PCa blue wristbands - do you wear one?

Do you wear a blue prostate cancer armband?
12
Yes - 60.0%
8
No - 40.0%

 
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StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted Today 12:57 PM (GMT -7)   
I'm just curious how many of the folks on this forum (men or women) wear a light blue prostate cancer wristband...?

If you don't, any particular reason why? Would it be too outward a symbol of what is a very personal disease for you?

If you do, does it trigger any conversations with strangers? Awkward ones?
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .545 (5 for 9)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."

Post Edited (StrictlyInc) : 12/17/2007 1:00:00 PM (GMT-7)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4461
   Posted Today 1:23 PM (GMT -7)   

I don't because I don't have one.  I am not one for public displays of causes, crusades and such, but would wear one for this particular cause. 

 


James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly-no joy 
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  ED-continue 25mg Viagra, no response, begin Vacorect pump-
11/15/07  1st PSA-0.01, fully continent- no pads
12/17/07  ED- 3 mts.-continue Viagra and pump-no change-no response


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted Today 1:31 PM (GMT -7)   
I don't always wear the band nut in those cases I wear the blue ribbon pin I have. I am very open about this. If the good that will come out of my experience with PCa is to talk about it, maybe convince someone to get tested, then it is a good cause indeed.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


Jetman
Regular Member


Date Joined Oct 2007
Total Posts : 30
   Posted Today 1:36 PM (GMT -7)   
I have the wristband and wear it all the time. I also have given some to friends and family members to wear.
56 years old
Had 3 Prostate needle Biopsies done in the last 8 years all negative.  
Last Biopsy done on July 6th, 07 Positive in one sample.
March 2007 PSA 10
May 2007 PSA 12.1
Pre-surgery Gleason grade 3+3=6
Sept 4, 2007- Robotic Laparscopic prostatectomy Surgery Nerve-sparing right side, took half of the left side, 
                    took Seminal vesicles, and vas deferens, bilateral, and 
                    Lymph nodes left side, pelvic. NO Malignancy found out side of
                    the Prostate.
Post Surgery, Pathologic Stage: pT2(m) NO Mx
                   Gleason score: 4+4=8
                   Tumor volume: approximately 35%
 Oct 19, 2007 - Catheter removed after 45 days
 Oct 31, 2007 - Start Pelvic Floor Muscle Rehab, once a week for 6 to 12 weeks for incontinence.
 


Cedar Chopper
Regular Member


Date Joined Mar 2007
Total Posts : 432
   Posted Today 1:53 PM (GMT -7)   
StrictlyInc,

Many here are called to champion the cause of PSA tests and DREs.  I am so thankful.
Tony says PSA tests and DREs AT AGE 40 FOR EVERY MALE!  I AGREE!! 
I happily tell my male relatives and friends about why they need to be tested.
I bother my congressional representatives and insurance provider about it.
I pray for a cheap and easy cure for ALL cancers, right now - out loud
   - every week in church.

And still, I wear no blue bracelet and only tell certain people about my personal cancer and my personal fight.
I do volunteer work with 30 or so children for a few hours every week.  Too young.
I guess I could make up a story for them, but that isn't like me.  Not enough guile.

Even if I were just out with adults, I like a little more control over when and where I try to explain my limited knowledge of the male urinary tract and reproductive system.

The conversational complexites of discussing the prostrate are clumsy at best:
Where is it?  What does it do?  How can you live without it? 
And just what difference does a "vas deferen"s make anyways......
Many of us that have had a prostrate most of our lives were happily marginally aware of them, their function, our pelvic floor muscles, and related "seminal" things in our lives....

Skin cancer and amazingly breast cancer & cervical cancer have made it to the public arena.
Lance Armstrong's yellow bracelet evokes "cancer" stories, not testicular cancer.

Just having to discuss incontinence when I was incontinent was oh so unhelpful to my challenge to leave the pads behind.  And now there is that E.D. ("My personality!!") fight.

As I get past the uncertainty of the surgery and my body finds its way around its "new digs,"
I am more comfortable discussing what now seems so simple and before was so terrifying.
I probably will soon wear the blue bracelet and just tell the kids
   - and others in awkward situations - that
        - it's to remind me to "study for my test!"

Thanks for the push.

CCedar
ICTHUS!



2 Years of PSA between 4 and 5.5  + Biopsy 23DEC06 
Only 5 percent cancer in one of 8 samples.  +  Gleeson 3+3=6
Radical Prostatectomy 16FEB07 at age 54.
1+" tumor - touching inside edge of gland.  + Confined:)
Pad Free @ 14 weeks.  Six Month PSA <.003  :)
Nine month PSA <.008
:)
At 9 months, ED treated with Pump Exercises & 100mg Viagra Daily
Texas Hill Country FRESH Produce Department Manager
Have you had your 5 colors today?

