Hard time with this post

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/16/2007 3:30 PM (GMT -7)   
 
Dear Friends,
 
I have had alot happen to me since my last post. My scheduled surgery date was for December 28th but this past week I recieved a call from my doctor asking if I wanted to move my schedule surgery up to Friday 11/9/07/ Of course I said yes but I only had a two day notice but that was ok with me.
 
Today is 11/16 so I am one week removed from my surgery last Friday. I now have the surgery behind me and I am in the recovery mode right now. Everything went well with the surgery except I got sick after the operation during recovery.
 
I have started to post at least twice this week but things for me have gone so well and the news I have recieved been so positive I could not stand to Brag especially after reading the problems like Laswell and other are having with thier reports and surgery and other family matters. My wife finally convinced me that others might benefit from my good news and experience so here goes.
 
As stated surgery was last Friday and I have been back to the doctor once to have a drain removed and my pathology report was there waiting on me. The report was explained to me by the nurse practioner and I did not get to see my doctor but from what I have read on the report I think I am a lucky man.
 
The report reads as follows: summarized as follows;
 
Neurovascular bundle, left, negative
3 lymph nodes negative for malignancy
Gleason score upgrade from 3+3+6 to 3+4=7
Prostate, 5%  involved with cancer
Seminal Vesicles negative for malignancy
Margins negative for malignancy
AJCC Stage II (PT2ANO)
 
Portion of prostate involved by tumor 5%
Tumor location left posterior mid
 
Extraprostatic extension, negative
 
Venous (large vessel) negative, Lymphatic (small vessel) negative. primary tumor (pt2a)
 
Pathalogical staging (ptnm) II
 
Metastases, N/A
 
I am not sure what Periunural invasion present means, I that is good or bad or what.
 
 
I have to go back to the doctor on Monday two weeks from now to have my cathertor removed. I will talk to the doctor then. I hope I am reading this report right. If anyone see anything different please let me know.
 
Again my problems seem anti climatic in comparison to others on this forum and I hated even to bring up my situation.
 
My wife and I will continue to pray for everyone on this forum as I know it has worked for me.
 
Thanks again for everyone's support and information and I will stay in touch.
 
Educator
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/5/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 
I will up date this Monday as I forgot and it left home today.
 
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/16/2007 3:49 PM (GMT -7)   
Educator,

You were real lucky to get into surgery with Dr. Harrell so soon. I was wondering why we have not heard from you. The perineural invasion just means that they found some of the cancer in the nerves within the prostate. Don't worry about it as there is no consensus that it means anything. In fact, several hospitals have stopped noting it on path reports including the Mayo Clinic. Be sure to ask Dr. Harrell about it at your appointment. The 5% prostate involvement was the same as mind. You are right this is good news so congratulations. Sorry to hear that the post op was not too kind to you. I felt real good and was not sick until I took those first few steps after surgery then I dry heaved a few times and was good from that point on. You know the drill now. Don't push it too hard and take it a day at a time.

Welcome to the other side!!

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/16/2007 4:24 PM (GMT -7)   
Thanks Tamu, I was very lucky to get in so soon I thought at first It was going to be March of 08 but it then went to December and finally November 9th.


Thanks for explaining that perinueral thing to me I just did not understand it. You have given me more good news.

Thanks again,

Educator
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/5/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 11/16/2007 5:24 PM (GMT -7)   
Good news indeed. No long wait to get nervous and a good outcome.  The path report sounds really good, with clear margins (that's always good).  Now that step one is over, time to start with step 2-continence.  You don't mention if you have the catheter in or out, so how's it going in that department.   Get to walking a bunch, it will decrease your recovery time dramatically.

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly-no joy 
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  1st PSA 0.01


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/16/2007 5:31 PM (GMT -7)   
Sorry how could I forget that....Ha

The cath is still in and will be so until a week from this coming Monday. I ask my doctors fellow student doctor why so long and he said that it was because I had such a large prostate they had to add more sutures than normal and they wanted to be sure it was healed before removing the cath.

How much do you recommend walking before the cath is out?
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/5/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/16/2007 6:01 PM (GMT -7)   

tongue    Hey ~ Educator & Very Wise Wife….

 

This is fantastic news.  Remember ~ every part of our journey is important to share… Good, Bad, and/or Scary.  That’s what makes HealingWell so powerful.  We learn form each other and the positives help to overpower the negatives.  Your wife was right on!!!!  She deserves an extra HUG!!!

