ED recovery how true it is

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samadabad
New Member


Date Joined Nov 2007
Total Posts : 10
   Posted 12/23/2007 2:27 PM (GMT -6)   
Intrested to learn more from others on their ED recovery after prostate sugery. What are the experiances?
I had my surgery on Nov 29th, 7 weeks since and have some minor incontenence. At this time I am full ED with or without pills but have all my desire and sensations but no ercition at all.
I have read that many people claim they have ercition after 3-4 weeks and or early few months, and just woundering how true it is.
 
54 YO, PSA 5=>4.1=>3.9 and biopsy with 30% of 1/10 sample positive. Had no problem what so ever before and all I had was a yearly Physical leading to deVinchi nerve sparing prostate removal and Now ED.
 
Thanks for reading

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2366
   Posted 12/23/2007 4:13 PM (GMT -6)   

Regarding continence/potency, as one famous prostate cancer surgeon put it to a member here: "It's all in God's hands".  You'll find that a few regain continence and/or erectile function literally right away.  For most these return (often with assistance) over a period of weeks/months/years following surgery, brachytherapy or other treatment.  For some incontinence and erectile dysfunction remain.

I was healthy and had relatively no erectile dysfunction prior to my open prostatectomy. I regained continence in about a month, but ED remains at 18 months.  We have found that penile injections are required.  For me, the adage 'Time and patience, patience and time' is true.

Take care and hang in there...Tim

 

 



Age 59 PSA 2.6 (PSA velocity--quadrupled in 1yr) Stage T1c
Bilateral nerve-sparing open RRP 6/21/06  Gleason 5
Cancer confined to prostate, post-op PSA's non-detectable


Izzyblizzy
Regular Member


Date Joined Oct 2006
Total Posts : 411
   Posted 12/23/2007 7:59 PM (GMT -6)   
It is 7-8 months out for us, and although continence returned at about 6-8 weeks, the ED has been slower.

We have done cialis and viagra at beginning, and then the pump, and then the shots.

The shots are working! Although we are not having intercourse every day, Ken still does some cialis and pump treatment on the off days. It is coming back. We are still hopeful one day it will come back with just medication or nothing.

Our first real intercourse was about 7 months after surgery, with help of trimix. It was great, long awaited. But just like incontinence, it seems like all of sudden things start to work again.


Age: 63
Diagnosed: 10/30/06
PSA: 3.7 (2005: 3.4, 2004: 4.0)
Biopsy: 1/10 cancerous, 5% of one core, right apex.
Gleason: 3+3=6
Da Vinci: April 10, 2007, Denver CO
Path results: 1% of prostate involved. Very small tumors on both right and left apex. Negative margins, negative seminal vessicles, lymph nodes left intact. Gleason upgraded 3+4=7.
1st PSA Results: May 11, 2007 <.01
 


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 12/24/2007 11:01 AM (GMT -6)   
We are 16 months post surgery and you can see from below what the progression has been. Jeff now gets an erection with Viagra and stimulation - it is not as firm as before surgery, but we can have intercourse any way we want! it has been a slow progression and many times we were very impatient. he still has a dribble here and there, usually when we are starting to "play" around. be patient and realize that it is very different for everyone, but there are treatments for just about any degree of ED. take care, kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 12/24/2007 11:53 AM (GMT -6)   
I had surgery 12 months ago and was dry the day after the catheter came out. I had ED before cancer and used Levitra.

I had nothing but "flat tires" until about 5 months past surgery. I used L-Arginine and Viagra almost daily and finally started getting some response. I started using Trimix injections at 7 months and found it very successful for good erections and intercourse with no pain. Currently I can get a useable erection without the shots but it is inconsistent. So I still use the shots for sex.

Sex is better now than it was before surgery because we communicate more. We had to when I couldn't get it up. My wife wanted sex so we came up with some new and, for us, innovative ways of doing it. Also the orgasms are more intense and last longer now. A much improved sex life is one of the plusses of having PCa. The other is that I can pee like a sixteen year old again.

