A short poem from CJ

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creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 12/15/2007 3:59 PM (GMT -7)   
Hi Everyone,
 
My husband CJ (Chris) had a wonderful 50th birthday last week (also the anniversary of his diagnosis), and has written a few outrageous things on paper and asked me to post it with his thanks and gratitude to you all for your messages last week. Updated signature shows progress on aspects of recovery. For our new friends here, my husband does not use a computer (or type), so this is just word for word from him!!!!
 
MESSAGE FROM CJ TO ALL HERE (A Short Poem) :-)
 
There I sat. What a caper!
Got bad news on some paper.
The doctor thought we must not linger
Then he decided to give me the finger.
He could not feel anything abnormal,
Then got the probe - a different story..
 
So off I go for the operation
8 months later, everything works well.
My PSA is back to normal
Life is good and the stress has gone.
 
Thanks for all the support and info. It really does work in this time of confusion.
 
keep up all the support for those who need it. Have a good Christmas and we are off on a holiday now which we really needed! I am not computer literate so thanks for all the information to my wife,  and for all your help to her. And a special thanks to Bluebird and Biker.
 
Thanks again, Chris (aka "CJ")
 
 


Creed_three (Lana & CJ)
 
Husband CJ aged 50 yrs (49 years at diagnosis and surgery)
First PSA 3.5 (Nov 06). 1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing, on Tuesday 17th April 2007 (Sydney, Australia). Gleeson 3 + 4 = 7.  Cancer confined. Margins all clear, including bladder neck and seminal vessicles. No incontinence (thankfully).
1st PSA 0.01 - undetectable (June 07)
2nd PSA 0.02 - undetectable (Oct 07)
Recovery of sexual function:
1. Gradual improvement from 6 months (60-80%).
2. No noticable effect with any ED meds prior to 6 months (30-50%).
3. Recovery with Levitra 20mg at 7 months (85%).  
4. First recovery experience without Levitra at 8 months post surgery (95%). Rapid return of natural function appears to be occurring from 8 months.
5. Surgeon had predicted recovery (with or without meds), anytime from 4 to 11 months in light of our situation, age, gleeson, microsurgery and pre-op functioning factors.
6. Thankful for all advice, reassurance and help from friends here at healing well.

Post Edited (creed_three) : 12/15/2007 4:05:15 PM (GMT-7)


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/15/2007 4:33 PM (GMT -7)   

Thanks, Lana and CJ!

Wonderful Poem!  yeah

50 years young and doin' fine!  What else could we ask for but a little relaxation time?  (oops... that rhymed) tongue

All the best to both of you for a wonderful Christmas season,

Barry


"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007

My web site: http://pca-info.blogspot.com


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1463
   Posted 12/15/2007 4:40 PM (GMT -7)   
Hey CJ,

Its great to hear from you!! Nice poetry too. Your winning spirit surely comes through in your words as they always to in Lana's. What a trip, huh?

MaryLu and I are wishing you both a very happy holiday.

Let's get well together...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted 12/15/2007 4:43 PM (GMT -7)   
50 is a milestone.  Good to be cancer free at that milestone to be sure!  Happy B-day and many more.
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 12/16/2007 5:54 AM (GMT -7)   
50 and feelin' fine - that means you should celebrate at least through the end of the year - and, oh well, beyond.
Husband age 66
PSA on 5/1/06: 4.2 (had doubled in 13 mos. and rising monthly)
DaVinci Surgery 8/2/06 - Austin, TX w/Dr. Randy F.A.G.I.N.
T2a (at biopsy)
At pathology - cancer cell leakage into fatty tissue
Post-Surgical PSA on 10/06, 4/07 - undetectable!
11/1/06 - perhaps bladder neck involvement; 30%-50% chance of recurrence
PSA test "Un-zero-detectable" on 10/16/07.
9% chance recurrence w/in next 7 years (down from 50% as we understand it)
Future: PSA tests twice-yearly for now.
 


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 12/16/2007 6:12 AM (GMT -7)   
Thanks for that, Lana and CJ. I turned 50 last month, and it was the most meaningful birthday I've ever had.
Age: 49
Diagnosed: March 25, 2007
PSA: 3.0
Biopsy: Gleason 6. Five of twelve core samples positive with <5% each. No perineural invasion seen.
DaVinci Surgery: May 21, 2007 at Florida Hospital, Orlando, Florida. Surgery took one hour and 45 minutes. According to my surgeon, everything went textbook and the prostate peeled away nicely.
Post-op Pathology Report: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes.
Continence: Out of the pads at five weeks. Still have some very minor stress incontinence at times but it's not an issue. Still Kegel every day and will continue to do so.
Erections: Yes! With the assistance of Cialis.
1st Post-op PSA: <0.1 2nd Post-op PSA: <0.1
Family history: My Father had his prostate removed at age 67 in 1997 and has had a <0.1 PSA for the past 10 years. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.
 
 
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 12/16/2007 7:05 PM (GMT -7)   

  tongue This is so touching ~ 

 

Dear Chris ~ Thank you for reaching out with your special message to all of us!

It is truly heartfelt… 

 

Lana ~ Thank you for allowing us to walk with you and your family ~ a blessing for all of us!  I will forever remember when you first signed on!!!  It makes me smile right now to think back…  Special friendships have been formed and even though we are thousands of miles apart ~ we are very close in spirit.   It’s nice to know when we look up at the sun ~ y’all are looking at the moon.  The same moon we look at when you look at the sun.  Amazing!!!

 

A toast!!!  Oops… it’s a.m. in your neck of the world (9:00 p.m. here!)  You’ll just have to wait!!!   bluebird, biker, GreenAcres, Pasayten, sun4pasayten, & others will tip a glass or 2… while sending a special Happy Every~Day toast to you and yours!!! 

 

Enjoy your holiday ~ Hugs from Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

 

v          We invite you to visit our personal thread:  Click Here:  “Our Journey” ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

3rd PSA 08-07-2007 Less than 0.1 Non-Detectable :)

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