My dear friend Julia,
Susan is so right. Start now with the paper and pen. No question is to trivial. Ask about options. Hormones, surgery, radiation, everything. Every doctor (oncologist) is different. I changed oncologist last week. My old doc wanted to start chemo. New doc says no, not yet, it's our ace in the hole and we don't want to play it now. Old doc did not want to do any radiation for pain. New doc says sure let's see what we can do. It's all about knowledge and trust. We like this new guy. He is a 10 year survivior of cancer. He has been there and knows what we are going through.
Get your questions lined up and don't let them rush you. Write down everything and don't let the nurse leave until you are satisfied with the answers. Then it's up to you and your husband on what to do next. I hope the care in the UK will let you do this. It's just the right thing to do.
You are in our prayers (and may more).
Love and a BIG War Eagle.
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 4.9 9/2007
PSA 5.4 10/07
PSA 6.4 11/07
"I will persist without exception - I will find a way where there is no way"