Post op PSA undetetctable!

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41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 12/6/2007 7:49 AM (GMT -7)   
I got my test result back right before Thanksgiving.  I meant to post it before we went away for the holiday and have been busy since I got back.  Sure is a good feeling.  I hope someday to feel more like my old self again. 
 
The injections work and are really not difficult to administer like I thought they would be, but it ain't like it was before surgery when I didn't have to think about it, plan it, or wonder how long it would last.  I am using a tiny dose (.02) ml which makes it more "normal" cuz it goes down in a reasonable time.  Who the heck has time for a 2 hour hard on?  With such a low dose, the nurse said it was safe to do every day...hmmm, now there's a thought to ponder :) 
 
Incontinence is very minimal.  However I still feel I need a pad.  I wonder if any guys experience this...after I go to the bathroom, it seems that getting those last drops out is difficult.  And heck, today if you stand at a public urinal shaking it too long , someone's bound to call the cops!  But seriously, it seems that's my worst time of incontinence.  I finish and zip up and then there comes that drip.  That's why I feel I still need the pad.  And the very occassional stress incontinence drip too. 
 
Good luck to everyone here.  Will take time to catch up on other posts soon!
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


Ripandburn
Regular Member


Date Joined Aug 2007
Total Posts : 125
   Posted 12/6/2007 8:55 AM (GMT -7)   
41diagnosed,

Good news on the undetectable PSA. Hope you have many more. A question for you....

I started the injections a week ago. First one was Caverject in the doctors office. It was 10 mcg. It hurt a lot, and the amount must not have been enough. I asked him for a prescription for Bimix. He wrote me one for that and the Caverject. He wanted me to use .5 of the Bimix twice/week. The first time it was wonderful. No pain, and a rock solid erection just like I remember it pre-surgery. It lasted about 1 1/2 - 2 hrs before it started to deflate. The second experience was also with .5 of the Bimix. It was also rock solid, but took at least 2 hrs before it started to deflate. It took about 4 hours before it was back to a somewhat normal state.

I want to continue the rock solid erections....they are great, but I don't want to have to have an erection for so long. If I reduce the amount of Bimix will I still have a rock solid erection that won't last as long, or will the hardness and length of time the effect will last go "hand-in-hand"....so to speak?
51 years old
T1c 3+3=6
DaVinci July 16, 2007
largest cancer .2mm
Bladder Sling installed during prostate removal
nerve sparing with both nerve bundles intact
all cancer contained within prostate nothing near margins
PSA after 6 weeks <0.1 - undetectable
PSA after 4 month .07 - undetectable
11 weeks post-op - no more pads


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 12/6/2007 10:22 PM (GMT -7)   
i am doing trimix.  not sure of the difference from the other meds.  i found that the smaller dose seems to not last quite as long but still has a good effect as far as erections go.
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/6/2007 10:30 PM (GMT -7)   
Hip Hip Hooray!!! tongue
 
41 Diagnosed... terrific news on the PSA!
I sincerely hope you have many, many more "goose eggs" to come!  yeah
 
ALL THE BEST TO YOU!
 
Idaho

"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007

My web site: http://pca-info.blogspot.com


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 12/6/2007 10:32 PM (GMT -7)   
thanks Idaho. It is a milestone to celebrate. I wish the same for you and everyone here.
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 12/7/2007 9:22 AM (GMT -7)   
\O/ \O/ \O/ Congratulations on your first post-prostatectomy non-detectable PSA. That's what we like to see!! Take care and hang in there...Tim
Age 59 PSA 2.6 (Quadrupled in one year) Gleason 5
Bilateral nerve-sparing RRP 6/21/06
Cancer confined to prostate, post-op PSA's non-detectable


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/7/2007 10:13 AM (GMT -7)   
Congrats 41,

We all love those zeros.

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


kdnole
Regular Member


Date Joined Jun 2007
Total Posts : 152
   Posted 12/7/2007 11:59 AM (GMT -7)   
Congrats on the ZERO my friend!
I do wonder why you only have to use such a "small" dose of trimix. hahaha
Talk to you soon!
Age 44
PSA 4.8
Gleason 3+3=6
T2
Biopsy - 3 of 12 (2@20% / 1@80%
Da Vinci 7/31/07 @ Duke
2.5 hr. surgery, released from Duke with in 14 hrs.
Saved both nerve bundles. 
Foley out 8/10/08
Positive Pathology Report 
Near left side nerve bundle
New Gleason 7
Oncology visit in the near future for radiation
Back to work 3 weeks following surgery - Sales
 
9/13/07 - 1 Post PSA Undetectable less than 0.1 
 
9/17/07 - Pad Free! 
 
