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Prostate Cancer
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Colo48
New Member
Joined : Nov 2007
Posts : 2
Posted 11/14/2007 11:28 PM (GMT -7)
As I head into my 8th month of recovery I have found myself taking some steps backward regarding perineal pain and stress incontinence.  During the last three weeks I have had fairly consistent perineal pain and growing stress incontience.  I am still only using one small depends pad per day, but have noticed occasional drops turning into multiple drops.  The perineal pain is sort of a dull pain.  My urologist ran a urine culture and didn't find anything although I was 3 days into a round of levequin for a sinus infection.  He also ordered a Cat Scan of the bladder and abdominal region and didn't find anything wrong.  The only thing wrong anywhere near that part of the body is a yeast infection about 7 inches away from the perineal pain area.   An ultrasound of the bladder shows that it is emptying completely even though I can always manage another squirt after they say its empty.  Not sure what to ask for next.   I am battling a bone infection in my jaw that leaves me extremely tired all of the time.  Maybe thats the reason.  Any thoughts would be appreciated.

Diagosed with PC in October 2006

PSA 2.1, Gleason 3+4

Robotic Surgery Jan 25th, 2007

Final Gleason = 6

All margins = negative

All subsequent PSA's = 0

 

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puget
Regular Member
Joined : Mar 2007
Posts : 237
Posted 11/15/2007 7:51 AM (GMT -7)
Hi, Colo48. Sorry to hear that you're experiencing some discomfort. All your numbers look great. Are you still doing Kegels to address the stress incontinence? If so, the only thing I can think of is you may be overdoing them and/or doing them incorrectly. Good luck and let us know how you're doing.
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bluebird
Veteran Member
Joined : May 2006
Posts : 2543
Posted 11/15/2007 11:50 AM (GMT -7)
  Hi ~  Colo48 & Loved Ones…   W elcome     to…    ~ HealingWell ~   and   A    “ Special ”    Warm Welcome   to   You !   Knowledge gives us POWER….   POWER takes away the fear.   ~      ~      ~      ~      ~      ~      ~      ~      ~      ~      ~      ~      ~     Click   on   link   below for important information that will help you ~ help us!!   Welcome New Members ~ to HealingWell     The information (link) listed above is to help you get started on your journey.       It is a journey best traveled with friends.            Welcome ~ New Friend from all the members here... on HealingWell.com   v       IdahoSurvivor ~   Moderator for Prostate Cancer Forum http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg   v       bluebird ~   Moderator for Prostate Cancer Forum http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg
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Colo48
New Member
Joined : Nov 2007
Posts : 2
Posted 11/15/2007 2:40 PM (GMT -7)

Thank you to all for your warm welcomes!   I had been doing Kegal religiously until I got discouraged and then started biofeed back.  Shortly after that I started feeling like I had a bladder infection.  As the discomfort in the area has increased I admit I have done less kegals and zero biofeedback.

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biker90
Veteran Member
Joined : Nov 2006
Posts : 1465
Posted 11/15/2007 5:30 PM (GMT -7)
Hey Colo48,

Sorry you are having some setbacks. It takes lots of time to heal and it doesn't all happen smoothly. Our progress goes ahead a while then backs up a little bit. Make sure your doc is doing all that he can to find out what is causing the pain.

We are all here for you. Lets get well together...

Jim
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mvesr
Veteran Member
Joined : Apr 2007
Posts : 823
Posted 11/15/2007 7:02 PM (GMT -7)
Hi colo 48. Sorry you have hit a speed bump on your journey. Hope things will inprove for you. Hoping the best.

Mika
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Cedar Chopper
Regular Member
Joined : Mar 2007
Posts : 432
Posted 11/16/2007 3:54 AM (GMT -7)
Colo 48,

Without any real knowledge about you than the information you have given about any co-morbidities, it is difficult to give you more specific advice than encouragement.

That being said, from my expereinces with major surgeries and my radical prostatectomy, here is my two cents / cheerleading:

By my reading, it is almost 10 months that you are in recovery?
It doesn't make a huge difference but it might to your spirits! 
"Time flies.... :-) "
"Time heals all wounds.... cool "

I'm not certain of your age (48?) but regardless of that and any other health issues I would continue to do at least three sets of ten kegal exercises three timea a day every day, forever.

Muscles not used atrophy.  The pelvic floor muscles that work together to assist your bladder are no exception.  I do mine whenever I am driving. 
Your drips/leaks suggest to me that your pelvic floor muscles and your sub-conscious control need more conscious effort. eyes

One other general piece of advice (that you may already be following/over-achieving)- for anyone that has had general anesthesia in the last year - is to drink a lot more water than normal. 
That stuff in general anesthesia has more of a "half-life" in the system than you might imagine.

Finally I would at least "speed" walk (more vigorous exercise if you are able) 20 minutes every day.  The resilience of the healthy parts of your body will carry those problem areas to health more quickly. It will lift your spirits.

Wishing you every recovery.
Your Friend,

CCedar
ICTHUS!

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