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josal
New Member


Date Joined Nov 2006
Total Posts : 11
   Posted 11/23/2007 12:43 PM (GMT -7)   
We are Josal and have been members for a little over a year, ever since my husband was diagnosed.  Although we haven't posted in quite some time, we are regular readers and after reading posts from chas036 and loupdemer regarding incontinence issues, and being the Thanksgiving holiday, I am compelled to share the continuing saga of our experience with PC, and our thankfulness at how things have progressed a year later. 
 
My husband too, had the robotic surgery with Dr. Jean Joseph in Rochester, NY, in October 2006.  His incontinence following cath removal was quite severe - he was using 8-10 daily of the thickest pads you can buy for the first 3 months.  The doctor had forewarned us that his incontinence might be greater and take longer to get under control because he is a robust man, and gravity works against you.  Even though his PC was caught very early and his prognosis was excellent, Thanksgiving and Xmas last year were quite dismal due to his being depressed because of the incontinence. 
 
He was off work for 6 weeks post surgery and was OK while at home - it was safe here and the bathroom was only a few steps away.  He did do his kegels and went for short walks around the neighborhood just to keep moving, but was not a fitness buff by any means.  He went back to work Thanksgiving week last year (he is a heavy machine mechanic in a factory) and his first day back, found he could not do his job because the pee was just pouring out.  He ended up being put on light duty work for several weeks. 
 
My brother said it best about kegels - you have these muscles that have been dormant all these years, and now they are called front and center to do a job they have never had to do.  It does take time to strengthen and tone these muscles.  However, after his first 3 month checkup In January 2007, he started making steady progress.  First, the number of heavy pads being used decreased, then each package bought were the smaller and smaller pads.  When we went back to Dr. Joseph for 6 month checkup in April, he was just using thin shields by then, mainly for confidence purposes.  Dr. Joseph took a folded up paper towel and had my husband stand up and cough hard...no pee.  Right after that, he stopped wearing the shields and has been fully continent.  He may leak a drop or two if he waits too long to empty his bladder and is in a contorted position trying to perform machine repair.  But by and large, he knows that the key to avoiding that is to empty every 2-1/2 - 3 hours.  He also sleeps thru the night and wakes up dry.  
 
He is able to perform all his job duties, as well as maintain our home, yard, and vehicles, and stays fully dry.  After reading some of the recent posts the past few days, I said to him, "you know, you were these guys this time last year".  Even though we are 3 hours from Rochester, he chooses to continue to go there because Dr. Joseph's staff is wonderfully supportive.  Mary (the physician assistant) keeps telling him he's normal in his recovery (both continence and sexual).  Although my husband is normally a very patient man, when it comes to this type of recovery and the fact that he is a man, no, he was not patient.  But he has learned patience.  We continue on our journey...this PC and its recovery has tested our marriage.  But we are strong together.  Sometimes I wish I could write a book about our saga, both the physical and emotional aspects.  I hope this post gives at least one person some encouragement.

 54 year old robust male
 PSA pre-biopsy 6.7
 Gleason 3 + 3
 Stage T1a
 DaVinci robotic laproscopic prostatectomy 10/11/06 Rochester NY
 post surgery pathology:  malignancy in less than 1% of samples
 first post-op PSA 1/07 undetectable
 second post-op PSA 4/07 undetectable
 third post-op PSA 7/07 undetectable
 fourth post-op PSA 10/07 undetectable


josal
New Member


Date Joined Nov 2006
Total Posts : 11
   Posted 11/23/2007 2:05 PM (GMT -7)   
Keep me posted on your progress and your follow up visit. I too am from the Binghamton area. Yes seven weeks is soon but I know it's not soon enough. Try not to let it consume you.
 54 year old robust male
 PSA pre-biopsy 6.7
 Gleason 3 + 3
 Stage T1a
 DaVinci robotic laproscopic prostatectomy 10/11/06 Rochester NY
 post surgery pathology:  malignancy in less than 1% of samples
 first post-op PSA 1/07 undetectable
 second post-op PSA 4/07 undetectable
 third post-op PSA 7/07 undetectable
 fourth post-op PSA 10/07 undetectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/23/2007 2:52 PM (GMT -7)   
Hey Josal,

Thank you so much for sharing you continence journey. It has to be a big help to those who are still descouragied by their progress.

You statement that "But we are strong togehter." explains very elegantly what our greatest strength and tool in recovery is - together we bolster each others confidence that we will get well, we cry with each other; sometimes in discouragement and sometimes in joy at some small step forward and we are always, always there for each other.

Please post your progress and encouragement so we can take strength from your strength. Lets all get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/24/2007 11:50 AM (GMT -7)   
Just some words of encouragement from one of the Long Term Leakers here. Just keep working at it. I know it is not fun but you just have to deal with it until you decide what is next. From all accounts the Artificial Urinary Sphincter (AUS) is a good option for those of us that may never get normal muscle control back. I am just holding out as long as I can before I give in. If I were older ( no offence to you ol guy's) it would be a simple choice. But at only 44 I do not want to give in so quickly. I manage and deal with the leaking. It does make you plan ahead and think before you drink. But for me it is still not that big of deal. You just have to do what is best for you.

Keep up the good work and try not to let it get to you.
KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!...Better with 100mg Viagra
   

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