 

You are now on the recovery/healing stepping-stone and that means.  Heal well by taking the proper time to do so.  It also mean you should be walking, resting, sleeping, eating, walking, resting, …. You get the picture!  Truly ~ you must listen to your body and not over do it when you start feeling “good”.  We don’t want any backsliding.  Walking??... see "Our Journey" located in our signature to see the regiment we followed!!  It worked for us!

 

I’m sending you a little more information about your question re: Perineural Invasion?

 

**Excerpts taken from “Dr. Patrick Walsh’s Guide to Surviving Prostate Cancer”

by: Patrick C. Walsh, M.D. and Janet Farrar Worthington.   Copyright 2001

 

This book gave us so much knowledge… and Knowledge is Power. 

 

Page 145

**What about Perineural Invasion?

As cancers grow, they compress normal tissue, looking for “elbow room”—spaces with less resistance, where they can spread.  Nerves are usually surrounded by some empty space; for cancer, this is the real estate equivalent of a nice suburban lot with a big backyard—plenty of elbow room.  Thus, it’s not uncommon to find prostate cancer in the spaces around the nerves; this is called ‘perineural invasion.”  Because the nerves are most common close to the surface of the prostate, the findings of perineural invasion on a biopsy suggests that the cancer is close to the edge of the prostate, and may well have penetrated the capsule.  However—this is important to keep in mind—cancer that has penetrated the capsule can still be cured.  Which makes this a paradoxical finding—because, although men with perineural invasion are more likely to have capsular penetration than men without it, perineural invasion has no long-term impact on whether or not a man can be cured.  For this reason, some noted pathologists have suggested that it should not even be commented on when found in a biopsy, because it’s not worth worrying about.

<end quote>

 

So ~ continue moving forward “with all of us”.  I see in your 1st posting that you will have the catheter in for 2 weeks.  We had Mr. Hang for 17 days and we truly feel that the extra time gave extra healing time.  That’s a good thing.  Our opinion!!

Keeping you close in thoughts and prayers ~ Stay Close… Okay!! yeah

In Friendship ~ Lee & Buddy 


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 11/16/2007 6:07 PM (GMT -7)   
Educator,

I had my cath in for 13 days due to a mix up as to who would take it out my local urologist or Vanderbilt. I had told them I planned on coming back to Vandy to have the cath removed but they assumed that my local urologist would be doing it. The mix up caused Vandy's schedule to be full on the 10th day from surgery and the weekend then fell into it so it was 13 days. I had my surgery on a Wednesday, got home on a Friday and took a half mile walk that afternoon. I pushed it to a mile on Saturday but then was wiped out that night so that was too much. With ti being a week now you should be able to get a good half mile in and perhaps a little more but if you have not been walking much since getting home work yourself up to it over the next few days. By the time my catheter was removed I was doing a good mile and a half to two miles a day split between a morning and afternoon walk.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


56pontiac
Regular Member


Date Joined Sep 2006
Total Posts : 230
   Posted 11/16/2007 7:04 PM (GMT -7)   
That is good news to hear. We all like to hear the good reports. I don't think anyone considers it bragging. We have absolutely nothing to do with the outcome of our pre or post op path reports etc. Good news like yours does encourge others with their journey. My numbers were very similar to yours my surgery was 10/12/06 Eveything is working very nicely now and the numbers are good. Other folks have not been so luckey and we do continue to think about and pray for them as we become aware of their
situations. Welcome to the forum and please share your news as you move on down the line good or bad. God Bless You.

Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/16/2007 8:49 PM (GMT -7)   
Thanks for all the information. As I stated before I did not get to talk to Dr. Herrell yet but the nurse practioner has worked at Vandy for 15 years and he says he has seen many reports and explained them. Still yet I will be talking to the Dr. about it.

Before surgery I was walking three miles every day usually 15 minute mile pace. I will begin my walking routine back tomorrow. I thought I had to wait until the cath was out. I believe I can do a mile by now anyway.

Again I appreciate all of the advice and although I don't know but a smidgin of what the rest of you know I will be available for positive encouragment to others.

This journey has been easier because of you folks.


Thanks,

Educator
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/5/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 11/16/2007 9:53 PM (GMT -7)   
Great news educator. Now just try to take it easy for a while and don't overdo it.

Mika

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2248
   Posted 11/16/2007 10:39 PM (GMT -7)   
Congratulations on your successful surgical outcome!  I was in the hospital 4 days and began walking twice a day--about 1/2 mile each time--once I got home.  No heavy lifting or strenuous activity was permitted for the first six weeks while the wounds healed.
 
I had my catheter in for two weeks, and while I was happy to have it removed, I had gotten rather attached to it.  It made my bladder gladder and it was terrific not having to get up in the middle of the night to urinate.
 