My goal is to get to be better than I was before cancer. My doctor told me that due to my age I would not be able to get any better than that. I consider this to ba a challenge and will prove him wrong - again.

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 10/17/07 0.00. 
Next PSA test on 1/15/08
 
"Patience is essential, attitude is everything."
 


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 12/24/2007 12:33 PM (GMT -6)   
Well I am 11 1/2 months post surgery and have everything working well. I would say I had my first real erection about 6 to 8 weeks post surgery and was lucky enough to achieve these without the aid of any help they occured on thier own with a little help and today very little problem. As for the incontenence issues those really seemed to clear up more at about 15 weeks post surgery as that is when I put the pads away. Things are as close to normal as before surgery but I do notice when I have a couple of beers or wine when I need to go it's harder to hold on to that as from before.

So in my case the ED issues started to improve greatly at abut 8 weeks post surgery and the incontenence while never really bad cleared up at about 15 weeks.

Hang in there, time is the great healer and it does get better with each day. I remember feeling really well for a couple of weeks and then a day would come back and I had a little more incontenence issues again but these pass with time and healing.

Norskie
norskie
Age 49, PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Pathology report 3+4=7 some agressive 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
Catheter removed 1-18-07 suffered bladder spasms Catheter reattached 1-18-07
Catheter removed 2nd time 1-24-07
1st Post PSA Blood Test 3-22-07 <.1 Undetectable
2nd Post PSA Blood Test 7/5/07 <.1 Undetectable
3nd Post PSA Blood Test 11-12-07 .2 monitoring
Next Poat PSA Blood Test Scheduled for 1-17-08
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 12/24/2007 12:59 PM (GMT -6)   
I am at 3 months post surgery and have been continent since a couple days past catheter removal.  I am still fully ED.  I started Viagra the night of catheter removal, with 100 mg each 7th day, with atttempts at stimulation and intercourse, to no effect.  At 6 weeks, I began using a pump, and continued the Viagra.  At 3 months, I have had no erections of any kind.  The best I can boast of is a more fuller penis of  the mornings after showering.  No nocturnal erections either.  I have the desire for sex and the ability to orgasm, even if with no erection.  That feat requires much more stimulation than before, but it is attainable.  We have managed to have intercourse one time, using the pump and really small bands.  My problem now is two fold- no erection and no valve action to keep the blood in the penis, maintaining any erection attained with a pump.  I return to my Doc Thursday and will ask to start injections then.  I firmly believe that recovery of nerves and blood flow is attainable with stimulation and work to keep the organ and vessels alive and in their best condition possible.  Some studies say that injection therepy begun early has the most effect on regrowing nerves and attaining function again, above pills or pump, so I am gonna do it for that reason. 

James C. 
 
Help support the forums so they can support you:  http://www.healingwell.com/donate 
 
Age 60 
4/19/07   PSA 7.6, referred to Urologist, recheck 6.7 06/05/07
7/11/07   Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07   Path report:  3 of 16 PCa, 5% involved, left lobe , GS 3/3:6. 
9/24/07   Retropubic Radical Prostatectomy performed 
9/26/07   Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
10/15/07  ED- 25mg Viagra nightly-no joy 
10/19/07  Dry 24 hrs, pad at night just in case
11/15/07  ED-continue 25mg Viagra, no response, begin Vacorect pump-
11/15/07  1st PSA-0.01, fully continent- no pads
12/17/07  ED- 3 mts.-continue Viagra and pump-no change-no response


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/24/2007 1:51 PM (GMT -6)   
I had fully usable erections within a few months of RRP surgery using 100mg viagra. Now, 14 months post op have some usable erections without viagra. Incontenace remains! Still using 3-6 full pads a day. If I drink caffeene it is more! Use condoms to help control leaking.
Just hang in there and keep working.