Post Edited (Cedar Chopper) : 12/17/2007 7:18:35 PM (GMT-7)


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted Today 3:52 PM (GMT -7)   
I've been wearing the blue wrist band for the last few months, and will continue to do so. I don't go on a crusade but if someone asks what it signifies I tell them. Some have asked and the conversation ends after I tell them what it's for, others have asked further questions.
Age: 49
Diagnosed: March 25, 2007
PSA: 3.0
Biopsy: Gleason 6. Five of twelve core samples positive with <5% each. No perineural invasion seen.
DaVinci Surgery: May 21, 2007 at Florida Hospital, Orlando, Florida. Surgery took one hour and 45 minutes. According to my surgeon, everything went textbook and the prostate peeled away nicely.
Post-op Pathology Report: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes.
Continence: Out of the pads at five weeks. Still have some very minor stress incontinence at times but it's not an issue. Still Kegel every day and will continue to do so.
Erections: Yes! With the assistance of Cialis.
1st Post-op PSA: <0.1 2nd Post-op PSA: <0.1
Family history: My Father had his prostate removed at age 67 in 1997 and has had a <0.1 PSA for the past 10 years. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.
 
 
 


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted Today 4:04 PM (GMT -7)   

Like others, I don't wear a wrist band, because I haven't purchaed one.  I probably should get one. :-)

I do tell many people I meet about the importance early detection and treatment for PCa.  I know some folks who have had a checkup after our little chat, so spreading the word does do some good.  To the extent that the wrist band opens a conversation, I think it can be very beneficial.

In addition, as we saw with Dan Fogelberg recently, getting checked in your 40's is not a bad idea, so I recommend a PSA test be done along with the annual checkup with a family doctor.  That's how I got started with PSAs with annual checkups in my 40s.

Kind regards,

Barry


"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA 0.04 (undetectable) 9/11/2007

My web site: http://pca-info.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted Today 4:52 PM (GMT -7)   
I was barely 44 when diagnosed with this disease. I have the advanced version, lucky me. 42 may have found it sooner, but annual checks at 40 would have, and I do believe this, it would have been a localized disease and I would likely never have needed the adjuvant hormone therapy and radiation. So my vote would be to influence the American Cancer Society and the National Cancer Institute to lower this age to 40 regardless of family history.
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted Today 4:57 PM (GMT -7)   
I will answer my own question. But please, I'd love to read more comments from others...

I wear a blue band in tandem with a yellow Livestrong band. Wear it all the time, regardless of my mode of dress.

I think I wear it more as a show of solidarity for those that have or had the disease and would recognize it, even if they don't comment to me directly. Communicating anything to those who don't immediately recognize it is maybe a much more secondary concern.

Having said that, I haven't been especially vocal, other than comments on different Internet sites that I chat/participate on, where I urge people to be tested for prostate cancer, if the opportunity arises.

Verbally, however, I have not been as open. A few people ask me what the band is, and I tell them the blue color represents prostate cancer. But from my response, they generally can't tell if I have had it or not (not everyone wearing a Livestrong band has had cancer, after all, right?). I suspect many suspect I do/did, however, as the conversation usually stops there. Usually awkwardly.

I will admit to struggling to talk openly about a condition that has left me with ED. I often wonder what those who do know that I had the disease think/assume about my erectile capabilities, given that I haven't discussed it with them.

I had an interesting experience the other day. My boss and I were sitting with some colleagues, and he commented that I was a good role model because I had been so positive in dealing with everything. It was a great compliment, but at the same time, a little awkward for me in that I had not discussed the issue so openly and verbally with a group. I think they all knew of my having prostate cancer, though I had not discussed it directly with them. I just let the discussion fade as quickly as possible, though if pressed, I would have commented.

One situation where I think I would take the band off is in a job search - fortunately I haven't been in that situation.

Very complex, these situations are...

Anyway, those are some of my thooughts and experiences, was just interested to hear others. Wearing the
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .545 (5 for 9)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted Today 5:02 PM (GMT -7)   
By the way, I have about 8 extra bands, if anyone wants one scool
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .545 (5 for 9)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted Today 5:34 PM (GMT -7)   
Bands are also available through the prostate cancer foundations and organizations. I'll avoid the names in the spirit of our site because these items are fund raisers. but you can easily locate them on the web. I would lend a suggestion to get to Mr. Waite ~Bluebird & Idaho can you drop this into his suggestion box? Healingwell can sell allot of these items to its members. Buck or two each would give Healingwell a little lift.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


mgl
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted Today 6:02 PM (GMT -7)   

I'll  take you up on a bracelet, I would greatly appreciate it

thank you


50 years old
gleason 3+4=7 psa5.8 clinical stageT3a
Da vinci surgery April10 2007 Mayo clinic Rochester, Mn.
extraprostatic extension Gleason -same
pelvic lymph nodes -negative
Catheter out April 19
37 treatments IMRT ended 10/26/07


Michael's Wife
Regular Member


Date Joined Aug 2007
Total Posts : 150
   Posted Today 6:25 PM (GMT -7)   
I'll take you up on a bracelet (or two) for my husband and me. I was just looking at websites to see about purchasing. The only reason we don't wear them is because we never knew or thought about purchasing.

