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Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 12/2/2007 8:52 PM (GMT -7)   
Thanks to all of you for your posts. I have been reading here for the last week or so. At times scared to death, at times very hopeful. I know it's all part of the process.
Me: 47, married, two kids, 14, 6. Father died in April of prostate cancer.
My Dr. has been doing PSA's for years just cause. In Jan, mine was 4.6. Biopsy shows nothing, but hi-grade PIN.
Oct. PSA was 5.06.   Nov. 2 biopsy found one core positive - 20% of the sample. 3+3=6 gleason.  Very early, they say/hope. I will do surgery.
Anyone have anything to say re: Sloan Kettering in NYC vs. NY Presbyterian/Columbia Univ? Hope to have DaVinci in NYC. i live an hour north of city.
 
I have an appointment with both. Also seeing Aaron Katz (Prostate health book) for any other ideas.
 
I bought Patrick Walsh book.
 
Talk about life changing in an instant!  I very grateful this place is here!
Thanks
Paul

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 12/2/2007 9:45 PM (GMT -7)   
Paul-
As many will tell you, sorry that you are here, but welcome.  First and foremost, I am sorry about the loss of your father. 
Second, kudos to you for being on top of your PSA and hopefully it is in the very early stages! It sounds like you are on top of the decision making process and have obviously found a great resource in this forum.  I do not have any experience with either facility, however, it sounds like you are doing everything possible to get the best medical advice.  The best advice I can give is study up and be your own advocate. 
 
May peace and strength be with you on this journey! God bless!
 
Chayna
Father's Information
DX July 15, 2007
Age 62 (now 63)
PSA 5.5
Original Gleason 3+4=7 
Post Surgery Gleason- 4+3=7
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin
One positive node
Bone Scan/CT Negative (Sept. 10, 2007)
T3a N1 M0
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
HT to being Nov 07
Radiation soon to follow
 
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/2/2007 11:21 PM (GMT -7)   
Hey Paul,

You are ahead of the game because it looks like you caught it in its early stages. Good for you for being on top of the situation. Sorry about your father, mine died from PCa also. I was in my early 50s then and started having annual PSA tests. It finally showed up 20 years later but I too caught it in the early stages.

Do your research, talk to you doctors, get close to your loved ones, make a treatment decision and go for it. Don't ever look back. Cancer changes our lives but its not all for the worse.

Please stay with us. We can get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 12/3/2007 9:07 AM (GMT -7)   
Hi Paul,
Those are some great doctors there where you've researched. I've learned through all this that a solid doctor with ample experience is all you need to get through this part. You've done a nice job on research and it certainly helps to go to battle with the upper hand of knowledge. Good Luck, and don't be afraid to ask any question here.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 12/3/2007 9:15 AM (GMT -7)   

chas036 says:

 ""was that I have no ED problems what so ever and can get a full and hard erection without drugs. But you know what?,,,,it is completely worthless to me becuase of my incontinence.  Because I drip so much and when I an orgasm I ejectulate urine, my wife wants nothing to do with me until I stop leaking. ""

Charlie, I am having the same problem with peeing while being stimulated or during sex.  I found a solution for me-a set of penis tension rings, specifically the Encore ImpoAid system.  This system is 4 sized rings, lube, and a cone and adapter applicator for placing the tension ring on the penis.  This system is for those who are fortunate enough to be able to get erections without pumps or injections, but who want or need to keep the blood in the penis for some time.  The tension rings are sized such that you should be able to find one that will keep you from peeing while erect or having sex, by clamping off the urethea and preventing urine from escaping while the ring is in place.  I found the size needed to keep me from peeing is small but is pretty comfortable when in place.  Maximum time to have it on your penis is 30 minutes.  It takes a little  practice and experimenting to make it work good every time, but this may be what you need to allow for sex and keep your wife happy and comfortable with sex with you. Wearing a proper sized one of these is more confortable for me than using the Vacurect washer type rings.  Just 16.17 plus 6.95 or so shipping here:

http://www.jrsmedical.com/RINGS/ENCIA4/product.aspx?s=gaw&kw=ENCIA4&gclid=CKPnppW-jJACFQGnPAod5DU2uA

The tension ring is placed onto the cone, which is fitted into the recess of the sleeve.  The ring is pushed down the cone, onto the plastic sleeve, the sleeve is placed on the erect penis and the tension ring is rolled off the sleeve onto the base of the penis.  The included instructions are clear and precise.  Hope this helps your situation.