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


puget
Regular Member


Date Joined Mar 2007
Total Posts : 237
   Posted 12/24/2007 5:52 PM (GMT -6)   
Boy, every story is a little bit different! I'm almost 7 months post-surgery. Started viagra immediately after catheter removed but had no (or verrry little) response for the first three months. Since then, I've seen slow, gradual improvement. Very slow. At this point, I can achieve a marginal erection with 100 mgs. Still no spontaneous erections, although I'm beginning to experience morning "chubbies," which is encouraging. My Dr continues to reassure, but the "patience, patience" thing is beginning to wear thin! I guess we have no choice but to keep trying and waiting.
Puget
60 years old
Dx March 2007
Pre-Surgery Gleason 3+3 = 6
Clinical Stage: T1c
Biopsy: 1 in 10 positive
Da Vinci: June 7, 2007 
Post-Surgery Gleason 3+3 = 6
   Clear at margins
First Post-PSA Sept 07 = <.01 (Hooray!!)


JCL
Regular Member


Date Joined Jul 2007
Total Posts : 242
   Posted 12/26/2007 7:58 AM (GMT -6)   
I was one of the lucky ones and was out of the pads at five weeks, although I still experienced some small, infrequent stress incontinence that still occurs, but it's so small and infrequent that it's not an issue. Although I was put on Viagra immediately after the catheter was removed, I didn't try any stimulation until the leaking stopped enough to where I wouldn't leak any urine upon climax. That was about at six weeks post op. Seven months post op I can sometimes achieve an erection without Cialis, although I'm not ready to throw out my prescription yet since I still need it.


Diagnosed: March 25, 2007
Biopsy: Gleason 6. Five of twelve core samples positive with <5% each. No perineural invasion seen.
Surgery: May 21, 2007
Post-op Pathology: Upgraded to Gleason 7 (3+4), negative margins, negative capsular penetration, negative seminal vesicles, lymph nodes left intact, multifocal perinural invasion, 15% of prosate involving cancer in both lobes.
Continence: Out of pads at five weeks. Seven months post-op I'm fully continent.
Erections: Yes! With the assistance of Cialis.
Post Surgery PSA: Two tests, both <0.1
Family history: My Father had his prostate removed at age 67 in 1997 and has had a <0.1 PSA for the past 10 years. I was diagnosed at a much earlier age and had a more agressive cancer than my father. Go figure.

Post Edited (JCL) : 12/26/2007 6:09:15 AM (GMT-7)


charlieo
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/26/2007 8:20 AM (GMT -6)   
Hi, I'm new to this site, had HIFU surgery in Canada last June, which I will talk about if anyone wants, have real minor incontinence, not able to achieve erections on my own yet but using tri-mix with tremendous results, feeling like I'm 21 again and I don't mind the needle as the results are astounding. Talk later charlieo

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/26/2007 1:40 PM (GMT -6)   

Take heart, samadabad.

 

Achieving No ED at 3-4 weeks is VERY unusual.  My surgeon says that it sometimes will often take 12-24 months for this problem to resolve, depending on the results of the nerve sparing technique and how your body responds. 

 

As you can see, there are many others here with varied experiences and your's will be different as well.  Since it is so early in the game, the best thing to do is to continue to ask questions with your health care professionals and seek what you should be doing for rehab.

 

Has you surgeon or doctor suggested any kind of rehab program with ED pills and/or a Vacuum Erection Device (VED)?

 

You may wish to also consider a taking a vitamin B Complex to aid in nerve rehab.

 

Kind reagards,

 

Barry


"Idaho" ~ Barry

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  9/11/2007   <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

My web site: http://pca-info.blogspot.com


Nasha
Regular Member


Date Joined Dec 2007
Total Posts : 42
   Posted 12/26/2007 6:07 PM (GMT -6)   
Just remember that each individual has their own unique healing time line. Try not to compare yourself to others (I realize that's virtually impossible)
 
Prior to surgery ED was never an issue.
It was 11 months post surgery before we had a really usable erection (with Viagra). The 11th month was such a turning point. 
 
