Catheter Removal

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Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/24/2007 6:59 PM (GMT -7)   
Hello All,
 
On Monday I report back to the doctor to have a cystogram, supposedly an x-ray to tell how well the connection back to my bladder has healed. Hopefully, they are going to remove my catheter if things have healed.
 
It will be 17 days on Monday that I have had this catheter. I thought I had read that 7 to 10 days was about normal and I can't figure out why I have had to have it in as long as I have. I think part of it is because Dr. Herrell only does clinicals on Monday and the timing of my surgery being on Friday has cost me a few more days. I was told he wanted it in for two full weeks. I have had quite a struggle with the catheter these past 17 days. It seems to me that I have quite a bit of urine that runs down the tube and gets everything wet. Quite a bit has been going into the cath, but I am surprised at how much does not go into the cath.
 
I am sitting here tonight reading of the continence issues alot of you are having and it appears I could be  headed down the same path. I am having urine get onto my genitals and it burns and itches. I am using everything from neosporin, cortizone 10, anti fungal cream. and I am showering two or three times a day trying to stay clear of infection. I was hoping that when the cath was removed things would close off a little better and I would not leak as much. Now after reading some of these posts I am more than a little worried. This moisture and wetness is driving me crazy. I guess I should have expected it but I didn't know it was going to be this bad. I know all of you have probably experienced the same thing so I do not know why I am crying about it.
 
I guess it is safe to assume after they pull the cath things are just not going to stop leaking. I have been doing some keagles but I am confused as to how many to do as I have read some say you can do too many.
 
I have been trying to walk a mile or so a day but the leakage is so bad during the walk I can hardly stand it and with the cold weather it is even worse.
 
I am reading about artificial sphincters and other devices some of you are having to use to stay dry. I have also read about some of you becoming dry pretty quickly. I just don't know what to expect. I guess I will begin to know on Monday.
 
If anyone has advice for me at the stage I am currently at I would appreciate it. Maybe some suggestions on ways to fight the rash and itching or anything else.
 
I guess I just should be thankful that the cancer is out, but now that it is out I guess it is natural to want the next best thing which would be continence and erections. If I had to choose I would most assuredly choose to be dry.
 
 Sorry about the long post, just venting again I guess.
 
Thanks to all for the information you have given me in the past. I hope all of you can have a great holiday and get good news for your Christmas  presents.
 
Educator


 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/15/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 

Post Edited (Educator) : 11/28/2007 8:06:43 PM (GMT-7)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/24/2007 7:15 PM (GMT -7)   
Hey Educator,

There are no guarantees in this fight against cancer. You are not guranteed continence and certainly not guaranteed to have problems when the catheter comes out. All we can do is be patience and solve the problems one at a time as they occur. You can't solve anything right now so future tripping is futile. Venting about is healthy and be assured that you have many sympathetic ears here on the forum. Just remember that not all of us who chose surgery as our treatment had continence problems. Lots of guys that are dry early in recovery don't post because they feel that they are somehow showing up those who have problems. This could not be further from the truth. We need to hear of the successes that each of us have. And I will bet there are more successful continence stories than there are failures.

Hang in there. (No pun!!) And you will successfully conquer any challenge that this stinking disease throws at you...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/24/2007 8:09 PM (GMT -7)   

    Hey Educator,  I'm not sure you should be doing kegeals while you cathiter is in?  Mine was in for 23 day due to slow healing at the suiture sites.  I also had alot of leaking around the tube.  I used some sut up womens pads to wrap around the tube to help soak up the leaking.  My cathiter removal went easy.  The nurse released the fluid from the bulb and it just slid out.  No pain, just a little strange feeling as it comes out.  As far a incontenance I think everyone is different.  I happen to be one of the leakers.  All I can suggest is to use a quality pad that will wick the moisture away from your skin.  Change as often as you need.  Keep working on your kegeals after the cathiter is removed.

