Surgery less than 30 hours agon

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RTR
Regular Member


Date Joined Oct 2007
Total Posts : 29
   Posted 11/29/2007 4:58 PM (GMT -7)   
Had surgery Wed morn back at home this afternoon.  I can honestly say that the prep was the worst part of it.  Had to take a regimen of antibotics that made me think I was going to die.  Retching all night long before surgery.  I was convinced they wouldnt move forward but as 5am approached the nausea subsided some and everything went according to schedule.
 
My primary complaints now are 1) my right side hurts a great deal, apparently this where one of the robotic ports were placed.  2) very shakey after walking for a few minutes 3) a little constipated.
 
I thought I would send this brief note to give you my initial reactions.  Those of you who said it would not be as bad as I feared were correct.  Fear of the unknown is powerful.
 
I'm trying to forego any additional paid meds other than Advil for fear the constipation will worsen. 
 
Thats all for now I will spare all additional comment until Im more coherent.
 
 
 
 
 
Diagnosed 9/07
Gleason 6  3+3
First PSA 4.1
2nd PSA 3.6
stage T1C
age 46
daVinci sch for 11/28/07
@ Univ of Ala Bham (UAB)


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 11/29/2007 5:29 PM (GMT -7)   
Hey RTR,

Welcome to the "other side". You are right. The fear of surgery and the waiting is the worst part. Congratulations on taking definitive action to get rid of the cancer. For me too it was the only way to go. Now you will get a post-op path reaport and know exactly what you are dealing with.

Take it easy, the pain will go away and you will have a lot of new sensations to deal with. Stay close to us and we will all get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 11/29/2007 5:33 PM (GMT -7)   
I had surgery 10/4 so here's my opinion for it's worth.  Your pain is gas pain and the hospital should have given you medication for that.  If you call the doctor's office they can call in a prescription.  I don't remember what the medication was, but it's not a narcotic.  If you just had the surgery you can't be constipated because you don't have anything in you.  I don't think that I had a bm for days.  If you really are constipated try the  apple juice first, then prune before you try medication.  If you still need more bs see my thread "Moma Always Said..."  If you have more questions answers are free, correct answers are a nickel.     "When the going gets tough, the tough get more fiber in their diet."

Post Edited (gtmriviera) : 11/29/2007 5:33:10 PM (GMT-7)


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 11/29/2007 5:35 PM (GMT -7)   
Glad to see you post surgery and on the mend. Get your rest and walk as you are able - that helps get the system back working!

Take care,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 11/29/2007 5:43 PM (GMT -7)   
You've made it across the bridge, RTR, we've been waiting for you. Welcome. Get some rest and count on feeling a little better each day. Get plenty of rest and report back whenever you feel like it.
Age: 49
Diagnosed: March 25, 2007
PSA: 3.0
Biopsy: Gleason 6. Five of twelve core samples positive with <5% each. No perineural invasion seen.
DaVinci Surgery: May 21, 2007 at Florida Hospital, Orlando, Florida. Surgery took one hour and 45 minutes. According to my surgeon, everything went textbook and the prostate peeled away nicely.
Post-op Pathology Report: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes.
Continence: Out of the pads at five weeks. Still have some very minor stress incontinence at times but it's not an issue. Still Kegel every day and will continue to do so.
Erections: Yes! With the assistance of Cialis.
1st Post-op PSA: <0.1 2nd Post-op PSA: <0.1
Family history: My Father had his prostate removed at age 67 in 1997 and has had a <0.1 PSA for the past 10 years. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.
 
 
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 11/29/2007 6:10 PM (GMT -7)   
Best wishes for a speedy recovery!

Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
HT to being Nov 07
Radiation soon to follow
 
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 11/29/2007 6:29 PM (GMT -7)   
Welcome to the other side of surgery! Glad to hear from you so soon. Take care and let your body heal. Remember, as you feel better than you expected . . .do NOT lift more than 10 lbs. . . .keep us posted we're here for you.
;o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb, May, Oct2007.  ONE YEAR!!!! WHOOO HOOOO! 