 Prior to that, my husband used the pump for a while, and tried the injections. The injections were awful--very painful, and thus unsuccessful. We did everything to stimulate the blood flow.
Just remember that if you take Viagra,  be sure you have an empty stomach---that made all the difference.
 
Again, everyone is different, be patient, try to relax as much as possible and good luck!
 
Nasha
fibro, PTSD, depression/anxiety, mitral valve prolapse, high blood pressure,
peripheral neuroma (3 surgeries on right wrist)
 
 
accupril, xanax, percocet, wellbutriun


tomagolfing
New Member


Date Joined May 2007
Total Posts : 5
   Posted 12/27/2007 12:26 PM (GMT -6)   
 I agree with Nasha. Doing injections ( trimix ) for 7months but very painful. Recently had priapism and had to go to ER. My doctor stated the priapism was a positive sign and that the nerves are beginning to heal. I am now going to try Viagra and or Cialis and hope to  have positve results without the pain.

geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 12/29/2007 11:46 AM (GMT -6)   

I am now ten months without any natural erections.  I feel tingling and some slight movement and hope an erection will develop from the feeling but nothing has happened.  I guess it is my hormones kicking in once in a while.  I have developed however some strength in penis head feeling good from kegels, but no normal erections.  I will continue to wait this out, continue with the pump for exercise and trimix.

Has any any knowledge if oral stimulation helps in developing natural erections?  We have not tried this method as it does not sem right for some reason.  Anyone have experience with oral?

Thanks and a healthy New Year.

 

 


64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Tried Viagra 100mg on occasion-no erections.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25 to 11/6/07.
Vacuum pump daily/twice a day 8/2 and going - no help.
Begin Trimix injections, two low dose per week, 11/05/07.
Currently, vacuum pump and low dose Trimix twice per week each.
Trimix in office - 0.10cc.  Low dose set at 0.05cc
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
 
Geon


Nasha
Regular Member


Date Joined Dec 2007
Total Posts : 42
   Posted 12/29/2007 12:38 PM (GMT -6)   

Any mutually agreeable activity to bring blood flow to the penis is a good thing! Oral stimulation can certainly help, but sometimes it doesn't---it just depends. My husband has found that getting erections are now much more of a "mental" feat than prior to surgery (DaVinci, nerve sparing, clear margins Sept. 06).

Things continue to improve..he can take just a half or a third of a Viagra with wonderful results.

Also, be careful of trimix--that can lead to a "bend" in the penis which is irreversible.


fibro, PTSD, depression/anxiety, mitral valve prolapse, high blood pressure,
peripheral neuroma (3 surgeries on right wrist)
 
 
accupril, xanax, percocet, wellbutriun


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 12/29/2007 1:27 PM (GMT -6)   

Nasha,

Thank you for your reply.  I will take your advice and see how it presents itself on such a delicate issue.  I suppose that anything in reason is worth a try.  A new experience I suppose.

Has your husband run into a situation with a bent penis?  I have been using trimix every third day sometimes for use and some time for simple blood flow.  In your experience, is this excessive?  Are there any preliminary signs?

I believe your husband in the mental issue.  Audio, visual stimulation that was a real turn on in the past is not effective any longer.  Mental and manual stimulation appears to be effective now.

Thanks again for your openess,

Geon


64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Tried Viagra 100mg on occasion-no erections.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25 to 11/6/07.
Vacuum pump daily/twice a day 8/2 and going - no help.
Begin Trimix injections, two low dose per week, 11/05/07.
Currently, vacuum pump and low dose Trimix twice per week each.
Trimix in office - 0.10cc.  Low dose set at 0.05cc
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
 
Geon


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/29/2007 1:48 PM (GMT -6)   
I have a slight bend to the left now. There also seems to be somewhat of a flat spot on the underside of the shaft about half way up! That is where the bend is. Not sure what caused it. Could have been the 28 cathiter days? I did loose my left side nerves! Who knows! At least it is working. Sometimes without Viagra! I will make sure to try next time on an empty stomach. Swim told me to stay away from fatty foods and wait atleast two hours.