   Holler back and let us kow how you are doing.

    KW

  


    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!...Better with 100mg Viagra
   


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/24/2007 8:31 PM (GMT -7)   
Kw and biker,

Thanks for the replys I know there are no gaurantees. So many have so much more worse news than I, I do find it hard to post good news for myself.

Good advice biker I will try to stop the future tripping and take it one day at a time as you suggest. I suppose by your handle you own a bike, I am a biker as well meaning I ride a Harley. I wonder how much that is going to make me leak all that rumbling and shaking. I guess I will see once it gets pretty weather again.
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/5/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/24/2007 9:01 PM (GMT -7)   
Yeah Educator, I ride a Harley. It is my opinion that all that rumbling, shaking and vibrating is good for healing and should be prescribed for all PCa patients. (lol) I waited about 5 months before I rode after surgery. Mainly because it is icy for a long time in winter up here.

KW is probably your best source for continence issues as he has researched and experienced lots of options. Hopefully you will dry up soon after the catheter comes out.

Good luck...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 11/25/2007 12:19 PM (GMT -7)   

Hey ~ Educator,

 

Keep posting… no matter what!!!

 

We had Mr. Hang in for 17 days and feel certain we benefited from it.  We did not have the leaking as you describe.  But then again ~ we all have different issues.  Posting them is very important…  no matter what!!! 

 

Read each posting and learn from them.  They are here to give you knowledge and you pull the information as you need it.  Knowing what to expect is sure better than going into it blindly.  We expected leaking… and was surprised with our outcome.  Knowledge is Power and Power takes away the fear.  Don’t let the dark clouds push you away from continuing to learn from those who are willing to share.

 

Don’t feel like everything you read is going to be in your path.  There are so many stepping-stones in this journey with prostate cancer and having the information here is so important for all of us.  Good, Bad, and/or Scary. 

 

As Wittler would say….. STAY STRONG  and continue moving forward and pull the strength of positive thinking that we are sending your way.  Keeping you close in thoughts and prayers.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/25/2007 4:28 PM (GMT -7)   
As always thanks again Bluebird for the words of wisdom.

I think I must take things one day at a time and quit worrying about the future.

Educator
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/5/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 11/25/2007 8:22 PM (GMT -7)   
Educator,

You have a good pathology!  Everything else will heal in time.

Use a barrier cream (petroleum jelly) daily and an anti-fungal cream weekly.  I have found the fungicide in generic Tinactin works very well.

My surgery team always keeps the catheter in for 21 days to support the healing of the urethra sutures.  Most here report their physician leaves it in about a week.  If the physician is going to leave it in and you have leaking that does not just occur during a bowel movement (normal), the physician needs to reinflate the ball in the catheter near the bladder to increase the seal.

In the meantime, go ahead and start using the mens' liner incontinence pads to help you stay dry.  Controlling this "diaper change" procedure is very important to your demeanor!
I think especially while the annoyting catheter is in.
KEEP WALKING!  If necessary also add some women's 12 oz incontinence liners under the catheter at 90 degrees to absorb urine while you walk.

You can kegel some while the catheter is in but I think not so much as before or after.
The muscles will continue to strengthen but the catheter pushes back giving an artificail closure point and causes more fatigue.  I just did a few each day to keep the idea of these muscles in place.

Most here know how being incontinent is like having an infant in the house.
Keep your spirits up and when you feel bad, go ahead and cry and then rest and
   - KNOW THAT YOU WILL BE BETTER SOON!

Your Friend,

CCedar
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/25/2007 8:39 PM (GMT -7)   
Thanks Icthus, good advice I will heed.I hope 17 days will be enough. Tomorrow Iwill know.
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/15/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 11/26/2007 2:59 PM (GMT -7)   
Thanks Charlie I am now a 55 year old that pee's my pants. I am only five hours from having catheter removed. I hope things does get better.
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/15/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 

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