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1209
   Posted 11/29/2007 6:52 PM (GMT -7)   
Hi RTR,
 
There isn't much I can say that hasn't already been said, but welcome to "this side". Take it easy for a few days and then start doing your kegels and walks. No lifting except the odd glass of wine :-).
Wishing you a complete and speedy recovery.
 
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
Gleason's Score 3+4=7
Open RP 28 Nov 06
Catheter out 15 Dec 06
Dry since 11 Feb 07
1st PSA result on 15 March 07 = 0
2nd PSA result on 15 June 07 = 0
3rd PSA result on 12 September 07 = 0
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 11/29/2007 11:24 PM (GMT -7)   
RTR said...
My primary complaints now are 1) my right side hurts a great deal, apparently this where one of the robotic ports were placed.  2) very shakey after walking for a few minutes 3) a little constipated.
RTR,
 
1, 2, and 3 are normal based on what I have experienced and have heard about.   I didn't have as much pain as you're describing, but the location of the pain sounds like there's nothing to worry about.   You should feel free to call the doc with any concerns.
 
I'm so happy you made it through and took your BIG first step to healing!  Rest, do whatever steps are necessary to get back to shape over time, and ensure you don't strain or "push" yourself too much. 
 
Your body's been through a lot and needs a chance to heal.
 
Stay close and we'll be here.
 
Kind regards,
 
Barry

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007

My web site: http://pca-info.blogspot.com


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 11/30/2007 5:59 AM (GMT -7)   
Glad to hear your surgery went well.  It is a good feeling to get past it and the fear you feel before hand.  I still felt fear about getting the cath out, but each step of recovery is an unknown.  So hang in there and enjoy the fact that your cancer has been treated. 
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 11/30/2007 6:17 AM (GMT -7)   
See, we told ya! it wouldn't be so bad.  Welcome to the recovery
room. 
 
James C.

RTR
Regular Member


Date Joined Oct 2007
Total Posts : 29
   Posted 11/30/2007 11:40 AM (GMT -7)   

Hi all, second day out since surgery.  I've had a temperature spike 100.8 that makes me feel fairly crappy but Dr. says take pain med which will also lower fever.  Call back if fever reaches 101.5.  I've gotten up as much as I can but I can't really walk any lenght of time due to the pain in my right side.  If it wasn't for this isolated pain it would not be that big of a deal from a pain perspective.

The catheter is a nuisance but I/we are learning how to deal with it.  Since I havent been able to walk it hasn't presented too much of a problem.

Thanks for all the well wishes.  I've already made my 2 wk appt with the Dr. to remove catheter and get pathology reports.  As I get to moving around Im sure I'll have more questions, tips, trick etc on how to deal with catheter, etc.

 

RTR

 

'
Diagnosed 9/07
Gleason 6  3+3
First PSA 4.1
2nd PSA 3.6
stage T1C
age 46
daVinci sch for 11/28/07
@ Univ of Ala Bham (UAB)


CaPCa
Regular Member


Date Joined Aug 2007
Total Posts : 118
   Posted 11/30/2007 12:06 PM (GMT -7)   
I found the movements my penis on the catheter to be very annoying. The RN recommended Vaseline on the catheter where it enters the penis. Also, personally found that any retrograde movement of urine back into the bladder to be very upleasant. I spent a lot of time trying to avoid this by properly positioning the bag and the catheter when moving or resting.

Age:44
Father diagnosed and cured at age 52.
08/21/07: Diagnosed with T1c cancer
1 of 12 biopsy cores positive; 10% tissue
Gleason score: 3+3=6
PSA level prior to biopsy: 4.3 (velocity < 0.4ng/ml)
10/19/07: da Vinci prostatectomy by Dr. Vipul Patel at OSUMC.
              Difficult surgery due to prostate inflammation.
              Both nerve bundles spared.
              Spongy erections began within 24hrs of surgery!
10/24/07: Catheter out; down to 1 Serenity pad/day next day.
              Final pathology: neg margins, no capsular penetration,
              Gleason 3+3=6, 5% tumor involvement, multi-focal.
11/04/07  First usable erection with Cialis
11/22/07  Bye-bye, pads
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2246
   Posted 11/30/2007 1:37 PM (GMT -7)   
Congrats on getting thru to the post-surgery phase. From my own experience, I felt that every recovery problem I had was going to last forever, which it didn't. That caused some added anxiety.

