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Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 12/5/2007 8:35 PM (GMT -7)   
 
Hello all,
 
I am now one month post surgery. I have been using about
1\3 one third of a levitra tablet now for one week as instructed by my doctor. So far I have not felt anything on that small of an amount. He suggested that I take a whole tablet after the second week of taking the partial tablets. My question is, if a full tablet does me no good, should I then start using a penis pump?
 
Does anyone have any advice as to which pump to buy and where do I get one. I googled penis pump and got a bunch of stuff for penis enlargement but there are so many offered I didn't know which one I should order. Should I get a hand pump or motorized?.
 
What brand worked best for you and where did you get it. Cost is not a factor  as I want to get one that will be effective on that little booger.
 
Am I jumping the gun on this after four weeks. Is it too early for a pump?
 
I would appreciate any info you may have on this.
 
Educator
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/15/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 12/6/2007 7:33 AM (GMT -7)   

From my reading here and speaking with my Doc, most people start pump therepy from 6 weeks to 3 months after catheter removal, after trying some sort of ED pill.  The thing to remember is at one month post surgery you are not healed internally and you still have loads of stitches still holding your bladder and urethea together, which needs more time to heal completely. My Doc said it would take a minimum of 3 months for all my surgical sites to completely heal internally.  I think one month post surgery is to early, but it's your decision, hopefully made with consult and approval of your surgeon or urologist.  No need to rush things, your recovery of ED most likely will be a longer process than the more fortunate men here experience. 

The front runners here seem to be the Vacurect and the Osbon, both of which are pricy.  Several people use the cheap and seemingly just as functional Encore ImpoAid Manual device for around $75 and say it works just as well.  Here's a link to a good selection of choices to give you an idea of whats out there and their prices.  All of these are approved medical devices with built-in safety feature, rather than some of the adult toy products seen during a web search.  Hope this helps. 

http://www.fitzz.com/Vacuum-Erection-Devices-C160.aspx

 

James C.

 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/6/2007 7:53 AM (GMT -7)   
There is no standard for when to move on to other methods for ED once you have started the medications and no results. At my six week post op appointment and after I had been using Viagra for three weeks with no results my urologist discussed both the pump and injections with me. He recommended the injections because he felt that I was highly motivated to get return of erections. I opted for the pump and he provided a prescription. He gave me a prescription for both the Osbon and Vacurect. I opted for the Vacurect. Insurance paid 80% of the cost. After about six weeks of using the pump I decided that I could handle the injections. I used the pump a couple of times a week after starting injections and now I do not use it at all. For me the rings on the pump and the engorgement produced by the vacuum were more uncomfortable then the pin prick from the needle. But you have to try the pump to know whether or not it is for you. The pump also allows you to rehab the penis a couple of times a day while the injections you can only use every three days.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/6/2007 8:31 AM (GMT -7)   
Educator,

Paul was given a script for a pump when his cath was taken out and began rehab with it less than 2 weeks after surgery. He started dialy oral meds for 1 year at the same time and shots at 8 months. Timing of the shots were his choice.

Remember..Shots work well however, tend ot be more painful sooner than 3 months post-op according to most studies. Secondly, oral meds help ED. They are not meant to be the instant cure for postoperative men. When the nerves heal as time passes, reliability of oral meds improves. Thirdly, this stuff takes time! For a while at least, venous leakage is an issue for most men. Do not get too worried if the penis rings (with the pump) won't hold an erection very long for a while. That too is normal. ED meds on average do not work well for 9 months to a year.
Be patient and hope for sooner rather than later. In the mean time just be creative, keep up on the rehab and use shots when you're good and up to trying them. Most guys love the outcome. It all takes time :>)

Be Well, Swim
 


pm10000
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 12/6/2007 9:14 AM (GMT -7)   
I have spent the last month trying to get my insurance company to cover a vacuum device, but to no avail. Since I'm going to have to buy one out of pocket and my funds are not enormous, I'm going to have to consider one of the less expensive pumps. What are the disadvantages of the lower end of the cost spectrum? Other than the tension ring designs, I really don't see significant differences in the models.

