A birthday and anniversary

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creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 12/7/2007 3:46 PM (GMT -7)   

Hi Everyone,

 

Today is my husband “CJ’s” 50th birthday – Saturday 8th December, 2007. and the first anniversary of his diagnosis with prostate cancer last year. It rocked us to the core, especially hearing this news on his 49th birthday. However now, 12 months later, and the next birthday is soooooooooo different.  We are well recovered so thought I’d post a small update on this special of days. CJ says he is back to 95% now.

 

Although it has taken 8 months from surgery, lots of patience, trial and error, things on the “Levitra 20 mg when needed front”, are looking up (so to speak).. :-) Although, I have no sense of humour when it comes to prostate cancer recovery, even our Doctor joked to me about CJ “enjoying his 50th birthday due to the Levitra starting to work” and I actually laughed!! (at the Doctor’s joke).  This is unusual believe me! All is going well now with the oral meds so it looks like we may not need to consider this possibility of injections in future after all. Still daily signs of nerve recovery – twinges and things…. after 8 months. We found an improvement from six months onwards that was not happening at 3-4 months. For us, the “patience, patience” mantra has worked, and things are improving rapidly now at 8 months. Does not seem to be a "technical" problem anymore which is reassuring, so looks like our Doctor was right in his predictions of recovery.

 

In retrospect, it has been a very hard year overall, but today we are celebrating a wonderful thing – Recovery and a 50th birthday cancer-free!!  The PSA tests still scare me senseless at each test result (and will do so forever I think), but we all have to face that. Thanks “Swim” for your reassurance by email on the subject of PSA ranges… We have become advocates for prostate cancer awareness of course.

 

As a wife, I remember feeling so desperate this time last year. However, the best thing was finding this forum in January before the surgery, and therefore finding so many kindred spirits here who truly understand. It has been survivable for us, although the stories of others are always sobering, and we do not take life for granted. We feel very lucky, blessed and happy to be celebrating a wonderful 50 years of my husband’s life today. Having a party tonight with 30 people (family and close friends) down at the club. The cake has black and red icing (racing colours!). It will be a lovely day and evening.

 

We thank you all sincerely for all the information, prayers, love and support this year. We wish you all a wonderful Christmas season, and hold you all in our thoughts and prayers too.

Finally, HAPPY BIRTHDAY, my dearest Chris (“CJ”). yeah Lana xxxxxxxx


Creed_three (Lana & CJ)
 
Husband CJ aged 49 yrs. 
First PSA 3.5 (Nov 06). 1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on Tuesday 17th April 2007 (Sydney, Australia). Gleeson 3 + 4 = 7.  Cancer confined to prostate. Margins all clear, including bladder neck and seminal vessicles. 
1st PSA 0.01 - undetectable (June 07)
2nd PSA 0.02 - undetectable (Oct 07)
 


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 12/7/2007 5:40 PM (GMT -7)   

Happy b-day to  CJ :) 

Glad to hear everything is going well!


Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


veteran1
Regular Member


Date Joined May 2007
Total Posts : 133
   Posted 12/7/2007 5:45 PM (GMT -7)   

Lana and CJ

So happy to read your post. Such great news. Happy Birthday! Enjoy the party. You deserve it. You've come a long way together in 12 months.

Again, Congratulations

 

Vet


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 12/7/2007 5:52 PM (GMT -7)   
Way to go CJ! Now if you had the surgery in Australia and you were upside down for surgery, to us that would mean you were-a winner, and you can get those racing colors tattooed on, uh, wherever. Have a great party, every day.

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/7/2007 5:57 PM (GMT -7)   
Hey Lana and CJ,

Thank you for all your posts to the forum this year. I always look forward to reading what you have to say and your good news and review of the year make me so happy for you. Yeah, patience is the key. We could easily drive outselves nuts with this disease but survivors learn to deal with it with patience and attitude. You certainly have both.

