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NewJourney
Regular Member


Date Joined Jun 2007
Total Posts : 30
   Posted 11/16/2007 8:26 AM (GMT -7)   
I am scheduled to have robotic surgery in the beginning of January (what a way to start the new year...) and I need to start getting organized.
 
I am looking to see if there is a checklist of sorts that can give me an idea as to what I may need of things to do. Especially for time the catheter is in. Also, details pertaining to insurance and legal matters.
 
Thanks
Age: 52
PSA: 4.8
Stage: T1C
Prostate, right base, core biopsies:
Adenocarcinoma.
Gleason’s grade 3+3=6.
Carcinoma involving two core biopsies and 50% of sampled tissue with a linear measurement ofapproximately 3 mm.
Perineural infiltration present.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/16/2007 8:45 AM (GMT -7)   

  tongue Hi ~ New Journey & Loved Ones…

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

 Click  on  link  below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

 

The information (link) listed above is to help you get started on your journey. 

     It is a journey best traveled with friends. 

          Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/16/2007 8:53 AM (GMT -7)   

  :-) Hey ~ NewJourney,

 

I looked back over your previous threads and noticed you didn’t get our Warm Welcome.  I’m sending it now because it has some great threads that will help you answer a lot of your questions along with the reply posts that will be coming your way.  The responses to your previous threads have lead you to your choice.  Isn’t it wonderful to have options and to hear about those who have traveled this path and are willing to share their experiences…

 

Our thoughts are with you as you prepare to step on the next stepping-stone in Your Journey.  And before you know it!!! You’ll be on the healing/recovery stepping-stone.

http://i206.photobucket.com/albums/bb179/mamabluebird1955/Stepping-StonestoHealingWell.jpg

 

Buddy and I invite you to visit our personal thread listed in our signature below... pull from it what you feel will best meet your needs...  This path is best traveled with friends who know where you have been and where you’re headed.

 

Stay Close ~ In Friendship ~ Lee & Buddy

 

tongue   Helping to keep New Journey's Journey together.... (I like the name!!)

 

Threads started by:  New Journey

11-16-07  Check List

07-08-07  Treatment Choice

06-25-07    CAT Scan

 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 11/16/2007 11:04 AM (GMT -7)   

New Journey,

All you have to do is ask, and you'll get a lot of good advice here.  My first thought is you should be doing your Kegal exercises frequently.  My docs lent me a tape that had a whole routine that I did.  Also, do some exercising to get in shape.  Walking is great, since that is what they'll want you to start right after surgery.  I felt these helped me not have any issues with continence.

As far as immediately following surgery, one of the best things I had in my master bathroom was a chair to sit on by the toilet when I changed bags.  I also had bleach to rinse the bag and baby wipes for cleanliness, making my bath look like a chem lab.  My wife's old walker from an earlier surgery came in handy to hang the night bag from.  Also, I purchased some basketball style sweat pants, with a zipper on the legs, which worked well with the leg bag.  My only issue with the catheder was with the strips used to secure it to my thigh.  (Some have used velcro straps.)  I ran out of these, since I showered every day, and had to have a relative go pick some up.

After the catheder is removed, there are many variations of pads, underwear, etc., depending on your level of continence.  I ended up putting almost all of the depends and large pads away for old age!  I found that women's panty liners did the trick.

Good luck, and I'm sure there will be many more postings here with more ideas for you to consider.


Age 57,  PSA 4.7 (up from 3.2 one year ago)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology
     Stage T3a, Gleason 3+4, positive margins and
     capsular penetration RIGHT Side
Post Surgery PSA:  March 5:  0.01
5 month PSA, June 13, 2007:  0.08
Adjuvant therapy began June 26 with Zoladex injection
Radiation began August 23, ended October 8
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/16/2007 4:34 PM (GMT -7)   
NewJourney,

Bluebird has pointed you to links to information. Getting in good shape is by far the most important step to take now and the best exercise for that is walking. It will be a little tougher for you with winter upon us but get out everyday and stretch those legs and build up your stamina.

As to insurance in most cases all of the pre-surgical information needed for most insurances to authorize coverage should be done by your surgeon's office. You should receive from your insurance company what they have authorized. With robotic surgery it is typical for them to authorize two days of hospitalization with the understanding if any complications arise they will authorize more upon being contacted by your surgeon. I know of no legal matters that should be of concern to you.

Handling and caring for the catheter will be gone over with you before you leave the hospital. You should receive a list of items that you will need when you come home from your surgeon. There are some variations from surgeon to surgeon so the check list that you on HWC may be different from that provided by your surgeon.

Ask what you want to your peers here and we will respond.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 11/16/2007 4:53 PM (GMT -7)   
New Journey--Welcome to our very exclusive club.  No amount of money will buy a membership, but prostate cancer will.   I am thankful that a diagnosis of prostate cancer is not what it used to be and that testing often leads to early diagnosis and treatment, as it did in my case.
 
Life has changed for me in ways I could not imagine when I first heard the words, "You have prostate cancer"  My wife and I are closer than ever and this shared journey, hand-in-hand, heart-to-heart, has strengthened and sustained us. 
 
I'd suggest, to echo Tamu, that you exercise regularly before surgery.  I did, and my recovery time was minimal.  Do aerobic, flexibility and strengthening exercises.  I paid particular attention to abdominal exercises in the weeks before surgery.  It all helped.
 
We all understand what you are going through. Take care and hang in there.  God bless you....Tim
 
 


Age 59 PSA 2.6 (Quadrupled in one year) Gleason 5
Bilateral nerve-sparing RRP 6/21/06
Cancer confined to prostate, post-op PSA's non-detectable


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 11/16/2007 9:21 PM (GMT -7)   
Welcome, NewJourney, to a great forum! 
 
Along with the other good advice you've received... If you have any weight to lose to approach your ideal weight, that would really help.  I hit my target weight prior to surgery and my surgeon was very pleased.  She said that it helped her to maneuver the instruments and to be able to see and manage the operation effectively.
 
Another part of the preparation is to try to look at this as your first BIG positive step to healing.  Your mental preparation has a lot to do with how you'll feel during and after the procedure.
 
Everyone is different, but the robotic surgery was great for me.  I had very little pain and recovery was steady and predictable.  So I feel good about my choice.   There are always a few "bumps" on the way, but the good folks here will help you smooth them over.
 
You may want to bring your own robe to the hospital.  They'll quickly get you up to walk.  Your own robe will be more modest and likely easier to get on and off when you want to get up on your own.
 
'Hope this helps.
 
All the best,
 
Barry (Idaho)

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007

My web site: http://pca-info.blogspot.com

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