Thanks.

Post Edited (Mike's Wife) : 12/17/2007 6:28:55 PM (GMT-7)


broker59
Regular Member


Date Joined Apr 2007
Total Posts : 88
   Posted Today 6:32 PM (GMT -7)   

Strictly nono

  I would like one, I have been wearing a Red band I got some at the Cancer Treatment Centers of America.  Would be happy to send you one of them.  See my email address.

 

Take Care! tongue


Broker 59


Date of Dx 3/20/07

PSA: 2.5
Gleeson: 3+4
Stage: T2
Bone Scan: Clean

Date of Surgery: 6/21/07  Open RP
 
Post Opp: ALL NEGATIVE margins & L/N, S/V.
Cath out after 18 days = BIG RELIEF!!!
 
PSA: 7/23/07 0.01
PSA: 9/04/07 0.01
PSA: 12/04/07 undetectable.


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted Today 7:31 PM (GMT -7)   

I don't have one but would like to get one.  I have been open about my situation with PC with my family, co-workers and the local media, and anyone else who will listen.  I would like for every man to get his PSA checked and a DRE as early as you can. I would not like to see anyone die from this disease like Dan Fogelberg did Sunday.  He was far advanced when his was discovered, which was a sad thing.  I consider myself one of the lucky ones and have been getting exams by my regular Dr. for a number of years.  The DRE did not catch it, but the PSA did.  I challenge you to tell at least one man of the consequences of putting these important tests off for another year.  Not only could you suffer, but your family and friends could too.

 

Take care all

 

Mika  


41diagnosed
Regular Member


Date Joined Jun 2007
Total Posts : 176
   Posted Today 7:47 PM (GMT -7)   
Great thread.  I have been thinking of wearing one and just hadn't figured out where to get them.  I went online to look.  The one I found was  Light Blue Awareness Bracelets Signifies: Tsunami Support, Prostate Cancer Awareness Support , Scleroderma, Trisomy 18. Each Bracelet reads:
HOPE, LOVE, INSPIRE, PRAY, STRIVE, DISCOVER, ASK, COMFORT, RELAX.  Are there different imprints or a standard one? 
 
I just asked my wife about it and she said she'd wear one.  She works in a hospital.  I'll wear one too. 
 
As far as awkward?  I suppose it was once awkward to talk about breast cancer, but no one flinches when they hear a guy say "breast" in public when it's followed by "cancer". It evokes concern for whomever they are speaking about.  And people know about mastectomies and breast recontructive surgery and lumpectomies and radiation and chemo...all treatments for breast cancer.  But who knows about HT or Proton Therapy or RRP or daVinci or HIFU?  And who knows what guys go through who have PCa? 
 
I admit that at 41 when I was diagnosed, I knew NOTHING about PCa.  I mean NOTHING.  And when I tell my friends about it, they know NOTHING.  I didn't even know what PSA stood for or what it was.  Call me oblivious.  I just didn't bother with pamphlets that had pictures of 60-70 year old guys that talked about urinary issues.  I figured I'd get there soon enough, why worry about it now?  Now I've got my dose of reality and I'm all in favor of early detection.
 
So now I'm going to get a bunch of bracelets and give them to friends/family who will wear them.
 
Thanks for bringing this subject up!
 
42 yo.
PSA 4.65
Gleason scores from 4 pathologies of the same biopsy with 2 of 12 cores positive for cancer (if this isn't confusing to the patient...):
 
1) both cores 3+4 (Weiss Memorial)
2) one 3+4 and one 3+3 (Univ. of Chicago Hosp.)
3) both cores 3+3 (Mass General Hosp.)
4) both cores 3+4 (Northwestern Memorial Hosp.)
 
 
9/17/07 - Radical Retropubic Prostatectomy Surgery at Northwestern Memorial in Chicago by Dr. William Catalona.
 
and the winner is...post op Gleason score of 3+4.
 
Good pathology report with negative margins, no seminal vesicale involvement, no lymphatic or vascular invasion, bladder and urethral free and tumor volume was 5% of 27.3g.  Amazing how something so small can cause such problems!
 
9/27/07 - Catheter removal...let the games begin...
 
 
 
 


dawgfan
Regular Member


Date Joined Aug 2006
Total Posts : 148
   Posted 12/18/2007 7:17 AM (GMT -7)   
I wore both the yellow and blue until the time of my surgery. After that, I just wore the blue. The ones I bought seemed to only last a month or two. They broke when stretched to take on or off. After the last one broke (about a year after surgery) I decided not to buy another. I still like the symbolism and the potential conversations they often cause.
 