10/11/07 - ED, Trimix injection .2cc Tooo much but it worked. Now on .05cc, 3 times a week
No luck with viagra or pump. 
 
11/19/07 - 5 mth. PSA 0.1 (Ouch)
12/14/07 - 1st Appt. with Medical Oncologist - Radiation here I                 come. (This sucks)  


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/7/2007 12:09 PM (GMT -7)   
Nice...Very Nice :>)

Swim
 


CaPCa
Regular Member


Date Joined Aug 2007
Total Posts : 118
   Posted 12/7/2007 1:30 PM (GMT -7)   
I have had the drip after urinating both before and after radical prostatectomy. However, I am now even more conscious of it, especially while my continence was still improving. My urologist explained that often urine can collect where the urethra is at its lowest point in the body, before it travels up and out the penis. His advice, which has worked well for me, is to apply pressure to the perineal area (behind the scrotum) which tends to push up on this low point in the urethra. With a little practice, I found I could do this at a urinal simply by reaching a few fingers back without causing attention.

Age:44
Father diagnosed and cured at age 52.
08/21/07: Diagnosed with T1c cancer
1 of 12 biopsy cores positive; 10% tissue
Gleason score: 3+3=6
PSA level prior to biopsy: 4.3 (velocity < 0.4ng/ml)
10/19/07: da Vinci prostatectomy by Dr. Vipul Patel at OSUMC.
              Difficult surgery due to prostate inflammation.
              Both nerve bundles spared.
              Spongy erections began within 24hrs of surgery!
10/24/07: Catheter out; down to 1 Serenity pad/day next day.
              Final pathology: neg margins, no capsular penetration,
              Gleason 3+3=6, 5% tumor involvement, multi-focal.
11/04/07  First usable erection with Cialis
11/22/07  Bye-bye, pads
 


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 12/7/2007 9:33 PM (GMT -7)   
thx everyone for you good wishes.

and kdnole, thx for the chuckle. but, let's just leave it like this...the small dose goes a long way :)
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


AndrewJ
Regular Member


Date Joined Jul 2007
Total Posts : 25
   Posted 12/8/2007 1:38 AM (GMT -7)   
Hey Doug,
You haven't heard from me for awhile, but I have been following your progress, reading rather than posting here. Great news about the undetectable PSA. That's what this was all about.

I am steeling myself for the next PSA in 10 days time, especially since the uro told me last time that some tissue was left which possibly shouldn't have been. This sent me off again on the spiral of worry I had at the start of this process. He was contacting the surgeon to get the operation report and hopefully it says they deliberately left some tissue because it was clear. So, while I feel confident, the next PSA will be an important one.

Andrew
45 years old, Australian living in Germany
PSA: started around 3.5 in 2005, 6.1 at time of surgery
Biopsy: nothing found in 2006, 3 May 2007 3 of 24 cores positive, Gleason 3+3 or 3+4 depending on pathologist
RPE in Munich, Germany on 22 June 2007
Post surgery pathology: organ confined but less than 1mm from margins, Gleason 3+3, pT2c, Lymph nodes removed and clear
First post-surgery PSA 31 July 2007: 0.01 Confirmed on 24 September, 2007.
Fully continent immediately after removal of catheter on Day 8.
No potency issues & looking at discontinuing small doses of Levitra "as required". (Still holding onto it as my security blanket.)
This man knows he has been VERY lucky.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted Yesterday 10:03 PM (GMT -7)   

  tongue Yea!! Doug,

 

PSA  !!!~~~>>>  Woo~Hoo <<<~~~!!! undetectable

 

Cause for celebration!!!!!  Definitely!!!

What a wonderful day it is ~ each and every-day….   

Enjoy it to the fullest. 

 

In Friendship ~ Lee & Buddy

*     *     *     *     *     *

The ultimate “goal”… we all strive for… Thank you for sharing ~ that your goal has been met….

It is very important to “all ”of us!  This is a way of positive feedback…

A way of showing others Hope… and a way of Sharing.

 

tongue   Caring is Sharing ~  Thank You for Sharing   tongue   


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted Today 8:16 PM (GMT -7)   
Thx Andrew and Lee and Buddy for your good wishes. Happy Holidays to you.

Andrew, I know you've had some worries, but so far things seem to be alright. So take comfort in the good results you've had so far and hopefully they'll continue.
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 

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