I discovered this forum and reading/posting here helped to know I wasn't alone. I still read and occasionally post here 1 1/2 years post-surgery. Take care and hang in there...Tim
Age 59 PSA 2.6 (Quadrupled in one year) Gleason 5
Bilateral nerve-sparing RRP 6/21/06
Cancer confined to prostate, post-op PSA's non-detectable


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 11/30/2007 6:29 PM (GMT -7)   

Glad to see you on the other side.  Don't rush things and don't overdo it.  Walk as much as you can and when you feel tired, stop and take a rest.  Don't work yourself till you feel sick.  Take care and hope you have a great recovery.

 

Mika


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 11/30/2007 9:33 PM (GMT -7)   
Congrats on making it through the surgery!!  One suggestion I have is to avoid Advil as a pain med. right now.
Ask your doctor, but I think my doc. told me to take Tylenol because Advil tends to thin the blood and can inhibit the healing process.

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 11/30/2007 9:46 PM (GMT -7)   
A few more things.
1) You will have some discomfort/pain from the surgery/gas for a few more days.
2) I was also shakey after walking during the first few days and sometimes became a little light-headed when out at the mall etc. through the third week or so. So, TAKE IT EASY!!! GIVE YOURSELF A FEW WEEKS TO RECOVER!! TIME WILL FLY!!
3) Don't be shy about taking a stool softner if you need it. In my case, I found it better to be "loose" in the morning, than dealing with constipatiion. I was doing warm prune juice followed by a large glass of water each morning for about three weeks -- a guaranteed floodgate opener!
4) At times, during the first six weeks, I wondered if I'd ever feel the same again and I did.

So hang in there. You're doing well and you'll be fine.

D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 12/1/2007 9:37 AM (GMT -7)   
RTR,

You will feel better each day.
Yes, as Piano Man said, only take Tylenol/Acetamenaphine for fever.
  Aspirin and Advil are verboten.

Drink extra water to help flush the anesthesia out of your system - no time to drink a lot of water as when you have the catheter in.......

I recommend reading Bluebird's "Journey" found in Lee/Bluebird's signature for some extensive advice on dealing with the catheter. 
There have been several clever ideas for dealing with the bag while sleeping.
Gravity is important and someone's idea about an empty 5 gallon bucket by the bed to hook the bag on seemed like a good idea.
Regardless, as Susan said - WALK!
Walk as you are able.  A little more each time.  A few more times each day.
If your catheter is to be left in two weeks, you could be up to maybe one hour walks by then.  Many here walked a lot more before the catheter was removed.
Walking will make your body stronger in general and gently "massage" the pubic area that will be sore - at least in places - for some time.  There is a lot to heal down there.
Otherwise, rest and take it easy.

Your full-time job for awhile is to deal with the catheter, walk, and REST!

CCedar
ICTHUS!

2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
At 6 months, ED treated with Pump Exercises & 50mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 12/1/2007 9:49 AM (GMT -7)   
tongue   Hey RTR,

Welcome Home!!!  It really is good hear from you!  All of the above replies are right on!  Can’t add more to them ~ so will send a special hug your way.  Keep moving forward and stay close! 

http://i206.photobucket.com/albums/bb179/mamabluebird1955/BluebirdStayClose.jpg

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


KMC51
Regular Member


Date Joined Jun 2007
Total Posts : 31
   Posted 12/1/2007 10:31 AM (GMT -7)   
I wasn't prepared for the constipation problem after my Da Vinci surgery. For the first few days, stool softeners didn't help, nor did the effervescent laxative. I was pretty uncomfortable, and I was always very regular before. Finally a doctor recommended warm prune juice with butter melted in it. What a relief! I had to run to the toilet a couple of times during the morning, but it was worth it. I hope it doesn't get to that point for you.
Age: 56
Pre-op PSA: 10.2 (one lab) or 6.4 and 6.7 (another lab)
Da Vinci 9/20/07
Gleason 6
1st post-op PSA: undetectable
Continence: dry some days, typically a couple of leaks per day
Sexual: most nerves lost because embedded in enlarged prostate. Apparently some blood flow--some nighttime enlargement--very little response. Grateful for desire and orgasms. Just ordered pump; don't know what to expect from it. Great wife.


