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Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 12/10/2007 4:11 PM (GMT -7)   
Well the journey continues, I had my one month follow-up today and came in at .07.  My doctor wants to wait another month but I think I am going to ask him to go ahead and refer me to the radiologist and get on with it.  I would love to do the Loma Linda proton but I just don't know if I can disrupt my family that much.  It would require me to move to California from Mississippi for eight to nine weeks.  I tell you there are some tough decsions to be made when you get this disease but all in all I am still thankful to have the options I do have.
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted Yesterday 5:17 AM (GMT -7)   

You could ask your doctor about the criteria of three higher peaks in PSA readings, and also PSA doubling time, which might be why he has suggested you continue monitoring.

 


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted Yesterday 7:16 AM (GMT -7)   
Certainly the upward trend is disconcerting, but don't forget you're still below that magic 0.1, which keeps you in the undetectable range. My psa went up from 0.2 - 0.4, but ended up back at 0.02. Certainly the fact that you have stayed below 0.1 for two years is in your favor. Do what you think is the right thing to do, and whatever you decide, Take the good wishes of a lot of people on this board with you.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist
November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical
October 2006 - After several more rounds of anti-biotics PSA 8.1
November 2006 - Second biopsy - Positive
December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
March 2007 - Down to two pads a day, had first intercourse with Erecaid pump and bands, otherwise still flat tire.
April 2007 - First Post-Surgical PSA 0.02 and a great relief! Down to one pad a day. Still unable to achive erection without pump.
May, 2007 - Still one pad a day, even try a smaller pad on occasion. Slight improvement on the ED.
July, 2007 - Six Month Post-op: PSA 0.04 still Non-Detectable. One small pad/day for a few drops only! No change in ED.
October, 2007 - Nine Month Post-op: PSA back down to 0.02 Non-Detectable...Yay! Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment.
"If patience is a virtue, I feel like the most virtuous guy on the planet!"


myman
Veteran Member


Date Joined Feb 2007
Total Posts : 1219
   Posted Yesterday 9:21 PM (GMT -7)   
You're at decision time, not an easy place to be. I think sometimes we feel better to move ahead just so we know somethings being done. It's hard to wait.

If you do decide to go Proton the Univ. of Florida Proton Therapy Facility - Jacksonville, FL is closer to Ole' Miss!

Also, here's a link to a Proton blog that might be helpful.

http://www.prostateblog.com/?cat=3

All the best in your decision making process,
Susan
Husband Diagnosed 11/17/05 Age: 63 No Symptoms
PSA: 7.96, Positive DRE
Biopsy Right: 6 of 6 Cores Positive Biopsy Left: 1 of 6 Cores Positive
Gleason: 4+3 = 7 Stage: T2B N0 MX
3 mo. PSA Post LRP Surgery: 11.8, 12.9, 13.9 Bone scan, CT scan, Endorectal MRI, Chest XR - neg.
09/06/06: 6 mo. PSA: 18.8 Distant lymph node involvement Start HT Lupron 3 mo. shots
12/06/06: PSA 0.8
03/07/07: PSA 0.3
06/06/07: PSA 0.1
09/05/07: PSA 0.1
11/27/07: PSA 0.1


Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted Today 12:55 PM (GMT -7)   
Ole Miss is irrelevant here Myman. MSU grad here, coach Croom, Liberty Bowl, you know. I have not checked into Jacksonville. I did check with MD Andersen and they do not offer proton as an adjunctive treatment yet, they will in time. I figured Jacksonville would fall into the same category with MD Andersen but I will check it out. Thanks
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06
 
PSA Dec 10th 07 =.07


Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 12/14/2007 6:20 AM (GMT -7)   
Heard back from Jacksonville Proton Center and they do offer adjuvant therapy after rp.  They require a series of tests to understand whether you are a good candidate.
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06
 
PSA Dec 10th 07 =.07


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 12/14/2007 8:33 AM (GMT -7)   
MD Anderson in Houston has opened a proton center as well. Thing is that I believe that when you go there you get the highest competency available in the US. But if you also look into Tomotherapy you will get to stay home and still will get a precise application of treatment. I did IMRT after surgery and do not have side effects. Because your prostate is out you basically will have 38 treatments as opposed to 45 when you still have a prostate. That's less side effects as well.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 12/14/2007 12:17 PM (GMT -7)   
Thanks, I spoke with the radiologist here in Jackson, MS. today and felt very good about him.  They use guided IMRT and he is very confident that he can get the job done with minimal or no problems.  He acknowledged the proton therapy and the ability to do less damage and bring more powerful radiation to the tumor.  He said the proton was a tremendous technology for hard to treat tumors and is most effective in prostate treatment when the prostate is still intact.  Treatment to the lymph nodes would probably be done with photons regarless of the facility.  He is a sincere christian guy that seemed very compotent and who comes highly recommended; most important of all I liked him and I felt I could trust what he was telling me.  He said he had referred patients to Loma Linda but he did not feel that was necessary in my case.
 
He said he sees cases like mine quite often and has excellent results.  He said it is just very difficult with prostate surgery to achieve adequate margins due to its location and archietecture for lack of a better word.
 
All this being said and with the ability to get treatment on my way to work each morning i think I am going to go the IMRT route.  If I had a proton facility in Jackson I would give it serious consideration.
 
Thanks for all your input.
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06
 
PSA Dec 10th 07 =.07


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 12/14/2007 1:31 PM (GMT -7)   
Your RO is doing a good job. Just a little side note. I took the first slot of the day. I was in for treatment at 7:00am, home by 8:00 and walked everyday for about 3 to 4 miles right after treatment. I believe that has helped me through all I have had this last year to deal with. So I recommend that walk after treatment.

Tony


Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
STAY POSITIVE!


Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 12/14/2007 2:54 PM (GMT -7)   
Thanks Vegas,
 
I try to walk 4 miles everyday during lunch but schedule doesn't always allow it.  Those walks do wonders for your sanity and your physical well being.
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06
 
PSA Dec 10th 07 =.07

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