I'd be very interested in getting one or more if this site had their own since I would like to repay for the support I've received.
 



Diagnosed 8/24/06
Gleason 6
PSA 3.32
stage T1C
age 48
da Vinci on 10/20/06
Last PSA Oct '07 = ZERO
Husband, Father, Son, Brother, Friend
"Never miss a good chance to listen."
 

Post Edited (dawgfan) : 12/18/2007 10:01:37 AM (GMT-7)


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 12/18/2007 9:03 AM (GMT -7)   
I don't wear one for the simple reason that it's uncomfortable to wear things on my wrists--even my watch. That said, I try never to miss an opportunity to talk to men(family,friends, or strangers) or women (family, friends) about prostate cancer and the importance of regular testing (PSA,DRE).  Despite what the medical organizations do or do not recommend, my strong opinion is that testing and early diagnosis saves lives.  Period!

Age 59 PSA 2.6 (Quadrupled in one year) Gleason 5
Bilateral nerve-sparing RRP 6/21/06
Cancer confined to prostate, post-op PSA's non-detectable


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 12/18/2007 12:16 PM (GMT -7)   

I got my wristband earlier this month from a friend at church. He had been wearing one for months without me even knowing it. He is wearing it to show support for me. Very cool. He gave me a pack of 12. They are almost gone. They act as a conversation starter. When people see it they want to know what the color stands for. We then can talk.

It still amazes me as to the lack of understanding or knowledge that the general public has concerning PCa. Just yesterday, a reporter on a local radio station reporting on Dan Fogelbergs death seemed surprised that someone could die from PCA. I know that she will have a better understanding when she opens my e-mail to her with some cruel facts. 

Wear the wristbands and spread the word.

War Eagle to all.


Age: 54
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007
Casodex 4/2007
Spread to Spine (L4 & T5), rib, and pelvis
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 4.9 9/2007
PSA 5.4 10/07
PSA 6.4 11/07 started with new lab PSA 5.49
PSA 6.34 12/2007
Radiation started on bone meds 12/2007
 
"I will persist without exception - I will find a way where there is no way"


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 353
   Posted 12/18/2007 1:17 PM (GMT -7)   
I got mine from the Prostate Cancer Foundation (prostatecancerfoundation.org). At the time, they were 10 for $10; I'd think they must be about the same price now. They are pretty durable - I have worn just one since my surgery, which was well over 1 year ago.

I you want one of mine, shoot me an email...
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .545 (5 for 9)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."


Michael's Wife
Regular Member


Date Joined Aug 2007
Total Posts : 150
   Posted 12/19/2007 2:21 PM (GMT -7)   
Just ordered some as well as some pins to share. I know too many people who have been touched by prostate cancer, but also too many who know little or nothing about it.

M.E. Theophilus
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/20/2007 2:30 PM (GMT -7)   
I just ordered 10...and I will be wearing one, once they arrive.  The rest are to friends and family...and fellow survivors where I work. :-)

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8122
   Posted 12/20/2007 3:11 PM (GMT -7)   
This is a good thread. Good job Strictlyinc. Awareness starts with us. For my thoughts on it you can go my blog at www.caringbridge.org/visit/tonycrispino and click on "Journal" at the top and look for the captioned "Blue Ribbons, Blue Wrist Bands, Blue Skies...". I do get asked about the ribbon which is actually a small pin shaped as a ribbon. Interesting results.

Tony
Age 45 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007
Post-Op Pathology was poor: Gleason 4+3=7, 4 positive margins, Stage pT3b (Stage III)
HT began in May, '07 with Lupron and Casodex 50mg
IMRT radiation for 38 Treatments ending August 3, '07
 
My PSA did drop out after surgery to undetectable.  It has not returned and I will continue HT until January '08.
 
My Life is supported very well by family and friends like you all.
 
Visit my journey at:
 
STAY POSITIVE!


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 12/23/2007 6:34 PM (GMT -7)   
I put one on the day it arrived. It has NEVER been taken off. I had to get a little snippy with a Dr. once who tried to removed it!!!
Dx'd 2/18/05
PSA 219, bone mets, lymph node involvement
Gleason Score: 7
Current (11-17-07)
PSA: 23
Lupron, Keto, Avodart

www.flhw.org


M.E. Theophilus
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Date Joined Dec 2007
Total Posts : 5
   Posted 1/8/2008 9:29 AM (GMT -7)   

...and as a follow-up, my blue bands came in, and I've been wearing one ever since.  I gave one to my pastor and another church bud...and one to my middle daughter.

 

As an aside, I had my first post-surgery PSA test results come back today:  0.004. :-)

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