RTR
Regular Member


Date Joined Oct 2007
Total Posts : 29
   Posted 12/1/2007 1:36 PM (GMT -7)   

Hopefully one day I can be a contributor of information in this forum instead of just a taker. I do have another question.  I've got lots of dryness on and around the scrotum.  Forgive my ignorance but since now I have no prostate will this in turn make the scrotum feel differently?  So far I've tried to treat the dryness with a water based lubricant.

Also: Third day after surgery.  Been the best day so far.  Pain in my right side while still there is not as great or long lasting as the day before.  I think I'll be able to walk now that this pain is dissipating.  This forum is great because it conveys that most every problem has been experienced by someone and most of these problems will go away. I'll remember not to use Advil.  We were probably told that but both my wife and I were so groggy by the time we left the hospital I'm sure some info slipped past us.

I am using the 5 gallon trash can idea to support the catheter bag at night.  Great idea.  

 


Diagnosed 9/07
Gleason 6  3+3
First PSA 4.1
2nd PSA 3.6
stage T1C
age 46
daVinci sch for 11/28/07
@ Univ of Ala Bham (UAB)


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2246
   Posted 12/1/2007 2:10 PM (GMT -7)   
The prostatectomy doesn't create any changes in your scrotum.  Water-based lubricants should be helpful for dryness.   Take care and hang in there...Tim
Age 59 PSA 2.6 (Quadrupled in one year) Gleason 5
Bilateral nerve-sparing RRP 6/21/06
Cancer confined to prostate, post-op PSA's non-detectable


PianoMan
Regular Member


Date Joined Feb 2007
Total Posts : 365
   Posted 12/1/2007 10:21 PM (GMT -7)   
RTR: You will have discomfort and unusual feelings down there for a few weeks. It's different for every guy. In your case, it's your right side. (I heard that the right portal is where they insert the surgical instruments, which might explain your situation.)
In my case, for about four weeks post-surgery, my right testicle felt like it had a 5-pound bag of potatoes hanging from it. It was aggravating, but tolerable. I had no swelling in the testicles and I had an ultrasound of the area that was negative.
At four weeks, when the internal swelling goes down, incontinence can re-occur for some guys. Not to worry -- that resolves too, if you had prior control.
From four to six weeks, you may sense a feeling (or some feelings) down there that are very weird, but not painful. I felt like  there was a finger trying to poke its way down out of my crotch. It would start at the base of my scrotum and work its way south to the top of the crack of my you-know-what, and then go away. This happened occassionly for about two weeks. No discomfort, but very unusual. That was the last of my mysterious sensations.
I hope this helps you, and/or anyone else reading this.
Take it easy....you'll be fine.


D.O.B - 8/9/52

PSA: First ever was 9.8 in late Oct. ‘06, two weeks later, 10.1

DRE: Negative

Biopsy results 11/22/06.  Both lobes involved.  Six out of eight cores positive - from 100 percent to 90, to 60, to 50, two 20s and two zeros.

Gleason 3+3 = 6

Da Vinci Robotic RP surgery, City of Hope, Jan 12, 2007

Post surgery pathology – Organ confined, Gleason still 6, margins clear.  Volume of tumor much less than biopsy suggested.  12 percent overall.

First post-surgery PSA -- Undetectable, 2/20/07

Second post-surgery PSA -- Undetectable, 9/11/07

Post Edited (PianoMan) : 12/1/2007 10:54:54 PM (GMT-7)


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 12/2/2007 5:33 PM (GMT -7)   
You may want to try flushable moist wipes.  They are a little like what we used to wipe off babies with, but better.  One brand is Cottonelle.

Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 12/2/2007 6:07 PM (GMT -7)   
Sorry you are going through discomfort since your surgery. Every one has offered good advice. Hope everything markedly improves soon!
Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 

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