Just a thought. This is Jimmy V week.

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 11/28/2007 12:34 PM (GMT -7)   
We have started a new college basketball season and appropriately sports broadcast stations are dedicating this week as Jimmy V week.  I remember Jim Valvano's celebrity well.  I remember his iconic personality and incredible chamionship season as head coach at North Carolina State.  Jim Valvano died of metastatic Adenocarcinoma on April 28 1993.  He was just 47 years old.  His foundation has continued on "The V Foundation" in search of cancer cures.  I guess I should have listened to the man in '93 and maybe been more aware of what he was dealing with.  Jimmy V was not the coach of my favorite college team, but he was someone I wanted to see win his championship, long before he had cancer, because he represented the underdog to me quite well.  Here we are almost 15 years after his passing and I type here with locally metastatic adenocarcinoma found in my body.  I take solace in his bravery, and with his incredable speech just before he passed.  Some excerpts:
 
During his speech at the Espy awards, the teleprompter stated that he had 30 seconds to which Valvano responded, "They got that screen up there flashing 30 seconds, like I care about that screen. I got tumors all over my body and I'm worried about some guy in the back going 30 seconds." he went on..."To me, there are three things we all should do every day. We should do this every day of our lives. Number one is laugh. You should laugh every day. Number two is think. You should spend some time in thought. And Number three is, you should have your emotions moved to tears, could be happiness or joy. But think about it. If you laugh, you think, and you cry, that's a full day. That's a heck of a day. You do that seven days a week, you're going to have something special."..."Cancer can take away all of my physical abilities. It cannot touch my mind, it cannot touch my heart, and it cannot touch my soul. And those three things are going to carry on forever. I thank you and God bless you all." 
 
Jimmy V passed away two months later. But his motto for his new foundation is my motto: "Don't give up.  Don't ever give up."
 
Just a thought.
 
Revised:
ESPN actually put this out after my post this morning.  But I did get the idea for my post from them in an ad.
 
 
Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!

Post Edited (TC-LasVegas) : 11/28/2007 5:06:58 PM (GMT-7)


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 11/28/2007 12:44 PM (GMT -7)   

Being a big college basketball fan, I remember Jimmy V well, Tony. Every time I see a film of him making that speech it brings a tear to my eye. What a courageous man he was, a true inspiration and a man’s man. Thanks for posting that.


Age: 49
Diagnosed: March 25, 2007
PSA: 3.0
Biopsy: Gleason 6. Five of twelve core samples positive with <5% each. No perineural invasion seen.
DaVinci Surgery: May 21, 2007 at Florida Hospital, Orlando, Florida. Surgery took one hour and 45 minutes. According to my surgeon, everything went textbook and the prostate peeled away nicely.
Post-op Pathology Report: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes.
Continence: Out of the pads at five weeks. Still have some very minor stress incontinence at times but it's not an issue. Still Kegel every day and will continue to do so.
Erections: Yes! With the assistance of Cialis.
1st Post-op PSA: <0.1 2nd Post-op PSA: <0.1
Family history: My Father had his prostate removed at age 67 in 1997 and has had a <0.1 PSA for the past 10 years. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.
 
 
 


kdnole
Regular Member


Date Joined Jun 2007
Total Posts : 152
   Posted 11/28/2007 2:59 PM (GMT -7)   
The man was larger than life here in Raleigh and that speech still chokes me up.
Age 44
PSA 4.8
Gleason 3+3=6
T2
Biopsy - 3 of 12 (2@20% / 1@80%
Da Vinci 7/31/07 @ Duke
2.5 hr. surgery, released from Duke with in 14 hrs.
Saved both nerve bundles. 
Foley out 8/10/08
Positive Pathology Report 
Near left side nerve bundle
New Gleason 7
Oncology visit in the near future for radiation
Back to work 3 weeks following surgery - Sales
 
9/13/07 - 1 Post PSA Undetectable less than 0.1 
 
9/17/07 - Pad Free! 
 
10/11/07 - ED, Trimix injection .2cc Tooo much but it worked. Now on .05cc, 3 times a week
No luck with viagra or pump. 
 
11/19/07 - 5 mth. PSA 0.1 (Ouch)
12/14/07 - 1st Appt. with Medical Oncologist - Radiation here I                 come. (This sucks)  


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 11/28/2007 4:01 PM (GMT -7)   
Tony quoted:
..."To me, there are three things we all should do every day. We should do this every day of our lives. Number one is laugh. You should laugh every day. Number two is think. You should spend some time in thought. And Number three is, you should have your emotions moved to tears, could be happiness or joy. But think about it. If you laugh, you think, and you cry, that's a full day. That's a heck of a day. You do that seven days a week, you're going to have something special."..

Tony TC-LasVegas,

I laughed and cried at the same time just reading this quote!  Thanks.

Thinking of you and writing the Message of the Creator's unconditional Love above your door.

CCedar
ICTHUS!

veteran1
Regular Member


Date Joined May 2007
Total Posts : 133
   Posted 11/28/2007 6:50 PM (GMT -7)   

 

Hi Tony,

Thanks for a wonderful post. Coach Valvano was a man who won in life without being afraid to show love and emotion. He was a great coach and a better man. Was it really 15 years ago. Life is so short, but he drank the cup dry.

Vet


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 11/28/2007 8:30 PM (GMT -7)   
Tony, thanks for the prompt. Last year I wrote a similar entry in my blog:
http://prostatecancerat42.blogspot.com/2006/12/laugh-think-cry.html

I cried like a baby last year when I saw this on ESPN. However, it was a good cry, not a sad cry.
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (11-17-07)
PSA: 23
Lupron, Keto, Avodart

www.flhw.org


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 11/29/2007 6:44 PM (GMT -7)   

Hi Tony! Thanks for sharing! I looked up the speech on YouTube and thought it was extremely powerful too!  I am attaching the link below if anyone else is interested in watching.

http://www.youtube.com/watch?v=ePXlkqkFH6s


Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
HT to being Nov 07
Radiation soon to follow
 
 


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 11/30/2007 6:45 PM (GMT -7)   
God bless coach V

Mika

KMC51
Regular Member


Date Joined Jun 2007
Total Posts : 31
   Posted 12/1/2007 11:53 PM (GMT -7)   
Great message about Coach Valvano, but what is this about your own condition? Are there treatments for you now that weren't available to the coach?
Age: 56
Pre-op PSA: 10.2 (one lab) or 6.4 and 6.7 (another lab)
Da Vinci 9/20/07
Gleason 6
1st post-op PSA: undetectable
Continence: dry some days, typically a couple of leaks per day
Sexual: most nerves lost because embedded in enlarged prostate. Apparently some blood flow--some nighttime enlargement--very little response. Grateful for desire and orgasms. Just ordered pump; don't know what to expect from it. Great wife.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 12/2/2007 7:33 AM (GMT -7)   
I really couldn't tell you the differences since I don't really know what stage and cancer coach V was discovered with. In addition, I can't even assure his cancer was prostate related. He died from adenocarcinoma which can originate in the lungs, pancreas, prostate, colon, and other glands such as adrenal and thyroid. I am not certain why adenocarcinoma is a slow disease in prostate cancer but a fast disease in lung or pancreas other than it is usually symptomless and therefore discovered commonly at stage IV. That stated, if his cancer originated in the prostate, since 1993 there has been great strides in hormonal therapy and radiation is now a much more precise tool in oncology. So yes there are options for me that were not available in 1993 when coach V passed. For example, I had a PSA test. If he died from pancreatic cancer then he had no test to find it in the nick of time, like I at stage III still some have hope for.
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!

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