Discouraged and Gratefull

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Colo48
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/14/2007 11:28 PM (GMT -7)   
As I head into my 8th month of recovery I have found myself taking some steps backward regarding perineal pain and stress incontinence.  During the last three weeks I have had fairly consistent perineal pain and growing stress incontience.  I am still only using one small depends pad per day, but have noticed occasional drops turning into multiple drops.  The perineal pain is sort of a dull pain.  My urologist ran a urine culture and didn't find anything although I was 3 days into a round of levequin for a sinus infection.  He also ordered a Cat Scan of the bladder and abdominal region and didn't find anything wrong.  The only thing wrong anywhere near that part of the body is a yeast infection about 7 inches away from the perineal pain area.   An ultrasound of the bladder shows that it is emptying completely even though I can always manage another squirt after they say its empty.  Not sure what to ask for next.   I am battling a bone infection in my jaw that leaves me extremely tired all of the time.  Maybe thats the reason.  Any thoughts would be appreciated.
 
 
Diagosed with PC in October 2006
PSA 2.1, Gleason 3+4
Robotic Surgery Jan 25th, 2007
Final Gleason = 6
All margins = negative
All subsequent PSA's = 0
 

puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 11/15/2007 7:51 AM (GMT -7)   
Hi, Colo48. Sorry to hear that you're experiencing some discomfort. All your numbers look great. Are you still doing Kegels to address the stress incontinence? If so, the only thing I can think of is you may be overdoing them and/or doing them incorrectly. Good luck and let us know how you're doing.
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07 = <.01 (Hooray!!)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/15/2007 11:50 AM (GMT -7)   

tongue   HiColo48 & Loved Ones…

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

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 Click  on  link  below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

 

The information (link) listed above is to help you get started on your journey. 

     It is a journey best traveled with friends. 

          Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

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Colo48
New Member


Date Joined Nov 2007
Total Posts : 2
   Posted 11/15/2007 2:40 PM (GMT -7)   

Thank you to all for your warm welcomes!   I had been doing Kegal religiously until I got discouraged and then started biofeed back.  Shortly after that I started feeling like I had a bladder infection.  As the discomfort in the area has increased I admit I have done less kegals and zero biofeedback.

 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/15/2007 5:30 PM (GMT -7)   
Hey Colo48,

Sorry you are having some setbacks. It takes lots of time to heal and it doesn't all happen smoothly. Our progress goes ahead a while then backs up a little bit. Make sure your doc is doing all that he can to find out what is causing the pain.

We are all here for you. Lets get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 11/15/2007 7:02 PM (GMT -7)   
Hi colo 48. Sorry you have hit a speed bump on your journey. Hope things will inprove for you. Hoping the best.

Mika

Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 11/16/2007 3:54 AM (GMT -7)   
Colo 48,

Without any real knowledge about you than the information you have given about any co-morbidities, it is difficult to give you more specific advice than encouragement.

That being said, from my expereinces with major surgeries and my radical prostatectomy, here is my two cents / cheerleading:

By my reading, it is almost 10 months that you are in recovery?
It doesn't make a huge difference but it might to your spirits! 
"Time flies.... :-) "
"Time heals all wounds.... cool "

I'm not certain of your age (48?) but regardless of that and any other health issues I would continue to do at least three sets of ten kegal exercises three timea a day every day, forever.
Muscles not used atrophy.  The pelvic floor muscles that work together to assist your bladder are no exception.  I do mine whenever I am driving. 
Your drips/leaks suggest to me that your pelvic floor muscles and your sub-conscious control need more conscious effort. eyes

One other general piece of advice (that you may already be following/over-achieving)- for anyone that has had general anesthesia in the last year - is to drink a lot more water than normal. 
That stuff in general anesthesia has more of a "half-life" in the system than you might imagine.

Finally I would at least "speed" walk (more vigorous exercise if you are able) 20 minutes every day.  The resilience of the healthy parts of your body will carry those problem areas to health more quickly. It will lift your spirits.

Wishing you every recovery.
Your Friend,

CCedar
ICTHUS!
2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?

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