Do any of you have strong feelings about pumps that I should NOT buy because of design flaws/inconveniences?

Thank you.
Age Diagnosed: 44
PSA: 3.7 in Nov. 2005 (negative biopsy)
PSA: 6.3 eight months later in August 2006 (positive biopsy)
Radical Prostatectomy: Nov. 30, 2006
Pathology: Gleason 7 (3+4); no margins
PSA undetectable after three draws
ED still a problem with nerves bundles spared, alas


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/6/2007 10:16 AM (GMT -7)   
Rejoyn is a decent product. Vacurect and Soma are 2 other more common pumps. Paul uses/used both the vacurect and the Osbon. One insurance paid for, theor other we did. Both worked fine hwoever the Vacurect is a tad more portable.

Also, there is a place in Ann Arbor Michigan called Danmar Products (1-800-783-1998) that sells rebuilt pumps. Ask for their pump expert and see if there is a reasonably priced rebuilt pump availabe. The owner of Danmar is a PCa survivor so he has a bit of a special interest. Ask about the Danmar Sleeve too! Good Luck to you.

Swim
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/6/2007 11:24 PM (GMT -7)   
I have the Osbon Erecaid Esteem.  I use it for rehab as directed by my surgeon.
 
It is easy to use and I believe it is very safe.  If your insurance won't shell out the $500 like mine did, then you have an alternative.  The Osbon Erecaid Classic.  This device often retails for less than $200.  The problem is finding one.  However, I called Osbon and they said that the "Classic" is just as effective as the more expensive "Esteem" model.  The "Classic's" warranty is for a shorter period than the "Esteem."
 
You can order the "Classic" and other Osbon products here: link to online shop here
 
You can also use google to find more info by searching for "Osbon Erecaid Classic"
 
Hope this helps!
 
All the best,
 
Idaho
 

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007

My web site: http://pca-info.blogspot.com


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/7/2007 5:33 AM (GMT -7)   
Anyone looking for a way to make those pesky rings more comfortable? The Danmar sleeve may be a good choice. It's a cuff of soft (coated) foam that holds the constriction ring. I've heard so many say how miserable that ring is. Maybe the sleeve will help.

Swim
 


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 664
   Posted 12/7/2007 10:31 AM (GMT -7)   

I'll be darned if I can see any difference between the high priced pumps and the more moderatatly priced.  I looked at all the pictures and read all the descriptions and then decided to buy one on-line for about $60.  It works just fine.  I ordered the manual pump.  I had visions of an "out of control" electric pump motor attacking my precious privates.  There seems to be so little we seem able to control in our lives, so I thought a manual pump was one of them.

I do have an active imagination. It might be nice to hear from experienced users that the electric pump is ok (or not)  lol :-)


 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
no continence problems
Back on the golf course...
90 day PSA  less than 0.01 (undetectable)
Six Month PSA still undetectable
Dealing with ED problems with Caverject/Viagra
nine month psa slightly elevated + .02
 
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 12/7/2007 11:31 AM (GMT -7)   

lifeguyd:

I read that the automatic pumps are designed for those who don't have the strength, flexability or mobility to handle the pump manually.  Persons with MS, paralysis, chronic weakness, etc. 

James C. 


edpumpersandals
New Member


Date Joined Dec 2007
Total Posts : 1
   Posted 12/7/2007 3:16 PM (GMT -7)   
In reply to post by James C. with the Fitzz link for the vacurect. My husband and I have further researched the vacurect system as an option for us and found that the Fitzz group is a 3rd party rep for the Vacurect. If you go to www.Bonro.com or call 866-692-6676 this will get you directly to the manufacturer and they are the ones who will do all the support for the product also. We liked this as an option instead dealing with a 3rd party.

pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 12/7/2007 5:27 PM (GMT -7)   

Hello all,

I got the Vacuret and am very happy and just thought I would pass along a link to where I had talked about it more...

http://www.healingwell.com/community/default.aspx?f=35&m=971533&g=972345#m972345

The tension rings do have somewhat of a "sleeve" on them making them more comfortable than some other rings types.  I also got it for $172 in a "package" with a couple of "Better Sex" dvd's from Sinclair Institue on the web.