Good Luck All,

KW
    43
    PSA 5.7 - Discovered during Annual Physical with Family Practice Dr.
        Biopsy Sept. 27, 2006 - Diagnosis Sept. 29 - 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
        RRP on Oct. 17, - Nerves on right side saved.
    All Lab's clear.  No Cancer outside prostate
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00
    Office visit on Jan. 19th due to continued excessive urine leakage.
    Feb.20th Cystoscope and 2nd Post Op PSA. Another 0.00.....:)
    Dr. said everything looks fine.  Continue to work Kegeal's. Leaking appears to have improved  after Cystoscope?!?!?!  Down to 3-4 pads per day!
    March 1st  Leaking has crept back up to 6 - 8 pads a day ??????? 
    March 29th Collagen injection into sphincter / bladder neck area to control excessive leaking.  Worked for a couple of days then back to leaking.
    April 17th (Six Months Post Op) 2nd Collagen Injection to control excessive leaking.  Leaking started back next day at work!
    May 14th Second Opinion about my leaking and Options at OU Medical Center.  After reviewing my records the Dr. feels I will probably need some surgical intervention to stop my leaking.  But did agree to try Bio-Feedback and work hard on the Kegeal's first!
    May 30th Follow up with my Dr. and 3rd Post Op PSA 0.00 agian!!!
    June 1st Start Bio-Feedback to try to control my leaking.
    Oct 17, 2007 1 year Post Op - Still fighting moderate / Severe incontenance. Using 4-6 pads a day.  Erections usable....sometimes!  Almost like before with 100mg Viagra!
    December 5th, 4th post op PSA 0.01!?!?!?   Is that still a 0?  Still leaking!!!!
   


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 12/29/2007 1:55 PM (GMT -6)   
My signature has details, but basically I am 17 months past surgery. Recovering from Peyronie's (bent penis in non-technical terms). Peyronie's has reversed, largely. Erections are "weak and wimpy" with PDE5 inhibitors, and just OK with VED. Using Bimix I do get quite good erections, but I waiting for one more follow-up with the urologist treating me for Peyronie's before I use them frequently (and the frequency is a question for me).

Wondering if I will ever get to the point of having suitable erections without VED or injections... but keep pressing on.
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .545 (5 for 9)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."


charlieo
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/29/2007 3:35 PM (GMT -6)   
Hi everyone, been following the thread and thought I'd add my expeiences. All the pills did for me was give terrible heartburn, the VED seemed ridiculous and humiliating. After my 3 month psa my uro gave me trimix, am batting 1.000 with it. At first I didn't even feel the needle as my nerves were quite probably damaged. Now, I feel it though not extremely painful, it's been almost 3 months. I am developing tracks like a drug user might develop, but not too many people see it. Had a psa of 7.8, gleason of 3+3=6 and T1c stage and HIFU on 6/28/07 cath. removed 7/12/07. I fond oral stimulation to be very soothing during the healing process and would have soft and dry orgasms. My uro's opinion is "Lose it or lose it!" and was very cooperative about prescribing the trimix. The number of pads a day thing is subjective I believe... What was your level of activity? Fluid intake? Comfort level? I change mine alot because I like to. There is a new member in my support group that ran a marathon 2 1/2 weeks after laproscopy and was saying how his socks were wet, my thoughts were "Do you ever expect to heal like that?" Face it our bodies went through shock with whatever procedure we chose and there are  now things we used to take for granted that now take a lot of thought, less as we heal. Happy New Year  charlieo

AndrewJ
Regular Member


Date Joined Jul 2007
Total Posts : 25
   Posted 12/30/2007 11:10 AM (GMT -6)   
I am very conscious of not "boasting", but think it is important to relate my good experience to show that it is possible. In the darkest days between diagnosis and surgery I was introduced to someone who had very good outcomes with continence and ED after surgery and this gave me some hope that what I was about to go through may not be as bad as I feared. Maybe my story can also give others some hope.

