It's been 3 months now since surgery and I am fully continent, no pads at any time.
In the ED department, I am fully impotent.
I began 25 mg. Viagra nightly and 100mg once a week, with stimulation , since the catheter was removed, 10 weeks ago. Absolutely no response since then. I began using a Vacurect pump 4 weeks ago. The pump works, to an extent, but not fully like before the surgery, is uncomfortable and using small rings, I still cannot hold an erection long enough to have sex. As soon as I start using it with a ring on, the use of it causes it to slowly leak down. Just pumping up with no ring results in loss of the erection immediately after removing the pump. Using a small sized ring holds it erect without loss, but as soon as I start to use it, it leaks down again. At the same time, although I am fully continent in daily activites (no pads day or night), when being seriously stimulated or when having an orgasm with out the ring (flaccid) , I will squirt urine involuntarily. With a small sized ring on, I can experience orgasm without leaking urine, but as I am removing the ring, I will squirt urine out which has been held under pressure behind the ring. Is this pressurized urine any reason to be concerned for the health and safety of my now continent urinary system?
My concern and question for those who have gone beyond this point in their journey (Tamu. mrlincoln, 56Pontiac, army45 and others who I have read who has had some part of this problem, plus swimom for her expertise) is what is the prospects and your timelines for recovering past this point? When can I expect veinous leakage and urine leakage to slow and stop altogether, or is it even a routine part of ED restoration?
Is it part of the process to have veinous leakage of the blood during normal, pumped or pilled erections, to the point that an erection can't be maintained?
As potency is regained did the veinous leakage stop, as you were gaining the ability to have erections, even if aided by ED pills?
Did your urine squrts improve by themselves or did it require additional exercises or treatments?
I am thinking to begin injections at my next Doctors visit. When using injections, does the meds in the injection have an effect on the vienous leakage and the valves controlling it? Will the drug shut off the drain valves as part of the process, or is this something that will have to be addressed seperately, with a ring or such? I realize everyones experience is different, but how was it with you personally?
Thanks for any thing you can share with me on this.
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07 ED- 25mg Viagra nightly-no joy
10/19/07 Dry 24 hrs, pad at night just in case
11/15/07 ED-continue 25mg Viagra, no response, begin Vacorect pump-
11/15/07 1st PSA 0.01