James C.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 12/3/2007 10:21 AM (GMT -7)   
Welcome, Paul.  Hate you have to be here, but its a good place to be, nonetheless.....

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly-no joy 
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  ED-continue 25mg Viagra, no response, begin Vacorect pump-
11/15/07  1st PSA 0.01


Montana Raised
New Member


Date Joined Nov 2007
Total Posts : 13
   Posted 12/3/2007 1:16 PM (GMT -7)   
Hey Paul

I am 48 and just had my davinci last monday - i highly recommend it - seek it out and even
fly to a hospital that has it. I had minimal pain afterward and was up and walking the next day. And, to my relief, am experiencing sensation in my lower penis area. This was a big concern for me and due to the accuracy of this surgery, there is much "nerve-sparing" during the surgery.
Hang in there brotha, I know every thing you are experiencing - fear, anxiety, etc. Put your hands in an experienced surgeon and "tuff it up" as they say in Montana and you will come through.

Good Luck
Bret
Phoenix, AZ

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 12/3/2007 2:08 PM (GMT -7)   
Paul, welcome to Healingwell.
This has been the best place for me to find refuge amoung the brethren with this disease. If you can, in the control panel, you can add a signature and tell us a little about your ordeal. It helps you get the people who have had experiences similar to yours. You can see my numbers below and I always look for those who ride this journey who experience what I have. We have two very wonderful moderators here, Bluebird, and Idahosurvivor but both are either travelling or very busy at work. I am certain you will see a heartfelt greeting from them. Until then I and obviously many others welcome you here. Good luck to you in your trek to remission. God Bless and stay close.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


Montana Raised
New Member


Date Joined Nov 2007
Total Posts : 13
   Posted 12/3/2007 2:38 PM (GMT -7)   
thanks tony!!!
Age 48
Diagnosed September 11, 2007
Stage II Cancer
Pre-op PSA was 6
Surgery on November, 2007

DaVinci Technique used to remove prostate and seminal vessels.

(Currently working on newsworthy article that includes my diary of the last 4 months. Purpose is to provide insight on the entire process for those that have or are going through this similar experience)

To everyone going through this remember: Stay tough, stay positive, surround yourself with positive friends and know that: "this too shall pass"!

Peace!


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/3/2007 8:18 PM (GMT -7)   

Hi ~  Paul1959 & Loved Ones…

 

Welcome   to…   ~ HealingWell ~

 

and

 

A   Special   Warm Welcome  to  You !

 

Knowledge gives us POWER….  POWER takes away the fear.

 

~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~     ~

 

Click on the link just below for important information that will help you ~ help us!!

 

Welcome New Members ~ to HealingWell

 

The information (link) listed above is to help you get started on your journey.

It is a journey best traveled with friends.

Welcome ~ New Friend from all the members here... on HealingWell.com

 

v      IdahoSurvivor ~  Moderator for Prostate Cancer Forum

http://farm2.static.flickr.com/1160/1313099593_9f819e3ff8.jpg

 

v      bluebird ~  Moderator for Prostate Cancer Forum

http://i206.photobucket.com/albums/bb179/mamabluebird1955/mamabluebirdWelcome.jpg


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/3/2007 8:25 PM (GMT -7)   

Hi Paul ~

We’re sorry for the reason you’re with us, but so glad to have you here!


Please feel comfortable to share as if you’ve always been here!  The more information you are able to share with us, the better your new friends on HealingWell can respond to you.

 

I had the da Vinci robotic surgery recently, as many others have had, and I am very satisfied.  I think this method is a very good surgical option offering a quicker recovery rate for those who have a compatible diagnosis and appropriate health profile.

 

Ask any of us anything you like about this procedure and pre-surgery and post-surgery facts, as you study your options.  I look forward to hearing more from you.

 

Finally, a very warm welcome to you!

 

We're keeping you close in our thoughts and prayers.

All the best,

 

Idaho


"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007

My web site: http://pca-info.blogspot.com

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