Congratulations on your milestone...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted 12/7/2007 8:22 PM (GMT -7)   
Lana,

Keep finding reasons to laugh!
We love you both!

CCedar
ICTHUS!

mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 12/7/2007 8:59 PM (GMT -7)   

Great news and happy birthday!!!!

 

Mika


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 12/7/2007 9:16 PM (GMT -7)   

Congratulation!

I am on month 10 post surgery and hoping that I am right behind you.

Excellent news.  Thanks for sharing.

May God bless you both.  Yes, there is hope!

Marc
64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Tried Viagra 100mg on occasion-no erections.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25 to 11/6/07.
Vacuum pump daily/twice a day 8/2 and going - no help.
Begin Trimix injections, two low dose per week, 11/05/07.
Currently, vacuum pump and low dose Trimix twice per week each.
Trimix in office - 0.10cc.  Low dose set at 0.05cc
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
 
Geon


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 12/7/2007 9:18 PM (GMT -7)   
exciting news! 
happy b-day and congrats on the 1 year mark
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 12/7/2007 10:09 PM (GMT -7)   
Happy Birthday and way to go on the good news. Always good to hear from you guys.
;o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb, May, Oct2007.  ONE YEAR!!!! WHOOO HOOOO! 

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1209
   Posted 12/7/2007 10:40 PM (GMT -7)   
Hi Lana and CJ,
 
Happy birthday and congratulations on the 1st anniversary of of your recovery. Sounds like you're doing very well. Hope your future will be full of big fat zero PSA tests. I know what you mean about the fear just before the tests. I'm getting my 4th 3-monthly PSA result on the 12th and have butterflies already. Sure feels good when you get a zero result.
All the best to you guys and have a happy holiday season.
 
Magaboo

Born Sept., 1936
PSA 7.9
Stage T1C
Gleason's Score 3+4=7
Open RP 28 Nov 06
by Dr. Goodman in Chilliwack, B.C., Canada
Catheter out 15 Dec 06
Dry since 11 Feb 07
1st PSA result on 15 March 07 = 0
2nd PSA result on 15 June 07 = 0
3rd PSA result on 12 September 07 = 0
 


spinbiscuit
Veteran Member


Date Joined Apr 2006
Total Posts : 818
   Posted 12/8/2007 2:06 AM (GMT -7)   
Hello Lana & CJ,

Happy Birthday CJ; glad to hear you are posting those "0's". My 2 year PSA test will be do this February, and I still get worried. The difference now is that after all this time there is a sense of being back to normal, and the memory of the "PCA Event" is fading. No doubt it has changed me, but it no longer rules my daily life.

Good luck to you both, and I bet 50 birthday candles on the cake are a wonderful sight.

Glen
Diagnosed at age 60
PSA went from 2.2 to 3.8 in 14 months
2 of 14 cores positive at 10%
Gleason 6(3+3), negative DRE, neg. margins
DaVinci surgery on 02/23/06
Last PSA 08/26/07 @ 18 months "0"


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 12/8/2007 8:20 AM (GMT -7)   
Party DOWN! (Oh, and Happy Birthday to CJ)

A great milestone, indeed. And, you've managed to nail so many feelings (that all of us have gone through) on the head in just one post! I remember when you first found us, you weren't sure you'd have anything more to say. See? Every word from every member means so much - to us and to all the new ones coming in.

Not a day goes by we don't have a fleeting thought of cancer, but not obsessively. That's just the way it is. Of course, the buildup to PSA testing will always torque us a bit. However, the good times just keep on coming, too, don't they!

Have a warm and merry Christmas!

myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted 12/9/2007 10:23 AM (GMT -7)   
HAPPY B'DAY!!!

Belated but sincere!
Lana - I, too, always read your updates...this has been quite a year for you both. And we're so glad to see that a year down the road life is so much different than on CJ's last birthday! I think that proves the point that #49 is way worse than #50!

May your good health continue & life be kind to you all,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1

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