ED: veinous leakage, urine leakage,( Tamu, mrlincoln, 56Pontiac,Army45,swimom)

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James C.
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Date Joined Aug 2007
Total Posts : 4461
   Posted 12/6/2007 10:21 AM (GMT -7)   
It's been 3 months now since surgery and I am fully continent, no pads at any time.  :-) In the ED department, I am fully impotent.   sad  I began 25 mg. Viagra nightly and 100mg once a week, with stimulation , since the catheter was removed, 10 weeks ago.   Absolutely no response since then.  I began using a Vacurect pump 4 weeks ago.  The pump works, to an extent, but not fully like before the surgery, is uncomfortable and using small rings, I still cannot hold an erection long enough to have sex.  As soon as I start using it with a ring on, the use of it causes it to slowly leak down.  Just pumping up with no ring results in loss of the erection immediately after removing the pump.  Using a small sized ring holds it erect without loss, but as soon as I start to use it, it leaks down again.  At the same time, although I am fully continent in daily activites (no pads day or night), when being seriously stimulated or when having an orgasm with out the ring (flaccid) , I will squirt urine involuntarily.  With a small sized ring on, I can experience orgasm without leaking urine, but as I am removing the ring, I will squirt urine out which has been held under pressure behind the ring.  Is this pressurized urine any reason to be concerned for the health and safety of my now continent urinary system?
 
My concern and question for those who have gone beyond this point in their journey (Tamu. mrlincoln, 56Pontiac, army45 and others who I have read who has had some part of this problem, plus swimom for her expertise) is what is the prospects and your timelines for recovering past this point?  When can I expect veinous leakage and urine leakage to slow and stop altogether, or is it even a routine part of ED restoration?
 
Is it part of the process to have veinous leakage of the blood during normal, pumped or pilled erections, to the point that an erection can't be maintained?
 
As potency is regained did the veinous leakage stop, as you were gaining the ability to have erections, even if aided by ED pills? 
 
Did your urine squrts improve by themselves or did it require additional exercises or treatments? 
 
I am thinking to begin injections at my next Doctors visit.  When using injections, does the meds in the injection have an effect on the vienous leakage and the valves controlling it?  Will the drug shut off the drain valves as part of the process, or is this something that will have to be addressed seperately, with a ring or such?  I realize everyones experience is different, but how was it with you personally?
 
Thanks for any thing you can share with me on this. 
 
 

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly-no joy 
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  ED-continue 25mg Viagra, no response, begin Vacorect pump-
11/15/07  1st PSA 0.01


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/6/2007 11:12 AM (GMT -7)   
Hi James,

I was ahead of your thinking on a post in Educators ED post :>) The only thing I cannot answer are the leakage questions, since Paul did not endure any incontinence. He did however have a (longer / less complete) harder time recovering from ED. Paul will never be "normal" in the erectile department again but his history with testicular cancer had much to do with that. At more than 2.5 years he's still improving a tad at a time but it won't manage without the help if oral meds, which is okay by us. His first real signs of recovery were about 9 months post-op. It was a year before oral meds were enough. Adding 2000 of a good LArginine has made his ED even more managable. San VasoFlow is the best brand we have found. Expensive but worth the investment. Good Luck

Swim
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 12/6/2007 11:30 AM (GMT -7)   
Your post to Educator got me to post a seperate thread, so I didn't step all over their interesting thread already started.  I guess I should have mentioned I have been taking LArginine 2000mg daily with the Viagra from the start.
 
James C.

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/6/2007 12:49 PM (GMT -7)   
I get it now James.....It's all good stuff so keep the questions and answers coming ya'll........

Swim
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/6/2007 8:42 PM (GMT -7)   
You have read my post so you have an idea of my history. As to the veinous leaks I did not have that problem when I used the pump. The urine squirts I did have but after about 4 to 5 months they got a lot better. When I first started using injections I had some urine leakage when I had an orgasm. That got better over time to where I do not have any leakage as long as I have urinated prior to sexual activity. I am 13 months past surgery and I can get about a 50% erection without any meds. The meds do not improve that any. I have just received some Levitra and I am going to try it as my urologist says there are some indications it works better for PCa guys. My experience is that the ED does get better over time but at a slow rate. The injections are a lot better then the pump.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/6/2007 9:23 PM (GMT -7)   
Tamu,

Levitra did work best for Paul for a long time. Cialis did nothing, nor has he tried it since 2005. He can use either Viagra or Levitra now. Funny how those things work :>)
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/6/2007 10:05 PM (GMT -7)   
Hey James,

I quit leaking during sex about 7 or 8 months post-op. Also can get good erection with just Viagra and L-Arginine now at a year post-op. For the first few months, I had nothing but a flat tire not matter what I tried. Takes the nerves a long time to figure out what happened down there...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Started Tri-Mix on 8/7/07.  .05 ml and 50 mg Viagra.  It works!!!
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 12/7/2007 5:10 AM (GMT -7)   

Biker 90 says:

"For the first few months, I had nothing but a flat tire not matter what I tried. Takes the nerves a long time to figure out what happened down there..."

So you are saying that in your case, veinous leakage was a part of the required nerve regeneration and not a seperate ED issue?  Thats comforting...


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/7/2007 5:28 AM (GMT -7)   
Venous leakage is a huge part of ED following prostate cancer treatment. As things heal, valves behave better. Age, cholesterol, diabetes, low testosterone (big cause) and several other conditions contribute to slow leak or failure to fill.

Have A Blessed Weekend Everyone!

Swim
 


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 12/7/2007 6:11 PM (GMT -7)   
Is it important to take the pill, whichever one we are taking, every other day or is it ok to take it on an "as needed" basis? Trust me, I'm 58 and it has been awhile since it was three or four times a week.

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 12/7/2007 9:00 PM (GMT -7)   
Seems everyone gets different instructions. My Doc says beginning with catheter removal take 25mg Viagra nightly 6 days a week, with a 100mg pill the 7th day accompanied by  'some' kind of stimulation, either solo or with a partner.   He then
prescribed a pump at 6 weeks, instructions to pump up 3 to 5 times each session, holding the erection up for 5 minutes or so.  Repeat twice daily.  I find it hard to keep the pump up for 5 minutes, once I get the full inflation going of the penis.  It becomes uncomfortable.  I shoot for cycles of 4 to 5 times, duration of a minute, twice daily. 
 
James C.

2busymom
Regular Member


Date Joined Nov 2006
Total Posts : 118
   Posted 12/9/2007 11:03 PM (GMT -7)   
Is it safe to use the LArginine if you're using bimix injections?

bec
husband Jeff 45 years old, diagnosed 8/25/06
PSA 2.1, 2 of 12 samples at 3% & 4%, involving 1 side of prostate
Gleason 3+3=6 in both samples
laparoscopic radical prost. 10/17/06
cancer in both sides of prostate, positive in one area of margin
first PSA results 1/07 <0.01%
2nd PSA 4/07 <0.01%
3rd PSA 7/07 <0.01%
4th PSA 10/07 <0.01%
using vacumm device & injections for ed therapy, seeing some improvement


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted 12/10/2007 7:15 AM (GMT -7)   
I don't know if it enhances the absorption of the injection meds like it does with Viagra and the pills or not.  Interesting question.  LArginine is supposed to help the body produce Nitrous Oxide, which is one of the effects of the adsorbption of the Viagra. 
 
James C.
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