God Bless!

pasayten 

 


Age 59 y/o - Last 3-4 years of annual general health checkups - PSA 5-6
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 Diagnosed as T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx,   approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks post-op incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
7/30/2007 ED improved to about 60% erection and "functional". Only using 50mg Viagra generic every 2-3 days.
9/10/2007 Ran out of pads one day and had no dribbles all day...  Now pad free. :-)


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 12/8/2007 9:37 AM (GMT -7)   

Passayten,

You had mentioned in the above message that you received a couple of "Better Sex" dvd's from Sinclair Institute.  Have the content of the dvd's helped regarding someone with ED?

And are they as descriptive with folks like you and I or are they simulated actors?

Thanks for your response,

Marc

 


64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Tried Viagra 100mg on occasion-no erections.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25 to 11/6/07.
Vacuum pump daily/twice a day 8/2 and going - no help.
Begin Trimix injections, two low dose per week, 11/05/07.
Currently, vacuum pump and low dose Trimix twice per week each.
Trimix in office - 0.10cc.  Low dose set at 0.05cc
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
 
Geon


Educator
Regular Member


Date Joined Oct 2007
Total Posts : 37
   Posted 12/8/2007 9:21 PM (GMT -7)   
Thanks to all for loads of informatin

Educator
 
Diagnosed 10/15/2007
Age 55
PSA 4.2 9/15/2007
PSA 3.9 10/1/2007
Pre Operation TC-1
 
Prostate, Transrectal Needle Biopsy 10/05/2007
 
Results 10/15/2007
 
A-D Right Base, Right Mid, Right Apex, Left Base;
Benign Prostatic Tissue
 
E. Left Mid; Adenocarcinoma, Gleason's Grade 3+3=6, 10% involved
 
F. Left Apex; Adenocarcinoma, Gleason's 3+3=6, Less than 10% involved
 
2 of 12 involved as two samples were taken from each area.
 
Pre-operational PSA 6.5
 
 11/9/2007 Robotic Surgery
11/16/2007 recieved pathology report
 Everything negative for malignancy
 
 Both Nerve Bundles Saved
 
 
 


pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 424
   Posted 12/10/2007 4:24 AM (GMT -7)   

Marc,

Regarding dvd's...   They are both slanted towards improving communication and sex for couples in the 40+ range...  and we actually found them informative and tastefully done...   Used a variety of couples mostly in the 40+ age group who appeared to be quite natural.   dvd's formatted in a series of chapters regarding all phases of sex between couples, foreplay, positions, techniques, communication, ...    There are also optional sections on the dvd menu to discuss some of the more non-traditional forms of sex between couples.

The overall theme was to not let sex for a couple to become stagnant and routine,  but to keep it fresh, adventuresome, and healthy thru our later years.   ED subject was covered to a degree in some of the chapters and a few suggestions made including easing the tension of it between a couple.  Overall,  it does provide a definite opportunity to enhance discussions on the matters of sex between a couple and in that case could be another helpful tool in the overall recovery process for some couples.

pasayten

 


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 12/10/2007 5:53 AM (GMT -7)   

Thank you so much Pasayten,

Marc


64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Tried Viagra 100mg on occasion-no erections.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25 to 11/6/07.
Vacuum pump daily/twice a day 8/2 and going - no help.
Begin Trimix injections, two low dose per week, 11/05/07.
Currently, vacuum pump and low dose Trimix twice per week each.
Trimix in office - 0.10cc.  Low dose set at 0.05cc
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
 
Geon

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