My surgeon was very motivated to address ED issues (one reason why I chose him) and started me on a daily mini dose of Levitra the evening before surgery and this continued for the weeks after surgery. I will never know if this had anything to do with it, but I awoke with a "half" erection during the night after the catheter was removed and full erections not long afterwards. I stopped daily "rehabilitative" 5mg doses of Levitra after a month or so. Even though everything is pretty much like it was pre-op, I still use 5mg Levitra "as required" as a safety net and am only now thinking of winding this back.

I know I have been very fortunate and this stops me getting down about the whole experience of PCa. Everyone has their own individual story here and I wish all the very best to guys struggling with this issue. I do suspect that there are more good stories than it seems from this forum - perhaps the people without issues tend to move on and not post. I would simply like to provide some hope to others facing surgery and worried that it will definately mean a lower quality of life.
45 years old, Australian living in Germany
PSA: started around 3.5 in 2005, 6.1 at time of surgery
Biopsy: nothing found in 2006, 3 May 2007 3 of 24 cores positive, Gleason 3+3 or 3+4 depending on pathologist
RPE in Munich, Germany on 22 June 2007
Post surgery pathology: organ confined but less than 1mm from margins, Gleason 3+3, pT2c, Lymph nodes removed and clear
First post-surgery PSA 31 July 2007: 0.01 Confirmed in September and again in December.
Fully continent immediately after removal of catheter on Day 8.
No potency issues & looking at discontinuing small doses of Levitra "as required". (Still holding onto it as my security blanket.)
This man knows he has been VERY lucky.


Nasha
Regular Member


Date Joined Dec 2007
Total Posts : 42
   Posted 12/30/2007 1:52 PM (GMT -6)   
Geon,
My husband used trimix approximately 5 times. The erections just were not "right" and as I previously said, they were very painful for him, thus unusable. We detected a slight curve which gradually diminished over time.
We're finding Levitra to be very effective---some spontanaity has returned since it can be taken shortly after eating. (unlike Viagra).
fibro, PTSD, depression/anxiety, mitral valve prolapse, high blood pressure,
peripheral neuroma (3 surgeries on right wrist)
 
 
accupril, xanax, percocet, wellbutriun


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 357
   Posted 12/30/2007 5:27 PM (GMT -6)   
For those having pain with Trimix, you may want to try Bimix, which does not contain prostaglandin. That ingredient caused me pain.
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on daily Cialis, L-arginine and pentoxyfylline. Peyronies has stabilized and significantly reversed.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .600 (6 for 10)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."


charlieo
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 1/2/2008 10:39 AM (GMT -6)   
 Has anyone done traveling with trimix? My partner and I are going to Central Amer. in Mar. and was wondering about how to care for it, refigeration that is while traveling, airplanes etc. Does anyone know the shelf life of it unrefrigerated? A few cool paks in check on baggage should suffice I assume any help?   charlieo

Pete42
Regular Member


Date Joined Mar 2007
Total Posts : 114
   Posted 1/2/2008 9:11 PM (GMT -6)   
I have traveled with the trimix, with a few cold packs in a ziplock then refrigerate on arrival. No problems.

Diagnosed 1/26/07
Stage Tc1
Gleason 6
PSA 3.8
12 samples, positive in one 15%
Biopsy - 1% involvement, no bladder neck, Gleason 3+3, Tc1
Age 51
Surgery (robotic) May 4 2007 City of Hope
Final pathology - fully contained to prostate, TC1, Gleason 3+ 3
Fully continent one month
First Post op PSA - Undetectable
Second Post Op PSA (8/22/07)- Undetectable
ED- start injections 10/06/07
3rd Post op PSA 11/7 - Undetectable
 

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