Best to you on your continued recovery. Take care and hang in there...Tim 
Age 59 PSA 2.6 (Quadrupled in one year) Gleason 5
Bilateral nerve-sparing RRP 6/21/06
Cancer confined to prostate, post-op PSA's non-detectable


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 11/17/2007 7:30 AM (GMT -7)   

You've gotten lots of good advice about your walking schedule since I mentioned it.  What I found most effective for me was to take shorter brisk walks several times a day, followed by climbing into the recliner for a half hour or so of rest.  If you have the time (retired or on sick leave) , the walk/rest cycle will really help in healing and kick starting the systems to begin functioning again. Also, increase you water intake, you got the bag now, take advantage of free pee time.  After the catheter is out, I was advised to restrict liquids for a few days, to allow the body to adjust, then to slowly increase liquid intake, to flush out surgery leftovers in the body and bloodstream.  I would walk 1/4 mile at a moderate fast pace, then rest.  Repeated it 4 times a day.  As I gained my strength back, I started adding hills to it.  Walking, then hills or stairs are excellent therepy for getting that single spincter muscle to working and training it to take over the full load it has to do now.  If you live where there aren't hills, then find a building that has several floors and hit the stairwells, maybe a local mall if nothing else is available?  I seem to remember you as living near Nashvillle, so there should be plenty of opportunities to find places.   Up here in E. Tn hills is all we got...lol

James C.


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 11/17/2007 5:55 PM (GMT -7)   
Educator,

I'm glad you posted. This is real life here and everyone of us have illness, tragedy, pain or joy at any given time. And your good report is reason for joy.

Thanks for sharing it. Please continue to keep us updated.

Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/17/2007 8:57 PM (GMT -7)   
Thanks to everyone for your information. Very helpful. I walked alot today shopping for a wedding dress for my daughter. When I saw the price I wanted to run.....fast and real far away.

I will take it slow but I think I can get back up to my 3 mile routine pretty quickly.

I am getting a lot more used to the cath now. It was nice during the shopping trip as I didn't have to look for a restroom like I use to do.

Thanks to all,

Educator
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/5/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 11/17/2007 11:13 PM (GMT -7)   
Hi Educator,
You are doing very well it sounds like. In fact to go from diagnosis to treatment you are a scorcher on the speed records. The catheter is very manageable and will be gone soon. My bet is you do well with all from now. Good luck! And God Bless!

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/18/2007 5:38 AM (GMT -7)   
Thanks Tony,

Reading your report was on of them I was talking about. From everything I have read it is possible to cure compeltly every state of cancer if the right circumstances are met. I must say I felt positive but still was quietly doing my homework on what might be my next steps if the report came back not as good. I am glad to hear the PSA dropped out on your report and has not returned.

I too am surrounded by good friends and family and I know things will work out so that I can enjoy them long into the future. I have found it hard to complaine at all because someone else has always got it worse than you.

Keep up the positive spirits and you too will continue to win over this thing completly.

Educator
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/5/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 11/18/2007 4:09 PM (GMT -7)   
hey Educator - that is great news about your recovery and thank you for sharing it. we are all here for the good and the bad, because that is what life is all about. so you are getting ready for a wedding? that is exciting that you are going with your daughter. not many dads do that. your body will tell you when you've pushed too far, so keep on walking. here's wishing you continued recovery...kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 11/19/2007 2:31 PM (GMT -7)   
Educator,

I too have felt hesitant about publicly celebrating my victories....
  - and yet as Susan said, we MUST!
We owe it to all those readers out there that need real facts about real people.

Congratulations on your daughter's planned wedding!
     I photographed a wedding two days ago in the Texas Hill Country.
     The families kept it simple, elegant, and meaningful.
     I think the hardest part is whittling down the guest list. 
     Catering prices seem to be the only motivating factor!
Regardless of your plans, "many happy returns of the day....."

However humbly, we must acknowledge our victories to be thankful.
Thanksgiving has a most very special meaning to me now!

Thankfulness for my friends here is near the top of the list.

CCedar
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 13, 2017 2:07 PM (GMT -7)
There are a total of 2,904,973 posts in 318,817 threads.
View Active Threads


Who's Online
This forum has 158187 registered members. Please welcome our newest member, Zenfinity.
377 Guest(s), 10 Registered Member(s) are currently online.  Details
RedLabel, Sophalex83, JNF, Kat1000, ArtAngel, Jamie1970, Maverick6981, HopeNheal, dbell, FLBeachgal