per week, 11/05/07.

Currently, vacuum pump and low dose Trimix twice per week each.

Trimix in office - 0.10cc.  Low dose set at 0.05cc

First drug induced erection 10/8/07....Wow!

Natural erections - 0 as of 10/25/07.

PSA's, three to date undetectable.  Thank God!

Geon

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Doting Daughter
Veteran Member
Joined : Aug 2007
Posts : 1064
Posted 11/21/2007 10:56 AM (GMT -7)

Laswell-

Extra thoughts and prayers to you and your family during the holiday.  Just wanted to know that we continue to pray and think of you. 

Blessings,

Chayna


Father's Information

DX July 15, 2007

Age 62 (now 63)

PSA 5.5

Original Gleason 3+4=7 

Post Surgery Gleason- 4+3=7

DaVinci Surgery Aug 31, 2007

Focally Positive Right Margin

One positive node

Bone Scan/CT Negative (Sept. 10, 2007)

T3a N1 M0

Oct. 17 PSA 0.07

Nov. 13 PSA 0.05

HT to being Nov 07

Radiation soon to follow

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mozart250
Regular Member
Joined : Jan 2007
Posts : 102
Posted 11/21/2007 4:10 PM (GMT -7)
Laswell

I don't know what to say.  Yes it is far worse than cancer.  My heart goes out to you.


51 Year Old DBA by profession; amateur pianist by passion.

June 2006:  PSA 4.6.  DRE prostate enlarged.  

Aug  2006:  Second opinion confirms first.  Biopsy suggested.

Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.

Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.

Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.

Dec  2006:  PSA 0.1

Feb  2007:  PSA 0.0 (under 0.1)

May 2007:  PSA 0.0 (under 0.1)

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bluebird
Veteran Member
Joined : May 2006
Posts : 2542
Posted 11/21/2007 5:16 PM (GMT -7)
Hi ~ Laswell and Loved Ones,   This is a time you need to stay close!!!   You continue to be in our thoughts and prayers. In Friendship ~ Lee & Buddy
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pcdave
Regular Member
Joined : Oct 2006
Posts : 444
Posted 11/22/2007 10:22 PM (GMT -7)
Dear Laswell & Family

Many years ago a wonderful teenage son of one of my cousin's took his life without leaving any words behind. Over the years, I have often thought of this young man and what a tragic loss it was to his family. Why some in life have to bear the enormous burdens that you are now enduring, we will never know. With deepest sympanthy on the loss of your treasured son. May you gain strength in the days ahead by recalling many fond memories of his life. Good luck in overcoming your challenges with PCa. I hope and pray that your next PSA test will be good news. God Bless!

Dave
-69 years young!

-29 core biopsy 9/27/06 at age 68

-PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area], Gleason 6 [less than 5% in two other areas], Negative DRE, bone scan and Endorectal MRI. 

-Completed 39 Proton radiation treatments 2/22/07-4/18/07.   

-PSA History: 7.1 pre-treatment; post treatment: 2.1 (3 mo.), 2.4 (6 mo.).  Radiation oncologist said the 3-mo. drop of 70% exceeded expectations and the slight 6-mo. movement upwards is not a

cause for concern.

-The following is a link to My Journey With Prostate Cancer -- Proton Radiation Therapy.  https://www.healingwell.com/community/default.aspx?f=35&m=726381

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HIFU
Regular Member
Joined : Feb 2007
Posts : 27
Posted 11/22/2007 11:02 PM (GMT -7)

I am very sorry for your loss

My urologist is J Cochran MD, and my wife's oncologist is Kiran Kancharla, MD, both at Presbyterian on Walnut Hill, Dallas


Age 75

January 2007 PSA 14.2

February 07 Gleason 3+4=7

March 2, 07 TUR-P+HIFU Munich Germany by Prof Chaussy and Team

April 30, 07 PSA Undetectable 0.05

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KMC51
Regular Member
Joined : Jun 2007
Posts : 31
Posted 11/24/2007 9:52 AM (GMT -7)
I'm not a believer, so I can't offer prayers but only tears. The only condolence I can find is knowing that your experience will be able to help someone else sometime.
Age: 56
Pre-op PSA: 10.2 (one lab) or 6.4 and 6.7 (another lab)
Da Vinci 9/20/07
Gleason 6
1st post-op PSA: undetectable
Continence: dry some days, typically a couple of leaks per day
Sexual: most nerves lost because embedded in enlarged prostate. Apparently some blood flow--some nighttime enlargement--very little response. Grateful for desire and orgasms. Just ordered pump; don't know what to expect from it. Great wife.

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uncledan
Regular Member
Joined : Aug 2007
Posts : 120
Posted 11/26/2007 8:12 PM (GMT -7)
LAZ, I have no words that will make the hurt go away. I have been there and I was not suffering through PC at the time. I can only hope you are surrounded by loving people and you can find some way to keep a positive attitude through this. God bless you and your family. Uncle Dan
Age 67
No symptoms, DRE negative, 10 - 06 PSA 5.44, 01 - 07 PSA 6.47
5 - 07 CT and Bone scans negative, 05 - 07 Biopsies, 2 of 6 positive
Gleason Score (3+4) 7 Stage T1c
08 - 14 Dr. Dasari - Baptist Hospital, Nashville da Vinci RAP, five hours surgery
Some right nerve and all left nerve removed,
Hospital discharged 8 - 16
Pathology report Negative margins, Encapsulated, 50% left side
Lymph nodes 2 R & 1 L - Negative, R & L seminal vesicles - Negative
Gleason changed (4+3) 7 closer to 8 than 6
9 - 26 Great PSA 0.000, 9 - 27 Starting on meds for ED
10 15 Dry most of the time, occasional leak (dribble )
10-27 Received pump started use on 10-29 can see resulted, enlargement.
11-22 Viagra, Lavitra no help yet, Pump still not producing usable results either.
11-28 Will discuss 2nd PSA results with surgeon

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