Discouraged and Gratefull

As I head into my 8th month of recovery I have found myself taking some steps backward regarding perineal pain and stress incontinence.  During the last three weeks I have had fairly consistent perineal pain and growing stress incontience.  I am still only using one small depends pad per day, but have noticed occasional drops turning into multiple drops.  The perineal pain is sort of a dull pain.  My urologist ran a urine culture and didn't find anything although I was 3 days into a round of levequin for a sinus infection.  He also ordered a Cat Scan of the bladder and abdominal region and didn't find anything wrong.  The only thing wrong anywhere near that part of the body is a yeast infection about 7 inches away from the perineal pain area.   An ultrasound of the bladder shows that it is emptying completely even though I can always manage another squirt after they say its empty.  Not sure what to ask for next.   I am battling a bone infection in my jaw that leaves me extremely tired all of the time.  Maybe thats the reason.  Any thoughts would be appreciated.

Diagosed with PC in October 2006

PSA 2.1, Gleason 3+4

Robotic Surgery Jan 25th, 2007

Final Gleason = 6

All margins = negative

All subsequent PSA's = 0

 

  Hi ~  Colo48 & Loved Ones…   W elcome     to…    ~ HealingWell ~   and   A    “ Special ”    Warm Welcome   to   You !   Knowledge gives us POWER….   POWER takes away the fear.   ~      ~      ~      ~      ~      ~      ~      ~      ~      ~      ~      ~      ~     Click   on   link   below for important information that will help you ~ help us!!   Welcome New Members ~ to HealingWell     The information (link) listed above is to help you get started on your journey.       It is a journey best traveled with friends.            Welcome ~ New Friend from all the members here... on HealingWell.com   v       IdahoSurvivor ~   Moderator for Prostate Cancer Forum http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg   v       bluebird ~   Moderator for Prostate Cancer Forum http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg

Hey Colo48,

Sorry you are having some setbacks. It takes lots of time to heal and it doesn't all happen smoothly. Our progress goes ahead a while then backs up a little bit. Make sure your doc is doing all that he can to find out what is causing the pain.

We are all here for you. Lets get well together...

Jim

---

Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.

RRP 12/7/06. Nerves and nodes okay.

Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.

PSAs from  1/3/07 - 10/17/07 0.00. 

Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!

Next PSA test on 1/15/08

"Patience is essential, attitude is everything."

Colo 48,

Without any real knowledge about you than the information you have given about any co-morbidities, it is difficult to give you more specific advice than encouragement.

That being said, from my expereinces with major surgeries and my radical prostatectomy, here is my two cents / cheerleading:

By my reading, it is almost 10 months that you are in recovery?
It doesn't make a huge difference but it might to your spirits! 
"Time flies.... "
"Time heals all wounds.... "

I'm not certain of your age (48?) but regardless of that and any other health issues I would continue to do at least three sets of ten kegal exercises three timea a day every day, forever.

Muscles not used atrophy.  The pelvic floor muscles that work together to assist your bladder are no exception.  I do mine whenever I am driving. 
Your drips/leaks suggest to me that your pelvic floor muscles and your sub-conscious control need more conscious effort.

One other general piece of advice (that you may already be following/over-achieving)- for anyone that has had general anesthesia in the last year - is to drink a lot more water than normal. 
That stuff in general anesthesia has more of a "half-life" in the system than you might imagine.

Finally I would at least "speed" walk (more vigorous exercise if you are able) 20 minutes every day.  The resilience of the healthy parts of your body will carry those problem areas to health more quickly. It will lift your spirits.

Wishing you every recovery.
Your Friend,

C^Cedar
ICTHUS!

---

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 

Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6

Radical Prostatectomy 16FEB07 at age 54.

1+" tumor - touching inside edge of gland.  + Confined.  :)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily

Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?